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Help to do BAT treatment for my dad. Located in Norway.
Hello everyone! Writing on behalf of my father who is 67 yo and has prostate cancer. We are based in Norway. Prostatectomy done in March -17. Treated with Bicalutamide and Zoladex injection until rise in PSA 18 months ago. Increasing PSA from 6-12 on chemotherapy through last summer. September he was
Hello everyone! Writing on behalf of my father who is 67 yo and has prostate cancer. We are based in Norway. Prostatectomy done in March -17. Treated with Bicalutamide and Zoladex injection until rise in PSA 18 months ago. Increasing PSA from 6-12 on chemotherapy through last summer. September he was
VonKantarellen
in
Advanced Prostate Cancer
6 months ago
šŗNew Lupus Research: Mechanism of lupus pathogenesis unveiledš¦
šš©š¼āš¬Professor Yoontae Leeās team identifies target protein regulating autoimmune disease lupus: https://www.postech.ac.kr/eng/mechanism-of-lupus-pathogenesis-unveiled/ Happy reading š§ Xxx
šš©š¼āš¬Professor Yoontae Leeās team identifies target protein regulating autoimmune disease lupus: https://www.postech.ac.kr/eng/mechanism-of-lupus-pathogenesis-unveiled/ Happy reading š§ Xxx
Naladog
in
LUPUS UK
1 month ago
What to expect, medication etc - First appointment since Systemic Sclerosis diagnosis
Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine & Pilocarpine). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well. I was advised of this
Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine & Pilocarpine). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well. I was advised of this
Jules1821
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
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Reintroduce myself for new members
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
just diagnosed with lupus
hi Iāve just been diagnosed with lupus via positive ANA test ! Only symptoms are the sun burning my neck and chest and my glands swell !! No medication given at the moment as I donāt have any other symptoms? Is there medication for this sun allergy ??? Thank you for any help !!!
hi Iāve just been diagnosed with lupus via positive ANA test ! Only symptoms are the sun burning my neck and chest and my glands swell !! No medication given at the moment as I donāt have any other symptoms? Is there medication for this sun allergy ??? Thank you for any help !!!
Edm174
in
LUPUS UK
1 month ago
Road blocks
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Sagiegirl
in
MPN Voice
6 months ago
Cutaneous scleroderma ?with Lupus overlap?
Recently saw Rheumatologist for 1st time confident that Iād get Sjogrenās diagnosis but came away with more than Iād bargained for with Cutaneous scleroderma possibly with Lupus overlap to add to my ever growing list of autoimmune conditions.
Recently saw Rheumatologist for 1st time confident that Iād get Sjogrenās diagnosis but came away with more than Iād bargained for with Cutaneous scleroderma possibly with Lupus overlap to add to my ever growing list of autoimmune conditions.
DebatDG9
in
PBC Foundation
1 month ago
Covid
just tested positive for the first time .. do I need any extra medication these days via nhs due to lupus ?
just tested positive for the first time .. do I need any extra medication these days via nhs due to lupus ?
Dressgirl52
in
LUPUS UK
1 month ago
Underactive thyroid
Hi, Iāve had underactive thyroid for a few years now but have never really done much research into the condition, I just take my meds and crack on. I have noticed more recently struggling more with tiredness, feeling groggy and just not feeling great. Iāve had blood tests etc and all is good so I am
Hi, Iāve had underactive thyroid for a few years now but have never really done much research into the condition, I just take my meds and crack on. I have noticed more recently struggling more with tiredness, feeling groggy and just not feeling great. Iāve had blood tests etc and all is good so I am
Jeo05
in
Thyroid UK
1 month ago
B12 advice please
Hi i am new to this group, nice to meet you all. I just wondered if I should order an MMA urine test or contact the GP with concerns of low B12. Or should I just carry on taking the Thorn basic B and better you b12, then re test. I have an underactive thyroid and inflammatory arthritis, also taking
Hi i am new to this group, nice to meet you all. I just wondered if I should order an MMA urine test or contact the GP with concerns of low B12. Or should I just carry on taking the Thorn basic B and better you b12, then re test. I have an underactive thyroid and inflammatory arthritis, also taking
Ankles
in
Pernicious Anaemia Society
1 month ago
HRT with APS and Lupus
I was wondering if anyone takes HRT that has APS and or Lupus. Iām in blood thinners and on immune suppression drugs and also had a stroke so Iām not sure if this would be something I could take. Experiencing very low moods and crying a lot so thinking Iām peri menopausal. Thanks
I was wondering if anyone takes HRT that has APS and or Lupus. Iām in blood thinners and on immune suppression drugs and also had a stroke so Iām not sure if this would be something I could take. Experiencing very low moods and crying a lot so thinking Iām peri menopausal. Thanks
Newlupus76
in
LUPUS UK
1 month ago
PSA doubled in last 30 days after 4 months stable since Provenge. What's next?
Update: PSA remained roughly 1.7 to 1.8 for last 4 months after Provenge but yesterday's 30-day PSA test revealed a jump to 3.190 so something is growing quick. I have been off of all ADT since finishing fourth LU-177 injection five months ago and one SBRT treatment 4 months ago. After LU-177, PSA
Update: PSA remained roughly 1.7 to 1.8 for last 4 months after Provenge but yesterday's 30-day PSA test revealed a jump to 3.190 so something is growing quick. I have been off of all ADT since finishing fourth LU-177 injection five months ago and one SBRT treatment 4 months ago. After LU-177, PSA
SViking
in
Advanced Prostate Cancer
6 months ago
Clinical Trial PT 112 ?
Iām writing for my husband who is French (Iām English : we live in France ) Heās 65 and was diagnosed in March 2022 - already metastatic : PSA 36 (previous test 18months before was normal ) Mets in spine and pelvis also liver . Enantone 3 monthly injections and Zytiga to start with. PSA went down
Iām writing for my husband who is French (Iām English : we live in France ) Heās 65 and was diagnosed in March 2022 - already metastatic : PSA 36 (previous test 18months before was normal ) Mets in spine and pelvis also liver . Enantone 3 monthly injections and Zytiga to start with. PSA went down
Enilorac63
in
Advanced Prostate Cancer
6 months ago
Dr. "Snuffy" Myers daughter talks about the day she heard about her Dad's diagnosis
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
Darryl
Partner
in
Advanced Prostate Cancer
6 months ago
Lupus pain
I was diagnosed over23yrs ago i am now 64 and struggling quite alot with muscle and joint pains i am due ultrasound scans on both hips plus my right shoulder this month i cant sleep due to pain sick of feeling exhausted and downhearted i have severe acid reflux and ibs so cant take antinflamatory medications
I was diagnosed over23yrs ago i am now 64 and struggling quite alot with muscle and joint pains i am due ultrasound scans on both hips plus my right shoulder this month i cant sleep due to pain sick of feeling exhausted and downhearted i have severe acid reflux and ibs so cant take antinflamatory medications
LUPUSLADY60
in
NRAS
1 month ago
Is it PSA recurrence or not...
My friend had a radical prostatectomy a year ago. Since then his monthly PSA results were stable, at 0.006 3 months ago his PSA went from 0.006 to 0.012, then the next month to 0.029. His MO wanted to see the third month's results in order to consider salvage radiation therapy. Luckily, third month's
My friend had a radical prostatectomy a year ago. Since then his monthly PSA results were stable, at 0.006 3 months ago his PSA went from 0.006 to 0.012, then the next month to 0.029. His MO wanted to see the third month's results in order to consider salvage radiation therapy. Luckily, third month's
traveller64
in
Advanced Prostate Cancer
6 months ago
PSA vs Testosterone Nadir for CRPC and Non-CRPC
This plot from Safriadi (2022) compares the mean values of PSA nadir versus Testosterone Nadir comparing Non-Castrate Resistant PC (Non-CRPC) to Castrate-Resistant PC (CRPC) men. For Non-CRPC men, the range of T-nadir was 2.5-49 ng/dL (mean = 21) and range for PSA nadir was 0.02-9 ng/mL (mean=2). For
This plot from Safriadi (2022) compares the mean values of PSA nadir versus Testosterone Nadir comparing Non-Castrate Resistant PC (Non-CRPC) to Castrate-Resistant PC (CRPC) men. For Non-CRPC men, the range of T-nadir was 2.5-49 ng/dL (mean = 21) and range for PSA nadir was 0.02-9 ng/mL (mean=2). For
janebob99
in
Advanced Prostate Cancer
6 months ago
Mortality Probability after first PSA rise vs non-castrate testosterone levels (low vs Normal)
Here's a plot from Atkins (2018) that shows the Percent risk of Prostate Cancer-specific Mortality versus time following a first PSA failure, for two different non-castrate testosterone levels (Low-T and Normal-T). The low testosterone levels are: median = 162, range = 120-236 ng/dL. Normal T is 400
Here's a plot from Atkins (2018) that shows the Percent risk of Prostate Cancer-specific Mortality versus time following a first PSA failure, for two different non-castrate testosterone levels (Low-T and Normal-T). The low testosterone levels are: median = 162, range = 120-236 ng/dL. Normal T is 400
janebob99
in
Advanced Prostate Cancer
6 months ago
Can anyone help me please.....
Hi, can anyone help me with these test results please.I have Graves disease, Anemia, pernicious anemia, vitamin D deficiency and various other ailments, but I have been in remission from my graves for at least 5 years. I have been symptomatic a few times but it seems to correct itself, however my hubby
Hi, can anyone help me with these test results please.I have Graves disease, Anemia, pernicious anemia, vitamin D deficiency and various other ailments, but I have been in remission from my graves for at least 5 years. I have been symptomatic a few times but it seems to correct itself, however my hubby
Loza73
in
Thyroid UK
6 months ago
First PSA after RARP
My dad had RARP on Jan 19,2024. Gleason 8(4+4) PSA 12, clean PSMA pet scan before surgery. Path report had no LN SVI or EPE but PNI and 50 percent prostate involvement. PSA today 6 weeks post surgery came out to .09. What should we do next? Age 73. Tall_Allen Please advice. Thanks a lot for your help
My dad had RARP on Jan 19,2024. Gleason 8(4+4) PSA 12, clean PSMA pet scan before surgery. Path report had no LN SVI or EPE but PNI and 50 percent prostate involvement. PSA today 6 weeks post surgery came out to .09. What should we do next? Age 73. Tall_Allen Please advice. Thanks a lot for your help
Pca2024
in
Advanced Prostate Cancer
6 months ago
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