Lupus pain

[LUPUSLADY60]

I was diagnosed over23yrs ago i am now 64 and struggling quite alot with muscle and joint pains i am due ultrasound scans on both hips plus my right shoulder this month i cant sleep due to pain sick of feeling exhausted and downhearted i have severe acid reflux and ibs so cant take antinflamatory medications so just relying on paracetamol and voltarol rub which some days is'nt enough i also have underactive thyroid raynards osteoparosis and spondylosis in most of my back recently i gained alot of weight as my mum died almost a year ago and i was comfort eating and unable to do much walking due to extreme pain and stiffness also cant take hydroxycloraquine due to digestive issues recently my blood pressure is up my vit d very low and my kidneys are not functioning as well awaiting results of a bence jones urine test i get problems with depression and anxiety i rarely ferl good no idea what to do to help my pain even thought of canabis oil in desparation but not tried it if anyone has any natural forms of help i would be grateful thanks jackie

[KittyJ]

I’m sorry to hear this Lupuslady, I don’t have lupus so can’t really help but there are 6 Lupus communities on HU where you might find more help, if you use the search box and then tap on ‘communities’ they will come up. I hope you find something that helps you soon 🤗

[Oshgosh]

I have a diagnosis of UCTD,but have always had lupus symptoms, I have back pain,since I had the Moderna vaccine 6 weeks ago,I’ve been unwell.dizziness nausea didn’t go out for 2 weeks as felt so dizzy,also had athritis type pain,which doesn’t usually bother me.

I’ve also had sores in my mouth sore lips.I’ve been struggling to eat, I saw the palliative care consultant yesterday,she prescribed stronger pain patches,also tablets for thrush.

Today ,my mouth hasn’t been as sore.

Don’t want to eat,but I have too because of my weight loss.reflux has been worse ,my arms and shoulders have been painful.

I can’t see an end to this,I just need a few good days.

I need to get back to regular walking and back to the gym ,the gym wasn’t very spectacular with what I do,but it keeps me going .

I hope you are having a reasonable day