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Experiences with
D-bifunctional protein (DBP) deficiency
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Coeliac Blood tests
I am a vegetarian and eat only a small amount of fish but a huge variety of veggies and fruit etc. I have just had this years tests and all were fine except my iron which had dropped to 11. Since diagnosis I have had an issue with iron levels - originally on daily tablets but they made me very sick
I am a vegetarian and eat only a small amount of fish but a huge variety of veggies and fruit etc. I have just had this years tests and all were fine except my iron which had dropped to 11. Since diagnosis I have had an issue with iron levels - originally on daily tablets but they made me very sick
Tiggykanga
in
Gluten Free Guerrillas
7 years ago
Doctor appointment
Hi came back from doctor appointment tonight and I have been started on 50mcg levothyroxine with a retest in 6-8 weeks October 2017 TSH 11.3 (0.2 - 4.2) FREE T4 10.5 (12 - 22) Also prescribed ferrous fumarate to take 3x a day because complete blood count and iron panel showed iron deficiency anaemia
Hi came back from doctor appointment tonight and I have been started on 50mcg levothyroxine with a retest in 6-8 weeks October 2017 TSH 11.3 (0.2 - 4.2) FREE T4 10.5 (12 - 22) Also prescribed ferrous fumarate to take 3x a day because complete blood count and iron panel showed iron deficiency anaemia
Lucie88
in
Thyroid UK
7 years ago
Iron Tablets & RLS
I had RLS for a few months and my GP suggested blood tests for lack of vitamin D the blood test came back ok I also had blood tests for anemia which came back as 10 instead of 50, I started a course of Iron Tablets and within a few days my RLS had disappeared hope this is of some use to any of you.
I had RLS for a few months and my GP suggested blood tests for lack of vitamin D the blood test came back ok I also had blood tests for anemia which came back as 10 instead of 50, I started a course of Iron Tablets and within a few days my RLS had disappeared hope this is of some use to any of you.
anne-4
in
Restless Legs Syndrome
7 years ago
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Help with low ferritin please
Hi, has anyone had any experience of successfully raising ferritin levels? I was recommended liquid iron supplementation, but even with extensive research and finding the purest and most gentle ones I could, my digestive system just didn't tolerate it at all and my acne-prone skin flared up significantly
Hi, has anyone had any experience of successfully raising ferritin levels? I was recommended liquid iron supplementation, but even with extensive research and finding the purest and most gentle ones I could, my digestive system just didn't tolerate it at all and my acne-prone skin flared up significantly
Senorita_Squiffy
in
Thyroid UK
7 years ago
Essential Tremors
Although I do not have Parkinson’s, I do have essential tremors which are profound. A year ago I had DBS surgery on the right side and this has proven to be outstanding. I feel that I am in the wrong forum. Maybe there is another forum for essential tremors which may be more beneficial.
Although I do not have Parkinson’s, I do have essential tremors which are profound. A year ago I had DBS surgery on the right side and this has proven to be outstanding. I feel that I am in the wrong forum. Maybe there is another forum for essential tremors which may be more beneficial.
In2Az
in
Cure Parkinson's
7 years ago
Has anyone else been though the ordeal of the tests for the brain stimulation only to be told you Carnt have it YET?...
I am 57 years old and I was diagnosed with pd 3 years ago but my doctor reckons I have had it for at least 2 years before that Back in April 2017 my consultant said I seemed to be a perfect candidate for DBS would I consider it. I didn’t have to Think twice. I take Sinimet,Ropinirole and Rasagiline
I am 57 years old and I was diagnosed with pd 3 years ago but my doctor reckons I have had it for at least 2 years before that Back in April 2017 my consultant said I seemed to be a perfect candidate for DBS would I consider it. I didn’t have to Think twice. I take Sinimet,Ropinirole and Rasagiline
CarolCastile
in
Cure Parkinson's
7 years ago
GP appointment
Hi I had my GP appointment on Friday which went well (I think) I am now taking 150mcg levothyroxine from 125mcg levothyroxine with a repeat test in 6-8 weeks. I have also had it confirmed I have Hashimoto's thyroiditis and I need to avoid gluten and possibly dairy since I am lactose intolerant. TSH
Hi I had my GP appointment on Friday which went well (I think) I am now taking 150mcg levothyroxine from 125mcg levothyroxine with a repeat test in 6-8 weeks. I have also had it confirmed I have Hashimoto's thyroiditis and I need to avoid gluten and possibly dairy since I am lactose intolerant. TSH
Zoeyv
in
Thyroid UK
7 years ago
Ferritin
Hi I wanted to keep this one separate since there is a long history behind this - I would like to know if I am still iron deficient and that my doctor is treating me incorrectly? I had an iron infusion in May 2016 ordered by haematologist as a one off and this helped my ferritin but not my iron or complete
Hi I wanted to keep this one separate since there is a long history behind this - I would like to know if I am still iron deficient and that my doctor is treating me incorrectly? I had an iron infusion in May 2016 ordered by haematologist as a one off and this helped my ferritin but not my iron or complete
Abik
in
Thyroid UK
7 years ago
New private blood results contradict the ones from gps. Shall I tell doctor?
Hello, I just got the results from the blood tests I did in Italy while visiting my family, 10 days after the ones I posted about recently were done. I did these tests because I like to know what my T3 is, but also I have an appointment booked in December with a private endo also in Italy who is trained
Hello, I just got the results from the blood tests I did in Italy while visiting my family, 10 days after the ones I posted about recently were done. I did these tests because I like to know what my T3 is, but also I have an appointment booked in December with a private endo also in Italy who is trained
assunta79
in
Thyroid UK
7 years ago
Levels dropping after T3 removed in August 2017 - Hashimotos advice please
Hi I am 27 years old. Symptoms are Low concentration, making more mistakes at work and missing important information Tiredness, sleeping throughout the afternoon and early evening Heavy periods bleeding through my clothes Feeling cold even with the air conditioner on Preference
Hi I am 27 years old. Symptoms are Low concentration, making more mistakes at work and missing important information Tiredness, sleeping throughout the afternoon and early evening Heavy periods bleeding through my clothes Feeling cold even with the air conditioner on Preference
Karaj_90
in
Thyroid UK
7 years ago
Can I take Iron tablets with a ferritin level of 40 (range 13.0 - 150.0)?
Hello, I feel very tired and breathless, struggle with memory and concentration and need to sleep a lot. I was prescribed Ferrous Sulphate last year when my Ferritin was 25 (range was 10-284), so I doubt the doctor would prescribe again as it looks better also given the different range. I am already
Hello, I feel very tired and breathless, struggle with memory and concentration and need to sleep a lot. I was prescribed Ferrous Sulphate last year when my Ferritin was 25 (range was 10-284), so I doubt the doctor would prescribe again as it looks better also given the different range. I am already
assunta79
in
Thyroid UK
7 years ago
Advice on iron supplements please.
Hi Everyone, I am hoping to get some advice on taking iron supplements please. I am recently diagnosed as having Hashimoto's disease and have just been on Levothyroxine for about 6 weeks. I am a bit worried about my symptoms. In March this year I had severe iron deficiency anaemia and started taking
Hi Everyone, I am hoping to get some advice on taking iron supplements please. I am recently diagnosed as having Hashimoto's disease and have just been on Levothyroxine for about 6 weeks. I am a bit worried about my symptoms. In March this year I had severe iron deficiency anaemia and started taking
Cn13
in
Thyroid UK
7 years ago
Iron confusion
Back in June i had 6 iron infusions because i was so anemic. A week after my last infusion...26. June Ferritin 297 (30-400) strange range for female Iron 32 (49-151) Transferritin 2.5 (2-3.6) Trasferritin sat 8.9 (16-45) 13 Sept. (different doc/lab) Ferritin 73 (50-170) no other iron tests I'm baffled
Back in June i had 6 iron infusions because i was so anemic. A week after my last infusion...26. June Ferritin 297 (30-400) strange range for female Iron 32 (49-151) Transferritin 2.5 (2-3.6) Trasferritin sat 8.9 (16-45) 13 Sept. (different doc/lab) Ferritin 73 (50-170) no other iron tests I'm baffled
RobinAnn
in
Thyroid UK
7 years ago
Started levothyroxine
Started 50mcg levothyroxine by GP today and getting retested 6 - 8 weeks later is this right? Also gotten tested for intrinsic factor antibodies, given loading dose of B12 and vit D and told not to start folic acid until intrinsic factor. Also complete blood count shows below range MCV and above range
Started 50mcg levothyroxine by GP today and getting retested 6 - 8 weeks later is this right? Also gotten tested for intrinsic factor antibodies, given loading dose of B12 and vit D and told not to start folic acid until intrinsic factor. Also complete blood count shows below range MCV and above range
Aimee1314
in
Thyroid UK
7 years ago
Advice please on supplements
I am here on behalf of girlfriend who is worried about symptoms she can't make sense of. She is 29 years old and has thyroid peroxidase antibodies of 377 (<34 IU/mL). Symptoms list - Seeing flashing spots/floaters in her eyes Dizziness and breathlessness when standing from squatting Tiredness
I am here on behalf of girlfriend who is worried about symptoms she can't make sense of. She is 29 years old and has thyroid peroxidase antibodies of 377 (<34 IU/mL). Symptoms list - Seeing flashing spots/floaters in her eyes Dizziness and breathlessness when standing from squatting Tiredness
Domikk
in
Thyroid UK
7 years ago
Deep Brain Stimulation and gratitude.
Hi all This is a link to my vlog about Deep Brain Stimulation and gratitude. https://youtu.be/HDAuh54QNw4 Cheers, Ian
Hi all This is a link to my vlog about Deep Brain Stimulation and gratitude. https://youtu.be/HDAuh54QNw4 Cheers, Ian
Ianfrizell
in
Cure Parkinson's
7 years ago
GP prescribed vitamin b compound tablets for b12 deficiency
Absolutely flabbergasted! As I mentioned in my initial post my GP wanted to try and treat my b12 def by oral supplement. I managed to persuade him to instead give me loading shots. I have just been to the chemist to collect some other meds and the prescription was there that I hadn't collected. I thought
Absolutely flabbergasted! As I mentioned in my initial post my GP wanted to try and treat my b12 def by oral supplement. I managed to persuade him to instead give me loading shots. I have just been to the chemist to collect some other meds and the prescription was there that I hadn't collected. I thought
Padders12
in
Pernicious Anaemia Society
7 years ago
Do I need iron
Thankyou Ferritin 12 (30 - 400) MCV 74.2 (80 - 98) MCHC 385 (310 - 350) MCH 28.2 (28 - 32) Haemoglobin 114 (115 - 150) Haematocrit 0.41 (0.37 - 0.47) RBC count 4.33 (3.80 - 5.80) WBC count 7.12 (4.0 - 11.0) Iron 7.2 (6.0 - 26.0) Transferrin 16 (10 - 30)
Thankyou Ferritin 12 (30 - 400) MCV 74.2 (80 - 98) MCHC 385 (310 - 350) MCH 28.2 (28 - 32) Haemoglobin 114 (115 - 150) Haematocrit 0.41 (0.37 - 0.47) RBC count 4.33 (3.80 - 5.80) WBC count 7.12 (4.0 - 11.0) Iron 7.2 (6.0 - 26.0) Transferrin 16 (10 - 30)
Ava23
in
Thyroid UK
7 years ago
Advice please
What do I do about results please thankyou Folate 2.4 (4.6 - 18.7) Vitamin B12 201 (190 - 900) Ferritin 27 (30 - 400) MCV 77.5 (80 - 100) MCHC 379 (310 - 350) Haemoglobin 121 (115 - 150) Iron 9.3 (6 - 26) Transferrin saturation 16 (10 - 30)
What do I do about results please thankyou Folate 2.4 (4.6 - 18.7) Vitamin B12 201 (190 - 900) Ferritin 27 (30 - 400) MCV 77.5 (80 - 100) MCHC 379 (310 - 350) Haemoglobin 121 (115 - 150) Iron 9.3 (6 - 26) Transferrin saturation 16 (10 - 30)
Allie6
in
Pernicious Anaemia Society
7 years ago
Low iron?
I've been feeling pretty cack for last couple of weeks. I had bloods done last Friday . I checked them on line and my iron levels are 8. Isn't that rather low? Do I need to check about iron supplements? I do already take spa tone with fresh OJ. I also eat loads of leafy veg etc.
I've been feeling pretty cack for last couple of weeks. I had bloods done last Friday . I checked them on line and my iron levels are 8. Isn't that rather low? Do I need to check about iron supplements? I do already take spa tone with fresh OJ. I also eat loads of leafy veg etc.
Nettac
in
NRAS
7 years ago
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