Search
Search
About
Log in
Join
Experiences with
Cyclophosphamide
Posts
Communities
1,136 public posts
Filter results
FCR after failing B/R?
I am 5 months post treatment with B/R and my ALC is moving up. My oncologist mentioned the possibility of FCR at some point. I am 72 years old and in good health. My question is shouldn't FCR be first line? Would you take FCR or Imbruvica? What are your thoughts? Thank you for your reply. Sue Atlanta
I am 5 months post treatment with B/R and my ALC is moving up. My oncologist mentioned the possibility of FCR at some point. I am 72 years old and in good health. My question is shouldn't FCR be first line? Would you take FCR or Imbruvica? What are your thoughts? Thank you for your reply. Sue Atlanta
SueVG
in
CLL Support
7 years ago
Elevated Lymphocyte Count 4 Months After Bendamustine/Rituxin
Hello Members: In mid-June I finished 6 months of Bendamustine/Rituxin. I saw my onc today and my lymph nodes are elevated (5.7) saw her last month and they were also elevated(5.0) She is suggesting that I may want to have FCR or Imbruvica when I need treatment again. Right now I am on hold until January
Hello Members: In mid-June I finished 6 months of Bendamustine/Rituxin. I saw my onc today and my lymph nodes are elevated (5.7) saw her last month and they were also elevated(5.0) She is suggesting that I may want to have FCR or Imbruvica when I need treatment again. Right now I am on hold until January
SueVG
in
CLL Support
7 years ago
uti, cough, fever and other virus related symptoms
I was diagnosed Stage 4 SLL in December 2014 and started FCR the following March in 2015. The gap was due to my oncologist suddenly dying. This combo put me in remission for a year and a half. Came back full force (CT scan) in early 2017 and started Imbruvica then nodes went away again. My question:
I was diagnosed Stage 4 SLL in December 2014 and started FCR the following March in 2015. The gap was due to my oncologist suddenly dying. This combo put me in remission for a year and a half. Came back full force (CT scan) in early 2017 and started Imbruvica then nodes went away again. My question:
springie
in
CLL Support
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Cyclophosphamide
Hi, I've been recently diagnosed with Scleroderma sine scleroderma, mainly affecting my lungs, and treatment is an in infusion of
cyclophosphamide
every 2 weeks for 6 cycles. Has anyone else had this treatment? Has it been effective?
Hi, I've been recently diagnosed with Scleroderma sine scleroderma, mainly affecting my lungs, and treatment is an in infusion of
cyclophosphamide
every 2 weeks for 6 cycles. Has anyone else had this treatment? Has it been effective?
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Port installed-Chemo Round1 starts Monday
Opted for the Portacath to receive my chemo (in Canada done via infusion) of FCR. The Port installation was done yesterday morning, so the afternoon was a little uncomfortable but today I am quite fine. I chose the Port after advice from my daughter, sisters and nieces (all nurses) when asking whether
Opted for the Portacath to receive my chemo (in Canada done via infusion) of FCR. The Port installation was done yesterday morning, so the afternoon was a little uncomfortable but today I am quite fine. I chose the Port after advice from my daughter, sisters and nieces (all nurses) when asking whether
Marie-54
in
CLL Support
7 years ago
The Final Countdown
Hi All...tonight I accidentally stumbled onto this group. After reading several posts I didn't discover a post that mirrors my reality. On Labor Day September 2014, I noticed swelling on my chest. The touch was tender. I then made a visit to my primary care doctor. He examined my lumps and asked me
Hi All...tonight I accidentally stumbled onto this group. After reading several posts I didn't discover a post that mirrors my reality. On Labor Day September 2014, I noticed swelling on my chest. The touch was tender. I then made a visit to my primary care doctor. He examined my lumps and asked me
pilantd
in
CLL Support
7 years ago
Recovery time
My OH had his last (of 4) FCR treatments in August. He had not tolerated them well, so each session was less than the last. Haematologist says treatment has been 99% successful, and now just try to get on and live life as normal. He is definitely gaining in energy - back cycling regularly, needing
My OH had his last (of 4) FCR treatments in August. He had not tolerated them well, so each session was less than the last. Haematologist says treatment has been 99% successful, and now just try to get on and live life as normal. He is definitely gaining in energy - back cycling regularly, needing
Hidden
in
CLL Support
7 years ago
FCR treatment
I've now received treatment, starting Dec 2016 for six rounds of FCR as part in a UK trial. I have been told I am in complete remission, which is great news, and a weight off my mind. I must have been more worried than I was able to admit, as I now feel able to get on with living again. Follow up in
I've now received treatment, starting Dec 2016 for six rounds of FCR as part in a UK trial. I have been told I am in complete remission, which is great news, and a weight off my mind. I must have been more worried than I was able to admit, as I now feel able to get on with living again. Follow up in
Barbarann
in
CLL Support
7 years ago
Ibrutinib & neuropathy?
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
Glees
in
CLL Support
7 years ago
"there has been a further reduction in the presence of the disease and limited evidence of any residual disease"
So said my consultant this week! 6 cycles of FCR totally worth it to get this news. No more blood thinning injections, and he also said that I would not need chemo again but would have Ibrutinib if I needed more treatment in the future. WBC still low so got to be careful, but definitely a good week.
So said my consultant this week! 6 cycles of FCR totally worth it to get this news. No more blood thinning injections, and he also said that I would not need chemo again but would have Ibrutinib if I needed more treatment in the future. WBC still low so got to be careful, but definitely a good week.
MattGGibson
in
CLL Support
7 years ago
FCR Domperidone
Hi everyone. I am having my first lot of FCR and this is the first day at home with all my tablets! So many! Can I ask those of you that were given domperidone for sickness if you took them when you didn’t feel sick or just when you did? It says I can have 3 per day. I don’t feel sick yet. Thank you.
Hi everyone. I am having my first lot of FCR and this is the first day at home with all my tablets! So many! Can I ask those of you that were given domperidone for sickness if you took them when you didn’t feel sick or just when you did? It says I can have 3 per day. I don’t feel sick yet. Thank you.
Cindy1462
in
CLL Support
7 years ago
Starting FCR
and he's diagnosed as stage 2 , he's starting FCR tomorrow and I'm so worried about possible side effects but also he went the hospital today and they said he can't start Rituximab as his WBC is high, so he's got to take the chemo tablets to lower them for next month so he's starting fludarabine and
cyclophosphamide
and he's diagnosed as stage 2 , he's starting FCR tomorrow and I'm so worried about possible side effects but also he went the hospital today and they said he can't start Rituximab as his WBC is high, so he's got to take the chemo tablets to lower them for next month so he's starting fludarabine and
cyclophosphamide
Chelseaxx
in
CLL Support
7 years ago
Nearing treatment?
Hello! I just had my 3 monthly visit with my haemotologist. My lymphocytes have jumped from 10 to 27. My glands are feeling bigger ...especially under my armpits. Hemoglobin and platelets all still in normal range and I actually feel good. My haemotologist says he will confer with his colleagues and
Hello! I just had my 3 monthly visit with my haemotologist. My lymphocytes have jumped from 10 to 27. My glands are feeling bigger ...especially under my armpits. Hemoglobin and platelets all still in normal range and I actually feel good. My haemotologist says he will confer with his colleagues and
DebLeeCox
in
CLL Support
7 years ago
Hi everyone,
My name is Sarah my lovely 61 year old dad is going for his first FCR treatment for CLL on Monday am. I thought I'd write to see if any one had any recommendations on someone receiving their first FCR treatment - and although it's highly individual anything we should expect. I have prepared a chemo
My name is Sarah my lovely 61 year old dad is going for his first FCR treatment for CLL on Monday am. I thought I'd write to see if any one had any recommendations on someone receiving their first FCR treatment - and although it's highly individual anything we should expect. I have prepared a chemo
Whitehouse_77
in
CLL Support
7 years ago
Questions about stopping Imbruvica due to infection
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
bellasmom
in
CLL Support
7 years ago
Reaction to FCR or Medicine.
I had my first cycle of FCR in August. I had an allergy to something. Most likely the bactrim (sulfur) and was hospitalized twice. I also had a severe rash that covered my entire body except for my face (thank god!). My Oncologist has decided to put off any further treatments at this time. My WBC
I had my first cycle of FCR in August. I had an allergy to something. Most likely the bactrim (sulfur) and was hospitalized twice. I also had a severe rash that covered my entire body except for my face (thank god!). My Oncologist has decided to put off any further treatments at this time. My WBC
Jemisavs5
in
CLL Support
7 years ago
Diagnosed
Diagnosed with polymyositis with organised pneumonia and referred by local hospital to guys hospital I was put on 3 days IV stetiods follows by started iv
cyclophosphamide
for 6 months as so severe. Already muscle do not hurt, swelling in hands gone plus skin back to normal.
Diagnosed with polymyositis with organised pneumonia and referred by local hospital to guys hospital I was put on 3 days IV stetiods follows by started iv
cyclophosphamide
for 6 months as so severe. Already muscle do not hurt, swelling in hands gone plus skin back to normal.
Kimevans
in
Myositis UK
7 years ago
When should we expect hair loss and how can we reduce it?
I had
cyclophosphamide
on what docs say is a small dose, about 6 months ago expected to lose lots of hair then but didn't it has been steady hair loss over a year but may be why I'm still losing hair.
I had
cyclophosphamide
on what docs say is a small dose, about 6 months ago expected to lose lots of hair then but didn't it has been steady hair loss over a year but may be why I'm still losing hair.
HannahLupus
in
LUPUS UK
7 years ago
Aciclovir
Hi all During my FCR treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come back with a vengeance! I had a new prescription last Tuesday for Aciclovir and it wasn't until today I noticed I had 200mgs instead of the usual
Hi all During my FCR treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come back with a vengeance! I had a new prescription last Tuesday for Aciclovir and it wasn't until today I noticed I had 200mgs instead of the usual
sallyplest
in
CLL Support
7 years ago
UPDATE ON: Help! 31yr old newly diagnosed CLL.
UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and productive conversations with our new doctor at Yale today. We saw the new doc. He was amazing. We spent 2+hrs explaining everything anyone ever
UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and productive conversations with our new doctor at Yale today. We saw the new doc. He was amazing. We spent 2+hrs explaining everything anyone ever
Jade263
in
CLL Support
7 years ago
1
...
29
30
31
...
57
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
CLL Support
756 results
Vasculitis UK
166 results
LUPUS UK
46 results
View top 10 communities
Sort by
Most Relevant
Newest