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Short episode for tonight. Mum's life has not always followed a smooth course and she has never been one to complain. It was only after several months of poor vision that she finally went to the optician only to discover too late that she had a badly detached retina. She was quickly admitted to hospital
Short episode for tonight. Mum's life has not always followed a smooth course and she has never been one to complain. It was only after several months of poor vision that she finally went to the optician only to discover too late that she had a badly detached retina. She was quickly admitted to hospital
LissacFrance
in
Lung Conditions Community Forum
5 months ago
Thyroxine uptake and Ehlers Danlos Syndrome
Hi all, any experience or advice on this would be much appreciated. I have been on thyroxine for 25 years since having Hashimotos at the age of 29. I've also been diagnosed a while ago with Ehlers Danlos Syndrome and Fibromyalgia (both connective tissue disorders.) My new GP is messing about with
Hi all, any experience or advice on this would be much appreciated. I have been on thyroxine for 25 years since having Hashimotos at the age of 29. I've also been diagnosed a while ago with Ehlers Danlos Syndrome and Fibromyalgia (both connective tissue disorders.) My new GP is messing about with
hcmoss68
in
Thyroid UK
2 months ago
7 days off Pramipexole
Two months ago I finally found a doctor (addiction specialist) who read all the literature I gave him (from this site) and he was very understanding and prescribed me the suboxone film. I’m taking 1/7 of the film each day and it has enabled me to get to this point of no Pramipexole! I kinda thought
Two months ago I finally found a doctor (addiction specialist) who read all the literature I gave him (from this site) and he was very understanding and prescribed me the suboxone film. I’m taking 1/7 of the film each day and it has enabled me to get to this point of no Pramipexole! I kinda thought
Itsatom
in
Restless Legs Syndrome
2 months ago
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For those considering methadone
hi again everyone, I just want to give a quick update for anyone who may be considering methadone. After trying many other drugs, and after augmentation and withdrawal from dopamine agonists, I started mid Feb on 2.5 mg methadone and have titrated slowly over 4 months to allow my body to get used to
hi again everyone, I just want to give a quick update for anyone who may be considering methadone. After trying many other drugs, and after augmentation and withdrawal from dopamine agonists, I started mid Feb on 2.5 mg methadone and have titrated slowly over 4 months to allow my body to get used to
Mongolia2020
in
Restless Legs Syndrome
2 months ago
HELP Please
How do I find a GP who knows about RLS. I have been back again to my GP as I'm now in server pain all the time which has sent my RLS into overdrive, I'm not sure if I'm in augmentation, she said she would give me an antidepressant to lift my mood!!. I explained that they will make my RLS worse and
How do I find a GP who knows about RLS. I have been back again to my GP as I'm now in server pain all the time which has sent my RLS into overdrive, I'm not sure if I'm in augmentation, she said she would give me an antidepressant to lift my mood!!. I explained that they will make my RLS worse and
Marymill
in
Restless Legs Syndrome
2 months ago
How long to wait for trabeculectomy?
I'm wondering how long people have waited for a trabeculectomy operation, once they have been told they need one, either through NHS or going private? I'm asking because when I saw my consultant ( privately) in Feb he said that the visual fields test showed there was some deterioration ( normal tension
I'm wondering how long people have waited for a trabeculectomy operation, once they have been told they need one, either through NHS or going private? I'm asking because when I saw my consultant ( privately) in Feb he said that the visual fields test showed there was some deterioration ( normal tension
Iona57
in
Glaucoma UK
5 months ago
Biologic and methotrexate injections
hi I have had an infection and had to delay my methotrexate by a few days which is fine apart from it’s now on the same day as my Biologic/Adalimumab. Does anyone know what time gap there should be between the two injections? Thank you x
hi I have had an infection and had to delay my methotrexate by a few days which is fine apart from it’s now on the same day as my Biologic/Adalimumab. Does anyone know what time gap there should be between the two injections? Thank you x
Amb1xkr
in
NRAS
5 months ago
Exercise that often helps
Although I have experienced intensification of RLS symptoms after heavy, prolonged daytime exercise, paradoxically I have sometimes found significant relief with short bursts of fairly intense calisthenics when symptoms hit at night. As mentioned elsewhere, I have had RLS since my teens. By about age
Although I have experienced intensification of RLS symptoms after heavy, prolonged daytime exercise, paradoxically I have sometimes found significant relief with short bursts of fairly intense calisthenics when symptoms hit at night. As mentioned elsewhere, I have had RLS since my teens. By about age
Cedarish
in
Restless Legs Syndrome
2 months ago
Unsure how to proceed after flare continues
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
Donna5658
in
PMRGCAuk
5 months ago
help with results please
I’d be grateful if anyone could help with results please. I’m on combined therapy 50mg T4 and 35mg T3 TFT 0.02 (0.35-4.94) FT3 4.5 (2.4-6.00) FT4 8.1 (9.00-19.00) B12 433 (187-883) Vit D 126.1 >50 Thank you :)
I’d be grateful if anyone could help with results please. I’m on combined therapy 50mg T4 and 35mg T3 TFT 0.02 (0.35-4.94) FT3 4.5 (2.4-6.00) FT4 8.1 (9.00-19.00) B12 433 (187-883) Vit D 126.1 >50 Thank you :)
Bollieforme
in
Thyroid UK
5 months ago
Diabetic and Eye Damage
I have been insulin dependant diabetic for 40 years, which has been the cause of my eye conditions. I was one of the first patients my consultant gave eye injection, I've had three steroid implants, lots of Lazer and eye injections. Last year I had a sever bleed at the back of the eye resulting in
I have been insulin dependant diabetic for 40 years, which has been the cause of my eye conditions. I was one of the first patients my consultant gave eye injection, I've had three steroid implants, lots of Lazer and eye injections. Last year I had a sever bleed at the back of the eye resulting in
123charl
in
Macular Society
5 months ago
Headaches!
Hi everyone.....I'm started my PMR journey middle of January so have only been on Prednisolone for 6 weeks... I started on 20mg and now on 10mg I did up dosage for 2 weeks so was taking 12mg because I felt poorly... But my question is I've had a headache almost constantly for weeks....is it the press
Hi everyone.....I'm started my PMR journey middle of January so have only been on Prednisolone for 6 weeks... I started on 20mg and now on 10mg I did up dosage for 2 weeks so was taking 12mg because I felt poorly... But my question is I've had a headache almost constantly for weeks....is it the press
Tescohednesford
in
PMRGCAuk
5 months ago
At a loss
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
Tree1228
in
Restless Legs Syndrome
2 months ago
levodopa and augmentation
I have had RLS for over 10 years and controlling symptoms with oxycodone. I have also been diagnosed with Parkinson’s disease and prescribed Levodopa. Can someone please confirm whether or not this is a dopamine agonist like Pramipexole. If so does it also lead to augmentation?
I have had RLS for over 10 years and controlling symptoms with oxycodone. I have also been diagnosed with Parkinson’s disease and prescribed Levodopa. Can someone please confirm whether or not this is a dopamine agonist like Pramipexole. If so does it also lead to augmentation?
Covenant1962
in
Restless Legs Syndrome
2 months ago
Solving Restless Legs
Medscape have a report issued on June 14th on some new interesting research It is entitled; Solving Restless Legs: Largest Genetic Study to Date May Help and is written by Lisa Marshall and published in Medscape June 14, 2024 I think it is worth our while to know something about it so for
Medscape have a report issued on June 14th on some new interesting research It is entitled; Solving Restless Legs: Largest Genetic Study to Date May Help and is written by Lisa Marshall and published in Medscape June 14, 2024 I think it is worth our while to know something about it so for
thorp
in
Restless Legs Syndrome
2 months ago
RLS treatment Australia
Here is the latest I can find on treatment recommendations in Australia. It is consistent with the latest US advice and includes the option of opiods as last line treatment in refractory (including augmented) RLS. https://www1.racgp.org.au/ajgp/2023/september/restless-legs-syndrome To my mind it does
Here is the latest I can find on treatment recommendations in Australia. It is consistent with the latest US advice and includes the option of opiods as last line treatment in refractory (including augmented) RLS. https://www1.racgp.org.au/ajgp/2023/september/restless-legs-syndrome To my mind it does
ChickenTwisty
in
Restless Legs Syndrome
2 months ago
Statins
Hello again, I have just been told my cholesterol has increased since stopping Atorvastatin and went onto Ezetimibe. The want me to start on 5mg of Rosuvastatin will this affect my RLS?
Hello again, I have just been told my cholesterol has increased since stopping Atorvastatin and went onto Ezetimibe. The want me to start on 5mg of Rosuvastatin will this affect my RLS?
Keith1231
in
Restless Legs Syndrome
2 months ago
Tapering with a high ESR Reading?
My GP rang me yesterday because my ESR reading was 48 in a range of 1-30. He suggested I should increase the Pred. Because my cataract operation was cancelled for a fourth time yesterday, I dropped to 7 mg yesterday after being told, from 31 days on 7.5mg. I have read that ESR could denote
My GP rang me yesterday because my ESR reading was 48 in a range of 1-30. He suggested I should increase the Pred. Because my cataract operation was cancelled for a fourth time yesterday, I dropped to 7 mg yesterday after being told, from 31 days on 7.5mg. I have read that ESR could denote
Motida
in
PMRGCAuk
5 months ago
frustrated and anxious re appt
just feel this Is a safe space to have a rant was diagnosed beginning of October with NTG ( quite a lot of damage already , nerve damage, some peripheral vision loss ) Started on medication and was due to have a follow up appt after. 2 months ( so should have been December) However the hospital
just feel this Is a safe space to have a rant was diagnosed beginning of October with NTG ( quite a lot of damage already , nerve damage, some peripheral vision loss ) Started on medication and was due to have a follow up appt after. 2 months ( so should have been December) However the hospital
Crafty-gran
in
Glaucoma UK
5 months ago
Sore dry eyes
Good morning folks. I’ve been switched from Latanoprost to Monopost drops for both eyes. Bilateral NTG. I was getting a lot of headaches, eye pain and swelling around my right eye and a duty A&E ophthalmologist suggested I could be reacting to the preservatives in the Latanoprost drops. I’ve been on
Good morning folks. I’ve been switched from Latanoprost to Monopost drops for both eyes. Bilateral NTG. I was getting a lot of headaches, eye pain and swelling around my right eye and a duty A&E ophthalmologist suggested I could be reacting to the preservatives in the Latanoprost drops. I’ve been on
Maisie79
in
Glaucoma UK
5 months ago
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