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Experiences with
Cutaneous T cell lymphoma (CTCL)
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Vaginitis and SLE
Hi my friends I do have some problems in my vagina but now I have sever pain and imflammation in my vagina and when I urient I feel remain some urien in my uletra I went to GP he said it doesn't about urinary system it's refer trichomonas vaginitis and take me Metronidazole but I don't know if this pill
Hi my friends I do have some problems in my vagina but now I have sever pain and imflammation in my vagina and when I urient I feel remain some urien in my uletra I went to GP he said it doesn't about urinary system it's refer trichomonas vaginitis and take me Metronidazole but I don't know if this pill
asma1364
in
LUPUS UK
8 years ago
Adding additional chemo
I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most recent bone marrow biopsy showed little change after 3 months. If there is still no change in November, my Oncologist will add either .bendamustine
I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most recent bone marrow biopsy showed little change after 3 months. If there is still no change in November, my Oncologist will add either .bendamustine
lyn26041
in
CLL Support
8 years ago
4 weeks post FCR
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
jackhammer
in
CLL Support
8 years ago
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Pins and needles after b12
hi there, so I was recently diagnosed as being deficient in b12. I do not test positive for intrinsic factor but for parietal cell antibody. I had a number of neurological symptoms that came on at once a few months ago-the main symptom being a burning scalp, then on/off dizziness and an on/off feeling
hi there, so I was recently diagnosed as being deficient in b12. I do not test positive for intrinsic factor but for parietal cell antibody. I had a number of neurological symptoms that came on at once a few months ago-the main symptom being a burning scalp, then on/off dizziness and an on/off feeling
kel226
in
Pernicious Anaemia Society
8 years ago
Share your experience with stem cell transplant (bone marrow transplantation)
Please share to let others know what to expect or better inform their decision making with their doctor hey....
Please share to let others know what to expect or better inform their decision making with their doctor hey....
SimoneHU
HealthUnlocked
in
Myeloma Warriors
8 years ago
Professor Dasgupta on video
Hello everyone! At the PMRGCAuk AGM held in June, Professor Bhaskar Dasgupta, whose name many of you will be familiar with (he is President of our charity and a leading expert on PMR and GCA), spoke about why 2016 is a landmark year for Polymyalgia Rheumatica and Giant Cell Arteritis. Here is a link
Hello everyone! At the PMRGCAuk AGM held in June, Professor Bhaskar Dasgupta, whose name many of you will be familiar with (he is President of our charity and a leading expert on PMR and GCA), spoke about why 2016 is a landmark year for Polymyalgia Rheumatica and Giant Cell Arteritis. Here is a link
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
stem cell transplant
Good morning, has anyone tried stem cell transplant. I have applied and been accepted. I have stiffness, cant walk most of the time. I am so looking forward to being able to walk, less meds etc. Please respond if you have had this procedure. The neurologist I was going to told me several times' There
Good morning, has anyone tried stem cell transplant. I have applied and been accepted. I have stiffness, cant walk most of the time. I am so looking forward to being able to walk, less meds etc. Please respond if you have had this procedure. The neurologist I was going to told me several times' There
Kathleen
in
Cure Parkinson's
8 years ago
Can Maintenance Trastuzumab be taken during Radiotherapy?
My wife is going under chemotherapy after mastectomy of her left breast (On 26/12/2015). Cancer was T2N2G2, ER/PR negative & HER2 positive. 3 weekly ECx4 & weekly Taxol + Trastuzumab has been completed. Now doctor advice for 25 days Radiotherapy & 3 weekly maintenance Trastuzumab for next 9 months.
My wife is going under chemotherapy after mastectomy of her left breast (On 26/12/2015). Cancer was T2N2G2, ER/PR negative & HER2 positive. 3 weekly ECx4 & weekly Taxol + Trastuzumab has been completed. Now doctor advice for 25 days Radiotherapy & 3 weekly maintenance Trastuzumab for next 9 months.
shashishekhar
in
Breast Cancer India
8 years ago
Confused about Lymphoma
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
HANNAHEWEBB
in
LSN
8 years ago
Lymphoma
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
HANNAHEWEBB
in
CLL Support
8 years ago
MPN Voice Patients’ Forum – Inverness
Friday 28th October 2016, 10 am - 2 pm, registration from 9.30 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, specialist nurses
Friday 28th October 2016, 10 am - 2 pm, registration from 9.30 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, specialist nurses
Mazcd
MPNVoice
in
MPN Voice
8 years ago
POSITIVE Gastric Parietal Cell AB/ Low Methylmalonic acid and Homocysteine.
My rheumatologist looked at my b12 levels last year along with some other tests and diagnosed me with PA. My family doctor disagrees because my b12 was at 319 and he says that is within normal ranges. I do test positive for the gastric parietal cell antibody 35.1 but he said my Methylmalonic acid
My rheumatologist looked at my b12 levels last year along with some other tests and diagnosed me with PA. My family doctor disagrees because my b12 was at 319 and he says that is within normal ranges. I do test positive for the gastric parietal cell antibody 35.1 but he said my Methylmalonic acid
Tigerlilly81
in
Pernicious Anaemia Society
8 years ago
Share Your Thoughts on Clinical Trials- Take Our Survey
Patient Power’s Andrew Schorr will be speaking again before another major audience – this time in Boston on July 21st to heads of research at pharmaceutical companies and government officials. They know clinical trial participation is very low and they want to hear from patients on how they can help
Patient Power’s Andrew Schorr will be speaking again before another major audience – this time in Boston on July 21st to heads of research at pharmaceutical companies and government officials. They know clinical trial participation is very low and they want to hear from patients on how they can help
tclementi
in
CLL Support
8 years ago
Not understanding
I'm 46yrs. Old. I just got a test done for Sickle Cells. The doctor's assistance called to tell me first that I tested positive for Sickle Cell, then called me back to tell I shouldn't worry it's just might be the trait. I've been in pain all my adult life. I have yellow eyes, have chronic pain daily
I'm 46yrs. Old. I just got a test done for Sickle Cells. The doctor's assistance called to tell me first that I tested positive for Sickle Cell, then called me back to tell I shouldn't worry it's just might be the trait. I've been in pain all my adult life. I have yellow eyes, have chronic pain daily
Maurethiahollins
in
Sickle Cell Society
8 years ago
NHS England refusing second Stem Cell Transplants
Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem Cell Transplant for relapsed patients with Blood Disorders even when the Consulants think it viable and the best option This came after some
Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem Cell Transplant for relapsed patients with Blood Disorders even when the Consulants think it viable and the best option This came after some
bronx77
in
CLL Support
8 years ago
Giant Cell Arteritis and Mycophenolate
I am a 64 year old male who has suffered from GCA for 6 years. I did manage to get down to 3.5mgs of prednisilone a day although would have relapses. My new consultant was keen for me to have a scan to see how the inflammation was behaving however that then really set me back. I had to come off my drugs
I am a 64 year old male who has suffered from GCA for 6 years. I did manage to get down to 3.5mgs of prednisilone a day although would have relapses. My new consultant was keen for me to have a scan to see how the inflammation was behaving however that then really set me back. I had to come off my drugs
Stkeyna
in
PMRGCAuk
8 years ago
No surgery for me
Well after only a few days I have the results of my pet and Mri scans. Emergency apointme with oncologist Good news no cancer in upper body, bad news Mri shows mass on bladder plus mass on upper vagina and infiltration to blood vessels so no surgery possible oh bugger was counting on that so its back
Well after only a few days I have the results of my pet and Mri scans. Emergency apointme with oncologist Good news no cancer in upper body, bad news Mri shows mass on bladder plus mass on upper vagina and infiltration to blood vessels so no surgery possible oh bugger was counting on that so its back
knoxie
in
My Ovacome
8 years ago
tocilizumab for gpa?
hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for rituximab but has been told she can have tocilizumab. have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the
hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for rituximab but has been told she can have tocilizumab. have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the
roobub
in
Vasculitis UK
8 years ago
Sex, maggots, castration and politicians lead to this year's Golden Goose Award - for a technique that could prevent Zika's spread
[i]"Sometimes offbeat, quirky-sounding science is the best science, paving the way for discoveries years down the road which can revolutionize medicine, physics, biology, technology and how we view the world," said US Republican Representative Randy Hultgren from Illinois.[/i] [i]:[/i] About 80 years
[i]"Sometimes offbeat, quirky-sounding science is the best science, paving the way for discoveries years down the road which can revolutionize medicine, physics, biology, technology and how we view the world," said US Republican Representative Randy Hultgren from Illinois.[/i] [i]:[/i] About 80 years
AussieNeil
Partner
in
CLL Support
8 years ago
Something New
Well this is new to me. I know my lymphoma is active, but I just started having chills and jerking my shoulders, and now my calf muscles are aching. My voice is weak and the lymph nodes in my groin are aching. Is this normal?
Well this is new to me. I know my lymphoma is active, but I just started having chills and jerking my shoulders, and now my calf muscles are aching. My voice is weak and the lymph nodes in my groin are aching. Is this normal?
Shortcake2
in
CLL Support
8 years ago
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