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FREE Arthritis Self-Management Event
I thought some of you may be interested in this event on Wed 6th March, 6.00pm (GMT); its aimed at young people or anyone supporting a young person with arthritis. Tickets can be booked here: https://www.eventbrite.co.uk/e/arthritis-me-tickets-811392285167 Ann Arthritis Action Comms Team,
I thought some of you may be interested in this event on Wed 6th March, 6.00pm (GMT); its aimed at young people or anyone supporting a young person with arthritis. Tickets can be booked here: https://www.eventbrite.co.uk/e/arthritis-me-tickets-811392285167 Ann Arthritis Action Comms Team,
arthritis_action
Partner
in
Arthritis Action
3 months ago
Provenge Underway
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Pmann
in
Advanced Prostate Cancer
6 months ago
New meta-analysis shows docetaxel benefits those having high grade/low PSA prostate cancer
Reposting with more specific title - no one had replied to Maxone73's original post. Interesting results for those with a poor-prognosis cancer. https://www.miragenews.com/docetaxel-slashes-prostate-cancer-death-in-high-1115466/
Reposting with more specific title - no one had replied to Maxone73's original post. Interesting results for those with a poor-prognosis cancer. https://www.miragenews.com/docetaxel-slashes-prostate-cancer-death-in-high-1115466/
HikerWife
in
Advanced Prostate Cancer
6 months ago
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New blood pressure procedure is ‘game-changing’ for people with uncontrolled hypertension, say doctors
New blood pressure procedure is ‘game-changing’ for people with uncontrolled hypertension, say doctors. Procedure reduces blood pressure without medications, say experts:‘Important step forward’ People with treatment-resistant hypertension could benefit from a new procedure that the FDA recently approved
New blood pressure procedure is ‘game-changing’ for people with uncontrolled hypertension, say doctors. Procedure reduces blood pressure without medications, say experts:‘Important step forward’ People with treatment-resistant hypertension could benefit from a new procedure that the FDA recently approved
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 months ago
Study Offers New Clues to Why Most People with Autoimmune Diseases Are Women
[i]Caption:[/i] [i]Purple chromosomes fill the scene but a greyed-out chromosome locked up with chains labeled "Xist" is in the foreground. One of the Xist chains is covered with sharp thorns.[/i] [i]Xist molecules shut down one of two female X chromosomes to avoid toxic protein levels, but they
[i]Caption:[/i] [i]Purple chromosomes fill the scene but a greyed-out chromosome locked up with chains labeled "Xist" is in the foreground. One of the Xist chains is covered with sharp thorns.[/i] [i]Xist molecules shut down one of two female X chromosomes to avoid toxic protein levels, but they
helvella
Thyroid UK
in
Thyroid UK
3 months ago
Cause of extremely low ALP on Liver Function Tests
27 years old male, heavy drinker for the past 11 years.I have been having this terrible pain on the right side, just below the ribs, gets worse when laughing or when I sleep on the same side. Also, my palms are red with visible dilated veins all over. Went to the doctor, last year and an abdominal
27 years old male, heavy drinker for the past 11 years.I have been having this terrible pain on the right side, just below the ribs, gets worse when laughing or when I sleep on the same side. Also, my palms are red with visible dilated veins all over. Went to the doctor, last year and an abdominal
African1
in
British Liver Trust
6 months ago
lowering prednisolone
I have had pmg since last September and have very gradually lowered my dose from 15mg to 1mg. which I have been on for the last six weeks. I decided to try to go without steroids for the last two days and apart from the usual shoulder ach when getting up, so far so good, I am now worried about getting
I have had pmg since last September and have very gradually lowered my dose from 15mg to 1mg. which I have been on for the last six weeks. I decided to try to go without steroids for the last two days and apart from the usual shoulder ach when getting up, so far so good, I am now worried about getting
Guilluame
in
PMRGCAuk
6 months ago
Putting on weight
I have under thyroid and have posted a few questions so sorry for another one. Do any if you find if you put on the slightest but of weight it triggers you to go more underactive? For example at Xmas like most people I put on a bit of weight then I feel I go underactive and then put on more weight.
I have under thyroid and have posted a few questions so sorry for another one. Do any if you find if you put on the slightest but of weight it triggers you to go more underactive? For example at Xmas like most people I put on a bit of weight then I feel I go underactive and then put on more weight.
Billy2023
in
Thyroid UK
3 months ago
RO 52 Positive
I have tested positive for isolated RO52 antibodies. ANA negative. I have Raynaud's, rashes, splinter hemorrages, tiredness, breathlessness on exertion, (ground glass opacities in lungs, waiting on a second CT) joint aches, mild gastro issues. Am I likely to have Lupus primarily, or some other autoimmune
I have tested positive for isolated RO52 antibodies. ANA negative. I have Raynaud's, rashes, splinter hemorrages, tiredness, breathlessness on exertion, (ground glass opacities in lungs, waiting on a second CT) joint aches, mild gastro issues. Am I likely to have Lupus primarily, or some other autoimmune
Graysonfur
in
LUPUS UK
3 months ago
Feeling fed up
I’ve had deranged LFTS on and off for at least 6 years now with Alt going up over 1000. Second time seeing specialist and apart from signs in liver biopsy pointing to AIH the scans don’t seem to show much. Don’t seem to get told much by Specialist and don’t seem to keep me updated. Had a MRCP on October
I’ve had deranged LFTS on and off for at least 6 years now with Alt going up over 1000. Second time seeing specialist and apart from signs in liver biopsy pointing to AIH the scans don’t seem to show much. Don’t seem to get told much by Specialist and don’t seem to keep me updated. Had a MRCP on October
MrMidnight2021
in
British Liver Trust
6 months ago
ONCT-534 Earns FDA Fast Track Designation in R/R Metastatic CRPC
Looks like a number of Drug companies are creating drugs that interact with the AR’s N-terminal domain and ligand-binding domain, impeding cell growth and enabling AR degradation. ONCT-534 Earns FDA Fast Track Designation in R/R Metastatic CRPC October 27, 2023 Investigators will assess
Looks like a number of Drug companies are creating drugs that interact with the AR’s N-terminal domain and ligand-binding domain, impeding cell growth and enabling AR degradation. ONCT-534 Earns FDA Fast Track Designation in R/R Metastatic CRPC October 27, 2023 Investigators will assess
Scout4answers
in
Advanced Prostate Cancer
6 months ago
no transplant needed!
hi all just wanted to share what is happening to me to date. It’s been a long journey but I think (I hope) I’ve got there. After recovering from a Decompensated liver from just 2 weeks to live, then it was 3 months, then 1-2 years then 5 years to live, I have now been given the news that ive done so
hi all just wanted to share what is happening to me to date. It’s been a long journey but I think (I hope) I’ve got there. After recovering from a Decompensated liver from just 2 weeks to live, then it was 3 months, then 1-2 years then 5 years to live, I have now been given the news that ive done so
Harriet-sarah
in
British Liver Trust
6 months ago
not PA, next steps
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
AJackson21
in
Pernicious Anaemia Society
3 months ago
I don't have a magic wand
I'm venting here.I havnt been diagnosed but suffer from other autoimmune and am waiting a lupus retest panel on Friday this week. I have positive speckled result but not titrated so an incomplete blood result. I have hashimoto, fibro, pernicious anemia and scalp psoriasis. However, had severe muscle
I'm venting here.I havnt been diagnosed but suffer from other autoimmune and am waiting a lupus retest panel on Friday this week. I have positive speckled result but not titrated so an incomplete blood result. I have hashimoto, fibro, pernicious anemia and scalp psoriasis. However, had severe muscle
Peppermints
in
LUPUS UK
3 months ago
Creatine For Advanced Prostate Cancer Patients
A new study at Huntsman Cancer Institute is going to look at potential benefits of creatine for maintaining muscle mass in APC patients. Here's the link: https://www.onclive.com/view/new-clinical-trials-test-innovative-ways-to-preserve-muscle-mass-during-metastatic-prostate-cancer?utm_medium=email&
A new study at Huntsman Cancer Institute is going to look at potential benefits of creatine for maintaining muscle mass in APC patients. Here's the link: https://www.onclive.com/view/new-clinical-trials-test-innovative-ways-to-preserve-muscle-mass-during-metastatic-prostate-cancer?utm_medium=email&
CocoTheAlphaCat
in
Advanced Prostate Cancer
6 months ago
Can I take malaria tablets?
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
Silky1
in
British Liver Trust
3 months ago
Can I take malaria tablets?
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
Silky1
in
British Liver Trust
3 months ago
Webinar: Charles Bonnet Syndrome
Dr Jasleen K Jolly, from the Vision and Eye Research Institute at Anglia Ruskin University, joins us tonight for our next My Macular and Me webinar to discuss her latest research on Charles Bonnet syndrome. The research has been split into two studies, the first uses an MRI to observe the activity levels
Dr Jasleen K Jolly, from the Vision and Eye Research Institute at Anglia Ruskin University, joins us tonight for our next My Macular and Me webinar to discuss her latest research on Charles Bonnet syndrome. The research has been split into two studies, the first uses an MRI to observe the activity levels
Carol_MacularSociety
Partner
in
Macular Society
9 months ago
Oral care tip
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Martina_MP
in
PSP Association
6 months ago
Has anyone had Peritoneal from Prostate Cancer ?
PSA on the rise and fluid observed on Mild Peritoneal thickening and uptake on PSMA Pet scan.
PSA on the rise and fluid observed on Mild Peritoneal thickening and uptake on PSMA Pet scan.
Drum55
in
Advanced Prostate Cancer
6 months ago
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