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Experiences with
D-bifunctional protein (DBP) deficiency
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Throat Tightness
Hi I have been on Levothyroxine Sodium for 15 years, it has been increased till I am now on 100mcg. Have had numerous endoscopies for Acid Reflux and was put on 20mg Omeprazole, I only took them when I really needed them. In 2013 I was diagnosed with High Blood Pressure ( as it runs in family ) and
Hi I have been on Levothyroxine Sodium for 15 years, it has been increased till I am now on 100mcg. Have had numerous endoscopies for Acid Reflux and was put on 20mg Omeprazole, I only took them when I really needed them. In 2013 I was diagnosed with High Blood Pressure ( as it runs in family ) and
Hidden
in
Thyroid UK
10 years ago
DBS and immobility
For those of you who have had DBS surgery-- When I wake up in the morning, I can't move. It is a great effort to reach for the pill bottle. Everything is stiff including my hands. Will DBS help this?
For those of you who have had DBS surgery-- When I wake up in the morning, I can't move. It is a great effort to reach for the pill bottle. Everything is stiff including my hands. Will DBS help this?
Hidden
in
Cure Parkinson's
10 years ago
Position of relief from foot dystonia
I am experiencing more off time with increasing foot cramping, bad enough to put me on my hands and knees. Serendipity strikes! I was so tired I crawled up to a couch and rested my upper body on it. Still on my knees I pressed the top of my foot into the carpet which shut down the cramp. This was
I am experiencing more off time with increasing foot cramping, bad enough to put me on my hands and knees. Serendipity strikes! I was so tired I crawled up to a couch and rested my upper body on it. Still on my knees I pressed the top of my foot into the carpet which shut down the cramp. This was
etterus
in
Cure Parkinson's
10 years ago
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Had DBS in July, No tremors but have taken a nose dive in other areas, anyone else have this experience?
What a gift with no tremors but now I'm experiencing what feels like some late stage symptoms. Typing this is very slow and difficult, my walk is shuffling with forward movement, almost falling lots. Slow and uncoordinated. Brain slow and difficult to coordinate, getting overwhelmed easilyl Handwriting
What a gift with no tremors but now I'm experiencing what feels like some late stage symptoms. Typing this is very slow and difficult, my walk is shuffling with forward movement, almost falling lots. Slow and uncoordinated. Brain slow and difficult to coordinate, getting overwhelmed easilyl Handwriting
jebbers
in
Cure Parkinson's
10 years ago
long term help from dbs?
I would like to hear from people who have been using dbs for a long time---years. DOes it still help? How long do you see benefits from it?
I would like to hear from people who have been using dbs for a long time---years. DOes it still help? How long do you see benefits from it?
Hidden
in
Cure Parkinson's
10 years ago
Does DBS help ability to walk?
I am scheduled for DBS soon and I am still apprehensive because my main problem is that I am losing the ability to walk. I have very little tremor. Has anyone one any experience with DBS helping or not helping their ability to move or walk? Also, in the mornings I cannot move when I wake up and my whole
I am scheduled for DBS soon and I am still apprehensive because my main problem is that I am losing the ability to walk. I have very little tremor. Has anyone one any experience with DBS helping or not helping their ability to move or walk? Also, in the mornings I cannot move when I wake up and my whole
Hidden
in
Cure Parkinson's
10 years ago
Is there any connection between B12 deficiency & Vitamin D or K2 deficiency
As my GP is testing me for Vit D as well as treating the B12
As my GP is testing me for Vit D as well as treating the B12
KTMac
in
Pernicious Anaemia Society
10 years ago
DBS for bradykinesia
I am a non tremor bradykinestic type. My off periods are characterized by slowness and dystonia in my feet with anxiety. The neurologists thinks it's time for DBS. Does anyone have experience with similar symptoms?
I am a non tremor bradykinestic type. My off periods are characterized by slowness and dystonia in my feet with anxiety. The neurologists thinks it's time for DBS. Does anyone have experience with similar symptoms?
etterus
in
Cure Parkinson's
10 years ago
dbs in michigan?
Does anyone have any experience with dbs at University of Michigan? I have read everyone saying to find a good programmer but How do you know if someone is a good programmer?
Does anyone have any experience with dbs at University of Michigan? I have read everyone saying to find a good programmer but How do you know if someone is a good programmer?
Hidden
in
Cure Parkinson's
10 years ago
DBS Surgery
Had DBS in July this year. Seen Dr. twice for tweaking of the electrical currant. So far it seems to be a trade off of symptoms. Controls tremors (a blessing) but now having trouble walking, some slurred speech, ridigity. All of these were in the backgroud and minimal before. Also having trouble
Had DBS in July this year. Seen Dr. twice for tweaking of the electrical currant. So far it seems to be a trade off of symptoms. Controls tremors (a blessing) but now having trouble walking, some slurred speech, ridigity. All of these were in the backgroud and minimal before. Also having trouble
jebbers
in
Cure Parkinson's
10 years ago
DBS - Criteria of Suitability of Patients in NHS care
For PD patients, what symptoms and any other relevant criteria are considered before a PD patient to be considered a good or suitable candidate for a DBS operation on the NHS? Also I wonder how that varies with a country / health care system that is funded privately?
For PD patients, what symptoms and any other relevant criteria are considered before a PD patient to be considered a good or suitable candidate for a DBS operation on the NHS? Also I wonder how that varies with a country / health care system that is funded privately?
Pete-1
in
Cure Parkinson's
10 years ago
Azilect
Azilect I recommend you all try it within the first two days I had an amazing improvement in my symptoms "on"all day no "off" times at all tremor settled down cancelled my DBS surgery felt so good still having great results after using Azilect for 3 months little bit of Dyskenesia but manageable hope
Azilect I recommend you all try it within the first two days I had an amazing improvement in my symptoms "on"all day no "off" times at all tremor settled down cancelled my DBS surgery felt so good still having great results after using Azilect for 3 months little bit of Dyskenesia but manageable hope
Sunnysky
in
Cure Parkinson's
10 years ago
Hypothyroid with low RBC's, Haemoglobin & platelet levels but normal iron, vit B12 & folate levels
Hi, I would be very grateful for any advice. I've been hypothyroid for 15 years & have been feeling extremely tired plus have all the other classic hypothyroid symptoms the last few years despite normal levels of tsh & t4. Thanks to all the advice on this forum I've checked t3 levels which were low
Hi, I would be very grateful for any advice. I've been hypothyroid for 15 years & have been feeling extremely tired plus have all the other classic hypothyroid symptoms the last few years despite normal levels of tsh & t4. Thanks to all the advice on this forum I've checked t3 levels which were low
Rebecks
in
Thyroid UK
10 years ago
Thyroid binding globulin
When is it worth testing for Thyroid binding globulin (note: Not thyroglobulin). I am wondering if this could be implicated in why I cant seem to respond to a high dose of T3.
When is it worth testing for Thyroid binding globulin (note: Not thyroglobulin). I am wondering if this could be implicated in why I cant seem to respond to a high dose of T3.
suzannai
in
Thyroid UK
10 years ago
TR's Blood Test Results
The following are the blood tests that I had requested on Wednesday, 13 August 2014 during a GP's appointment, where that GP had informed me that as my last thyroid function blood tests were normal he would not able to request those below listed thyroid antibodies tests : Thyroid function TSH Free T4
The following are the blood tests that I had requested on Wednesday, 13 August 2014 during a GP's appointment, where that GP had informed me that as my last thyroid function blood tests were normal he would not able to request those below listed thyroid antibodies tests : Thyroid function TSH Free T4
TimelessRainbows
in
Thyroid UK
10 years ago
placenta previa
Went for my 18wks scan and baby is doing well.was however told had complete placenta previa and was advised to keep off any strenuous activity until i go back for a second scan at 28wks. was also told in some cases it gets back to normal and if not might have to deliver through CS and probably early
Went for my 18wks scan and baby is doing well.was however told had complete placenta previa and was advised to keep off any strenuous activity until i go back for a second scan at 28wks. was also told in some cases it gets back to normal and if not might have to deliver through CS and probably early
lubash
in
NRAS
10 years ago
Has anyone had the "Intrepid" DBS done? I need feedback. it's a programmable device with a rechargeable battery.Trail done already in europe
Wife to have it on 10/07/14 at UCSF, by Boston Scientific Neuromodulation. A new "8 prong" device "The Vercise" over the standard "4 prong" device the existing "Medtronic" It has a hand held programmable remote control unit with a rechargeable portable charging system. A implantable pulse generator
Wife to have it on 10/07/14 at UCSF, by Boston Scientific Neuromodulation. A new "8 prong" device "The Vercise" over the standard "4 prong" device the existing "Medtronic" It has a hand held programmable remote control unit with a rechargeable portable charging system. A implantable pulse generator
Sauslimos
in
Cure Parkinson's
10 years ago
DBS- pulge generator popping out
My wife got the DBS surgery done in January 2011. Since then the battery/pulse genset has come out 4 times. The 5th time, within one month o the surgery. Any one had similar problem ? Any suggestions pl?
My wife got the DBS surgery done in January 2011. Since then the battery/pulse genset has come out 4 times. The 5th time, within one month o the surgery. Any one had similar problem ? Any suggestions pl?
anbu
in
Cure Parkinson's
10 years ago
I have read so much about migraine/headaches on the site, I have not yet seen anything regarding a PFO. I know your pain. I suffered from
. migraine since I was a child. I had the 'aura', vomiting, hated noise and bright lights. I fainted a few times over the years, heavy nose bleeds etc. I had the attacks two/three times a week. At that time it was take a headache pill and carry on. So I carried on. I carried on working, I could not afford
. migraine since I was a child. I had the 'aura', vomiting, hated noise and bright lights. I fainted a few times over the years, heavy nose bleeds etc. I had the attacks two/three times a week. At that time it was take a headache pill and carry on. So I carried on. I carried on working, I could not afford
Vivante
in
National Migraine Centre
10 years ago
DBS Cost
I would like to ask a question to DBS patients from US. How much is the DBS surgery cost? Thanks for your replies.
I would like to ask a question to DBS patients from US. How much is the DBS surgery cost? Thanks for your replies.
hopet
in
Cure Parkinson's
10 years ago
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