Experiences with

Cyclophosphamide

Hi has anyone been having Rituximab alongside Cyclophosphamide pulse infusions? This maybe my next course of action as I have just had my 5th cyclophosphamide infusion & there’s some improvement in my skin but not with my ILD. Many thanks.

I have had Cyclophosphamide and currently on Azathioprine and for the first time in 11 months caught a cold. What happens? is it different? More severe? Just interested.

Has anyone tried this old drug after chemo failed ? Sometimes surprising results can be obtained..

Peripheral Neuropathy, and Auto Immune Encephalitis My Immunologist and Neurologist put me on Cyclophosphamide for two years and without this I wouldn’t be here as well as I am today. It can be tablet or via infusion. I had both as didn’t live in the same city as my medical team.

I have undergone 2 cycles of rituximab, cyclophosphamide and dexamethasone (RCD) chemotherapy. This alternative therapy was decided by treating Hematologist after discontinuing Ibrutinib due to intolerance.

Hi, I’ve just finished my 4th line of chemo with mixed results. My oncologist wants me to go on clcyophosphamide. It’s not one I’ve heard of before. Any advise on side effects and results of anyone who’s been on it. Hope everyone is staying safe and keeping away from any germ infested people 😁😷

She has had Rituximab and cyclophosphamide infusions been on steroids, the lot. She is now taking the following medication: Fluconazole, Omeprazole, Aspirin, Mycophenolate, Hydroxychloroquine.

Now talking of cyclophosphamide treatment. I’m obviously shielding at the moment due to Covid19 but as I am new to this do you ordinarily need to shield when taking cyclophosphamide in ‘normal’ times? Many thanks for any advice.

Hi I have read that cyclophosphamide and fludarabine can be given orally instead of IV. Is oral better tolerated in terms side effects? I guess oral formulation avoids need to attend hospital more frequently for infusions too. Is there anything else I should consider if needing tx with FCR? Thanks

He told me he meant Chlorambucil, not Cyclophosphamide. He wants to start Chlorambucil + Rituximab. Sorry for mistake. I confused :(

(A good oncologist): "We can also consider changing Carboplatin to Cyclophosphamide or Mitoxantrone.

Hi Anybody out there, I have been doing really well reducing my ANCA PR3 Levels since diagnosis of GPO in December, they were off the scale but after 4 treatments of Cyclophosphamide it had a marker reading of 56, I then was transferred to Azathioprine and after 6 weeks of it my marker reduced to 40

I'm on doxetaxelle and cyclophosphamide. I have to inject lonquex today. I'm a diabetic and use insulin every day but this injection makes me a bit nervous to be honest, I'm just unsure. Is it painful. I'm a newbie, so any help would be much appreciated.

I had got myself into a good position with my ANCA marker after Cyclophosphamide and Prednisolone and after monthly blood tests it’s started to creep up from 40 to 51 to 62. Not a massive increase and no returning symptoms.

I had the steroid cyclophosphamide treatment for six months than two years of azithioprene. I am not on any vasculitis meds now and was wondering if my immune system is still compromised.

I was treated for CLL in 2018 with5 cycles of FCR. 14 months later my platelets went to zero and I also have cyclophosphamide Induced cystitis. My platelets are now back between 70-90. I was given another bone marrow biopsy three weeks ago and was back in clinic today.

Is this down to steroids or cyclophosphamide? Thanks

I had a cycle of Cyclophosphamide and was on Azathioprine and Prednisolone after. Lately I had nose bleeding (one lasted for an hour) and also bad conjunctivitis in one of the eyes for 2month ,what didn't go away with increasing the dose.

I’ve got my weekly renal appointment for bloods on Thursday(I’ve missed them the past 2 weeks because I’ve been scared to go out) and my last cyclophosphamide infusion is on Friday and rheumatology on Monday.

My 15 year old daughter has been doing so well on her medication, her brain activity is back to normal and she seems her old self again but yesterday (at what we thought was her last Cyclophosphamide Infusion) we were told that her ESR levels have risen again so now her consultant wants her to have another