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Cutaneous T cell lymphoma (CTCL)
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Follicular Lymphoma Patient Survey
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
Dr doesn't believe positive parietal cell antibody bloodwork?
Hey guys it's me again! So we all know now I have very low ferritin and am on twice weekly b12 shots. Feeling alive finally! BUT, my stomach issues and not absorbing a lot of other vitamins well sent me to the gastroenterologist. He saw my blood work from my naturopath. I told him naturopath diagnosed
Hey guys it's me again! So we all know now I have very low ferritin and am on twice weekly b12 shots. Feeling alive finally! BUT, my stomach issues and not absorbing a lot of other vitamins well sent me to the gastroenterologist. He saw my blood work from my naturopath. I told him naturopath diagnosed
Ladyawkward
in
Pernicious Anaemia Society
8 years ago
Hospital Boomerang
Well back in the nation health all inclusive holiday camp. This weeks good news is my husbands stem cell transplant seems to be doing well. He's out of kings and enjoying home life, so I seem to have taken up residency in his place. Last few weeks was a tad rough admitted to hospital with shingles, but
Well back in the nation health all inclusive holiday camp. This weeks good news is my husbands stem cell transplant seems to be doing well. He's out of kings and enjoying home life, so I seem to have taken up residency in his place. Last few weeks was a tad rough admitted to hospital with shingles, but
knoxie
in
My Ovacome
8 years ago
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Vitamin B complex
I am currently in the middle of writing a letter to my gp regarding the withdrawal of my treatment due to high serum b12 !!!!!!! This is in another post. In the meantime I am supplementing with 2x 5000 Swansons Methylcobalamine daily, I think others have said that to make the best of the b12 you should
I am currently in the middle of writing a letter to my gp regarding the withdrawal of my treatment due to high serum b12 !!!!!!! This is in another post. In the meantime I am supplementing with 2x 5000 Swansons Methylcobalamine daily, I think others have said that to make the best of the b12 you should
Kenbowns
in
Pernicious Anaemia Society
8 years ago
Venetoclax or bone marrow transplant?
My son has CLL with 11Q deletion. he could have a haplo transplant with his brother as a half full match donor but given his pneumonia has not subsided he is now looking more towards Venetoclax. The transplant has been postponed non stop because of fever from pneumonia. Feedback will be appreciated.
My son has CLL with 11Q deletion. he could have a haplo transplant with his brother as a half full match donor but given his pneumonia has not subsided he is now looking more towards Venetoclax. The transplant has been postponed non stop because of fever from pneumonia. Feedback will be appreciated.
karenmarie
in
CLL Support
8 years ago
Don't know what to do
Hi all need some advice my 15 year old daughter is now attending a hospital school she has not been in full time education for 1half years now she's full time loves it there head has got her on 4 week trail everything was going great until last Tuesday since then couldn't attend going through a bad flare
Hi all need some advice my 15 year old daughter is now attending a hospital school she has not been in full time education for 1half years now she's full time loves it there head has got her on 4 week trail everything was going great until last Tuesday since then couldn't attend going through a bad flare
Hollie121
in
Fibromyalgia Action UK
8 years ago
Introduction
Hi everyone, my name is Hildegard and I would like to introduce myself. I love to crochet and knit, and I had follicular Non Hodgkins Lymphoma stage 4 since 2004. I did 22 Radiation treatments after surgery to take out my salivary gland out. Then I went to almost 5 years and in 09 it came back it was
Hi everyone, my name is Hildegard and I would like to introduce myself. I love to crochet and knit, and I had follicular Non Hodgkins Lymphoma stage 4 since 2004. I did 22 Radiation treatments after surgery to take out my salivary gland out. Then I went to almost 5 years and in 09 it came back it was
hildegard1921
in
Non Hodgkin's Lymphoma Friends
8 years ago
Aggressive Follicular Lymphoma Now In NIH CAR-T Clinical Trial
In 2011 my 64 year old (at that time) wife was diagnosed with follicular lymphoma. She relapsed within 4 months of R-CHOP (6 cycles) and within 2 months of bendamustine/rituximab/velcade (6 cycles). This is when her oncologist said she had an aggressive form of follicular lymphoma. Next she was in a
In 2011 my 64 year old (at that time) wife was diagnosed with follicular lymphoma. She relapsed within 4 months of R-CHOP (6 cycles) and within 2 months of bendamustine/rituximab/velcade (6 cycles). This is when her oncologist said she had an aggressive form of follicular lymphoma. Next she was in a
wmay13241
in
Non Hodgkin's Lymphoma Friends
8 years ago
New to group, but old to DLBCL NHL
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
fwhip14
in
Non Hodgkin's Lymphoma Friends
8 years ago
World Lymphoma Awareness Day
Today is World Lymphoma Awareness Day: Every 3 minutes someone is diagnosed with a Blood Cancer in the USA.
Today is World Lymphoma Awareness Day: Every 3 minutes someone is diagnosed with a Blood Cancer in the USA.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Going to oncologist
Hey, everyone. I am seeing an oncologist Friday because I think I may have lymphoma? And it pangs me to even mention that. :/ basically, a few months ago, I started feeling very sick and very fatigued. Around the same time some red patches appeared on my left arm and left shoulder, which looked like
Hey, everyone. I am seeing an oncologist Friday because I think I may have lymphoma? And it pangs me to even mention that. :/ basically, a few months ago, I started feeling very sick and very fatigued. Around the same time some red patches appeared on my left arm and left shoulder, which looked like
Michhy
in
Lymphoma Canada
8 years ago
Gastrin test
Hi everyone, I posted on here a few weeks ago talking about some of my lab results and what they could possibly entail. Some possibilities were atrophic gastritis and pernicious anemia. I definitely have been diagnosed with barrett's esophagus at the young age of 30. The reason why atrophic gastritis
Hi everyone, I posted on here a few weeks ago talking about some of my lab results and what they could possibly entail. Some possibilities were atrophic gastritis and pernicious anemia. I definitely have been diagnosed with barrett's esophagus at the young age of 30. The reason why atrophic gastritis
yogamom1
in
Pernicious Anaemia Society
8 years ago
My cancer experience
Cerous uterine cancer surgery February 2016. Chemo/radiation completed the end of June 2016. Clear of cancer as of September 2016.
Cerous uterine cancer surgery February 2016. Chemo/radiation completed the end of June 2016. Clear of cancer as of September 2016.
GrandmaG
in
Pain Concern
8 years ago
watch & wait - immunizations....how long to treatment ?
Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What
Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What
garrick66
in
CLL Support
8 years ago
Autologous stem cell transplantation
Hi all i wish you are doing well with your treatment,I'm interested in information about relapsed &transformed follicular lymphoma treated with r.chop Now going to do autologous bone marrow. Stem cells transplant. Thanks
Hi all i wish you are doing well with your treatment,I'm interested in information about relapsed &transformed follicular lymphoma treated with r.chop Now going to do autologous bone marrow. Stem cells transplant. Thanks
Bhlool
in
Lymphoma Canada
8 years ago
Can Hashis flare up ?
I thought I was doing well (always dangerous) I have the usual long back story of misdiagnosis of CFS then was lucky to see Dr Skinner got on the right path and have used both private and NHs Endos to get the treatment I need for my Hashimotos. I take nature thyroid 3 and a quarter grains spread
I thought I was doing well (always dangerous) I have the usual long back story of misdiagnosis of CFS then was lucky to see Dr Skinner got on the right path and have used both private and NHs Endos to get the treatment I need for my Hashimotos. I take nature thyroid 3 and a quarter grains spread
spacestar
in
Thyroid UK
8 years ago
Stem cell transplant
I have been reading a lot about this and seems this is the cure for our dieses I am currently trying to get this done has anyone had it done or can tell me more about it thanks. If anybody wants more info then please do message me and will forward the forums and websites I have been looking into. They
I have been reading a lot about this and seems this is the cure for our dieses I am currently trying to get this done has anyone had it done or can tell me more about it thanks. If anybody wants more info then please do message me and will forward the forums and websites I have been looking into. They
Tmunney999
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Parietal cell test
Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come back abnormal with a reading of 113.5 or higher. My intrinsic factor was negative about a year ago and hasn't been tested since. My B12 levels have
Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come back abnormal with a reading of 113.5 or higher. My intrinsic factor was negative about a year ago and hasn't been tested since. My B12 levels have
yogamom1
in
Pernicious Anaemia Society
8 years ago
CNS Lymphoma awareness
I'm new here. Would be interested in connecting with those who,also have secondary CNS lymphoma I am in remission from DLBC NHL but was unaware that it could cross the blood brain barrier into central nervous system. My bio tells the somewhat scary story. Jennifer
I'm new here. Would be interested in connecting with those who,also have secondary CNS lymphoma I am in remission from DLBC NHL but was unaware that it could cross the blood brain barrier into central nervous system. My bio tells the somewhat scary story. Jennifer
Jennchap1
in
Non Hodgkin's Lymphoma Friends
8 years ago
Woohoo husband home
Surprise of the week, my husband who has just undergone a stem cell transplant at Kings came home earlier than anticipated yesterday his transplant is doing very well and having him home is a real boost😃I have done 3 of 6 chemos now and was struggling with the travelling to see him. CT scan booked for
Surprise of the week, my husband who has just undergone a stem cell transplant at Kings came home earlier than anticipated yesterday his transplant is doing very well and having him home is a real boost😃I have done 3 of 6 chemos now and was struggling with the travelling to see him. CT scan booked for
knoxie
in
My Ovacome
8 years ago
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