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D-bifunctional protein (DBP) deficiency
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Am I unreasonable for requesting a full iron panel with these results?
GP said on the phone that nothing in my FBC suggested anemia and that my 'iron was tested in August and was fine'. I didn't have my notes in front of me so got flustered but I have an appointment this afternoon and I'd like to challenge her on it but I want to make sure I'm right! Edit: The photo looks
GP said on the phone that nothing in my FBC suggested anemia and that my 'iron was tested in August and was fine'. I didn't have my notes in front of me so got flustered but I have an appointment this afternoon and I'd like to challenge her on it but I want to make sure I'm right! Edit: The photo looks
Hidden
in
Thyroid UK
4 years ago
Ok to supplement with small amount of iron if not anemic?
SlowDragon and SeasideSusie, I think you were the ones who advised that to correct low ferritin without anemia, you shouldn't supplement but get the iron through food. I'm wondering if I could at least take 5mg of iron supplement each day -- the amount that's in many daily women's multivitamins? Not long-term
SlowDragon and SeasideSusie, I think you were the ones who advised that to correct low ferritin without anemia, you shouldn't supplement but get the iron through food. I'm wondering if I could at least take 5mg of iron supplement each day -- the amount that's in many daily women's multivitamins? Not long-term
Gophe
in
Thyroid UK
4 years ago
ARE YOU NON TREMOR DOMINANT PD PATIENT? DID YOUGET DBS? IF YES, PLEASE SHARE YOUR EXPERIENCE.
Hi please anyone. please tell me if it is worth it getting DBS ,if you are PIDG. Are you still using C/L or mucuna? What other pd medications are you on?
Hi please anyone. please tell me if it is worth it getting DBS ,if you are PIDG. Are you still using C/L or mucuna? What other pd medications are you on?
OREOLU
in
Cure Parkinson's
4 years ago
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Job with MSA Patients
Hi all, I would like to see if anyone can help me. I currently work as a complex healthcare assistant and a support worker. I was doing long days - live in domiciliary care with a gentlemen who had this horrible disease MSA for 9 months before he sadly passed away. I learnt so much about the illness
Hi all, I would like to see if anyone can help me. I currently work as a complex healthcare assistant and a support worker. I was doing long days - live in domiciliary care with a gentlemen who had this horrible disease MSA for 9 months before he sadly passed away. I learnt so much about the illness
RhiMallorca
in
Multiple System Atrophy Trust
4 years ago
Multiple gastroscopies
I was diagnosed with Nash about two and a half years ago. I had no idea that I had cirrhosis until it was discovered that I was severely endemic and the dermatologist ordered an abdominal scan. My lft,shave always been virtually normal. I was due to have a spectroscopy last December but didn't get an
I was diagnosed with Nash about two and a half years ago. I had no idea that I had cirrhosis until it was discovered that I was severely endemic and the dermatologist ordered an abdominal scan. My lft,shave always been virtually normal. I was due to have a spectroscopy last December but didn't get an
GrandmaDylan
in
British Liver Trust
4 years ago
DBS PLUS MUKUNA P, OR DBS PLUS C/L, OR DBS PLUS HDT PLUS MUKUNA P, OR DBS PLUS MUKUNA PLUS C/L PLUS HDT, DBS PLUS HDT PLUS C/L.
Hi friends with PD and caregivers, if you are non tremor dominant, gait/balance/posture abnormality PD patient, and has had any of the above combination of interventions. please chose any combination that works for you. And how long has this been working for you? Thanks
Hi friends with PD and caregivers, if you are non tremor dominant, gait/balance/posture abnormality PD patient, and has had any of the above combination of interventions. please chose any combination that works for you. And how long has this been working for you? Thanks
OREOLU
in
Cure Parkinson's
4 years ago
B12 and platelet drop
Hi I have b12 deficiency and noticed my platelet count dropped to 149000 my doctor says it’s ok , happens with b12 deficiency but I am a bit concerned on this . Do these correlate . I have been asked to check my folate and iron levels which I will do next week. I am presently on b12 injections will
Hi I have b12 deficiency and noticed my platelet count dropped to 149000 my doctor says it’s ok , happens with b12 deficiency but I am a bit concerned on this . Do these correlate . I have been asked to check my folate and iron levels which I will do next week. I am presently on b12 injections will
Ulrich-vi
in
Pernicious Anaemia Society
4 years ago
Iron deficiency
Diagnosed with iron deficiency Anamia in 3/2020, prescribed ferrous sulfate 200mg twice a day. Had colonoscopy, endoscopy, no issue found. Chemist told me to take tablet with orange juice & after food. But I have to go to toilet 7 times with loose stool. Any suggestions?
Diagnosed with iron deficiency Anamia in 3/2020, prescribed ferrous sulfate 200mg twice a day. Had colonoscopy, endoscopy, no issue found. Chemist told me to take tablet with orange juice & after food. But I have to go to toilet 7 times with loose stool. Any suggestions?
mwanza100
in
Thyroid UK
4 years ago
December 11, 2020, MRg FUS PTT & me, 9 month(s) (ago today) report.
The patient recovering the day after. (I posted this as a comment in another thread last week, but to be consistent with my 3 and 6 month reports, I repeat it here.) There are a lot of body movements and functions (balance, walking, vision, speech, bowel function) that requires both sides the brain,
The patient recovering the day after. (I posted this as a comment in another thread last week, but to be consistent with my 3 and 6 month reports, I repeat it here.) There are a lot of body movements and functions (balance, walking, vision, speech, bowel function) that requires both sides the brain,
MBAnderson
in
Cure Parkinson's
4 years ago
Anaemia and PMR/GCA
I am new here and this has probably come up before but I am trying to find out if there is a connection between PMR/GCA (they are not sure which I have) and anaemia - my Hb was 70 - I was given 2 bags of blood back in March (at start of lockdown!!) and have been on 3x210g of ferrous fumarate a day since
I am new here and this has probably come up before but I am trying to find out if there is a connection between PMR/GCA (they are not sure which I have) and anaemia - my Hb was 70 - I was given 2 bags of blood back in March (at start of lockdown!!) and have been on 3x210g of ferrous fumarate a day since
springeramber
in
PMRGCAuk
4 years ago
I'm new here I have low MCHC (31.8) and low b12, High Creatine (1.0) , Low Globulin (2.3). Are these numbers concerning? Thx for any advice
I need help interpreting bloodwork. Low MCHC concerns me. Thank you for any advice. My doctor is away and I don't want to worry in the meantime. Thanks
I need help interpreting bloodwork. Low MCHC concerns me. Thank you for any advice. My doctor is away and I don't want to worry in the meantime. Thanks
ceekingle
in
Pernicious Anaemia Society
4 years ago
Has anyone used Dipyridamole with effect for RLS?
I read that in 2014 and 2015 , Dr Ferre receieved grants from the RLS Foundation to more closely examine how dopamine and glutamate work in the brain. Apparently he found that low levels of receptors of adenosine, a chemical in the brain that regulates neurochemicals, lead to abnormally high levels
I read that in 2014 and 2015 , Dr Ferre receieved grants from the RLS Foundation to more closely examine how dopamine and glutamate work in the brain. Apparently he found that low levels of receptors of adenosine, a chemical in the brain that regulates neurochemicals, lead to abnormally high levels
mateloch
in
Restless Legs Syndrome
4 years ago
Tremor
I must demonstrate the effectiveness of C/L against tremors when and if I apply for DBS. This evening I took one tablet, 25/i100, it became available to my brain in 1/2 an hour. I had no tremor for one hour and still counting. I was dx eight years ago.
I must demonstrate the effectiveness of C/L against tremors when and if I apply for DBS. This evening I took one tablet, 25/i100, it became available to my brain in 1/2 an hour. I had no tremor for one hour and still counting. I was dx eight years ago.
Hidden
in
Cure Parkinson's
4 years ago
High iron saturation
I'm told that my iron is fine or that the ferritin should be closer to 50. Would supplementing iron be wise if the total iron is 133? I'm supplementing with methyl B12/folate and have brought those levels up to optimal ranges. They were low at the time of these iron results. Should I retest the iron
I'm told that my iron is fine or that the ferritin should be closer to 50. Would supplementing iron be wise if the total iron is 133? I'm supplementing with methyl B12/folate and have brought those levels up to optimal ranges. They were low at the time of these iron results. Should I retest the iron
jrbarnes
in
Thyroid UK
4 years ago
DBS Albuquerque
Looking into getting DBS'd by a surgeon in New Mexico
Looking into getting DBS'd by a surgeon in New Mexico
Hidden
in
Cure Parkinson's
4 years ago
B12 & Vitamin D Deficiencies
Hi all. I’m sort of new to the forum. This is my first post. About three months ago, I started experiencing neurological symptoms and muscle issues. After going to several different doctors, including two different neurologists, I was finally tested for B12. It turns out that my B12 was 95. I was also
Hi all. I’m sort of new to the forum. This is my first post. About three months ago, I started experiencing neurological symptoms and muscle issues. After going to several different doctors, including two different neurologists, I was finally tested for B12. It turns out that my B12 was 95. I was also
NJPoet
in
Pernicious Anaemia Society
4 years ago
DBS surgery complete, but no benefits found yet
Friends, my last post I told you my husband was having his device turned on, & he did, however, that evening he experienced high blood pressure & heart palpatations & started making strange & totally movements, lieing in bed could not be still, anyone else experience this? We have emailed Neurologist
Friends, my last post I told you my husband was having his device turned on, & he did, however, that evening he experienced high blood pressure & heart palpatations & started making strange & totally movements, lieing in bed could not be still, anyone else experience this? We have emailed Neurologist
dhill
in
Cure Parkinson's
4 years ago
Concerned
Husband had DBS, device not turned on yet, but tremors & anxiety aremuch, much worse since the surgery, anyone else experience this?
Husband had DBS, device not turned on yet, but tremors & anxiety aremuch, much worse since the surgery, anyone else experience this?
dhill
in
Cure Parkinson's
4 years ago
Low ferritin low hemoglobin celiac three years ?
I have posted before but at my wits end. I was diagnosed celiac three years ago due to very low ferritin and hemoglobin. I began gluten free diet and iron supplements and my levels were back to normal. Dr took me off iron and I continued gluten free. Past labs have shown a steady decline in my hemoglobin
I have posted before but at my wits end. I was diagnosed celiac three years ago due to very low ferritin and hemoglobin. I began gluten free diet and iron supplements and my levels were back to normal. Dr took me off iron and I continued gluten free. Past labs have shown a steady decline in my hemoglobin
rozee1972
in
Gluten Free Guerrillas
4 years ago
45 mins conversation with dr. Jeanmonod regarding FUS
Hi all! I just spoke with dr. J about my situation. In my case he said the PD looks very easy (after 4 years) and he recommended an evaluation exam to determine if I really need a FUS surgery at this time. He said I'm at the border line. The cost of that it will be 2000 CF which will be subtracted from
Hi all! I just spoke with dr. J about my situation. In my case he said the PD looks very easy (after 4 years) and he recommended an evaluation exam to determine if I really need a FUS surgery at this time. He said I'm at the border line. The cost of that it will be 2000 CF which will be subtracted from
ion_ion
in
Cure Parkinson's
4 years ago
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