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Lupus Tumidus
Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with Lupus Tumidus. Rheumatologist has said it is not SLE and will likely never turn into SLE. (I am not convinced but one battle at a time). Does
Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with Lupus Tumidus. Rheumatologist has said it is not SLE and will likely never turn into SLE. (I am not convinced but one battle at a time). Does
TumidusG
in
LUPUS UK
3 months ago
Save a life with an AED
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
SamAdmin
Administrator
in
Sudden Cardiac Arrest & Heart Attack
2 months ago
Save a life with an AED
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
SamAdmin
Administrator
in
Heart Rhythm Disorders Support
2 months ago
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Cardioversion and PVCs and PACs
Does a cardioversion help if you have PVCs and PACs or does it only help if you have Afib? I go in and out of Afib but my PVCs and PACs have been non-stop for 3 months. Flecainide did not work. I’m considering a cardioversion as I’m to the point I will try anything to get my heart back into NSR but
Does a cardioversion help if you have PVCs and PACs or does it only help if you have Afib? I go in and out of Afib but my PVCs and PACs have been non-stop for 3 months. Flecainide did not work. I’m considering a cardioversion as I’m to the point I will try anything to get my heart back into NSR but
Debjimmay
in
Atrial Fibrillation Support
2 months ago
angiography
Morning all Haven’t posted in ages been overdoing things have swollen hands but I suppose it could also be the heat. Due to have an angiogram just wondered if any of you warriors have had one and did RA cause any extra problems. Wishing you all a good day xx
Morning all Haven’t posted in ages been overdoing things have swollen hands but I suppose it could also be the heat. Due to have an angiogram just wondered if any of you warriors have had one and did RA cause any extra problems. Wishing you all a good day xx
Daffodil1958
in
NRAS
2 months ago
Feeling lonely and fobbed off! What are these symptoms??
Hello, this is my first time posting so please bear with me.I am a 40 year old female. I was diagnosed with discoid lupus in 2005. Then a few years later, lupus panniculitis which is quite rare (fatty lumps under the skin which leave atrophies. (Mine are on my face, breasts, and arms). For the last
Hello, this is my first time posting so please bear with me.I am a 40 year old female. I was diagnosed with discoid lupus in 2005. Then a few years later, lupus panniculitis which is quite rare (fatty lumps under the skin which leave atrophies. (Mine are on my face, breasts, and arms). For the last
Starshine83
in
LUPUS UK
3 months ago
new INR tester
I have been diagnosed with APS for 25 years after having a stroke at 37 years. My treatment medication treatment regime is warfarin plus baby aspirin. I have my INR completed between 1-3 weeks apart but usually every two weeks due to its variability. I have received a coaguchek INRange point of care
I have been diagnosed with APS for 25 years after having a stroke at 37 years. My treatment medication treatment regime is warfarin plus baby aspirin. I have my INR completed between 1-3 weeks apart but usually every two weeks due to its variability. I have received a coaguchek INRange point of care
Beckysuec
in
Hughes Syndrome APS Forum
2 months ago
Social Isolation
Unfortunately, I don't have many friends for family to reach out to. MSAA's chat through HealthUnlocked here has provided me with much needed social connection. The MSAA help line suggested that I contact "MSFriends" so I just signed up for "MSFriends" peer support program through the National Multiple
Unfortunately, I don't have many friends for family to reach out to. MSAA's chat through HealthUnlocked here has provided me with much needed social connection. The MSAA help line suggested that I contact "MSFriends" so I just signed up for "MSFriends" peer support program through the National Multiple
donna0329
in
My MSAA Community
3 months ago
Latest Update on PATCH
For those of us using tE2 as a primary therapy to control advanced prostate cancer, there is new information in Clinical Oncology, Vol 36, Issue 1 „“ A repurposing Programme Evaluating Transdermal Oestradial Patches for the Treatment of Prostate Cancer within the PATCH and STAMPEDE Trials“. It‘s a long
For those of us using tE2 as a primary therapy to control advanced prostate cancer, there is new information in Clinical Oncology, Vol 36, Issue 1 „“ A repurposing Programme Evaluating Transdermal Oestradial Patches for the Treatment of Prostate Cancer within the PATCH and STAMPEDE Trials“. It‘s a long
cam123
in
Advanced Prostate Cancer
6 months ago
Ablation Cancelled
Hi Everyone I had ectopic beats for over a year, up to 24 a minute, dizzy, light headed, totally exhausted. I am 66 previously very fit, cycling, rowing,walking. When I started suffering chest pain my GP sent me to A&E by ambulance three times, each time I was told its nothing to worry about 'everybody
Hi Everyone I had ectopic beats for over a year, up to 24 a minute, dizzy, light headed, totally exhausted. I am 66 previously very fit, cycling, rowing,walking. When I started suffering chest pain my GP sent me to A&E by ambulance three times, each time I was told its nothing to worry about 'everybody
Lefthook
in
Atrial Fibrillation Support
2 months ago
Should I push for more help
UK, 46M So I'm 3 months post diagnosis, only taking 5mg Bisoprolol as a rate control strategy. I have episodes of what I believe to be Afib (very irregular rhythm) regularly - since tracking them at the start of April I've had 47. Longest run without an episode has been 6 days. They are a roughly
UK, 46M So I'm 3 months post diagnosis, only taking 5mg Bisoprolol as a rate control strategy. I have episodes of what I believe to be Afib (very irregular rhythm) regularly - since tracking them at the start of April I've had 47. Longest run without an episode has been 6 days. They are a roughly
Agrianes
in
Atrial Fibrillation Support
2 months ago
Dose change - feeling AWFUL
As per my previous post, my TSH was over 4 on 50mcg, so I did a week on 62.5mcg and now a few days on 75mcg. I feel terrible. So tired, weak, muscles ache, headaches. I’m still on the Wockhardt brand as it suits me best. I read somewhere this can happen if your cortisol is low. I had low 9am readings
As per my previous post, my TSH was over 4 on 50mcg, so I did a week on 62.5mcg and now a few days on 75mcg. I feel terrible. So tired, weak, muscles ache, headaches. I’m still on the Wockhardt brand as it suits me best. I read somewhere this can happen if your cortisol is low. I had low 9am readings
RoseStar
in
Thyroid UK
6 months ago
Do you have lupus or another autoimmune condition?
There is still time to complete the survey conducted by RAIRDA (Rare Autoimmune Rheumatic Disease Alliance) on what patients think about the quality of their care, guidance and treatment for their Rare Autoimmune Rheumatic Disease (RAIRD). This is to provide valuable insights into the way services are
There is still time to complete the survey conducted by RAIRDA (Rare Autoimmune Rheumatic Disease Alliance) on what patients think about the quality of their care, guidance and treatment for their Rare Autoimmune Rheumatic Disease (RAIRD). This is to provide valuable insights into the way services are
nakita_cambow
Moderator
in
LUPUS UK
3 months ago
Strophantus D4 heart arrhythmia
I have already asked recently about heart arrhythmia since Pred. And it seems many people have that problem. I have been taking Strophantus D4 tablets for a few weeks and have had no more heart attacks at night. Sometimes I still have little heart palpitations. I hope it lasts 🤞🏻
I have already asked recently about heart arrhythmia since Pred. And it seems many people have that problem. I have been taking Strophantus D4 tablets for a few weeks and have had no more heart attacks at night. Sometimes I still have little heart palpitations. I hope it lasts 🤞🏻
Swizzly
in
PMRGCAuk
2 months ago
Gods beautiful creations
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
skipro
in
CLL Support
6 months ago
Prednisone and kidneys
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
Charlotteab
in
PMRGCAuk
6 months ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
I'm new to this community , but not to Health Unlocked
I'm John and for several years have posted in HealthUnlocked about atrial fibrillation and stroke. In 2014 I had pulmonary toxicity (cryptogenic organising pnuemonia) secondary to dronedarone and amiodarone. It took three hospital admissions before it was correctly diagnosed. I had read the American
I'm John and for several years have posted in HealthUnlocked about atrial fibrillation and stroke. In 2014 I had pulmonary toxicity (cryptogenic organising pnuemonia) secondary to dronedarone and amiodarone. It took three hospital admissions before it was correctly diagnosed. I had read the American
john-boy-92
in
Lung Conditions Community Forum
2 months ago
reasons for bad balance/dizzziness
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
pmmargo
in
Cure Parkinson's
6 months ago
Sweetened drinks linked to atrial fibrillation risk
Many, many years ago, I used to occasionally have a gin and tonic or angostura and tonic (if driving). And became convinced that, if the tonic contained saccharin, I would likely end up having a relatively high heart rate. But this was long before I had any idea about afib. As I hate the taste of saccharin
Many, many years ago, I used to occasionally have a gin and tonic or angostura and tonic (if driving). And became convinced that, if the tonic contained saccharin, I would likely end up having a relatively high heart rate. But this was long before I had any idea about afib. As I hate the taste of saccharin
Carew
in
Atrial Fibrillation Support
2 months ago
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