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Experiences with
D-bifunctional protein (DBP) deficiency
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Deep Brain Stimulation!!
Hi. I hope you can help me!?? In 1998 I suffered a Stroke at the age of 32. This happened in Spain where I spent 1wk in Barcelona Hospital then I was transferred to the QE Hospital here in Birmingham where I spent a further 3mnts. I then had Brain Surgery & then I was given the all clear the following
Hi. I hope you can help me!?? In 1998 I suffered a Stroke at the age of 32. This happened in Spain where I spent 1wk in Barcelona Hospital then I was transferred to the QE Hospital here in Birmingham where I spent a further 3mnts. I then had Brain Surgery & then I was given the all clear the following
SteveHartnett
in
NHS England: A Call to Action
9 years ago
Underactive thyroid
Please could you tell me if levothyroxine sodium are the same as levothyroxine as they are making me feel rally unwell thanks
Please could you tell me if levothyroxine sodium are the same as levothyroxine as they are making me feel rally unwell thanks
Daviespat
in
Thyroid UK
9 years ago
Broken Places story of Parkinson's
I recently published a book named, Broken Places. One of the chapters is about my diagnosis and subsequent journey to find proper treatment. For anyone just diagnosed, I think this might be enlightening. You can view the book at: www.amazon.com/author/nancywhitfield I recently underwent DBS at Stanford
I recently published a book named, Broken Places. One of the chapters is about my diagnosis and subsequent journey to find proper treatment. For anyone just diagnosed, I think this might be enlightening. You can view the book at: www.amazon.com/author/nancywhitfield I recently underwent DBS at Stanford
Whitfieldnancy
in
Cure Parkinson's
9 years ago
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DBS post surgery fatigue
Does anyone else suffer extreme fatigue. I had DBS surgery 3 months ago and have had debilitating fatigue since.
Does anyone else suffer extreme fatigue. I had DBS surgery 3 months ago and have had debilitating fatigue since.
BARBMarlow
in
Cure Parkinson's
9 years ago
Night
My nights are getting pretty bad now. Do you guys take medicine throughout the nighttime? It would be okay if i didn't have to pee every 2 hours. Also, i have no tremor but I do have wearing off, freezing up, swallowing issues, balance problems, speech issues, can hardly walk when off the med. Does
My nights are getting pretty bad now. Do you guys take medicine throughout the nighttime? It would be okay if i didn't have to pee every 2 hours. Also, i have no tremor but I do have wearing off, freezing up, swallowing issues, balance problems, speech issues, can hardly walk when off the med. Does
michaela13
in
Cure Parkinson's
9 years ago
Recumbent trike
I think I just found the answer to fitness and weight gain. Since my Dbs success I've been hitting the gym 3x weekly. I actually gained 30 lbs but unfortunately it's been 50/50 muscle:fat according to my bmi scale. I just haven't been able to walk enough to keep the fat down. Today I purchased a
I think I just found the answer to fitness and weight gain. Since my Dbs success I've been hitting the gym 3x weekly. I actually gained 30 lbs but unfortunately it's been 50/50 muscle:fat according to my bmi scale. I just haven't been able to walk enough to keep the fat down. Today I purchased a
etterus
in
Cure Parkinson's
9 years ago
Blood Results - help please
Red blood cell distribut width 15.8 % 9.9 - 15.5% Graph Mean corpuscular volume (MCV) 77 fL 82 - 98fL Graph Mean corpusc. haemoglobin(MCH) 25.1 pg 27.3 - 32.6pg Graph Serum alkaline phosphatase 126 iu/L 35 - 104iu/L Graph This levels are all out of range - can anyone help with what they
Red blood cell distribut width 15.8 % 9.9 - 15.5% Graph Mean corpuscular volume (MCV) 77 fL 82 - 98fL Graph Mean corpusc. haemoglobin(MCH) 25.1 pg 27.3 - 32.6pg Graph Serum alkaline phosphatase 126 iu/L 35 - 104iu/L Graph This levels are all out of range - can anyone help with what they
Monika53
in
Thyroid UK
9 years ago
go off gluten/dairy when you have Hashimoto's...?
OK, so I just found this quite interesting article which In include it its entirety: http://www.huffingtonpost.com/dr-mark-hyman/6steps-to-heal-your-thyro_b_7603868.html I especially wonder about the part at the end, about NDT being difficult to dose: "That was true with the old Armour, not the new
OK, so I just found this quite interesting article which In include it its entirety: http://www.huffingtonpost.com/dr-mark-hyman/6steps-to-heal-your-thyro_b_7603868.html I especially wonder about the part at the end, about NDT being difficult to dose: "That was true with the old Armour, not the new
Hidden
in
Thyroid UK
9 years ago
NDT fillers/binders?
If cellulose binds thyroid hormone, and sugar on the other hand makes absorption easier, why would Forest replace sugar with cellulose? I read somewhere that they wanted to make Armour more diabetic-friendly, but wasn't there any other filler they could have chosen, instead of cellulose? Although, I
If cellulose binds thyroid hormone, and sugar on the other hand makes absorption easier, why would Forest replace sugar with cellulose? I read somewhere that they wanted to make Armour more diabetic-friendly, but wasn't there any other filler they could have chosen, instead of cellulose? Although, I
Hidden
in
Thyroid UK
9 years ago
Vitamin and iron supplements do help!
It must be a year or more since I had my vitamin and Iron levels checked. I was under range in everything. Just have latest results since supplementing . Ferritin 384 (30-400) B12 1568 (190- 660). No vit D test even though I asked for it. Really pleased with these results!
It must be a year or more since I had my vitamin and Iron levels checked. I was under range in everything. Just have latest results since supplementing . Ferritin 384 (30-400) B12 1568 (190- 660). No vit D test even though I asked for it. Really pleased with these results!
Beverleyb
in
Thyroid UK
9 years ago
Please recommend an iron supplement - thanks
I'm having my ferritin tested next week and it looks as if I will be ferritin deficient again. I've got a prescription for ferrous fumarate, but I'm happy to pay for something easier to take and more effective. The last time I had this issue, it took me five years to get my ferritin up from16 to 102
I'm having my ferritin tested next week and it looks as if I will be ferritin deficient again. I've got a prescription for ferrous fumarate, but I'm happy to pay for something easier to take and more effective. The last time I had this issue, it took me five years to get my ferritin up from16 to 102
Ansteynomad
in
Thyroid UK
9 years ago
Cooking with Cambodian Iron Fish improves iron anaemia.
This might be helpful to people who can't tolerate iron supplements. Extract: [i]Blood testing of the users showed a 50 percent decrease in the incidence of clinical iron deficiency anemia and an increase in users’ iron levels after nine months.[/i] http://www.slate.com/blogs/the_eye/2015/06/29/lucky_iron_fish_project_to_prevent_anemia_in_cambodia_wins_cannes_lions.html
This might be helpful to people who can't tolerate iron supplements. Extract: [i]Blood testing of the users showed a 50 percent decrease in the incidence of clinical iron deficiency anemia and an increase in users’ iron levels after nine months.[/i] http://www.slate.com/blogs/the_eye/2015/06/29/lucky_iron_fish_project_to_prevent_anemia_in_cambodia_wins_cannes_lions.html
Clutter
in
Thyroid UK
9 years ago
bloods
hi have just had my latest blood result .any help would be great .on vb12 injections every 8 weeks and on 175 levothyroxine . doc said i have to start folic acid as it low . have terrible problems taken iron take liquid iron when i can. but they say thyroid is fine fertin 8 hemoglobin 10 b12 480 ths
hi have just had my latest blood result .any help would be great .on vb12 injections every 8 weeks and on 175 levothyroxine . doc said i have to start folic acid as it low . have terrible problems taken iron take liquid iron when i can. but they say thyroid is fine fertin 8 hemoglobin 10 b12 480 ths
ayrshirelass13
in
Thyroid UK
9 years ago
What to expect from DBS
My doctor is recommending DBS. I'm terrified. What does it feel like? How long is recovery? I live alone and I'm nervous about being discharged too soon, as hospitals seem so anxious to do these days. Do you have to be awake or do they knock you out?
My doctor is recommending DBS. I'm terrified. What does it feel like? How long is recovery? I live alone and I'm nervous about being discharged too soon, as hospitals seem so anxious to do these days. Do you have to be awake or do they knock you out?
Beckey
in
Cure Parkinson's
9 years ago
Iron deficiency
I was prescribed my second medication to treat RA 6 weeks ago already on methotrexate(which took 4 weeks of intermittent sickness before the side effects subsided after GP intervention and introduction of a second batch of omeprazole upto 40mg to stop me feeling sick and anti sickness tablets) My rheumy
I was prescribed my second medication to treat RA 6 weeks ago already on methotrexate(which took 4 weeks of intermittent sickness before the side effects subsided after GP intervention and introduction of a second batch of omeprazole upto 40mg to stop me feeling sick and anti sickness tablets) My rheumy
lorraine1972
in
NRAS
9 years ago
Bloods back
Hi all got some test results today still waiting on tyroid antibodie tsh t4 t3. But these rcthecones I got today if anyone has time could they explain if they rvall ok . B12 637 folate 19.1 iron 11 ferritin 72. Transferrin 2.62 ... Didn't do vit d thank you
Hi all got some test results today still waiting on tyroid antibodie tsh t4 t3. But these rcthecones I got today if anyone has time could they explain if they rvall ok . B12 637 folate 19.1 iron 11 ferritin 72. Transferrin 2.62 ... Didn't do vit d thank you
Hidden
in
Thyroid UK
9 years ago
"Dilemma "Increase meds or take more often? Please help
Hi fellow sufferers of PD I have reached a stage in my journey where I am getting a lot of OFF times . I was scheduled for DBS in December last year but 2 weeks before that I started on Azilect with fantastic results i was almost symptom free and cancelled my surgery ( was also taking Madapar Comtan
Hi fellow sufferers of PD I have reached a stage in my journey where I am getting a lot of OFF times . I was scheduled for DBS in December last year but 2 weeks before that I started on Azilect with fantastic results i was almost symptom free and cancelled my surgery ( was also taking Madapar Comtan
Sunnysky
in
Cure Parkinson's
9 years ago
For NightDancer
How the Uridine Stack Works The uridine stack works through two main mechanisms to provide therapeutic and nootropic effects. 1.The chemical uridine promotes the creation of new dopamine receptors in the brain, an effect which is more pronounced in brains with fewer dopamine receptors. This is done
How the Uridine Stack Works The uridine stack works through two main mechanisms to provide therapeutic and nootropic effects. 1.The chemical uridine promotes the creation of new dopamine receptors in the brain, an effect which is more pronounced in brains with fewer dopamine receptors. This is done
Hidden
in
Restless Legs Syndrome
9 years ago
Alone
I'm having DBS surgery in August. My husband is not supportive at all. In fact he said some so hurtful things to me. At this point I don't even want him at the surgery. Am I going to have problems in the surgery because of the emotional state I am in. It's not gonna get any better with him. But this
I'm having DBS surgery in August. My husband is not supportive at all. In fact he said some so hurtful things to me. At this point I don't even want him at the surgery. Am I going to have problems in the surgery because of the emotional state I am in. It's not gonna get any better with him. But this
BaileyT
in
Cure Parkinson's
9 years ago
Got my results
Got my test results recently , and wonder if anyone could help me understand it a bit more ?! TSH 3.37 0.30 -4.20 T4 10.9 12.00 -22.00 Ferritin 95 D3 81 Full blood count normal Thank you
Got my test results recently , and wonder if anyone could help me understand it a bit more ?! TSH 3.37 0.30 -4.20 T4 10.9 12.00 -22.00 Ferritin 95 D3 81 Full blood count normal Thank you
Susi1691
in
Thyroid UK
9 years ago
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