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Watching House
I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it is never lupus, but the irony is, when you don’t tests positive on ANA - it can’t be lupus. BUT, if people test positive for ANA, you are told
I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it is never lupus, but the irony is, when you don’t tests positive on ANA - it can’t be lupus. BUT, if people test positive for ANA, you are told
Willow7733
in
LUPUS UK
5 months ago
AF & Bradycardia
Hi everyone, I am wondering if you can help me, I have AF which I am in permanent and have and 31% ventricular fraction, I am waiting for a date for a cardio version with Barts, I brought a Kardia mobile, and I have been monitoring my heart rate as bpm since February, The bpms have been fluctuating
Hi everyone, I am wondering if you can help me, I have AF which I am in permanent and have and 31% ventricular fraction, I am waiting for a date for a cardio version with Barts, I brought a Kardia mobile, and I have been monitoring my heart rate as bpm since February, The bpms have been fluctuating
Flippy1
in
Atrial Fibrillation Support
4 months ago
Medichecks results
Hello all, I have just received the above thyroid test results and would appreciate some advice. I am feeling a bit underactive and wondered if I should increase my levothyroxine slightly? Thanks in advance
Hello all, I have just received the above thyroid test results and would appreciate some advice. I am feeling a bit underactive and wondered if I should increase my levothyroxine slightly? Thanks in advance
Pinkisland
in
Thyroid UK
5 months ago
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Low saturation with PV and Jakavi 20
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
Quitojohn
in
MPN Voice
4 months ago
The ups and downs of our rollercoaster OC journeys
When I recovered from debulking earlier this year I gave myself a good talking to and vowed not to let myself go from blood check to blood check worrying about them. I was so pleased my first check showed bloods were normal so thought my plan was working but then prior to the 6 month check developed
When I recovered from debulking earlier this year I gave myself a good talking to and vowed not to let myself go from blood check to blood check worrying about them. I was so pleased my first check showed bloods were normal so thought my plan was working but then prior to the 6 month check developed
Jholly4
in
My Ovacome
7 months ago
What to do.
Have been in persistant afib after unsuccessful cardioversion 6 mths ago. On Loperessor 100/50 and eliquis. Doing only ok but almost past out after walking up two flights of stairs over weekend. Short of breath and nausea. Have been told not a good canidate for ablation.
Have been in persistant afib after unsuccessful cardioversion 6 mths ago. On Loperessor 100/50 and eliquis. Doing only ok but almost past out after walking up two flights of stairs over weekend. Short of breath and nausea. Have been told not a good canidate for ablation.
farewelltoarms
in
Atrial Fibrillation Support
4 months ago
Sjogren's Syndrome
Was diagnosed with PMR 3 years ago. Under control at moment and injections down to monthly. Has anyone on this site gone on to develop Sjogren's Syndrone with PMR?
Was diagnosed with PMR 3 years ago. Under control at moment and injections down to monthly. Has anyone on this site gone on to develop Sjogren's Syndrone with PMR?
Bothan
in
PMRGCAuk
5 months ago
Webinar:Do magnifying intraocular lenses work for people with macular disease?
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Carol_MacularSociety
Partner
in
Macular Society
4 months ago
Becoming a grumpy old git !
Hi all, Just an enquiry .... one of my rare ones. It concerns a possible side effect of medication. In the last 6 months or so I have changed three precribed medication. I list these as below ....
Simvastatin
was started in mid 2007 and taken continuously until, my Surgery Pharmacist asked
Hi all, Just an enquiry .... one of my rare ones. It concerns a possible side effect of medication. In the last 6 months or so I have changed three precribed medication. I list these as below ....
Simvastatin
was started in mid 2007 and taken continuously until, my Surgery Pharmacist asked
BenHall1
in
Atrial Fibrillation Support
4 months ago
What are the options for splitting the dose of Low Dose Naltrexone (LDN)to treat Sjogrens and Lupus?
What are the options for splitting the dose of Low Dose Naltrexone (LDN)to treat Sjogrens and Lupus? Answered by Sebastian Denison, RPh https://youtu.be/izCwZrpqJlg
What are the options for splitting the dose of Low Dose Naltrexone (LDN)to treat Sjogrens and Lupus? Answered by Sebastian Denison, RPh https://youtu.be/izCwZrpqJlg
Shewulf
Administrator
in
LDN Research Trust
5 months ago
What other tests
Hi all. Other than ANA which obviously indicates an autoimmune condition (I'm highly positive) And I have many symptoms of what I feel is Lupus. I'm just wondering what tests are available once referred to rheumatology. So I am armed with Knowledge and don't get fobbed off. Is there anything further
Hi all. Other than ANA which obviously indicates an autoimmune condition (I'm highly positive) And I have many symptoms of what I feel is Lupus. I'm just wondering what tests are available once referred to rheumatology. So I am armed with Knowledge and don't get fobbed off. Is there anything further
JCM1992
in
LUPUS UK
5 months ago
6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Vasili
in
Advanced Prostate Cancer
7 months ago
New research
Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it. https://lens.monash.edu/@medicine-health/2024/02/06/1386418/breakthrough-heralds-immune-personalised-medicine-for-lupus?amp=1
Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it. https://lens.monash.edu/@medicine-health/2024/02/06/1386418/breakthrough-heralds-immune-personalised-medicine-for-lupus?amp=1
EllsBells591
in
LUPUS UK
5 months ago
Benfotiamine In The Mix For PD Again?
The following new animal study (December 2023) suggests that the fat soluble form of vitamin B1, Benfotiamine, may also be suitable for PD : https://www.sciencedirect.com/science/article/abs/pii/S0014299923007483?via%3Dihub Here is a relevant study quote :
' The results demonstrated that treatment
The following new animal study (December 2023) suggests that the fat soluble form of vitamin B1, Benfotiamine, may also be suitable for PD : https://www.sciencedirect.com/science/article/abs/pii/S0014299923007483?via%3Dihub Here is a relevant study quote :
' The results demonstrated that treatment
chartist
in
Cure Parkinson's
7 months ago
Ablation
I have a long history of paroxysmal atrial fibrillation and have been on blood thinner medication for 10 years treating my paroxysmal episodes with PIP . However last march I went into highly symptomatic persistent AF which did not reverse before undergoing a successful cardioversion in August. I've
I have a long history of paroxysmal atrial fibrillation and have been on blood thinner medication for 10 years treating my paroxysmal episodes with PIP . However last march I went into highly symptomatic persistent AF which did not reverse before undergoing a successful cardioversion in August. I've
Midnight2022
in
Atrial Fibrillation Support
4 months ago
Advice post ablation
Hi-I know this subject has probably been discussed before but.......... back in May last year I was put on the waiting list for an ablation having had regular bouts of Afib which were treated successfully by using Fleccanide as a PIP. I didn,t have any Afib episodes after August but had ever increasing
Hi-I know this subject has probably been discussed before but.......... back in May last year I was put on the waiting list for an ablation having had regular bouts of Afib which were treated successfully by using Fleccanide as a PIP. I didn,t have any Afib episodes after August but had ever increasing
afhanhound
in
Atrial Fibrillation Support
4 months ago
Serum cortisol test results
Hello all, Further to my saliva cortisol test (link to post below), I requested a serum cortisol test at my GPs (8.45am, yesterday): Serum cortisol level 381 nmol/L >350 nmol/L makes adrenal insufficiency unlikely Is this in keeping with my less-than-optimal-and-occasionally-below-range saliva results
Hello all, Further to my saliva cortisol test (link to post below), I requested a serum cortisol test at my GPs (8.45am, yesterday): Serum cortisol level 381 nmol/L >350 nmol/L makes adrenal insufficiency unlikely Is this in keeping with my less-than-optimal-and-occasionally-below-range saliva results
J972
in
Thyroid UK
7 months ago
When to do certain blood tests and why.
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Mgtd
in
Advanced Prostate Cancer
7 months ago
Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
5 months ago
Dr. Jones' Knowledge
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
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