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Experiences with
D-bifunctional protein (DBP) deficiency
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Anaemia due to inflammation
I had a blood test in Oct 21 that showed iron deficiency anaemia haemoglobin 105g/L serum iron 6 ferritin 10 CHr 25.9 gp asked to follow up nothing done and now feeling beyond exhausted and because I am a picky eater not sure how I can help myself any advice please
I had a blood test in Oct 21 that showed iron deficiency anaemia haemoglobin 105g/L serum iron 6 ferritin 10 CHr 25.9 gp asked to follow up nothing done and now feeling beyond exhausted and because I am a picky eater not sure how I can help myself any advice please
Miasnana
in
NRAS
2 years ago
Brain surgeon interview:
I am so enjoying this interview that I’m sharing it despite it not being PD specific. He has bettered my understanding of the brain in general, given me hope because neuro plasticity is proven, discussed the real power of breathing and meditation and at about 50 minutes he touches on DBS. He has a
I am so enjoying this interview that I’m sharing it despite it not being PD specific. He has bettered my understanding of the brain in general, given me hope because neuro plasticity is proven, discussed the real power of breathing and meditation and at about 50 minutes he touches on DBS. He has a
Hidden
in
Cure Parkinson's
2 years ago
Blood results back. Ferritin low but haemoglobin normal. TSH slightly raised.
Hi, thank you for all your previous help when I first posted about how tired I was constantly. I was advised to repost when I got my blood results back from the doc. They didn’t test all my vitamins but these are, I think, the most relevant ones from my results. TSH 2.43 (0.3-4.50) I have an endo
Hi, thank you for all your previous help when I first posted about how tired I was constantly. I was advised to repost when I got my blood results back from the doc. They didn’t test all my vitamins but these are, I think, the most relevant ones from my results. TSH 2.43 (0.3-4.50) I have an endo
Redcar1993
in
Thyroid UK
2 years ago
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Long-Term Satisfaction and Patient-Centered Outcomes of Deep Brain Stimulation in Parkinson’s Disease
Long-Term Satisfaction and Patient-Centered Outcomes of Deep Brain Stimulation in Parkinson’s Disease 2018 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5924396/
Long-Term Satisfaction and Patient-Centered Outcomes of Deep Brain Stimulation in Parkinson’s Disease 2018 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5924396/
Bolt_Upright
in
Cure Parkinson's
2 years ago
Has anyone tried methyl cobalamin for injection from India, japan and Malaysia?
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Iron Panel Results
Hi, I have posted on here before re my own thyroid test but have some questions about an iron paneltest my daughterdid and noticed a few people on this group are able to offer advice on iron panel tests (I could not find a specific iron group,just one relating to haemochromatosis) My 21 year old daughter
Hi, I have posted on here before re my own thyroid test but have some questions about an iron paneltest my daughterdid and noticed a few people on this group are able to offer advice on iron panel tests (I could not find a specific iron group,just one relating to haemochromatosis) My 21 year old daughter
ginid
in
Thyroid UK
2 years ago
INBRAIN PHARMA: direct injection of dopamine into the brain
Injecting dopamine directly into the brain using a small internal pump is what Lille researchers have succeeded in limiting the adverse effects of conventional drugs linked to Parkinson's disease. The InBrain Pharma team is pleased to see its therapeutic solution - backed by very promising initial safety
Injecting dopamine directly into the brain using a small internal pump is what Lille researchers have succeeded in limiting the adverse effects of conventional drugs linked to Parkinson's disease. The InBrain Pharma team is pleased to see its therapeutic solution - backed by very promising initial safety
Hidden
in
Cure Parkinson's
2 years ago
Anemia and Different Blood Test Results Help
I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red blood cells. I just wonder if they mean anything as relating to the anemia. Here are the findings - Anisocytosis1+ Polychromasia1+ Hypochromia1
I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red blood cells. I just wonder if they mean anything as relating to the anemia. Here are the findings - Anisocytosis1+ Polychromasia1+ Hypochromia1
Pumpkin2009
in
LUPUS UK
2 years ago
Low iron and ferritin levels?
I have low iron. My HB is 9 and my ferritin levels are just 4. I also have many vitamin b12 and folate deficiency symptoms but my GP says my levels are fine and within the normal range. Vit b12 is 319 (range on the report was 197-771) and Folate is 5.9. Does anyone know if these deficiencies all go hand
I have low iron. My HB is 9 and my ferritin levels are just 4. I also have many vitamin b12 and folate deficiency symptoms but my GP says my levels are fine and within the normal range. Vit b12 is 319 (range on the report was 197-771) and Folate is 5.9. Does anyone know if these deficiencies all go hand
rustydog
in
Pernicious Anaemia Society
2 years ago
Dipyridamole update
I have been on 100mg x2, one at about 4pm and one closer to 8pm. It is recommended to take Dipyridamole on an empty stomach. This is still lower than the effective dosage in the study and I intend to increase it. I have cut pregabalin from 300mg to 150mg. My goal is to cut it again when the 150mg
I have been on 100mg x2, one at about 4pm and one closer to 8pm. It is recommended to take Dipyridamole on an empty stomach. This is still lower than the effective dosage in the study and I intend to increase it. I have cut pregabalin from 300mg to 150mg. My goal is to cut it again when the 150mg
WideBody
in
Restless Legs Syndrome
2 years ago
Can anyone help me with hair loss?
The picture is from a hair wash this morning. It comes out in little clumps each time I rinse my hair. I have hypothyroidism and had my thyroid out 8 years ago. I take thyroxine 150mcg and have blood tests every 6 months to check my levels. I've been given ferrous sulphate 200mg and take this every day
The picture is from a hair wash this morning. It comes out in little clumps each time I rinse my hair. I have hypothyroidism and had my thyroid out 8 years ago. I take thyroxine 150mcg and have blood tests every 6 months to check my levels. I've been given ferrous sulphate 200mg and take this every day
Smv95
in
Thyroid UK
2 years ago
Anyone know about Globulin levels
Anyone had experience of “low globulin” count when having a blood test? Had my monthly Methotrexate blood test last Tuesday, the GP rang me Wednesday afternoon to say my globulin count was a bit low & with my “Rheumatoid factor”. Of course he didn’t explain what it was & when I asked what needed to be
Anyone had experience of “low globulin” count when having a blood test? Had my monthly Methotrexate blood test last Tuesday, the GP rang me Wednesday afternoon to say my globulin count was a bit low & with my “Rheumatoid factor”. Of course he didn’t explain what it was & when I asked what needed to be
Shamrockgirl
in
NRAS
3 years ago
Help with bloods please including iron levels.
Bloods taken last week in the morning before Levo or any other medication at 8.50 in the morning. I’m currently taking 200mcg and 212.5mcg alternative days. As Aristo brand. Still getting a few palps and still very tired. Would I benefit from t3 if so why as need support as endo not wanting me to take
Bloods taken last week in the morning before Levo or any other medication at 8.50 in the morning. I’m currently taking 200mcg and 212.5mcg alternative days. As Aristo brand. Still getting a few palps and still very tired. Would I benefit from t3 if so why as need support as endo not wanting me to take
Cheekycharlie1981
in
Thyroid UK
3 years ago
Proceedings of the Ninth Annual Deep Brain Stimulation Think Tank
Proceedings of the Ninth Annual Deep Brain Stimulation Think Tank: Advances in Cutting Edge Technologies, Artificial Intelligence, Neuromodulation, Neuroethics, Pain, Interventional Psychiatry, Epilepsy, and Traumatic Brain Injury https://www.frontiersin.org/articles/10.3389/fnhum.2022.813387/full?&
Proceedings of the Ninth Annual Deep Brain Stimulation Think Tank: Advances in Cutting Edge Technologies, Artificial Intelligence, Neuromodulation, Neuroethics, Pain, Interventional Psychiatry, Epilepsy, and Traumatic Brain Injury https://www.frontiersin.org/articles/10.3389/fnhum.2022.813387/full?&
Hidden
in
Cure Parkinson's
2 years ago
Some neurologists are Concerned about the negative impact of FUS on DBS Trials
Effect of Public Interest in Magnetic Resonance Imaging-Guided Focused Ultrasound on Enrolment for Deep Brain Stimulation https://pubmed.ncbi.nlm.nih.gov/35234316/
Effect of Public Interest in Magnetic Resonance Imaging-Guided Focused Ultrasound on Enrolment for Deep Brain Stimulation https://pubmed.ncbi.nlm.nih.gov/35234316/
Farooqji
in
Cure Parkinson's
2 years ago
Levadopa
208 years and still NO medicine that stops or improves Parkinson.. Levadopa discovered in 1910 used in 1960's for Parkinson. I'm impressed that researchers can keep a dangerous drug like levodopa as the leading treatment for Parkinson's for so long!!! when it does not even cure Parkinson's and after
208 years and still NO medicine that stops or improves Parkinson.. Levadopa discovered in 1910 used in 1960's for Parkinson. I'm impressed that researchers can keep a dangerous drug like levodopa as the leading treatment for Parkinson's for so long!!! when it does not even cure Parkinson's and after
Curious_Fred
in
Cure Parkinson's
2 years ago
Iron /Ferritin Level and Menopause
Hello Everyone...Quick question. Is it necessary to test your iron and ferritin if you no longer have a menstrual cycle? The GP who is filling in for the regular GP stated that since I no longer have a period, that I could not be anemic due to low iron/ferritin. This does not make sense to me , so
Hello Everyone...Quick question. Is it necessary to test your iron and ferritin if you no longer have a menstrual cycle? The GP who is filling in for the regular GP stated that since I no longer have a period, that I could not be anemic due to low iron/ferritin. This does not make sense to me , so
MightyMay
in
Thyroid UK
3 years ago
High ferritin levels
Good evening one and all - and in advance I want to wish you all a happy new year, one that is healthier for us all. My serum ferritin level has gone up even further and I just wondered if the PMR/Pred etc has anything to do with it? I should add that I do have an abnormal inherited gene (a carrier
Good evening one and all - and in advance I want to wish you all a happy new year, one that is healthier for us all. My serum ferritin level has gone up even further and I just wondered if the PMR/Pred etc has anything to do with it? I should add that I do have an abnormal inherited gene (a carrier
Doraflora
in
PMRGCAuk
3 years ago
Low iron first time in years despite supps
Hello, I just had an iron panel done as it turned out my iron is 4% of range.... 55 (50-170)! Ferritin better at 30% range, but still not great. I used to take Floradix and my iron was over midrange on it, then took 60 mg Actiferol (ferric pyrophosphate) in powder from the pharmacy for couple of months
Hello, I just had an iron panel done as it turned out my iron is 4% of range.... 55 (50-170)! Ferritin better at 30% range, but still not great. I used to take Floradix and my iron was over midrange on it, then took 60 mg Actiferol (ferric pyrophosphate) in powder from the pharmacy for couple of months
Incoguto
in
Thyroid UK
3 years ago
Paralysed man walks again thanks to electrodes in his spine
Maybe some of you saw this already. [i]The title says it all:[/i]
[u]Paralysed man walks again thanks to electrodes in his spine[/u]
. https://www.theguardian.com/science/2022/feb/07/paralysed-man-walks-again-thanks-to-electrodes-in-his-spine "[i]A man who was paralysed in a motorcycle accident
Maybe some of you saw this already. [i]The title says it all:[/i]
[u]Paralysed man walks again thanks to electrodes in his spine[/u]
. https://www.theguardian.com/science/2022/feb/07/paralysed-man-walks-again-thanks-to-electrodes-in-his-spine "[i]A man who was paralysed in a motorcycle accident
monkeybus
in
AMN EASIER
2 years ago
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