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D-bifunctional protein (DBP) deficiency
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Levodopa or Dopamine Agonist after DBS in Parkinson's Disease? We finally have some evidence.
Levodopa Versus Dopamine Agonist After Subthalamic Stimulation in Parkinson's Disease https://onlinelibrary.wiley.com/doi/full/10.1002/mds.28382#.X6lTvADhDPE.twitter
Levodopa Versus Dopamine Agonist After Subthalamic Stimulation in Parkinson's Disease https://onlinelibrary.wiley.com/doi/full/10.1002/mds.28382#.X6lTvADhDPE.twitter
Farooqji
in
Cure Parkinson's
4 years ago
Post-treatment lab results -- interpretation help appreciated!
Hi, everyone! I'm hoping those of you who have more experience appraising lab results can help me here, since I still have two weeks before I can go to the hematologist to have these explained to me. I have iron deficiency anemia (formally diagnosed) and, until recently (?), what I assumed to be pernicious
Hi, everyone! I'm hoping those of you who have more experience appraising lab results can help me here, since I still have two weeks before I can go to the hematologist to have these explained to me. I have iron deficiency anemia (formally diagnosed) and, until recently (?), what I assumed to be pernicious
still_elsewhere
in
Pernicious Anaemia Society
4 years ago
You can help to find a cure. Short guide to BOINC (Berkeley Open Infrastructure for Network Computing)
Hi to you reader. First of all I want to ask you, If an opportunity to help with research for treatments and cures for health conditions , would you accept ? If you answer is yes continue reading else STOP HERE. I started number with this 20 years ago with a Seti@home. Seti@home was a computer program
Hi to you reader. First of all I want to ask you, If an opportunity to help with research for treatments and cures for health conditions , would you accept ? If you answer is yes continue reading else STOP HERE. I started number with this 20 years ago with a Seti@home. Seti@home was a computer program
velderve
in
CLL Support
4 years ago
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Vegetarianism and PA / IDA
Hi again, everyone — it feels like I’ve been posting too much, but I have so many questions (so thanks for your patience!). I’m in the initial stages of treatment for both PA and IDA, so I don’t know much but have been reading a lot and waiting on an appointment with a hematologist. I’ve also been
Hi again, everyone — it feels like I’ve been posting too much, but I have so many questions (so thanks for your patience!). I’m in the initial stages of treatment for both PA and IDA, so I don’t know much but have been reading a lot and waiting on an appointment with a hematologist. I’ve also been
still_elsewhere
in
Pernicious Anaemia Society
4 years ago
DBS — What questions to ask the DBS neurosurgeon?
I have an appointment with the DBS neurosurgeon next week for evaluation before the surgery, should I decide. I’ve already had the brain MRI and the Neuropsych evaluation. I’m 70 yrs old, female, 86 lbs, and diagnosed 6 1/2 yrs ago. I’m on C/L only, one tablet, 3 times daily. I’ve tried other meds
I have an appointment with the DBS neurosurgeon next week for evaluation before the surgery, should I decide. I’ve already had the brain MRI and the Neuropsych evaluation. I’m 70 yrs old, female, 86 lbs, and diagnosed 6 1/2 yrs ago. I’m on C/L only, one tablet, 3 times daily. I’ve tried other meds
Kingdomcome
in
Cure Parkinson's
4 years ago
Low ferritin
Hi All, I’ve lurked on and off for several months. I’ve always been told thyroid results are fine but this year I had a positive coeliac blood test result just before lockdown. I did a private thyroid test, no antibodies but TSH slightly elevated. Three weeks ago, more bloods at GP, I knew I had iron
Hi All, I’ve lurked on and off for several months. I’ve always been told thyroid results are fine but this year I had a positive coeliac blood test result just before lockdown. I did a private thyroid test, no antibodies but TSH slightly elevated. Three weeks ago, more bloods at GP, I knew I had iron
Narwhal10
in
Thyroid UK
4 years ago
Question about iron levels?
Hi I am new here, not new to having Hashimoto’s Thyroiditis (hypothyroidism) for around 15 years. Recently, I was sent to a hematologist because my iron levels were so low. Practically non existent. I was put on iv iron right away. The specialist and I were trying to figure out why I was so anemic..
Hi I am new here, not new to having Hashimoto’s Thyroiditis (hypothyroidism) for around 15 years. Recently, I was sent to a hematologist because my iron levels were so low. Practically non existent. I was put on iv iron right away. The specialist and I were trying to figure out why I was so anemic..
Willow7733
in
Thyroid UK
4 years ago
Severe iron deficiency with high feritin levels!
Just had results from private Dr blood test (as so desperate to try and feel better and have been told my feritin in 290 but I have severe anaemia and need intravenous iron! This Dr told me that GP's generally don't test for iron, just the feritin level (is this right)?...and as mine has been high they
Just had results from private Dr blood test (as so desperate to try and feel better and have been told my feritin in 290 but I have severe anaemia and need intravenous iron! This Dr told me that GP's generally don't test for iron, just the feritin level (is this right)?...and as mine has been high they
58anniem
in
Restless Legs Syndrome
4 years ago
Ferritin blood results different between medichecks and NHS
Hi I wanted to make a separate post on this to find out whether anyone else has experienced this phenomena, and whether they know what might be going on. I have had 2 blood tests from NHS and 2 from Medichecks in fairly quick succession without any ferritin supplementation and the 2 NHS ones are low,
Hi I wanted to make a separate post on this to find out whether anyone else has experienced this phenomena, and whether they know what might be going on. I have had 2 blood tests from NHS and 2 from Medichecks in fairly quick succession without any ferritin supplementation and the 2 NHS ones are low,
jsy_girl
in
Thyroid UK
4 years ago
Vitamin results. Any guidance please??
I have got my blood test results. What you think please? B12 245ng/L range (120-900) Serum c 1ng/L (0-5) Mean cell haemoglobin level 31ng/L (27-32) Monocyte count observetion 0.8 10^9/L (0-0.8) Serum ferritin level 41ng/ml (15-300) Serum globulin level 32g/l (20-35) Serum free T4 level
I have got my blood test results. What you think please? B12 245ng/L range (120-900) Serum c 1ng/L (0-5) Mean cell haemoglobin level 31ng/L (27-32) Monocyte count observetion 0.8 10^9/L (0-0.8) Serum ferritin level 41ng/ml (15-300) Serum globulin level 32g/l (20-35) Serum free T4 level
Ela_peraj
in
Thyroid UK
4 years ago
Help with blood results
So, the endo is happy with my T3 and T4. Mid to upper range. However I still suffer from bloating, hair loss and fairly rapid pulse (90 bpm) . I take 50mcg levo and 1 grain Thai NDT. I had my iron checked in June 19. GP told me that my levels were ‘normal’. I’ve recently had the Mirena coil removed
So, the endo is happy with my T3 and T4. Mid to upper range. However I still suffer from bloating, hair loss and fairly rapid pulse (90 bpm) . I take 50mcg levo and 1 grain Thai NDT. I had my iron checked in June 19. GP told me that my levels were ‘normal’. I’ve recently had the Mirena coil removed
Boon79
in
Thyroid UK
4 years ago
Dried blood spot sampling offers an inexpensive way to widen access to antibody testing for COVID-19.
Currently antibody testing for COVID-19 uses serum or plasma, which requires a full intravenous blood sample, collected by a trained phlebotomist. For population-wide or high volume testing, the use of such sampling is limited by logistic challenges, resources, and costs, as well as the risk of SARS-CoV
Currently antibody testing for COVID-19 uses serum or plasma, which requires a full intravenous blood sample, collected by a trained phlebotomist. For population-wide or high volume testing, the use of such sampling is limited by logistic challenges, resources, and costs, as well as the risk of SARS-CoV
2greys
in
Lung Conditions Community Forum
4 years ago
Study examines the potential of spinal cord stimulation
A new study lays a new way of treating PD out " A new study finds that spinal cord stimulation could represent an alternate therapy for people with Parkinson’s disease that is resistant to conventional treatments. The researchers claim that this emerging technology may help decrease pain and improve
A new study lays a new way of treating PD out " A new study finds that spinal cord stimulation could represent an alternate therapy for people with Parkinson’s disease that is resistant to conventional treatments. The researchers claim that this emerging technology may help decrease pain and improve
Abdiqani
in
Cure Parkinson's
4 years ago
Iron may not be what we think it is.
The latest thinking from RLS research is that when we talk about iron ,we should be looking at Haemoglobin (hgb) rather than ferritin. This is from the latest magazine of the Restless legs Foundation ( Nightwalkers summer 2020). James R Connor PhD. The thinking is that hgb levels are a better indication
The latest thinking from RLS research is that when we talk about iron ,we should be looking at Haemoglobin (hgb) rather than ferritin. This is from the latest magazine of the Restless legs Foundation ( Nightwalkers summer 2020). James R Connor PhD. The thinking is that hgb levels are a better indication
Madlegs1
in
Restless Legs Syndrome
4 years ago
Spinal Cord Stimulation Alleviates Parkinson’s Pain in Small Study
Spinal cord stimulation can effectively decrease pain, and also may help alleviate motor symptoms, in people with Parkinson’s disease (PD), regardless of whether patients have previously undergone deep brain stimulation, a small study suggests. https://parkinsonsnewstoday.com/2020/10/02/spinal-cord-stimulation-alleviates-parkinsons-pain-small-study-suggests
Spinal cord stimulation can effectively decrease pain, and also may help alleviate motor symptoms, in people with Parkinson’s disease (PD), regardless of whether patients have previously undergone deep brain stimulation, a small study suggests. https://parkinsonsnewstoday.com/2020/10/02/spinal-cord-stimulation-alleviates-parkinsons-pain-small-study-suggests
JayPwP
in
Cure Parkinson's
4 years ago
iron's role in B12 injections
Could I ask your opinion please on iron? There are two conflicting views: B12 injections bring down iron levels and B12 will help absorption of iron and therefore increase them. I don’t have and never had macrocytosis. If iron, like potassium, is used in the formation of red blood cells only if there
Could I ask your opinion please on iron? There are two conflicting views: B12 injections bring down iron levels and B12 will help absorption of iron and therefore increase them. I don’t have and never had macrocytosis. If iron, like potassium, is used in the formation of red blood cells only if there
Kerrierach
in
Pernicious Anaemia Society
4 years ago
Melatonin For Parkinson's Disease (Pt. 2)
In case you missed part 1, here is a link to it : https://healthunlocked.com/parkinsonsmovement/posts/143507411/melatonin-for-parkinsons-disease....finally Melatonin is the only naturally occurring substance in the body that I have found that can help return the body toward homeostasis through multiple
In case you missed part 1, here is a link to it : https://healthunlocked.com/parkinsonsmovement/posts/143507411/melatonin-for-parkinsons-disease....finally Melatonin is the only naturally occurring substance in the body that I have found that can help return the body toward homeostasis through multiple
chartist
in
Cure Parkinson's
4 years ago
Hi, 37 years with Crohn’s disease and B12 deficiency plus folate deficiency. New member.
Hi there.... just joined this site today. Hoping to find people in similar situation for support and sharing experiences. Thanks x
Hi there.... just joined this site today. Hoping to find people in similar situation for support and sharing experiences. Thanks x
B12_crohnie
in
Pernicious Anaemia Society
4 years ago
supplements timings
Hi, I know this has been asked before but i can't find any posts on it. I take my levothyroxine first thing in the morning, and i'm going to start taking vitamin D, B12 and iron. I'm sure iron needs to be taken away from anything else but i wondered can i take vitamin B12 and D together? I was thinking
Hi, I know this has been asked before but i can't find any posts on it. I take my levothyroxine first thing in the morning, and i'm going to start taking vitamin D, B12 and iron. I'm sure iron needs to be taken away from anything else but i wondered can i take vitamin B12 and D together? I was thinking
catpurple7
in
Thyroid UK
4 years ago
Ferritin
I came across some posts here helping somebody with low ferritin and you sound extremely knowledgeable and hope you can advise me. I've been having tests for an IBS type problem and the bloods found my ferritin is 10.1 (new word to me!) I was called with the result and was just told my Ferritin level
I came across some posts here helping somebody with low ferritin and you sound extremely knowledgeable and hope you can advise me. I've been having tests for an IBS type problem and the bloods found my ferritin is 10.1 (new word to me!) I was called with the result and was just told my Ferritin level
2008Oscar
in
Thyroid UK
4 years ago
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