After running marathons coming down ill.in January took 6 months to finally be diagnosed after being told asthma even with so many symptoms. Diagnosed with polymyositis with organised pneumonia and referred by local hospital to guys hospital I was put on 3 days IV stetiods follows by started iv cyclophosphamide for 6 months as so severe.
Already muscle do not hurt, swelling in hands gone plus skin back to normal.
I will be desperate to run again. Has anyone been in this situation and got back to normal.
At moment struggle walking upstairs without puffing and panting. My FVC was 43% Which I know is not good but have another test on 7th august.