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12 public communities
Myeloma Warriors
144 members
Myeloma Warriors is a great community for people living with Multiple Myeloma. Join us today, share your experiences, connect with others like you and support one another.
Myeloma UK
313 members
The aim of this community is to provide a supportive, informative and friendly community for people affected by myeloma. Myeloma UK is the only organisation in the UK focused exclusively on myeloma, a bone marrow cancer for which there is no currently no cure. You can also call our Myeloma Infoline on 0800 980 3332 (UK) from 9-5, Monday-Friday to speak to one of our Myeloma Information Specialists. We hope you feel welcomed, supported and able to ask questions in our community and do visit our website for more information, resources and support.
Myeloma America Support
1,228 members
Welcome to the Myeloma America Support community! This is a safe space for anyone affected by myeloma to find support, share advice and meet others who truly understand. Whether you're newly diagnosed, have been living with myeloma for years, or caring for someone affect, this community is for you. Why not introduce yourself today: https://healthunlocked.com/myeloma-america-support/write
Scleroderma & Raynaud's UK (SRUK)
10,833 members
We are Scleroderma & Raynaud's UK (SRUK), the only UK Charity dedicated to improving the lives of people with Scleroderma and Raynaud's phenomenon. We are here to improve awareness and understanding of these conditions, to support those affected, and ultimately, to find a cure.
FieryBones - RA Community
674 members
Rheumatoid Arthritis, or RA, is a type of auto-immune disease where the body's immune system starts attacking its own tissues and joints. It can happen at any age and is one of the most common form of arthritis. Some of the common symptoms are painful and swollen joints, fatigue and weakness. For people living with RA, it is a daily struggle to balance their personal and professional lives with the unpredictability of this painful disease. FieryBones has been created to connect all the RA warriors and caregivers throughout the world on a single platform. Nothing makes us feel better than reading inspirational blogs of how our RA peers are coping with this illness and sharing our story with the community that truly understands!
Vasculitis UK
7,776 members
Vasculitis UK is the UK's number one Vasculitis charity, run by people with Vasculitis for people with Vasculitis. We promote a national network of support groups, have a website, social media resources and a near 24 hour helpline that all help the trust to achieve its aims; offering support to sufferers, their families and friends both at home and abroad by providing information, advice and the means to contact each other. We work with other organisations and medical professionals to improve the recognition, diagnosis and treatment of Vasculitis. We raise awareness of Vasculitis among medical professions and the general population. We encourage and support the formation and development of local independant Vasculitis support groups. We raise funds in order to support research into the causes and effects of vasculitis, into improvements in the diagnosis of vasculitis and into the treatment of people suffering from all the different types of vasculitis.
SHARE Metastatic Breast Cancer
6,597 members
SHARE Metastatic Breast Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your issues. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. Please visit our website to learn more: www.sharecancersupport.org. Many of our community members have questions about experience with specific metastatic breast cancer treatments like Ibrance, Herceptin, Verzenio, etc. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. Other topics in this community include mastectomy and double mastectomy surgeries, stages of metastatic breast cancer, metastatic breast cancer awareness, and more. As a community we have rules. Inappropriate, abusive or irrelevant posts, advertisements, and sexual photographs will removed, as will disrespectful or offensive comments on threads. Please respect the diversity of political, spiritual and nonspiritual beliefs of our users, and please note, we DO NOT permit messaging with a bias against any group of people. Any content on this site is NOT to be construed as medical advice! Members should always consult their doctors regarding a medical condition or treatment. Organizations must post events and services as individual users and avoid direct advertising. The views presented on this site do not represent the views of SHARE. This community is monitored Mon-Fri, 9:30 am - 5:30 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
NRAS
36,571 members
Welcome to the community for people with rheumatoid arthritis (RA). This is run by the National Rheumatoid Arthritis Society (NRAS) and exists to help you find support and information from other people living with RA. You may be newly diagnosed or have had RA for some time or you might not have a diagnosis yet - everyone is welcome! NRAS also support people with juvenile idiopathic arthritis (JIA) and other forms of inflammatory arthritis. NRAS is a UK based charity providing support, information and advocacy for people with rheumatoid arthritis and juvenile idiopathic arthritis, their families, friends and carers. Our vision is for everyone with RA to be able to live the life they want to. We have a helpline which is open Mon-Fri, 9.30am - 4.30pm and is free for landlines. We also have a huge range of free information booklets available to order or download from our website.
Lymphoma Canada
763 members
Lymphoma affects many people, from patients, family and caregivers, to medical professionals and researchers. Lymphoma Canada connects and empowers this community. Together we are promoting early detection, finding new and better treatments, helping patients access those treatments, learning lymphoma's causes and finding a cure.
Non Hodgkin's Lymphoma Friends
1,772 members
Patient Empowerment Network (PEN) is honored to offer a peer-support community for those living with Non-Hodgkin's Lymphoma, their families and their loved ones. Connect with patients like you and share your experiences. Discuss treatment, recovery, diagnoses, and help other patients through their journey. PEN is a nonprofit (501(c)(3) Public Charity) based in the US that works to help you gain confidence and strength to get yourself the best care and most personalized treatment. We are here to help you stand up and advocate for yourself and become informed so that you can make the right decisions for you. Giving medical advice or promoting alternative treatment that is not proven by clinical trials and approved by regulatory agencies is prohibited. Your participation should be respectful, honest and in the spirit of supporting and learning from others
CLL Support
22,502 members
Chronic Lymphocytic Leukaemia Support https://www.cllsupport.org.uk is a patient-led charity founded in the UK in 2003. We support patients with Chronic Lymphocytic Leukaemia (CLL) and Small Lymphocytic Lymphoma (SLL) and their families/carers. CLL Support encourages education whilst working for access to treatments that will improve CLL outcomes. We provide information about developments in CLL/SLL treatment and research along with opportunities for awareness raising and mutual support, including the opportunity to meet at UK conferences several times each year. CLL Support at HealthUnlocked brings together a supportive international online community to allow those living with CLL/SLL and their family/carers to share their experiences. The group is supported by Admins, Volunteers and international information, resources and perspectives. Please take the time to read our [b]Community Guidelines[/b] where you’ll also find privacy and online safety tips and community contact information: https://healthunlocked.com/cllsupport/posts/148645878/hu-cll-support-community-guidelines-along-with-further-recommendations-to-keep-you-and-our-community-safe When you post, choose carefully whether you want your post to be read only by our community or searchable and readable by anyone on the internet (which is how you probably found us). See the previous link for more details. Next, our [b]welcome post[/b] is a good place to start: https://healthunlocked.com/cllsupport/posts/141151813/newly-diagnosed-with-cll-or-just-found-us-this-post-is-for-you Our other [b]Pinned Posts[/b] answer Frequently Asked Questions: https://healthunlocked.com/cllsupport/posts#pinned Finally, [b]please update your profile[/b], including where you live, to help us better help you: https://healthunlocked.com/profile/edit Thank you
CLL America Support
1,552 members
Welcome to our community! This is a safe space for anyone affected by chronic lymphocytic leukemia (CLL) to find support, share advice and meet others who truly understand. Why not introduce yourself today: https://healthunlocked.com/cll-america-support/write