I have been on 2mg er ropinerole for 10+ years - up and down on doses; mixed with a variety of other low dose meds; became 'refractory' a while ago - my RLS is advanced and has been so for 15+ years.
I retired 2 years ago and decided it is time to finally be liberated from the evil 'R". ... I have begun to augment again. Scary stuff.
I am in the process of transitioning to 100% low dose Methadone (from 2mg er ropinerole/5mg Methadone).
My doc. tells me I should not experience heavy Ropinerole withdraw, which I do not quite believe. He is recommending I 'transition dose' immediately at 20mg Methadone (5mg every 6 hours); and because I am at the lowest ER level - to stop the Ropinerole cold turkey.
And while I understand the transition process, I have a number of questions about this and cannot find any info in the RLS literature answering these.
1. What does Ropinerole withdraw actually feel like?
2. How do I know I am through withdraw?
3. Will 10-20mg daily Methadone dosing actually be able to manage most of my RLS ongoing symptoms?
It has now been 48 hours without Ropinerole and I experienced itchy skin which drove me a bit crazy; headaches. This seems to have subsided today. IS this IT? Or what should I expect?
HOWEVER, even with the relatively high Methadone dosing - when I lay down to sleep the first two nights, my legs tremble, cramp and dance most of the night - keeping me brutally awake. All night. The Methadone masks the insanely uncomfortable RLS tingling and burning symptoms (yeah!) BUT after around 5.5 hours, I have to dose or go crazy.
Does anyone have enough experience with methadone to answer these questions?
1. Is this just transitional period? Will my leg trembling, cramping actually go away with Methadone? Or is something else going on?
2. Does Methadone only deal with the 'pain' symptoms; and not the trembling/cramping/jerking? Or do I have to be on another additional RLS med to manage these particular symptoms?
HELP!