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Experiences with
D-bifunctional protein (DBP) deficiency
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Rapid responses to daily subcutaneous B12 injections??
I was diagnosed with pernicious anemia and iron deficiency anemia 3 months ago. (I’ve had 2 iron infusions so those levels are better now.) The B12 injections are extraordinarily helpful. I’ve been getting them subcutaneously on a daily basis. (I can’t tell any difference between subcutaneous and intramuscular
I was diagnosed with pernicious anemia and iron deficiency anemia 3 months ago. (I’ve had 2 iron infusions so those levels are better now.) The B12 injections are extraordinarily helpful. I’ve been getting them subcutaneously on a daily basis. (I can’t tell any difference between subcutaneous and intramuscular
faithrenae
in
Pernicious Anaemia Society
2 years ago
Test Results after discussion on here
Hi folks, hot of the press so to speak and on the attached screenshot. The doctor's comments are below this message. They are not what I was expecting, especially as I inject B12 1mg only once a month, but data analysis works more than one way and unless I'm reading it wrongly, I can cancel out any sort
Hi folks, hot of the press so to speak and on the attached screenshot. The doctor's comments are below this message. They are not what I was expecting, especially as I inject B12 1mg only once a month, but data analysis works more than one way and unless I'm reading it wrongly, I can cancel out any sort
CyclingDog
in
Pernicious Anaemia Society
2 years ago
Iron advice for my sister
Though you guys might be the best to ask. What is the best iron supplement going? My sister needed 2 iron infusions before surgery and could only get one due to poor veins. She needs an iron supplement and I said I would get it for her. I want her to have the one that will be most beneficial to her..
Though you guys might be the best to ask. What is the best iron supplement going? My sister needed 2 iron infusions before surgery and could only get one due to poor veins. She needs an iron supplement and I said I would get it for her. I want her to have the one that will be most beneficial to her..
Peppermints
in
Pernicious Anaemia Society
2 years ago
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Iron Infusion
After years of RLS, several years of struggling on ropinerole, and the last 2 years on Neupro patches & Topiramate. Yesterday I was given my first Iron Infusion as a treatment option for RLS. There’s been lots of research by a Dr Earley at Johns Hopkins into an iron deficiency in the brain of RLS sufferers
After years of RLS, several years of struggling on ropinerole, and the last 2 years on Neupro patches & Topiramate. Yesterday I was given my first Iron Infusion as a treatment option for RLS. There’s been lots of research by a Dr Earley at Johns Hopkins into an iron deficiency in the brain of RLS sufferers
nosleep1969
in
Restless Legs Syndrome
2 years ago
Help!
Hi all. I am new to the website and forum. I have experienced RLS on and off over the years (I'm 49) but the symptoms have only lasted a few weeks at the most. However, for the last three months I have been unable to sleep much before 3am which is when my legs decide to settle down and let me rest. I
Hi all. I am new to the website and forum. I have experienced RLS on and off over the years (I'm 49) but the symptoms have only lasted a few weeks at the most. However, for the last three months I have been unable to sleep much before 3am which is when my legs decide to settle down and let me rest. I
Lilybeans
in
Restless Legs Syndrome
2 years ago
Drs phone call and advice on buying the right supplements please
Hi all, so i went to my drs surgery today to see if the dr had put any notes on my file as to whether i was going to get a phone call after my blood test results and the receptionist said that nothing urgent came back in the results and the dr would ring me next thursday to discuss a couple of things
Hi all, so i went to my drs surgery today to see if the dr had put any notes on my file as to whether i was going to get a phone call after my blood test results and the receptionist said that nothing urgent came back in the results and the dr would ring me next thursday to discuss a couple of things
catpurple7
in
Thyroid UK
2 years ago
2nd bloodtest in 2 weeks.
hi all, i posted my latest blood test results a few weeks ago and on seasidesusies advice i had another bloodtest done at my drs to test for iron levels, i took a list of what needed to be tested and was assured by the nurse that it was all being tested. These were taken on wednesday fasted at 8.30am
hi all, i posted my latest blood test results a few weeks ago and on seasidesusies advice i had another bloodtest done at my drs to test for iron levels, i took a list of what needed to be tested and was assured by the nurse that it was all being tested. These were taken on wednesday fasted at 8.30am
catpurple7
in
Thyroid UK
2 years ago
Iron infusions
I have Restless Leg Syndrome, and also low iron (without anemia). However, I'm not able to take iron supplements as they're upsetting to my GI tract. My doctor is recommending an Iron infusion (this is putting iron directly into the bloodstream to avoid the GI tract). I've heard that this works for
I have Restless Leg Syndrome, and also low iron (without anemia). However, I'm not able to take iron supplements as they're upsetting to my GI tract. My doctor is recommending an Iron infusion (this is putting iron directly into the bloodstream to avoid the GI tract). I've heard that this works for
Laura9594
in
Restless Legs Syndrome
2 years ago
A question about Thyroid blood tests.
Hello Everyone, I am seeing an Endocrinologist in a couple of weeks, I was diagnosed with B12 Deficiency last December and am having treatment. Unfortunately, my MVC are getting larger since treatment and I have been told to check out my thyroid. I have had my T3 free, T4 free and TSH blood tests
Hello Everyone, I am seeing an Endocrinologist in a couple of weeks, I was diagnosed with B12 Deficiency last December and am having treatment. Unfortunately, my MVC are getting larger since treatment and I have been told to check out my thyroid. I have had my T3 free, T4 free and TSH blood tests
Bubydizer
in
Thyroid UK
2 years ago
An urgent warning about rytary...
I am in contact currently with 3 hu people that are seriously messed up on rytary...i think its a kindling effect or what i call stacking. I believe we are not only overdosed on rytary but it also is having some strange psychiatric effects common to us 3. please check the link for full understanding,
I am in contact currently with 3 hu people that are seriously messed up on rytary...i think its a kindling effect or what i call stacking. I believe we are not only overdosed on rytary but it also is having some strange psychiatric effects common to us 3. please check the link for full understanding,
beehive23
in
Cure Parkinson's
2 years ago
Before You Book (or recommend) That Iron Infusion
Please read the article embedded in this post to FreeGaza. In my unprofessional opinion, if you feel you must have an infusion then ask for Iron Dextran. Dextrose is a single molecule sugar that theoretically should be able to cross the BBB. Injectafer and iron sucrose, in my humble opinion, don’t stand
Please read the article embedded in this post to FreeGaza. In my unprofessional opinion, if you feel you must have an infusion then ask for Iron Dextran. Dextrose is a single molecule sugar that theoretically should be able to cross the BBB. Injectafer and iron sucrose, in my humble opinion, don’t stand
Hidden
in
Restless Legs Syndrome
2 years ago
good hospital for DBS in Florida.
medical tourism, Hi everyone, can anybody please recommend to me, a hospital or clinic in florida or new Orlean, where i can get a good treatment and care for the dreaded parkinson disease. I want to try out dbs treatment and see how it goes. great thanks..
medical tourism, Hi everyone, can anybody please recommend to me, a hospital or clinic in florida or new Orlean, where i can get a good treatment and care for the dreaded parkinson disease. I want to try out dbs treatment and see how it goes. great thanks..
Masterka
in
Cure Parkinson's
2 years ago
Very low serum ferritin result
Hello all , I’ve been backwards and forwards to hospital and doctors for over a tear now with irregular heart beats , balance all over the place , extreme tiredness, et. etc . I’ve had every test you can think off and finally a simple blood test has flagged up very low iron , I’m seeing the doctor Tuesday
Hello all , I’ve been backwards and forwards to hospital and doctors for over a tear now with irregular heart beats , balance all over the place , extreme tiredness, et. etc . I’ve had every test you can think off and finally a simple blood test has flagged up very low iron , I’m seeing the doctor Tuesday
Hazel1010
in
Pernicious Anaemia Society
2 years ago
Help with iron results please
Hello As always, a huge thank you for all of your help to date! I’ve recently had an iron panel and could really do with some help understanding the iron results. I really don’t know what these mean and I’m confused by the over/ low and what this all suggests?? I don’t supplement at the moment as wanted
Hello As always, a huge thank you for all of your help to date! I’ve recently had an iron panel and could really do with some help understanding the iron results. I really don’t know what these mean and I’m confused by the over/ low and what this all suggests?? I don’t supplement at the moment as wanted
Hidden
in
Thyroid UK
2 years ago
Iron infusion
hello all - I have a question about iron infusions. By way of background info, mmy rheumatologist tells me I have lupus of the 'mild' type i.e. no cardiac, or kidney damage has yet been discovered, however, I do experience joint pain, raynauds, horrible fatigue and other symptoms. I have experienced
hello all - I have a question about iron infusions. By way of background info, mmy rheumatologist tells me I have lupus of the 'mild' type i.e. no cardiac, or kidney damage has yet been discovered, however, I do experience joint pain, raynauds, horrible fatigue and other symptoms. I have experienced
Ophelia1
in
LUPUS UK
2 years ago
Watch Prof Tom Foltynie on the topic of repurposing diabetes drugs for Parkinson's disease - Recording now available
Thank you to Prof Tom Foltynie for his time and expertise last night on the topic of repurposing diabetes drugs, including Exenatide, for Parkinson's disease. It was an excellent presentation and discussion that brings us all up to date with the latest in the trials, including feedback from some of you
Thank you to Prof Tom Foltynie for his time and expertise last night on the topic of repurposing diabetes drugs, including Exenatide, for Parkinson's disease. It was an excellent presentation and discussion that brings us all up to date with the latest in the trials, including feedback from some of you
Michel0220
in
Cure Parkinson's
2 years ago
Should Doctor have prescribed B12 injections?
Please advise if anyone else has experienced similar, and what treatment was. Feeling very tired and on occasions breathless when walking uphill. Blood test showed small red blood cells, very low iron and borderline B12 deficiency. Prescribed iron tablets twice a day. Nothing prescribed for low B12.
Please advise if anyone else has experienced similar, and what treatment was. Feeling very tired and on occasions breathless when walking uphill. Blood test showed small red blood cells, very low iron and borderline B12 deficiency. Prescribed iron tablets twice a day. Nothing prescribed for low B12.
lardycake
in
Pernicious Anaemia Society
2 years ago
Iron panel results
Good morning, after advice on here decided to get iron panel done as low ferritin. Iron 30 .3 range 5.8 -34.5 Ti bc 63.6 range 45-81 Uibc 33.3 range 24.2-70.1 Transferrin Sat 47% range 20-50 Ferritin 40.6 range 13-150 My ferritin is usually 15 to 20 . I have blood tests every month,sometimes every
Good morning, after advice on here decided to get iron panel done as low ferritin. Iron 30 .3 range 5.8 -34.5 Ti bc 63.6 range 45-81 Uibc 33.3 range 24.2-70.1 Transferrin Sat 47% range 20-50 Ferritin 40.6 range 13-150 My ferritin is usually 15 to 20 . I have blood tests every month,sometimes every
4youreyesonly
in
Thyroid UK
2 years ago
High ferritin low serum iron
Hello :) Last year I had blood taken and my ferritin was 86, at the middle of the reference range (15-150) However my serum iron was 65, in the low part of the range (50-170) Has anyone experienced high ferritin but low iron? I just had more bloods done and ferritin was 129. There was no serum
Hello :) Last year I had blood taken and my ferritin was 86, at the middle of the reference range (15-150) However my serum iron was 65, in the low part of the range (50-170) Has anyone experienced high ferritin but low iron? I just had more bloods done and ferritin was 129. There was no serum
Charlyemmalouise
in
Thyroid UK
2 years ago
How often should varices be checked?
My husband had three separate episodes of variceal bleeds in the fall of 2020. Esophageal and gastric varices which were either banded or glued. Sent home and no follow up, nothing. Now 18 months later he was back in hospital with another gastric bleed. It took four endoscopies to finally locate and
My husband had three separate episodes of variceal bleeds in the fall of 2020. Esophageal and gastric varices which were either banded or glued. Sent home and no follow up, nothing. Now 18 months later he was back in hospital with another gastric bleed. It took four endoscopies to finally locate and
MississaugaLiver
in
British Liver Trust
2 years ago
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