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Confession
Some of you have reached out to me and have asked after hubby so I thought I would start a new post. Thank you for asking and for your concern. It’s been about 5 months since I last checked in. To be honest I needed an escape from seeing how many newbies have had a need for this site, how many people
Some of you have reached out to me and have asked after hubby so I thought I would start a new post. Thank you for asking and for your concern. It’s been about 5 months since I last checked in. To be honest I needed an escape from seeing how many newbies have had a need for this site, how many people
SewBears
in
PSP Association
4 years ago
Starting Soon: Reducing Misery From Prostate Cancer: Palliative Care for Patients
https://youtu.be/4scjZAMtUyA Reducing Misery From Prostate Cancer: Palliative Care for Patients Pauline Filipou MD
https://youtu.be/4scjZAMtUyA Reducing Misery From Prostate Cancer: Palliative Care for Patients Pauline Filipou MD
Darryl
Partner
in
Advanced Prostate Cancer
4 years ago
Introducing myself to your Community.
As a newbie to this community, I am not new to to HU, as I have a large number of co-morbidity diagnoses, some of which have included the word ‘atrophy - ie. brain atrophy and muscle atrophy. I am exploring this trust forum to gain some more insight and understanding of your area of expertise and
As a newbie to this community, I am not new to to HU, as I have a large number of co-morbidity diagnoses, some of which have included the word ‘atrophy - ie. brain atrophy and muscle atrophy. I am exploring this trust forum to gain some more insight and understanding of your area of expertise and
Splodge60
in
Multiple System Atrophy Trust
4 years ago
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Dental problems and RA
I’m going to condense this down.. diagnosed 5 years ago 6 years ago had gum problems and problems with 2 teeth no decay no fillings only sensitivity on pressure . Nothing found , told sensitive teeth. 3 years ago RA activity increased so did gum problems still had the teeth sensitivity. Had to have
I’m going to condense this down.. diagnosed 5 years ago 6 years ago had gum problems and problems with 2 teeth no decay no fillings only sensitivity on pressure . Nothing found , told sensitive teeth. 3 years ago RA activity increased so did gum problems still had the teeth sensitivity. Had to have
Hidden
in
NRAS
4 years ago
Thomas Seyfried
Hello Darryl, I have been enjoying some of the interviews you've done. Thank you very much. I was wondering if you would ever consider interviewing Thomas Seyfried. I have read some of his work and specifically his theory about cancer being a disease of the mitochondria. As far as I can tell, he
Hello Darryl, I have been enjoying some of the interviews you've done. Thank you very much. I was wondering if you would ever consider interviewing Thomas Seyfried. I have read some of his work and specifically his theory about cancer being a disease of the mitochondria. As far as I can tell, he
Daveofnj
in
Advanced Prostate Cancer
4 years ago
Chronic constipation
Please help with some advice. My husband is having so much trouble with constipation. He has tried increasing fiber and liquids, stool softeners, Miralax, Metamucil, magnesium citrate, Senna, Linzess, etc. etc. The only thing that gets him actually going is Dulcolax. He has been to the emergency
Please help with some advice. My husband is having so much trouble with constipation. He has tried increasing fiber and liquids, stool softeners, Miralax, Metamucil, magnesium citrate, Senna, Linzess, etc. etc. The only thing that gets him actually going is Dulcolax. He has been to the emergency
Mjm012649
in
Cure Parkinson's
4 years ago
Good news - Stage IIIB
Hi all, just wanted to share good news. I have had clear scan results today after being diagnosed with Stage IIIB, non small cell, adenocarcinoma in 2014, aged 43. My prognosis at the time was poor and I was told I was inoperable, terminal and treatable with palliative care. Discussions were around
Hi all, just wanted to share good news. I have had clear scan results today after being diagnosed with Stage IIIB, non small cell, adenocarcinoma in 2014, aged 43. My prognosis at the time was poor and I was told I was inoperable, terminal and treatable with palliative care. Discussions were around
Janey_H
in
Lung Cancer Support
4 years ago
Dental treatment
I am due to have 2 fillings next week but the prospect of having to lie almost flat is worrying me. This is because I feel dizzy when lying flat or turning over in bed. I thought it was because of my AF or BP. However, I read that it could be caused by an inner ear condition . I am OK when standing,
I am due to have 2 fillings next week but the prospect of having to lie almost flat is worrying me. This is because I feel dizzy when lying flat or turning over in bed. I thought it was because of my AF or BP. However, I read that it could be caused by an inner ear condition . I am OK when standing,
Pippa80
in
British Heart Foundation
4 years ago
Fybromyalga
Help my doctor won't give me anything for my fybromyalga because I have been abroad, until I see a consultant but that's at least 12 weeks away. He gave me mirtazapine 3 weeks ago supposedly to help me sleep and for my IBS never heard of so much crap. I've was on everything going last year but had tried
Help my doctor won't give me anything for my fybromyalga because I have been abroad, until I see a consultant but that's at least 12 weeks away. He gave me mirtazapine 3 weeks ago supposedly to help me sleep and for my IBS never heard of so much crap. I've was on everything going last year but had tried
izzy15
in
Fibromyalgia Action UK
4 years ago
Dental Treatment on Venetoclax
I had a dental check up this morning as a back molar has crumbled - dentist will be able to do a filling. He also advised a scale and polish which I am more wary of as this can damage the gums leading to infection. He is fully aware of my CLL and medication and says he will be very gentle when near my
I had a dental check up this morning as a back molar has crumbled - dentist will be able to do a filling. He also advised a scale and polish which I am more wary of as this can damage the gums leading to infection. He is fully aware of my CLL and medication and says he will be very gentle when near my
Jooby59
in
CLL Support
4 years ago
Newbie. Advice needed
Hi, my mum has recently been diagnosed with Lung cancer. She has a tumour at the top of her right lung and two nodules on the left lung. She is inoperable. She got a biopsy last week and gets the results next week as to what stage it’s at and what the plan will be. The waiting is terrifying, she’s only
Hi, my mum has recently been diagnosed with Lung cancer. She has a tumour at the top of her right lung and two nodules on the left lung. She is inoperable. She got a biopsy last week and gets the results next week as to what stage it’s at and what the plan will be. The waiting is terrifying, she’s only
Christine2020
in
The Roy Castle Lung Cancer Foundation
4 years ago
Inhalers: what to take and when!
Hi everyone! Hope you are well and staying safe! This is more an infomercial for newbies to asthma than anything else! I know starting out it can be quite confusing as to what to take when, especially when it’s not been explained why, so thought I’d do a (hopefully) short post about it! INHALER DESIGN
Hi everyone! Hope you are well and staying safe! This is more an infomercial for newbies to asthma than anything else! I know starting out it can be quite confusing as to what to take when, especially when it’s not been explained why, so thought I’d do a (hopefully) short post about it! INHALER DESIGN
EmmaF91
Community Ambassador
in
Asthma Community Forum
4 years ago
Oral thrush and RA meds
I take sulphasalazine and methotrexate for inflammatory arthritis. Condition is fairly well controlled but I have suffered with oral thrush and resulting very bad breath for over a month. I have been prescribed Nystatin and am on my second week of using this although the taste makes me gag. Any advice
I take sulphasalazine and methotrexate for inflammatory arthritis. Condition is fairly well controlled but I have suffered with oral thrush and resulting very bad breath for over a month. I have been prescribed Nystatin and am on my second week of using this although the taste makes me gag. Any advice
Horse_and_hound
in
NRAS
4 years ago
Swelling in legs and inflamed veins
Hi all, Well I’m now through augmentation and completely off pramepexole and it’s been quite a journey. I’m seeing if anyone out there has suffered with swollen lower legs and feet after coming off pramepexole. I’ve also got phlebitis and my legs look horrible with purple/blue veins popping up. I’d
Hi all, Well I’m now through augmentation and completely off pramepexole and it’s been quite a journey. I’m seeing if anyone out there has suffered with swollen lower legs and feet after coming off pramepexole. I’ve also got phlebitis and my legs look horrible with purple/blue veins popping up. I’d
Pennyfarthing
in
Restless Legs Syndrome
4 years ago
BAT, dutasteride, and my search for truth, Part 1 of 2
I have received many helpful comments on my queries about BAT and dutasteride. Overall, the evidence favors continuing dutasteride during BAT (Nalakrats opined “I would use to defend against DHT, which would be increased. And I would watch E2, and not let it get out of the 20's.”) But I have trouble
I have received many helpful comments on my queries about BAT and dutasteride. Overall, the evidence favors continuing dutasteride during BAT (Nalakrats opined “I would use to defend against DHT, which would be increased. And I would watch E2, and not let it get out of the 20's.”) But I have trouble
cigafred
in
Advanced Prostate Cancer
4 years ago
Rectal bleeding/mucus
Hey I'm new here I have had problems for 2 months now with stomach pain and rectal bleeding. The bleeding has been on and off. I have been told its ibs and hemorrhoids but I have had 4 internal examinations done and never a hemroid felt. All my stoole samples have came back fine. Now the last week or
Hey I'm new here I have had problems for 2 months now with stomach pain and rectal bleeding. The bleeding has been on and off. I have been told its ibs and hemorrhoids but I have had 4 internal examinations done and never a hemroid felt. All my stoole samples have came back fine. Now the last week or
Clover1235
in
IBS Network
4 years ago
Bleeding almost constantly for 3 months
I started taking desogestrel contraceptive pill three months ago and have more a less bled continuously. I appreciate my body will take a few months to adjust, but this is inconvenient and getting me down. Should I persist?
I started taking desogestrel contraceptive pill three months ago and have more a less bled continuously. I appreciate my body will take a few months to adjust, but this is inconvenient and getting me down. Should I persist?
Bsrlondon
in
Women's Health
4 years ago
Mum just been diagnosed with psp
My mum has been treated for Parkinson's for the past 5 years, but now is in hospital virtually paralysed and we have been told she doesn't have Parkinson's she has PSP. I'm looking for any help and advice . Mum can't swallow, is struggling to even open eyes. She will be on palliative care when she comes
My mum has been treated for Parkinson's for the past 5 years, but now is in hospital virtually paralysed and we have been told she doesn't have Parkinson's she has PSP. I'm looking for any help and advice . Mum can't swallow, is struggling to even open eyes. She will be on palliative care when she comes
BrackenandTasha
in
PSP Association
4 years ago
Kidney Biopsy and igA nephropathy (UPDATE POST-BIOPSY)
Hi. I am due for a kidney biopsy next week and wasn't given much tips on what to prepare or not do post biopsy other than stay in bed for 6hrs. Doctor told me that I might have igAn based on my proteinuria and high hematuria. I am very concerned as I am only 24 years old and a female trying to start
Hi. I am due for a kidney biopsy next week and wasn't given much tips on what to prepare or not do post biopsy other than stay in bed for 6hrs. Doctor told me that I might have igAn based on my proteinuria and high hematuria. I am very concerned as I am only 24 years old and a female trying to start
agirlwithhope95
in
Early CKD Support
4 years ago
Copd and dental treatment
Hello all, I wanted to ask about tooth extraction and root canal work which I am due to have. I have severe copd and also anxiety. Great combo ! Please has anyone else had dental treatment like this with copd, does it hurt very much? Does it bleed a lot? What happens if I need to cough, oh just
Hello all, I wanted to ask about tooth extraction and root canal work which I am due to have. I have severe copd and also anxiety. Great combo ! Please has anyone else had dental treatment like this with copd, does it hurt very much? Does it bleed a lot? What happens if I need to cough, oh just
mickyjoan4
in
Lung Conditions Community Forum
4 years ago
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