Experiences with

Cyclophosphamide

I was on imbruvica (3 pills 420) for about 3 months and CBC test came back better, however I got so sick my doctor stopped me that was about 10 weeks ago and my CBC tests looked almost normal. he wants me to try one pill a day but there is no way I am taking imbruvica again. I had chemo FCR in 2009

First post after lots of reading on here. It has all been very helpful. I am male aged 66 diagnosed 4 years ago after hernia surgery If not for that I would not have found out until 5 months ago when I was admitted to hospital with anemia (heamoglobin of 6) received 4 units of blood initially followed

They waited for the third day to infuse the Rituximab, but I had Cyclophosphamide and Fludarabine all three days. I had only one tiny issue with a scratchy throat and itchy tongue with the Rituximad which they knocked back quickly with Benadryl.

My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after FCR, on ibrutinib for 9 months, scheduled for stem cell

I am Anja (61) from the Netherlands. I have had CLL since 2010. FCR in 2012. I am participating in the ACP 196 study since March this year. Then I started Ibrutinib. It has gone well for a while but since a month I have a very burning sensation on my scalp, and stitches and hair loss. Also nerve pains

Hi, As we're getting ready to head to ASH this week, we wanted to post in response to a query that was posted originally on the CLLSLL io group forum. Dr. Richard Furman is their medical advisor and his response really puts the comparison of a therapy that has existed for decades with a therapy that

I have completed round 2 of FCR and am past the lowest point (10 days post) so am starting to recover. The infusion days themselves were easy. I have a port so it is a simple hook up and away they go. No reactions day one and two, but by end of day 3 I was starting to feel some nausea. I take Ondansetron

Hi Everyone Some of you know I do the odd Cycle ride for Charity, CLLSA and Bloodwise. To the unfortunate new members to this site allow me to introduce myself. I'm Jules AKA as The Flyer I have been on Watch and Wait for nearly 8 years now and decided I would try and help raise some funds - so far

Wondering how ill cyclophosphamide will make me, think hair will fall out and sickness, has anyone been on this drug long term as at least 6-12 months treatment to gain remission in E.G.P.A?

She finally started the chemo on 2nd August 2013. 2 Cycles of Epithral + Endoxan + 5 FU on every 21st Day 1 FEC (5 Fluoroacil + Epirubicin + Cyclophosphamide) 3 Cycles of Taxol + Herceptine on every 21st Day 3 Cycles of Herceptine alone on every 21st Day.

Had cycle 1 FCR - was a little rough but come time for 2nd cycle my BW is normal why continue

This is a wonderful community and I thank everyone who responded to my previos post with an opinion or just a message of support. I have the opportunity to participate in a trial that combines ibrutinib with FCR for 6 months and after that ends i would continue to take the ibrutinib for 2 years. I’

Hello my name is Aylin. I'm new in the group. We live in Turkey so please forgive me when I make errors in my English :) My husband was diagnosed in 2012 with CLL at the age of 48. He didn't need a treatment until 2015. He had a FCR tratment when his white cells were very high and the platelet level

I don't what to think. The doctor said my FISH test is negative; no chromosomal damage. He is proposing FCR early treatment to the hospital tumor board based on my age of 55. I may lose my job and insurance soon. So if FCR is an option, I hope I can get it asap.

Good day to everyone. I observed for a couple of weeks and felt the love. So I decided to post and share my story. Husband was Diagnosed with CLL with MDS in 2008. ( he’s now 50 ) WW until August 2011 FCR August 2011 -January 2012 - reached good #’s and he felt great until March 2015 when CLL came

Hello Health Unlocked community, Since this forum and community offered me a great amount of support and kindness during our last crisis I thought I would come back to it. Last time you heard from me/us was when my husband Mark began failing on Ibrutinib in Feb. 2017 and he was going to start Venetoclax

Was diagnosed cll 6 yrs ago. At age 49 first time Id ever been to doctor in my life. Living in Canada. Never went back to Doctor for 4 yrs didn't want to take any non natural treatments. Finally heart pounding in ears so loud couldn't watch Tv without sound cranked up. Spleen so large I looked 8 months

Warned by Rheumatologist some Churg Strauss patients never respond to treatment and as my kidneys are not in good shape either think Cyclophosphamide might heading my way arrgh!

Quick update since my last post about spleen pain. I went for an ultrasound and my spleen size and weight has basically doubled. They've taken more bloods for profiling and prognosis, also getting a CT scan done on the 22nd. It's looking more likely I'll be getting treatment pretty soon, probably FCR

Hi everyone! I am new to this site. I completed a 6 month cycle of FCR and I am now 3 months post treatment. I have been feeling good but have to make sure I do not over do it. Yesterday I went for my 3 month check up and had blood work. It did not go as well as expected. My white count is 1.3