I hope you can help me!?? In 1998 I suffered a Stroke at the age of 32.
This happened in Spain where I spent 1wk in Barcelona Hospital then I was transferred to the QE Hospital here in Birmingham where I spent a further 3mnts.
I then had Brain Surgery & then I was given the all clear the following year.
This was Great News" so I started to rebuild my "2nd" new life!! Thus: new job, returned to driving & had a 2nd child all of which were not though possible in 1998/99.
But in 2004 I started getting further problems!! Following more tests I needed another Brain Operation.
In 2005 I had (SRS) Radiation Treatment at the QEHB which went Horribly Wrong!!
Thus giving me "Chronic Pain" 24/7.
Since then I have been given a number of medications which are either too strong or too weak!!
I have now been to a number off Hospitals (4/5) here in Birmingham.
Leading to being Referred to The John Radcliffe in Oxford. The Constants there told me that I would be put forward for some "Deep Brain Stimulation" "Great"
Then to be told that I can't have the "Procedure" due to "Funding"
I was then refered by my "GP" too another hospital in Liverpool to again be told I needed some "Deep Brain Stimulation"
I was again told that the Funding had been "Refused"
I'm now 10yrs with Chronic Pain caused by the "NHS" in the 1st place.
I have been too more "NHS Hospitals" than I have had "Hot Dinners"
I have seen more "Pain Consultants" than I can count on "One Hand"
I have also been "Told" by numerous "NHS Doctors" that I need "Deep Brain Stimulation"
I have also traveled around the country for "Treatment"
To be told "Yes & Then No" to any "Treatment"
Don't they "Realise" I have a "B/I"
Why have Doctors & Consultants in the first place!!!!
If they all off say I need a treating one day & then not being able the next!!
I have even contacted "NICE" as my condition is recommended on their Website.
This another excuse beening used by the "Hospitals"
Too be told the "NHS" hasn't got to use there "Guidelines"
Why have the "Guidlines" in the 1st Place!!!
If the "NHS" doesn't use them???
I have now seen a "Private Pain Consultant" in desperation!!
I hope that you can help me??
I wouldn't wish this "PAIN" on my "Worst Enemy"