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Looking for advice to deal with pain and stiffness related to AIH.
I was recently signposted as this may be my diagnosis by a GP and I'm awaiting a consultant appointment with Rheumatology as appose to a liver specialist despite me questioning this. I have no inflammation markers on my bloods but I do on my antibodies and smooth muscle blood counts which his why it's
I was recently signposted as this may be my diagnosis by a GP and I'm awaiting a consultant appointment with Rheumatology as appose to a liver specialist despite me questioning this. I have no inflammation markers on my bloods but I do on my antibodies and smooth muscle blood counts which his why it's
PeterStewart
in
British Liver Trust
3 months ago
ADT failure
We saw my Dad's MO on 5/23. Over the course of 4 weeks my dad's PSA moved from 1.46 to 2.14, He said we need to be on Zytiga for three months before we can deem it a failure, but just like Xtandi, it appears my dad had limited help with it. We have talked about the next steps, chemo and pluvicto. My
We saw my Dad's MO on 5/23. Over the course of 4 weeks my dad's PSA moved from 1.46 to 2.14, He said we need to be on Zytiga for three months before we can deem it a failure, but just like Xtandi, it appears my dad had limited help with it. We have talked about the next steps, chemo and pluvicto. My
lgutman
in
Advanced Prostate Cancer
3 months ago
could be of interest for those on BAT
Extreme responses to immune checkpoint blockade following bipolar androgen therapy and enzalutamide in patients with metastatic castration resistant prostate cancer https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7585736/
Extreme responses to immune checkpoint blockade following bipolar androgen therapy and enzalutamide in patients with metastatic castration resistant prostate cancer https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7585736/
Maxone73
in
Advanced Prostate Cancer
3 months ago
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Newly Diagnosed
Hi I thought I had Fibro many years ago as i have felt like this before in the past..but have now been diagnosed on top of
Degenerative
disc
disease
and lower lumbar facet joint arthritis, so whilst awaiting Injection pain relief in my spine due to horrendous sciatic pain, I now have Fibromyalgia to
Hi I thought I had Fibro many years ago as i have felt like this before in the past..but have now been diagnosed on top of
Degenerative
disc
disease
and lower lumbar facet joint arthritis, so whilst awaiting Injection pain relief in my spine due to horrendous sciatic pain, I now have Fibromyalgia to
Lesblackbox
in
Fibromyalgia Action UK
1 year ago
Essential read & listen (watch) resources for ALL PCa patients - The 2023 Walsh Guide & Peter Attia's podcast with Dr. Ed. Schaeffer -10/23
Two recent resources that all PCa patients should take the time to get/use/access. The first is the 2023 updated edition of the patient guide, [i]
Dr. Patrick Walsh's Guide to Surviving Prostate Cancer.
[/i] And the second is a [i]
Dr. Peter Attia podcast interview with Ed Schaeffer, MD & PhD[
Two recent resources that all PCa patients should take the time to get/use/access. The first is the 2023 updated edition of the patient guide, [i]
Dr. Patrick Walsh's Guide to Surviving Prostate Cancer.
[/i] And the second is a [i]
Dr. Peter Attia podcast interview with Ed Schaeffer, MD & PhD[
cujoe
in
Fight Prostate Cancer
3 months ago
Time to adjust my course, any suggestions?
Psa is on a steady increase again. I was taking extandi for a year up until 11 /23 over that yr my Psa had dropped from 29, 11/22 to 1.4 ,11/23. I was having significant SEs, brain fog mainly so I decided to switch to nubeqa (daralutimide) even tho there was a steady drop in PSA on extandi. Nubeqa
Psa is on a steady increase again. I was taking extandi for a year up until 11 /23 over that yr my Psa had dropped from 29, 11/22 to 1.4 ,11/23. I was having significant SEs, brain fog mainly so I decided to switch to nubeqa (daralutimide) even tho there was a steady drop in PSA on extandi. Nubeqa
rick8637
in
Advanced Prostate Cancer
3 months ago
Liver Cancer
I was diagnosed with liver cancer by my consultant yesterday (Friday 31st May 2024). They are going to take a liver biopsy in a couple of weeks as I am going on holiday next Monday. Then once this is done I will be having radiography. I am going to be positive and hopefully fight this all the way
I was diagnosed with liver cancer by my consultant yesterday (Friday 31st May 2024). They are going to take a liver biopsy in a couple of weeks as I am going on holiday next Monday. Then once this is done I will be having radiography. I am going to be positive and hopefully fight this all the way
Mick1414
in
British Liver Trust
3 months ago
New saliva test for PCa screening
It will be presented this weekend. They claim that it is more specific than PSA screening and also can be done at home using supplied by mailed kits.
It will be presented this weekend. They claim that it is more specific than PSA screening and also can be done at home using supplied by mailed kits.
Justfor_
in
Fight Prostate Cancer
3 months ago
discomfort under ribs
I feel fine, then I get pain around liver area and get stomach cramps which I end up having to poo the colour is quite yellowish (sorry for details!) once I have been feel much better this has been going on for some weeks now it is definitely worse if I were to eat food with fats in, any ideas please
I feel fine, then I get pain around liver area and get stomach cramps which I end up having to poo the colour is quite yellowish (sorry for details!) once I have been feel much better this has been going on for some weeks now it is definitely worse if I were to eat food with fats in, any ideas please
Suecong
in
British Liver Trust
3 months ago
Aside from easing motor symptoms of Parkinson’s disease, deep brain stimulation (DBS) may also slow disease progression
https://parkinsonsnewstoday.com/news/dbs-reduces-toxic-clumping-parkinsons-rat-brain-cells-study/
https://parkinsonsnewstoday.com/news/dbs-reduces-toxic-clumping-parkinsons-rat-brain-cells-study/
Farooqji
in
Cure Parkinson's
3 months ago
FDA grants RMAT status for BlueRock’s Parkinson’s therapy
Good Morning or Evening All, Is this another "Teaser"or could this be ready and available for patients in the near future ? Food and Drug Administration (FDA) has granted a regenerative medicine advanced therapy (RMAT) designation for BlueRock Therapeutics’ investigational cell therapy
Bemdaneprocel
Good Morning or Evening All, Is this another "Teaser"or could this be ready and available for patients in the near future ? Food and Drug Administration (FDA) has granted a regenerative medicine advanced therapy (RMAT) designation for BlueRock Therapeutics’ investigational cell therapy
Bemdaneprocel
Baron1
in
Cure Parkinson's
3 months ago
pain in left side
Hi have Chorrosis of the liver and have been good up until today. I have felt discomfort in my left side and it goes up the left side of my back to my neck. I did contact my local gp who is going to do bloods on Tuesday as there extremely busy. Will it have something to do with my diagnosis? Or anyone
Hi have Chorrosis of the liver and have been good up until today. I have felt discomfort in my left side and it goes up the left side of my back to my neck. I did contact my local gp who is going to do bloods on Tuesday as there extremely busy. Will it have something to do with my diagnosis? Or anyone
Meanies
in
British Liver Trust
3 months ago
Nicotine…… a complete no-brainer.
Update most don’t know about nicotine, you should. Read my previous post if you’re wondering about it. I’ll soon be off c/l. I have experimented with nicotine and it seems to work better than the meds. My sense of smell is returning. I’m smelling things that I wish I couldn’t smell, lol. I forgotten
Update most don’t know about nicotine, you should. Read my previous post if you’re wondering about it. I’ll soon be off c/l. I have experimented with nicotine and it seems to work better than the meds. My sense of smell is returning. I’m smelling things that I wish I couldn’t smell, lol. I forgotten
38yroldmale
in
Cure Parkinson's
3 months ago
Perineural invasion increases soft tissue progression risk in metastatic castration-resistant prostate cancer post-abiraterone resistance
Background : Prostate cancer presents with soft tissue progression (STP) is highly aggressive. We analyzed the risk factor for STP in patients with metastatic castration-resistant prostate cancer (mCRPC) who developed abiraterone acetate (AA) resistance. Methods : This retrospective study included
Background : Prostate cancer presents with soft tissue progression (STP) is highly aggressive. We analyzed the risk factor for STP in patients with metastatic castration-resistant prostate cancer (mCRPC) who developed abiraterone acetate (AA) resistance. Methods : This retrospective study included
God_Loves_Me
in
Advanced Prostate Cancer
3 months ago
FDA clearance for SYNC-T SV-102, a pioneering combo immunotherapy for Metastatic Castrate-Resistant Prostate Cancer
Source link: https://finance.yahoo.com/news/syncromune-inc-announces-fda-clearance-232200345.html SYNC-T SV-102 Therapy combines partial tumor oncolysis with a fixed-dose combination multi-target biologic drug to provide a novel, personalized therapeutic approach for the treatment of metastatic
Source link: https://finance.yahoo.com/news/syncromune-inc-announces-fda-clearance-232200345.html SYNC-T SV-102 Therapy combines partial tumor oncolysis with a fixed-dose combination multi-target biologic drug to provide a novel, personalized therapeutic approach for the treatment of metastatic
God_Loves_Me
in
Advanced Prostate Cancer
3 months ago
worries
Here again. I am just so worried still. My liver enzymes were high. Managed to stay off the booze. Alt gone down slightly but ggt gone up a lot. Iron is low. My g p keeps saying it’s mental health issues but surely that cannot make my bloods deranged. She did an e consult to hepology and he said I
Here again. I am just so worried still. My liver enzymes were high. Managed to stay off the booze. Alt gone down slightly but ggt gone up a lot. Iron is low. My g p keeps saying it’s mental health issues but surely that cannot make my bloods deranged. She did an e consult to hepology and he said I
Curryblue
in
British Liver Trust
3 months ago
What happens next
My 68 year old husband was diagnosed with metastatic prostate cancer to the bones Oct 22 with PSA at 220. Since then he has been on Zoladex, Enzalutamide and has just finished 8 rounds of Docetaxel. Apart from this cancer he is very healthy - but what happens now when the PSA starts rising again. He
My 68 year old husband was diagnosed with metastatic prostate cancer to the bones Oct 22 with PSA at 220. Since then he has been on Zoladex, Enzalutamide and has just finished 8 rounds of Docetaxel. Apart from this cancer he is very healthy - but what happens now when the PSA starts rising again. He
Bongoed
in
Advanced Prostate Cancer
3 months ago
Prolia and prednisone together = higher infection risk
https://www.drugs.com/drug-interactions/prednisone-with-prolia-1936-0-3238-14600.html From the "we never stop learning angles about APCa and related treatments" zone Wear a mask etc
https://www.drugs.com/drug-interactions/prednisone-with-prolia-1936-0-3238-14600.html From the "we never stop learning angles about APCa and related treatments" zone Wear a mask etc
Derf4223
in
Advanced Prostate Cancer
3 months ago
Please advise about treatment
I posted recently about my Dad’s PSA going up from 0.008 in December 2023 to 0.029 in March 2024. He had a PET Scan that showed some activity in a rib and prostate, MRI showed nothing. The PSA started dropping to 0.026 at the end of March and then 0.025 in April without any treatment. We didn’t anticipate
I posted recently about my Dad’s PSA going up from 0.008 in December 2023 to 0.029 in March 2024. He had a PET Scan that showed some activity in a rib and prostate, MRI showed nothing. The PSA started dropping to 0.026 at the end of March and then 0.025 in April without any treatment. We didn’t anticipate
Simonapo
in
Advanced Prostate Cancer
3 months ago
Three Big Challenges in Metastatic PC
Common themes that often emerge from the posts and responses on this particular hub of HU are intermittent and alternative therapy, the use of testosterone replacement and the various associated issues. In the latest GU podcast, co-hosts Dr Declan Murphy and Renu Eapen from [i]Peter MacCallum Cancer
Common themes that often emerge from the posts and responses on this particular hub of HU are intermittent and alternative therapy, the use of testosterone replacement and the various associated issues. In the latest GU podcast, co-hosts Dr Declan Murphy and Renu Eapen from [i]Peter MacCallum Cancer
marnieg46
in
Fight Prostate Cancer
3 months ago
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