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Experiences with
Cutaneous T cell lymphoma (CTCL)
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Diagnosed in July 2014- RCHOP treated in Pittsburgh at the Mario Lemieux Center for Blood Cancers. Relapsed in November of 2015, received RICE then BEAM before April 2016 auto stem cell transplant.
Diagnosed in July 2014- RCHOP treated in Pittsburgh at the Mario Lemieux Center for Blood Cancers. Relapsed in November of 2015, received RICE then BEAM before April 2016 auto stem cell transplant.
Mrjackwagon
in
Non Hodgkin's Lymphoma Friends
7 years ago
Help to come off of Sertraline and change to 5-HTP!!
I am brand new here to the forum. I am looking for some guidance on how to come off Sertraline which I have been on for as long as I can remember. 20 years plus. I am on 150 mg a day and I tried to come off them before by reducing to 100 mg but side effects of feeling really low, confused and irritable
I am brand new here to the forum. I am looking for some guidance on how to come off Sertraline which I have been on for as long as I can remember. 20 years plus. I am on 150 mg a day and I tried to come off them before by reducing to 100 mg but side effects of feeling really low, confused and irritable
debgou
in
Thyroid UK
7 years ago
What a shock
My non Hodgkin's lymphoma just turned into bone marrow cancer! Luckily I fell and ended up in the hospital. It took 8 days and a blood test to find out what suddenly made me so week and there it was! Now doing chemo and will have another bone marrow biopsy to see if any improvement. If not onto new
My non Hodgkin's lymphoma just turned into bone marrow cancer! Luckily I fell and ended up in the hospital. It took 8 days and a blood test to find out what suddenly made me so week and there it was! Now doing chemo and will have another bone marrow biopsy to see if any improvement. If not onto new
Jimmy82
in
Non Hodgkin's Lymphoma Friends
7 years ago
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Official Diagnosis
After learning Dec 22nd I had biopsy results showing Anaplastic Large Cell Lymphoma, I finally received my true diagnosis after Bone Marrow Test and PET Scan. I have cutaneous T cell alk negative. My lesions, I only had 12 small lesions, maybe the size of a dime. 2 showed signs of active cancer the rest
After learning Dec 22nd I had biopsy results showing Anaplastic Large Cell Lymphoma, I finally received my true diagnosis after Bone Marrow Test and PET Scan. I have cutaneous T cell alk negative. My lesions, I only had 12 small lesions, maybe the size of a dime. 2 showed signs of active cancer the rest
Afleisch44
in
Non Hodgkin's Lymphoma Friends
7 years ago
2nd bout with Lymphoma - starting Bendeka, a new Bendamustine formulation
Starting Bendeka + rituximab + allopurinol tomorrow morning. Today is Sunday and I forgot to ask my oncologist if I should start the allopurinol the day before, or the day starting chemo. Does anyone have any experience with this? Thanks! [i] [/i] [i]Changed title to help others interested in Bendeka
Starting Bendeka + rituximab + allopurinol tomorrow morning. Today is Sunday and I forgot to ask my oncologist if I should start the allopurinol the day before, or the day starting chemo. Does anyone have any experience with this? Thanks! [i] [/i] [i]Changed title to help others interested in Bendeka
Howie40
in
CLL Support
7 years ago
Zydelig (idelalisib) first line... NO!
I have had a few emails and PMs asking about the use of Zydelig (idelalisib) for first line, since patients know I'm on this combined with rituxan. I direct you to the newly revised drug label, which states...
[i]1 INDICATIONS AND USAGE[/i]
[i]1.1 Relapsed Chronic Lymphocytic Leukemia[/i
I have had a few emails and PMs asking about the use of Zydelig (idelalisib) for first line, since patients know I'm on this combined with rituxan. I direct you to the newly revised drug label, which states...
[i]1 INDICATIONS AND USAGE[/i]
[i]1.1 Relapsed Chronic Lymphocytic Leukemia[/i
Cllcanada
Top Poster CURE Hero
in
CLL Support
7 years ago
Recently diagnosed at 36 years old
Hello all! I was recently diagnosed with either a marginal zone lymphoma or CLL--they are uncertain which exact one because it is stage 0 and there are no swollen nodes or anything to biopsy to be sure. Phenotype is CD 5 negative and CD 10 negative FMC7 and Pax5 positive and CD23 positive. FISH shows
Hello all! I was recently diagnosed with either a marginal zone lymphoma or CLL--they are uncertain which exact one because it is stage 0 and there are no swollen nodes or anything to biopsy to be sure. Phenotype is CD 5 negative and CD 10 negative FMC7 and Pax5 positive and CD23 positive. FISH shows
Smarker
in
Non Hodgkin's Lymphoma Friends
7 years ago
large B-cell lymphoma
My name is Larry soon to be 63, thanks for allowing me into your group. I was diagnosed with diffuse large B-cell lymphoma in March of 2016, It developed in my lower jaw effecting 2 teeth which were extracted. After all the scans and test for staging, it was determined that the lymphoma was local to
My name is Larry soon to be 63, thanks for allowing me into your group. I was diagnosed with diffuse large B-cell lymphoma in March of 2016, It developed in my lower jaw effecting 2 teeth which were extracted. After all the scans and test for staging, it was determined that the lymphoma was local to
Larwil
in
Non Hodgkin's Lymphoma Friends
7 years ago
Bendamustine vs FCR
My consultant is discussing treatment options with me. Been in W and W for almost 6 years but now my ALC is over145 and my haemaglobin is drifting down below 120. He is suggesting that Bendamustine with Rituximab will be a better option for me than FCR because of some particular presentation of my condition
My consultant is discussing treatment options with me. Been in W and W for almost 6 years but now my ALC is over145 and my haemaglobin is drifting down below 120. He is suggesting that Bendamustine with Rituximab will be a better option for me than FCR because of some particular presentation of my condition
Clovelly
in
CLL Support
7 years ago
Mantle cel Non Hodgkin's Lymphoma
I was diagnosed April 2014, stage IV. Had Rchop and now on Rituxin. Spleen enlarged, nodules from neck to groin included. Was in bone marrow. In remission. Neuropathy in feet and need cane to walk, sometimes walker at night. Bad taste in mouth all the time. Foul urine odor. Fatigue.
I was diagnosed April 2014, stage IV. Had Rchop and now on Rituxin. Spleen enlarged, nodules from neck to groin included. Was in bone marrow. In remission. Neuropathy in feet and need cane to walk, sometimes walker at night. Bad taste in mouth all the time. Foul urine odor. Fatigue.
Judyhoneycomb
in
Non Hodgkin's Lymphoma Friends
7 years ago
GP does not do loading dose as per BNF guidelines due to pressure on appointment availability !1
Hi all, Finally had a reply from my letter to GP questioning why my loading dose of 6 jabs was over 6 weeks, not 2 weeks as per guidelines. ( I enclosed copies of EVERY treatment protocol ) and reminded him I had tested positive for IFA antibodies and Parietal Antibodies, and had neuro symptoms even
Hi all, Finally had a reply from my letter to GP questioning why my loading dose of 6 jabs was over 6 weeks, not 2 weeks as per guidelines. ( I enclosed copies of EVERY treatment protocol ) and reminded him I had tested positive for IFA antibodies and Parietal Antibodies, and had neuro symptoms even
Barry1955
in
Pernicious Anaemia Society
7 years ago
Chronic lymphocytic leukemia
Hi I'm new here and have been researching. This is my story. Late oct. 2016 during a routine mammogram an enlarged lymphnode was seen under my left arm. After an ultra sound and a needle biopsy I was diagnosed with low grade B cell lymphoma. Oncologist wanted an excisional biopsy so had a lymphnode
Hi I'm new here and have been researching. This is my story. Late oct. 2016 during a routine mammogram an enlarged lymphnode was seen under my left arm. After an ultra sound and a needle biopsy I was diagnosed with low grade B cell lymphoma. Oncologist wanted an excisional biopsy so had a lymphnode
Grandmajoanie
in
CLL Support
7 years ago
Southwestern Ontario Chapter Peer-to-Peer Support Meeting
Living the “New Normal” A cancer diagnosis brings with it worry, fear and often a realignment of priorities. Questions such as how do I move forward, what changes do I need to make, where do I begin and how do I go about it drift in and out of thought. Often individuals refer to this as the new normal
Living the “New Normal” A cancer diagnosis brings with it worry, fear and often a realignment of priorities. Questions such as how do I move forward, what changes do I need to make, where do I begin and how do I go about it drift in and out of thought. Often individuals refer to this as the new normal
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
7 years ago
I'm new to this, please be gentle
So starting at the beginning I was diagnosed with Leukemia in 2014 at 23, then I had a stem cell transplant which is where it all went wrong; Being on all sorts of medication including steroids made me gain weight, then loose it, then gain it again; this wasn't helped by the fact I wasn't able to do
So starting at the beginning I was diagnosed with Leukemia in 2014 at 23, then I had a stem cell transplant which is where it all went wrong; Being on all sorts of medication including steroids made me gain weight, then loose it, then gain it again; this wasn't helped by the fact I wasn't able to do
lynn_dee_lou
in
Weight Loss Support
7 years ago
Diagnosed with Sickle Cell trait (or SC carrier), experiencing some SC-Disease symptoms, what is the cause?
I'm 20 years old. I have been diagnosed to be a carrier of sickle cell or sickle cell trait when I was a child, I don't know if there is a difference but they said it like that (carrier). But I believe I have been experiencing some of the symptoms of sickle cell disease. I have Muscle pain, Bone pain
I'm 20 years old. I have been diagnosed to be a carrier of sickle cell or sickle cell trait when I was a child, I don't know if there is a difference but they said it like that (carrier). But I believe I have been experiencing some of the symptoms of sickle cell disease. I have Muscle pain, Bone pain
Almoullim
in
Sickle Cell Society
7 years ago
CLL and B Cell lymphoma
My mom at 87 was diagnosed with B Cell lymphoma and passed March of 2016. A year plus after being diagnosed. I was diagnosed with CLL July 2016 at 58yrs old. Are they associated in any way? My doctor says no.
My mom at 87 was diagnosed with B Cell lymphoma and passed March of 2016. A year plus after being diagnosed. I was diagnosed with CLL July 2016 at 58yrs old. Are they associated in any way? My doctor says no.
Teddy405
in
CLL Support
7 years ago
HCST
Has anyone looked into doing stem cell transplant? My neurologist told me that they wouldn't accept me because of my age 48 and because I have had MS for 9 years, think I want to try, this disease is so frustrating.
Has anyone looked into doing stem cell transplant? My neurologist told me that they wouldn't accept me because of my age 48 and because I have had MS for 9 years, think I want to try, this disease is so frustrating.
cnichols
in
My MSAA Community
7 years ago
Melodyj
Hi just new to this website. I'm reading some of the posts and I am a Non-Hodgkin's follicular lymphoma patients I am in remission one year and still undergoing maintenance treatments until next November 2017. My lymphoma what stage 3A as in no symptoms however my symptoms mimic menopause and fibromyalgia
Hi just new to this website. I'm reading some of the posts and I am a Non-Hodgkin's follicular lymphoma patients I am in remission one year and still undergoing maintenance treatments until next November 2017. My lymphoma what stage 3A as in no symptoms however my symptoms mimic menopause and fibromyalgia
Melodyj
in
Non Hodgkin's Lymphoma Friends
7 years ago
Hi I'm new here
Does anyone have or know of someone that has
Cutaneous
T
Cell
Lymphoma
? I was diagnosed in September and have joined other sites, but am unable to connect with others who have this,
Does anyone have or know of someone that has
Cutaneous
T
Cell
Lymphoma
? I was diagnosed in September and have joined other sites, but am unable to connect with others who have this,
budsmom912
in
Non Hodgkin's Lymphoma Friends
8 years ago
Trevor 93, Follicular Lymphoma since 2013
Hello, just signed up so I will introduce myself. Trevor, 69 , married with 2 grownup children( 45 - 39) . I had my cancerous Prostate removed in May 2013 , they also removed a lymph node from my groin as it was noticed to be swollen. When I left hospital i was told i had Follicular Lymphoma. I see
Hello, just signed up so I will introduce myself. Trevor, 69 , married with 2 grownup children( 45 - 39) . I had my cancerous Prostate removed in May 2013 , they also removed a lymph node from my groin as it was noticed to be swollen. When I left hospital i was told i had Follicular Lymphoma. I see
Trevor93
in
Non Hodgkin's Lymphoma Friends
7 years ago
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