Search
Search
About
Log in
Join
Experiences with
D-bifunctional protein (DBP) deficiency
Posts
Communities
2,106 public posts
Filter results
Blood test results - v confused
Hello everyone! Firstly, can I just say thank you for even reading this post. My situation is, I was diagnosed hypo after I had my first child April 2017. My dose of Levothyroxine has been 200mcg since last September and GP's would not increase it. I have now finally been referred to an Endo following
Hello everyone! Firstly, can I just say thank you for even reading this post. My situation is, I was diagnosed hypo after I had my first child April 2017. My dose of Levothyroxine has been 200mcg since last September and GP's would not increase it. I have now finally been referred to an Endo following
Mk141209
in
Thyroid UK
5 years ago
A small study has recently suggested that Deep Brain Stimulation eases Parkinson’s symptoms by directly raising dopamine levels
“Even if dopamine-producing cells are not activated directly, electrically stimulating other parts of the brain, particularly those that receive information from dopamine-producing cells, can indirectly increase dopamine production ...” https://parkinsonsnewstoday.com/2019/08/23/deep-brain-stimulation-directly-raises-dopamine-levels-study-suggests
“Even if dopamine-producing cells are not activated directly, electrically stimulating other parts of the brain, particularly those that receive information from dopamine-producing cells, can indirectly increase dopamine production ...” https://parkinsonsnewstoday.com/2019/08/23/deep-brain-stimulation-directly-raises-dopamine-levels-study-suggests
jeffreyn
in
Cure Parkinson's
5 years ago
Non dietary B12 deficiency needs B12 jabs
Hi All, New blog post on B12 Deficiency Info website. Mentions that many with non dietary B12 deficiency are not given B12 injections. https://www.b12deficiency.info/blog/2019/07/26/wherever-we-are-in-the-world-we-are-all-in-the-same-boat/#comments In UK, national guidelines specify injections where
Hi All, New blog post on B12 Deficiency Info website. Mentions that many with non dietary B12 deficiency are not given B12 injections. https://www.b12deficiency.info/blog/2019/07/26/wherever-we-are-in-the-world-we-are-all-in-the-same-boat/#comments In UK, national guidelines specify injections where
Sleepybunny
in
Pernicious Anaemia Society
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
GOING INTO DBS SURGERY
After 18 yrs with PD it has became intolerant so I decided to get into DBS Deep Brain Stimulator Surgery soon. Before I turn 70 cause they wont do it, Im 66. I will honestly tell you people if it worth. They say tremors and stiffness will disappear. Want to know more google it.
After 18 yrs with PD it has became intolerant so I decided to get into DBS Deep Brain Stimulator Surgery soon. Before I turn 70 cause they wont do it, Im 66. I will honestly tell you people if it worth. They say tremors and stiffness will disappear. Want to know more google it.
kiko1580
in
Cure Parkinson's
5 years ago
How I reduced my Parkinson’s meds by 50% and beat my addiction to dopamine
Fifteen years ago I was diagnosed with Parkinson’s Disease (PD). Within a year I was taking the standard medication associated with the disease, dopamine in its various forms (levodopa/carbadopa, aka. Sinemet). Like most sufferers of PD, my need for Sinemet, grew and grew until I was taking 200 mg every
Fifteen years ago I was diagnosed with Parkinson’s Disease (PD). Within a year I was taking the standard medication associated with the disease, dopamine in its various forms (levodopa/carbadopa, aka. Sinemet). Like most sufferers of PD, my need for Sinemet, grew and grew until I was taking 200 mg every
GaryTorch
in
Cure Parkinson's
5 years ago
Abject fatigue
I am curious if anyone has a cheery solution for abject fatigue. I’m finding it to be a potential terminal issue. I don’t see a way out. The more I try to exercise the worse it gets. I’m currently on Rytary, klonazapam-dose hasn’t changed in 4 years- and levothyroxine. About a year ago started
I am curious if anyone has a cheery solution for abject fatigue. I’m finding it to be a potential terminal issue. I don’t see a way out. The more I try to exercise the worse it gets. I’m currently on Rytary, klonazapam-dose hasn’t changed in 4 years- and levothyroxine. About a year ago started
etterus
in
Cure Parkinson's
5 years ago
Low ferritin and high transferrin saturation
Hi all, sorry if this is a bit off topic but I know there are some experts in vitamins and minerals out there. I haven’t been diagnosed with a thyroid condition but, with the help of this lovely group, I discovered my thyroid is sluggish (TSH hovers between 2.5 & 3 and FT3 has been at the lower end of
Hi all, sorry if this is a bit off topic but I know there are some experts in vitamins and minerals out there. I haven’t been diagnosed with a thyroid condition but, with the help of this lovely group, I discovered my thyroid is sluggish (TSH hovers between 2.5 & 3 and FT3 has been at the lower end of
Julesboz
in
Thyroid UK
5 years ago
I’m new here
Hello, I was diagnosed in 2011, at age 39. I was able to manage my symptoms quite well until about 18 months ago using only an agonist. I started on Sinemet at the beginning of last year, but within 6 months had increased from 3 tablets a day to 9 and started experiencing wear-off in about 2 hours.
Hello, I was diagnosed in 2011, at age 39. I was able to manage my symptoms quite well until about 18 months ago using only an agonist. I started on Sinemet at the beginning of last year, but within 6 months had increased from 3 tablets a day to 9 and started experiencing wear-off in about 2 hours.
NevJ
in
Cure Parkinson's
5 years ago
NHS website states
The NHS website states " PA is the most common cause of b12 deficiency in the UK". So why do NHS doctors not read that? It goes on to say "Some people can experience problems related to a vitamin B12 deficiency, despite appearing to have normal levels of vitamin B12 in their blood. This can happen as
The NHS website states " PA is the most common cause of b12 deficiency in the UK". So why do NHS doctors not read that? It goes on to say "Some people can experience problems related to a vitamin B12 deficiency, despite appearing to have normal levels of vitamin B12 in their blood. This can happen as
lesbud1
in
Pernicious Anaemia Society
5 years ago
Low ferritin, normal hb , has anyone had infusions
Hi I currently have a ferritin level of 8 and feel terrible. I have a history of low ferritin and it hasn’t been higher than 25 for 4 years. I’m no longer able to take iron tablets because of side effects. My gp Has recommended iron infusions and from the research I’ve done could greatly improve my quality
Hi I currently have a ferritin level of 8 and feel terrible. I have a history of low ferritin and it hasn’t been higher than 25 for 4 years. I’m no longer able to take iron tablets because of side effects. My gp Has recommended iron infusions and from the research I’ve done could greatly improve my quality
Tootsie2468
in
Thyroid UK
5 years ago
B12 and iron deficiency link?
Just found this article. It suggests a link between B12 and iron deficiency. I thought it may be interesting. (I had B12 deficiency and iron deficiency at the same time, the iron deficiency corrected itself mysteriously after 2 weeks of B12 loading doses) Extracted quote to save you reading the whole
Just found this article. It suggests a link between B12 and iron deficiency. I thought it may be interesting. (I had B12 deficiency and iron deficiency at the same time, the iron deficiency corrected itself mysteriously after 2 weeks of B12 loading doses) Extracted quote to save you reading the whole
GastritisB12
in
Pernicious Anaemia Society
5 years ago
Blood results
Would be grateful it you could double check my results for me. Doctor who commented said everything is ‘normal’ except iron was a little high, but that could be because of the spinach I eat as I don’t take any iron supplements. I’m on 175mcg levothyroxine. Thank you
Would be grateful it you could double check my results for me. Doctor who commented said everything is ‘normal’ except iron was a little high, but that could be because of the spinach I eat as I don’t take any iron supplements. I’m on 175mcg levothyroxine. Thank you
Neverending63
in
Thyroid UK
5 years ago
BMJ Oral Vitamin B12 can change our Practice
Is this article why some of us are being put on oral b12? what do we say to this? This is what is says This study confirms that oral 1000 μg cyanocobalamin provides effective maintenance therapy for vitamin B12 deficiency of all causes. General practitioners can be confident that this alternative treatment
Is this article why some of us are being put on oral b12? what do we say to this? This is what is says This study confirms that oral 1000 μg cyanocobalamin provides effective maintenance therapy for vitamin B12 deficiency of all causes. General practitioners can be confident that this alternative treatment
lesbud1
in
Pernicious Anaemia Society
5 years ago
Calling all DUOPA PUMP users
Recently I learned hard way that DBS surgery no for me. I am taking around 15 sinemet pills 25/100. So, we as a family are just wanting to do some research and speak to other sufferers whom can give some pro’s & con’s on the Duopa Therapy. Thanks in advance!! 😁 Luba
Recently I learned hard way that DBS surgery no for me. I am taking around 15 sinemet pills 25/100. So, we as a family are just wanting to do some research and speak to other sufferers whom can give some pro’s & con’s on the Duopa Therapy. Thanks in advance!! 😁 Luba
luba1
in
Cure Parkinson's
5 years ago
Iron deficiency and b12d
I have had iron deficiency twice over the last 3 years investigations found nothing. Is there any particular association with b12 deficiency. Does anyone know?
I have had iron deficiency twice over the last 3 years investigations found nothing. Is there any particular association with b12 deficiency. Does anyone know?
Damseltree
in
Pernicious Anaemia Society
5 years ago
Muscle retention in PD
I have been riding a relatively good streak since DBS 6 years ago. Recently my right side muscles, bicep and my leg have become severely compromised. My bicep looks like I survived WW2 prison camp! (NO DISRESPECT INTENDED). I am active with yoga and yard work etc. I can't lift my grandchildren..
I have been riding a relatively good streak since DBS 6 years ago. Recently my right side muscles, bicep and my leg have become severely compromised. My bicep looks like I survived WW2 prison camp! (NO DISRESPECT INTENDED). I am active with yoga and yard work etc. I can't lift my grandchildren..
Pelley
in
Cure Parkinson's
5 years ago
Pregabalin
Well its 4.39 in the morning and Ive decided that lyrica is not working for me. Its just over 3 weeks and it still doesnt work. Im exhausted. Hardly any sleep. My question is , Is horizant the same.as lyrica. Has anyone had good results with it.
Well its 4.39 in the morning and Ive decided that lyrica is not working for me. Its just over 3 weeks and it still doesnt work. Im exhausted. Hardly any sleep. My question is , Is horizant the same.as lyrica. Has anyone had good results with it.
Memmy
in
Restless Legs Syndrome
5 years ago
Galactorrhoea - Still present after being on 100mcg Levothyroxine for 6 months.
Hi, ive had Galactorrhoea (unexplained milk production) for over a year now, since April 2018. In August 2018 i was diagnosed with Hypothyroidism and i expected this along with other symptoms to go away. The tiredness has decreased but my weight is not shifting and i can still express a little milk.
Hi, ive had Galactorrhoea (unexplained milk production) for over a year now, since April 2018. In August 2018 i was diagnosed with Hypothyroidism and i expected this along with other symptoms to go away. The tiredness has decreased but my weight is not shifting and i can still express a little milk.
Charlistravels
in
Thyroid UK
5 years ago
I need help with hypothyroidism and anemia
I have recently found out that I have anemia, wanting to find out the affects on thyroid hormone. I am on t3 only. Does low iron prevent the thyroid medicine from working effectively.
I have recently found out that I have anemia, wanting to find out the affects on thyroid hormone. I am on t3 only. Does low iron prevent the thyroid medicine from working effectively.
Hidden
in
Thyroid UK
5 years ago
METHYL B6 MethylyCobalamin - Is there a CHEMIST in the house
Hi - My first post. By way of brief background ... I have read everthing here on the subject of B12 (Types, injection/oral route etc) and benefited from it - and thank everybody... re their inputs on B12. Also I have read everything I can find on the internet...., plus 2 books - Could It Be B12 & Chandy's
Hi - My first post. By way of brief background ... I have read everthing here on the subject of B12 (Types, injection/oral route etc) and benefited from it - and thank everybody... re their inputs on B12. Also I have read everything I can find on the internet...., plus 2 books - Could It Be B12 & Chandy's
GazKaz
in
Pernicious Anaemia Society
5 years ago
1
...
42
43
44
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
777 results
Thyroid UK
645 results
Pernicious Anaemia Society
299 results
View top 10 communities
Sort by
Most Relevant
Newest