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Cyclophosphamide
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The unspeakable side effects of a bit of chemo ( bums and faries)
Well, what can I say... Recovering well from the trauma of the first round of FCR BUT now learning that it's not all plain sailing... Having had the most horrendous diarrhoea last week... Sorry for graphic details .... Which was rancid and bright yellow ... Like piccalilli ... I now have the sorest
Well, what can I say... Recovering well from the trauma of the first round of FCR BUT now learning that it's not all plain sailing... Having had the most horrendous diarrhoea last week... Sorry for graphic details .... Which was rancid and bright yellow ... Like piccalilli ... I now have the sorest
Bethan49
in
CLL Support
8 years ago
MY SENSE OF HUMOUR TOOK TO ITS HEELS AND RAN AS FAST AS IT COULD!!!!
Well last Friday was th first round of FCR. I felt quite positive, put on make up and a nice Lacey top to go to the party . All the staff were amazing, loads of reassurance and info... I was ready to go. Took the pills. Fine. Waited to start the infusion and was still quite jovial even though I did
Well last Friday was th first round of FCR. I felt quite positive, put on make up and a nice Lacey top to go to the party . All the staff were amazing, loads of reassurance and info... I was ready to go. Took the pills. Fine. Waited to start the infusion and was still quite jovial even though I did
Bethan49
in
CLL Support
8 years ago
So the party is just about to start!
Just to let you all know that after my appointment in Tuesday I begin FCR on Friday....tomorrow!! I was initially elated as previously have gone through the process to start chemo and then it's been decided to keep me on W&W . I now feel nervous and reality is hitting...did my last day at work
Just to let you all know that after my appointment in Tuesday I begin FCR on Friday....tomorrow!! I was initially elated as previously have gone through the process to start chemo and then it's been decided to keep me on W&W . I now feel nervous and reality is hitting...did my last day at work
Bethan49
in
CLL Support
8 years ago
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Introducing myself
I am being treated with
cyclophosphamide
and tapering prednisolne. The cyclo is a 12 week oral course and I am 4 weeks in, but not seeing any improvement. Can any one tell me how long it generally takes before the cyclo starts to work?
I am being treated with
cyclophosphamide
and tapering prednisolne. The cyclo is a 12 week oral course and I am 4 weeks in, but not seeing any improvement. Can any one tell me how long it generally takes before the cyclo starts to work?
sealives
in
Vasculitis UK
8 years ago
Anyone tried Cyclophosphamide?
From his suggestion she has just started on
cyclophosphamide
as a steroid sparing agent. She is currently on 30mg pred. Has anyone any experience with this drug, its effectiveness, side effects etc.?
From his suggestion she has just started on
cyclophosphamide
as a steroid sparing agent. She is currently on 30mg pred. Has anyone any experience with this drug, its effectiveness, side effects etc.?
Queenfisher
in
PMRGCAuk
8 years ago
Urine Analysis Lupus SLE Nephritis
Hi would like if someone can explain to me how does this work.I have Lupus SlE nephritis.My urine analysis April was U -proteien (g/l) - 7.27 U -Creatine (mmol/l) 10.4 and Proteien Creatine ratio 6.19 (high) They uped my dosis of predisone to 40mg and i am al so on
cyclophosphamide
100mg and plasmaquine
Hi would like if someone can explain to me how does this work.I have Lupus SlE nephritis.My urine analysis April was U -proteien (g/l) - 7.27 U -Creatine (mmol/l) 10.4 and Proteien Creatine ratio 6.19 (high) They uped my dosis of predisone to 40mg and i am al so on
cyclophosphamide
100mg and plasmaquine
Voeltjie
in
LUPUS UK
8 years ago
London hospitals specialists
I have had predisalone for eights years also had
cyclophosphamide
, my last treatment was retuximabe. I am moving from Leeds to London (Enfield) and would like to know if anybody can recommend a hospital/specialist. Any information would be appreciated.
I have had predisalone for eights years also had
cyclophosphamide
, my last treatment was retuximabe. I am moving from Leeds to London (Enfield) and would like to know if anybody can recommend a hospital/specialist. Any information would be appreciated.
Louzoejf29
in
Vasculitis UK
8 years ago
Daughter 12
At hospital at the minute they are starting her on
cyclophosphamide
on Monday. She will have this treatment for 3 months.
At hospital at the minute they are starting her on
cyclophosphamide
on Monday. She will have this treatment for 3 months.
shine78
in
Behçet's UK
8 years ago
Anyone with Long treatment but reach remission
Now I am onto
cyclophosphamide
/gemzar in the hope of getting remission. My Onco says I will not see remission. I am already at the best with stable but just knowing the monsters are still in my body I worry all the time. It's so hard to live like this.
Now I am onto
cyclophosphamide
/gemzar in the hope of getting remission. My Onco says I will not see remission. I am already at the best with stable but just knowing the monsters are still in my body I worry all the time. It's so hard to live like this.
GreenSnow
in
My Ovacome
8 years ago
TRIAL OR NOT TO TRIAL, THAT IS THE QUESTION?????
In my last post I mentioned that It looks likely that I will be starting treatment in June. IN the meanwhile, I have been in touch with the consultant who I went to for a second opinion just after diagnosis. He can see me next week with the possibility of starting a trial .... FLAIR. I have read so
In my last post I mentioned that It looks likely that I will be starting treatment in June. IN the meanwhile, I have been in touch with the consultant who I went to for a second opinion just after diagnosis. He can see me next week with the possibility of starting a trial .... FLAIR. I have read so
Bethan49
in
CLL Support
8 years ago
Severe pain so may have to stop Ibrutinib
Many thanks to all who responded to my query re Ibrutinib and Ibuprofen. In the end consultant said not a good idea. Im any case I am still suffering severe muscle pains and have dropped down to only 1/3 dose. If pains continue will have to stop Ibrutinib. Very disappointing. My blood results have improved
Many thanks to all who responded to my query re Ibrutinib and Ibuprofen. In the end consultant said not a good idea. Im any case I am still suffering severe muscle pains and have dropped down to only 1/3 dose. If pains continue will have to stop Ibrutinib. Very disappointing. My blood results have improved
romarin
in
CLL Support
8 years ago
New to this world of CLL
Hi everyone! I am 60 years old and was diagnosed with CLL on April 25th after many blood tests and a biopsy of the right axillary node. I am very active and adventurous... The last couple of years I had lost my zeal for life and was tired all the time. A lump had come up on the back of my neck.. I
Hi everyone! I am 60 years old and was diagnosed with CLL on April 25th after many blood tests and a biopsy of the right axillary node. I am very active and adventurous... The last couple of years I had lost my zeal for life and was tired all the time. A lump had come up on the back of my neck.. I
Jonidleo
in
CLL Support
8 years ago
So it looks like the roller coaster is about to begin...
Only 9 months into diagnosis and W&W, it looks like chemo is about to begin. Symptoms have recently become more problematic with huge nodes in neck restricting my movement, groiin very sore and abdomen tender ion right side. Energy levels have dropped dramatically. Scan shows enlargement of all
Only 9 months into diagnosis and W&W, it looks like chemo is about to begin. Symptoms have recently become more problematic with huge nodes in neck restricting my movement, groiin very sore and abdomen tender ion right side. Energy levels have dropped dramatically. Scan shows enlargement of all
Bethan49
in
CLL Support
8 years ago
Exactly 4 years since a big decision
On plus though the Thalidomide failure prompted me to finally demand high dose
Cyclophosphamide
chemotherapy infusions which had been ruled out by the consultant for fertility and other concerns.
Cyclophosphamide
was really tough treatment, throughout all of summer 2012.
On plus though the Thalidomide failure prompted me to finally demand high dose
Cyclophosphamide
chemotherapy infusions which had been ruled out by the consultant for fertility and other concerns.
Cyclophosphamide
was really tough treatment, throughout all of summer 2012.
vivdunstan
Volunteer
in
Vasculitis UK
8 years ago
Clinic Trail Decision: FCR vs. Ibrutinib/Rituximab
I'm scheduled to start treatment for CLL in a few weeks. I live in the USA and have an opportunity to participate in a randomized clinic trail of FCR vs. Ibrutinib/Rituximab for treatment naive; < 65 years old subjects. The only health issue I have is CLL, (no blood pressure problem, Cholesterol,
I'm scheduled to start treatment for CLL in a few weeks. I live in the USA and have an opportunity to participate in a randomized clinic trail of FCR vs. Ibrutinib/Rituximab for treatment naive; < 65 years old subjects. The only health issue I have is CLL, (no blood pressure problem, Cholesterol,
FarmerGirl00
in
CLL Support
8 years ago
FCR Rounds 5-6
Hi All, Having completed 4 rounds of FCR on the FLAIR trial I unfortunately been hospitalised on the last 2 occasions(rounds 3+4) with some some form of unspecified infection, temperature 38.2 on admission and subsequent blood results showing neutrophils at 0.2-0.4 on both admissions. I had round 4
Hi All, Having completed 4 rounds of FCR on the FLAIR trial I unfortunately been hospitalised on the last 2 occasions(rounds 3+4) with some some form of unspecified infection, temperature 38.2 on admission and subsequent blood results showing neutrophils at 0.2-0.4 on both admissions. I had round 4
jackhammer
in
CLL Support
8 years ago
GPA AKA Wegeners granulomatosis
I am so frustrated as I am still suffering yet no one will give the green light for the
cyclophosphamide
( chemo) to properly address this awful disease. I am now. Wing referred to a specialist centre, could be Addenbrookes or Birmingham, I don't know as yet.
I am so frustrated as I am still suffering yet no one will give the green light for the
cyclophosphamide
( chemo) to properly address this awful disease. I am now. Wing referred to a specialist centre, could be Addenbrookes or Birmingham, I don't know as yet.
Jools52
in
Vasculitis UK
8 years ago
Under 50 and had FCR?
I am 44 11q and unmuted. I had 18 nodes enlarged and started treatment shortly after diagnosis. I start my last treatment soon. I would like to hear from others who might be similar to me on how long it was until the CLL returned and you needed treatment again. Thanks!
I am 44 11q and unmuted. I had 18 nodes enlarged and started treatment shortly after diagnosis. I start my last treatment soon. I would like to hear from others who might be similar to me on how long it was until the CLL returned and you needed treatment again. Thanks!
Mnance
in
CLL Support
8 years ago
5 vs 6 rounds of FCR
Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well. Unfortunately I ended up in the hospital with pneumonia where I am now. It has now been 7 weeks since my last treatment. My recent PET/CT scan shows
Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well. Unfortunately I ended up in the hospital with pneumonia where I am now. It has now been 7 weeks since my last treatment. My recent PET/CT scan shows
Mnance
in
CLL Support
8 years ago
My success with Imbruvica (ibrutinib
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
ohiojim
in
CLL Support
8 years ago
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