Experiences with

Cyclophosphamide

However, my rheumatologist thinks my lupus is not well controlled and has recommended cyclophosphamide infusions, five doses over six months. I personally feel my lupus isn’t severe enough to require cyclophosphamide infusions. Are there any less harsh alternatives?

hi everyone Anyone on cyclophosphamide infusions for lung disease and had the Covid jab? How did you feel? I’ve asked my consultant and he says it’s ok to go ahead but I have had such bad reactions I’m hesitant. Thanks 🌹

The doctor says my immunosuppression options in LVV include Methotrexate, Tociluzumab and Cyclophosphamide but he thinks the Cyclophosphamide is his preferred option due, he says, to the severity of the narrowing.

I have no idea when the cyclophosphamide is supposed to improve things. Interested in any theories! I do plan to speak to my consultant next week of course.

I basically feel a little fuzzy, a little phlegm in my throat but very minor - it’s just that feeling you get when coming down with something Next week I start my first course of cyclophosphamide which I’m dreading so I’ll mention this to my consultant but I wonder what others experience with colds

Trihexyphenidyl (Artane)Chemotherapy and hormonal medicines: Antiandrogens (Casodex, Flutamide, Nilutamide) Busulfan (Myleran) Cyclophosphamide (Cytoxan) Ketoconazole LHRH agonists (Lupron, Zoladex) LHRH antagonist (Firmagon) Other medicines: Aminocaproic acid (Amicar) Atropine Clofibrate (Atromid-S

He was hospitalized with lung involvement in February and was started on cyclophosphamide. His wbc went down to .75 last week so they’ve stopped that treatment as well. We are waiting on insurance to ok shots for his low wbc. Are there any other treatments if those two didn’t work.

I was over-researching, as I do, and asked my consultant if we could reconsider cyclophosphamide due to the rather terrifying risks associated with it.

-I have been on large dose of steroids/methylpred (currently down to 10mg daily of prednisolone) - I have had 10x1g infusions of cyclophosphamide may 2023-March 2024 - I take tacrolimus daily for a tac level between 6-8 - I started Rituxan June 2024 2x1g infusions - I’m now approved for IVIG if

he has had GPA vasculitis for 7 years now and received usual medication ie cyclophosphamide, RTX and AZA before being on MMF. He has remained stable on this regime and his blood works have all have been good.

Individuals who are receiving immunosuppressive or immunomodulating biological therapy including, but not limited to, anti-TNF, alemtuzumab, ofatumumab, rituximab, patients receiving protein kinase inhibitors or PARP inhibitors, and individuals treated with steroid sparing agents such as cyclophosphamide

Hello, I have renal limited vasculitis and am wondering if anyone has experience with a switch from Rituximab to Cyclophosphamide after 3 months of initial induction therapy? My first treatment that started almost 3 months ago was Rituximab with Prednisone.

Fludarabine's labeling now reflects that the chemotherapy can be used for adults with B-cell CLL in combination with cyclophosphamide and rituximab, and as monotherapy for those who have failed on a prior regimen containing an alkylating agent.

The oncologist felt it safe to give the Cyclophosphamide, the last of the chemo drugs. This time I was given more pre- meds. Benedryl and Solumedrol by IV in addition to prednisone by mouth and an anti-nausea med by IV. IV fluids before and after infusion.

Chemo: Cyclophosphamide +3,+4, Tacrolimus +5 & Mycophenolate After Day +5 it’s anticipated to be fairly rough for awhile. At least to days+11 to +14. I’ll let you know. Last note: my Bone Marrow Biopsy after the O CHOP revealed CD19CD20 and a few other markers were not present.

I was diagnosed with EGPA in December 2020, following intensive treatment including cyclophosphamide infusions I went into remission the following April. Since then I am on a drug regime that includes Azathioprine and Prednisolone. I am currently tapering down the latter with a view to stopping.

O (Obinutuzumab) CHOP (DOXORUBICIN (Adiamycin), vinCristine (Oncovin), cyclophosphamide (Cytoxan), Prednisone) plus Neulasta ejections. April-May 2024 3 cycles of O CHOP until BMT in Later June. BMT donor 10/10 match June 17.

I have been offered chemo in tablet form called Cyclophosphamide and wondered if anyone is on this or has been on this and might have positive feedback. Many thanks xx

doctor recommended the below medications : Paclitaxel + cyclophosphamide + phesgo+ zolodronic acid . I have corporate insurance in new India insurance with mediassist. These people are not approving phesgo which is targeted therapy telling that it is as immunotherapy instead of targeted .

To add insult to injury Dr Google says cyclophosphamide can actually cause ILD and pulmonary fibrosis so I won't be consulting that again.