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Still fighting for a diagnosis B12, PA
Due to my ongoing failing health I've had to do my own research as to the pathway of blood test results, symptoms and the progression/knock on effects of having doctors who refuse to help. I have had to be extremely proactive in my own diagnosis, following the path of autoimmune conditions (co-morbid
Due to my ongoing failing health I've had to do my own research as to the pathway of blood test results, symptoms and the progression/knock on effects of having doctors who refuse to help. I have had to be extremely proactive in my own diagnosis, following the path of autoimmune conditions (co-morbid
Allywales8663
in
Pernicious Anaemia Society
1 month ago
Transitioning to Armour Thyroid
Hi everyone, I was diagnosed with an underactive thyroid at 21 and I've also got Hashimoto's. I recently changed from Levo/T3 to Armour, under the guidance of a lovely private endo, and I'm currently on three and a half grains per day, split into two doses. I wondered if anyone else has had side effects
Hi everyone, I was diagnosed with an underactive thyroid at 21 and I've also got Hashimoto's. I recently changed from Levo/T3 to Armour, under the guidance of a lovely private endo, and I'm currently on three and a half grains per day, split into two doses. I wondered if anyone else has had side effects
Jojozo
in
Thyroid UK
1 month ago
looking for next steps for my young husband
Out of desperation I am writing this -we are looking for nothing short of a miracle. My husband was diagnosed in 2021 at age 45 with Stage 4 Prostate Cancer. We have 3 small children ages 7,3 and 2 and we need something to give my husband time with his family. Sharing our journey in hopes that it can
Out of desperation I am writing this -we are looking for nothing short of a miracle. My husband was diagnosed in 2021 at age 45 with Stage 4 Prostate Cancer. We have 3 small children ages 7,3 and 2 and we need something to give my husband time with his family. Sharing our journey in hopes that it can
shaunaliz15
in
Advanced Prostate Cancer
6 months ago
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PSA after one month on lupron
I am 63 with high risk PCa. I was diagnosed with PSA of 30 and Gleason 9 in December. Biopsy and MRI showed all 12 cores malignant with "likelihood of extra-capsular extension". PSMA PET scan showed no mets as of December 15. I began treatment on February 26 with a week of Casodex followed by a Lupron
I am 63 with high risk PCa. I was diagnosed with PSA of 30 and Gleason 9 in December. Biopsy and MRI showed all 12 cores malignant with "likelihood of extra-capsular extension". PSMA PET scan showed no mets as of December 15. I began treatment on February 26 with a week of Casodex followed by a Lupron
CavScout
in
Advanced Prostate Cancer
6 months ago
Assistant Dogs.
I searched google a few years ago about assistant dogs because I thought I need one of them, but I got nowhere. Today I saw a demonstration of an assistant dog at work, it brought me to tears because it showed me just how much I do need one, how good , helpful it would be. I really think it would
I searched google a few years ago about assistant dogs because I thought I need one of them, but I got nowhere. Today I saw a demonstration of an assistant dog at work, it brought me to tears because it showed me just how much I do need one, how good , helpful it would be. I really think it would
saxcat
in
Fibromyalgia Action UK
1 month ago
RA and rashes
hi, I’m just wondering if you can get rashes with RA.. I’ve developed a few patches of small rashes possibly a bit like hives, though one is a circular rash (which aware could be ringworm but don’t think it is).. also aware these may just be fungal rashes. we have lupus in the family and although
hi, I’m just wondering if you can get rashes with RA.. I’ve developed a few patches of small rashes possibly a bit like hives, though one is a circular rash (which aware could be ringworm but don’t think it is).. also aware these may just be fungal rashes. we have lupus in the family and although
Sapphire1701
in
NRAS
1 month ago
Lupus connected to Radiation
I recently read an article where someone felt that Lupus was connected to radiation exposure. Around 1989 I had a full radiation treatment for breast cancer. Back then they radiated your entire side back to front and I had horrific burns. 25 years later I was diagnosed with Sjogrens and Lupus. Has anyone
I recently read an article where someone felt that Lupus was connected to radiation exposure. Around 1989 I had a full radiation treatment for breast cancer. Back then they radiated your entire side back to front and I had horrific burns. 25 years later I was diagnosed with Sjogrens and Lupus. Has anyone
DogHospiceMom
in
LUPUS UK
1 month ago
Patient's view least important in diagnosis 🙄
Who'd have thought it? Research for Lupus Trust and in a Sjogren's UK newsletter but very applicable for us and others...https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/kead685/7473364?login=false UPDATE: larger photos of all three pages of the article uploaded below.
Who'd have thought it? Research for Lupus Trust and in a Sjogren's UK newsletter but very applicable for us and others...https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/kead685/7473364?login=false UPDATE: larger photos of all three pages of the article uploaded below.
Agitator23
in
Thyroid UK
1 month ago
After 25 years they have stopped my B12 - what can I do?
I'm in my early sixties. Generally very good health. On no medication. About twenty five years ago my then brilliant GP did a blood test for B12. A few days later rang me to come to the surgery immediately where he injected B12 himself. Apparently I had dangerously low levels of B12 that indicated I
I'm in my early sixties. Generally very good health. On no medication. About twenty five years ago my then brilliant GP did a blood test for B12. A few days later rang me to come to the surgery immediately where he injected B12 himself. Apparently I had dangerously low levels of B12 that indicated I
DIYenthusiast
in
Pernicious Anaemia Society
1 month ago
overactive to underactive
Hi Everyone, I’m a newbie to all this but i certainly need some advice as i feel like im in the dark with my doctors and endocrinologists i don’t exactly know anything apart from having an overactive thyroid which was treated for 18months then went into remission but came back 8months later then thyroid
Hi Everyone, I’m a newbie to all this but i certainly need some advice as i feel like im in the dark with my doctors and endocrinologists i don’t exactly know anything apart from having an overactive thyroid which was treated for 18months then went into remission but came back 8months later then thyroid
Leeleemarksy86
in
Thyroid UK
1 month ago
has anyone got Lupus in their eyes?
I have been told I have Lupus in my eyes. Does anyone else have this? Thank you
I have been told I have Lupus in my eyes. Does anyone else have this? Thank you
drobbie
in
LUPUS UK
1 month ago
PBC & Lupus
Hi, I'm just wondering if anyone here has Lupus along with PBC? I have developed a distinct butterfly rash on my face that has been appearing on and off over the last few weeks. In late 2022 I became aware that a blood pressure med I was taking seemed to be causing a rash. If I stopped it, the rash went
Hi, I'm just wondering if anyone here has Lupus along with PBC? I have developed a distinct butterfly rash on my face that has been appearing on and off over the last few weeks. In late 2022 I became aware that a blood pressure med I was taking seemed to be causing a rash. If I stopped it, the rash went
Turquoise2075
in
PBC Foundation
1 month ago
Anyone on Nubeqa mono therapy with prostate in place?
wondering if there is anyone on this protocol while still having their prostate in place. What are the side effects and PSA profile? Thank you.
wondering if there is anyone on this protocol while still having their prostate in place. What are the side effects and PSA profile? Thank you.
Steel67
in
Advanced Prostate Cancer
6 months ago
Ttck1825
I had a liver transplant in 2016 now last few years health isn't going great, and Dr wants to change my adoport to envarus, but my story is long. But just for now does envarus stop bad headaches, cause weight gain. Plus suffer low sodium levels and type 3c diabetic. That's me for now
I had a liver transplant in 2016 now last few years health isn't going great, and Dr wants to change my adoport to envarus, but my story is long. But just for now does envarus stop bad headaches, cause weight gain. Plus suffer low sodium levels and type 3c diabetic. That's me for now
Corriemay15
in
British Liver Trust
6 months ago
What a week!! (Starting HD, continued)
Where was I? Ah, yes. I had just spent 3 days in the hospital getting in-patient dialysis for my first three rounds. Low Venous Flowrate, but they seemed to handle it, and ordered a Fistulagram. So, this past Monday, I drove to Duluth (114 miles, door to door) for that procedure, done in the Interventional
Where was I? Ah, yes. I had just spent 3 days in the hospital getting in-patient dialysis for my first three rounds. Low Venous Flowrate, but they seemed to handle it, and ordered a Fistulagram. So, this past Monday, I drove to Duluth (114 miles, door to door) for that procedure, done in the Interventional
PeaB4YouGo
in
Kidney Dialysis
6 months ago
Sle lupus
Hi I have sle lupus , my skin is itching 24/7, plus dreadful spasms of pain any tips? , also awaiting to see a new rhematologist for some treatment.
Hi I have sle lupus , my skin is itching 24/7, plus dreadful spasms of pain any tips? , also awaiting to see a new rhematologist for some treatment.
Sunflower1921
in
NRAS
1 month ago
are atrophic gastritis and pernicious anemia the same thing
hello all, I was wondering if the atrophic gastritis and PA are the same thing.
hello all, I was wondering if the atrophic gastritis and PA are the same thing.
JesusMercy60
in
Pernicious Anaemia Society
2 months ago
Bupa Doctor Recommendations for Hashimotos, Hypothyroidism and Pernicious Anaemia
Hi! I'm looking for recommendations for specialists in these areas: Hashimotos Hypothyroidism Pernicious Anaemia The recommendations are for my wife who has Bupa private healthcare so if anyone has recommendations for bupa that would be great, however, I'd be happy to hear other private doctors
Hi! I'm looking for recommendations for specialists in these areas: Hashimotos Hypothyroidism Pernicious Anaemia The recommendations are for my wife who has Bupa private healthcare so if anyone has recommendations for bupa that would be great, however, I'd be happy to hear other private doctors
mxnero
in
Thyroid UK
2 months ago
thyroid cancer
my husband’s latest PSMA showed a possible thyroid cancer. Anyone here developed a secondary cancer perhaps due to advanced PC treatment (chemo, radiation)? This is too much while dealing with the PC
my husband’s latest PSMA showed a possible thyroid cancer. Anyone here developed a secondary cancer perhaps due to advanced PC treatment (chemo, radiation)? This is too much while dealing with the PC
Jojoteacher
in
Advanced Prostate Cancer
2 months ago
Self-Management Tips
Hello to our lovely Health Unlocked Community! We’re excited to share some helpful tips on self-managing arthritis to empower you in making informed decisions about your health and wellbeing. Self-management means taking control of your condition by using techniques that work best for you to manage
Hello to our lovely Health Unlocked Community! We’re excited to share some helpful tips on self-managing arthritis to empower you in making informed decisions about your health and wellbeing. Self-management means taking control of your condition by using techniques that work best for you to manage
arthritis_action
Partner
in
Arthritis Action
2 months ago
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