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Experiences with
D-bifunctional protein (DBP) deficiency
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Should I be taking an iron supplement?
Hi all, I tested my iron level and I got: Iron 13 μmol/l (11-32) Transferrin 2.2 g/l (2.0-3.6) Transferrin saturation 23.5% (16-45) In 2020 I had the following: Serum iron 20.9 μmol/l (13-32) Serum transferrin 2.17 g/l (2.00-3.60) Serum unsaturated binding capacity 49μmol/l (45-70) Saturation
Hi all, I tested my iron level and I got: Iron 13 μmol/l (11-32) Transferrin 2.2 g/l (2.0-3.6) Transferrin saturation 23.5% (16-45) In 2020 I had the following: Serum iron 20.9 μmol/l (13-32) Serum transferrin 2.17 g/l (2.00-3.60) Serum unsaturated binding capacity 49μmol/l (45-70) Saturation
WhyAmISoTired
in
Thyroid UK
2 years ago
Trying to get a diagnosis of PA via a GP
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
4daughters1971
in
Pernicious Anaemia Society
2 years ago
B12 deficiency post cholecystectomy
I’m curious if there is any link to cholecystectomies and B12 deficiency. I had my gallbladder out and then 8 years later, b12 deficient. Have any of you had your gallbladder out and then had B12 deficiency occur afterwards?
I’m curious if there is any link to cholecystectomies and B12 deficiency. I had my gallbladder out and then 8 years later, b12 deficient. Have any of you had your gallbladder out and then had B12 deficiency occur afterwards?
B12life
in
Pernicious Anaemia Society
2 years ago
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Worth a Spit ? Why saliva could hold the answer
Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/ B12 mix then travels on via oesophagus into the stomach - HC/B12 mix can survive the low PH of stomach - Parietal cells produce hydrochloric
Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/ B12 mix then travels on via oesophagus into the stomach - HC/B12 mix can survive the low PH of stomach - Parietal cells produce hydrochloric
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
2 years ago
Normal Meds: is this it?!
I say normal because up until recently I’ve used a cocktail of normal (Rasagaline, Requip and Madopar) alongside Mucuna. The Mucuna was my go to stuff if I needed an immediate lift as it worked so quickly. But I promised my neuro that I’d leave it out: it’s difficult to measure and rationalise when he
I say normal because up until recently I’ve used a cocktail of normal (Rasagaline, Requip and Madopar) alongside Mucuna. The Mucuna was my go to stuff if I needed an immediate lift as it worked so quickly. But I promised my neuro that I’d leave it out: it’s difficult to measure and rationalise when he
jeeves19
in
Cure Parkinson's
2 years ago
RLS restlessness vs electric shock feeling
I had a question for everyone…. My RLS has the restlessness feeling but it also has the electric jolt feeling which is worse and it’s def more aggravating than the urge to move itself as anyone who I have spoke to knows I am a difficult case and my doctor and I are trying everything. I have recently
I had a question for everyone…. My RLS has the restlessness feeling but it also has the electric jolt feeling which is worse and it’s def more aggravating than the urge to move itself as anyone who I have spoke to knows I am a difficult case and my doctor and I are trying everything. I have recently
RC723
in
Restless Legs Syndrome
2 years ago
Deep Brain Stimulation
Has anyone with Cerebellar Ataxia been treated with Deep Brain Stimulation? Was it beneficial?
Has anyone with Cerebellar Ataxia been treated with Deep Brain Stimulation? Was it beneficial?
Ostap
in
Ataxia UK
2 years ago
Advice on latest bloods
Hi i would really appreciate some advice on my latest bloods, and whether I should supplement B12 and folate and maybe iron based on them. Bloods taken as per protocol recommended on here. Currently taking 75 mcg thyroxine and 2 x half grains of ERFA T4 - 17.4 (range 12-22) T3 - 4 (range 3.1-6.8
Hi i would really appreciate some advice on my latest bloods, and whether I should supplement B12 and folate and maybe iron based on them. Bloods taken as per protocol recommended on here. Currently taking 75 mcg thyroxine and 2 x half grains of ERFA T4 - 17.4 (range 12-22) T3 - 4 (range 3.1-6.8
Spangle15
in
Thyroid UK
2 years ago
Don't trust everything you read on the internet
Just sharing the NHS website on B12 and folate deficiency anaemia, which reads as per the below. What this says to me is that there is a distinct difference between what actually happens in the real world vs. what we read about on the old internet. It is important to remember that not every article
Just sharing the NHS website on B12 and folate deficiency anaemia, which reads as per the below. What this says to me is that there is a distinct difference between what actually happens in the real world vs. what we read about on the old internet. It is important to remember that not every article
Pickle500
in
Pernicious Anaemia Society
2 years ago
Ferritin level information
I have seen numerous claims of “check your ferritin level, if it’s <100 you need to start taking iron.” Unfortunately, it’s just not that simple. That guideline has not been established. I have confirmed this with my RLS physicians. He said ferritin level is only 1 component used along with transferrin
I have seen numerous claims of “check your ferritin level, if it’s <100 you need to start taking iron.” Unfortunately, it’s just not that simple. That guideline has not been established. I have confirmed this with my RLS physicians. He said ferritin level is only 1 component used along with transferrin
DataRN
in
Restless Legs Syndrome
2 years ago
DBS surgery
If you have had DBS surgery, share how long it took til you got the settings right to help with the PD symptoms. Thank you!
If you have had DBS surgery, share how long it took til you got the settings right to help with the PD symptoms. Thank you!
Sherry1960
in
Cure Parkinson's
2 years ago
DBS for OCD?
Hi - I suffer from OCD, but I am also a physician. I'm looking to interview patients who have gotten DBS for OCD to better understand what the experience is like, and to be able to better describe it to the medical community. If you've gotten DBS for OCD and are willing to talk anonymously about it,
Hi - I suffer from OCD, but I am also a physician. I'm looking to interview patients who have gotten DBS for OCD to better understand what the experience is like, and to be able to better describe it to the medical community. If you've gotten DBS for OCD and are willing to talk anonymously about it,
RHCPfan
in
My OCD Community
2 years ago
Hypothyroid and Anemia
Good day to you all. I have a basic question . I would Iike to know if post menopausal women can also suffer from iron anemia.
Good day to you all. I have a basic question . I would Iike to know if post menopausal women can also suffer from iron anemia.
MightyMay
in
Thyroid UK
2 years ago
Update
Hi Had a phone call on Friday asking me to contract the surgery, following my over range ferritin results. I've now got to have a TIBC, iron and TSAT blood test. I think I need to be honest with the surgery and say I've was supplementing with iron tablets until recently and this is likely to have caused
Hi Had a phone call on Friday asking me to contract the surgery, following my over range ferritin results. I've now got to have a TIBC, iron and TSAT blood test. I think I need to be honest with the surgery and say I've was supplementing with iron tablets until recently and this is likely to have caused
Sparklingsunshine
in
Thyroid UK
2 years ago
Low iron levels
My doctor has advised me that my iron level is on the low side of the normal range. Should I take iron supplements to boost it as my doctor is happy to leave the levels as they are.
My doctor has advised me that my iron level is on the low side of the normal range. Should I take iron supplements to boost it as my doctor is happy to leave the levels as they are.
Maggiv
in
Thyroid UK
2 years ago
Methotrexate in the US
Since our Supreme Court has removed Roe v Wade allowing abortion something has happened that most did not expect. Women of reproctive age are being denied their methotrexate that they've been taking for years as a treatment for things like RA because it is also a drug used in abortions. I know that most
Since our Supreme Court has removed Roe v Wade allowing abortion something has happened that most did not expect. Women of reproctive age are being denied their methotrexate that they've been taking for years as a treatment for things like RA because it is also a drug used in abortions. I know that most
Amkoffee
in
PMRGCAuk
2 years ago
Strange iron panel results (part 2!)
I posted several weeks ago about an anomaly in my 18 year old daughter's ferritin results and received some really helpful advice from @humanbean and others. Her ferritin level from a Medichecks blood test was 75, however when her GP tested it a few weeks later it was just 15.4 and her Haemoglobin was
I posted several weeks ago about an anomaly in my 18 year old daughter's ferritin results and received some really helpful advice from @humanbean and others. Her ferritin level from a Medichecks blood test was 75, however when her GP tested it a few weeks later it was just 15.4 and her Haemoglobin was
Cookerybookaddict86
in
Thyroid UK
2 years ago
“How Does Deep Brain Stimulation Change the Course of Parkinson's Disease?”
This very recent (May 2022) review was posted elsewhere (FB) and after reading it myself (it's open access) I thought it worth re-posting here on HU - for those interested in learning more on long-term DBS outcomes. https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mds.29052?fbclid=IwAR3EaJVE5QUEQ165u7wKsneu2V3JHhs36YuQCiRHxjSrbhUXHTkr31qCafU
This very recent (May 2022) review was posted elsewhere (FB) and after reading it myself (it's open access) I thought it worth re-posting here on HU - for those interested in learning more on long-term DBS outcomes. https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mds.29052?fbclid=IwAR3EaJVE5QUEQ165u7wKsneu2V3JHhs36YuQCiRHxjSrbhUXHTkr31qCafU
Kevin51
in
Cure Parkinson's
2 years ago
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
Update to the MHRA's view on Metformin and B12: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
Update to the MHRA's view on Metformin and B12: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
helvella
in
Pernicious Anaemia Society
2 years ago
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
Update to the MHRA's view on Metformin and B12: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
Update to the MHRA's view on Metformin and B12: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
helvella
Thyroid UK
in
Thyroid UK
2 years ago
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