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Cutaneous T cell lymphoma (CTCL)
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My recent experience of Giant Cell Arteritis
Hello, for the information of others, I am posting my recent experience of GCA as follows:- I have been suffering from pains in my neck, shoulders and cheeks. My head got so sensitive I could not even comb my hair and my jaws were so painful I could hardly eat any solids. After several visits to my
Hello, for the information of others, I am posting my recent experience of GCA as follows:- I have been suffering from pains in my neck, shoulders and cheeks. My head got so sensitive I could not even comb my hair and my jaws were so painful I could hardly eat any solids. After several visits to my
marpil
in
PMRGCAuk
7 years ago
Bewildered
Hi I'm trying to find all there is to know about Burkitt lymphoma, my brother was diagnosed in September 16 since then he's gone through all sorts, docs not keen to talk much but know there's still a long way to go, any positives out there, would love to speak to survivors.
Hi I'm trying to find all there is to know about Burkitt lymphoma, my brother was diagnosed in September 16 since then he's gone through all sorts, docs not keen to talk much but know there's still a long way to go, any positives out there, would love to speak to survivors.
Turton
in
Non Hodgkin's Lymphoma Friends
7 years ago
Yellow eyes and Red lips
Ever since I was young I had yellow eyes,now at 22 I still do,and the most irritating question I get even from strangers is "why are your eyes yellow",this really brings my spirit down,Because I cant ever explain to everybody I meet why my eyes are so,although I havent tried any medication that would
Ever since I was young I had yellow eyes,now at 22 I still do,and the most irritating question I get even from strangers is "why are your eyes yellow",this really brings my spirit down,Because I cant ever explain to everybody I meet why my eyes are so,although I havent tried any medication that would
macogola
in
Sickle Cell Society
7 years ago
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My introduction
I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases
I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases
Anilbhard
in
CLL Support
7 years ago
Urine odor has changed
I shared that I am still in Rituxin treatment every 3 months for Mantle Cel NHL until July 2017. Something I have noticed is a foul odor of my urine. Sometimes burning. Had it tested and no infection. I try to drink only water and occasional ginger ale. no changes in other medications. Has anyone
I shared that I am still in Rituxin treatment every 3 months for Mantle Cel NHL until July 2017. Something I have noticed is a foul odor of my urine. Sometimes burning. Had it tested and no infection. I try to drink only water and occasional ginger ale. no changes in other medications. Has anyone
Judyhoneycomb
in
Non Hodgkin's Lymphoma Friends
7 years ago
1st week on venetoclax - WOW, not what we expected...
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
NMMP
in
CLL Support
7 years ago
Duration of Treatment ... with Abiraterone Acetate or Enzalutamide.
New study below. A week ago I posted a study: "Abiraterone or Enzalutamide in Advanced CRPC." "There is strong evidence that enzalutamide outperforms AA with prednisone in terms of radiographic PFS and PSA progression and PSA response rate but not OS in the pre and post-docetaxel settings." In the current
New study below. A week ago I posted a study: "Abiraterone or Enzalutamide in Advanced CRPC." "There is strong evidence that enzalutamide outperforms AA with prednisone in terms of radiographic PFS and PSA progression and PSA response rate but not OS in the pre and post-docetaxel settings." In the current
pjoshea13
in
Advanced Prostate Cancer
7 years ago
Post transplant feedback
Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Jennchap1
in
Non Hodgkin's Lymphoma Friends
7 years ago
Gastroenterologist says a positive IFA & Parietal Cell antibody result does not mean I have P.A. ?! HELP & advice please
Just returned from Hospital Appointment to see Gastro, at request of my G.P`s, one who does not think I have a B12 issue, and another who will not agree to alternate day jabs without ok from Hospital because afraid of overdosing issues ( he quoted side affects from his BNF book ). The Gastro said that
Just returned from Hospital Appointment to see Gastro, at request of my G.P`s, one who does not think I have a B12 issue, and another who will not agree to alternate day jabs without ok from Hospital because afraid of overdosing issues ( he quoted side affects from his BNF book ). The Gastro said that
Barry1955
in
Pernicious Anaemia Society
7 years ago
Trying Something New
http://nattokinasehearthealth.com/20/what-is-nattokinase-and-health-benefits/ http://nattokinasehearthealth.com/60/what-is-lumbrokinase/ http://nattokinasehearthealth.com/142/serrapeptase-benefits/ This is the third time I am trying to write this post. I keep clicking on the wrong thing and losing my
http://nattokinasehearthealth.com/20/what-is-nattokinase-and-health-benefits/ http://nattokinasehearthealth.com/60/what-is-lumbrokinase/ http://nattokinasehearthealth.com/142/serrapeptase-benefits/ This is the third time I am trying to write this post. I keep clicking on the wrong thing and losing my
Cynt-ann53
in
Sickle Cell Society
7 years ago
Autologous stem cell transplantation
Going to do autologous stem cell transplant.for relapsed follicular lymphoma. And new dbcl. After 2 weeks. Any body has been through that? Let me know please. Thanks. And God bless you all.
Going to do autologous stem cell transplant.for relapsed follicular lymphoma. And new dbcl. After 2 weeks. Any body has been through that? Let me know please. Thanks. And God bless you all.
Bhlool
in
LSN
7 years ago
Hi! I'm new.
Hello-I have been fighting Non-Hodgkins Lymphoma since I was 35, and for almost 12 years. I had R-CHOP in the beginning, Bendamustine and VinChristine 8 years ago, and am on a Rituxan regiment every three months now. I continue to feel fatigue. Does anyone else feel this way in a similar situation as
Hello-I have been fighting Non-Hodgkins Lymphoma since I was 35, and for almost 12 years. I had R-CHOP in the beginning, Bendamustine and VinChristine 8 years ago, and am on a Rituxan regiment every three months now. I continue to feel fatigue. Does anyone else feel this way in a similar situation as
MsMindy
in
Non Hodgkin's Lymphoma Friends
7 years ago
Platelet count going down
I have CLL Received chemo first time, 2 treatment 1st. 9/14 & 9/15, 2015. The next treatment was 10/27 & 10/28. All was good until 7/2016 when my platelet started to drop. When the count reached 48 I had 4 Rituximab infusions in November 2016. After the 2nd infusion the count was back to 130. They
I have CLL Received chemo first time, 2 treatment 1st. 9/14 & 9/15, 2015. The next treatment was 10/27 & 10/28. All was good until 7/2016 when my platelet started to drop. When the count reached 48 I had 4 Rituximab infusions in November 2016. After the 2nd infusion the count was back to 130. They
budm
in
CLL Support
7 years ago
sickle cell traits problems
I have sickle traits and I'm anemia and I get sick sometimes and always have low vitamin d I get tired a lot because my low blood (anemia) I think a new research needs to be done. I been getting sick since I was young. I got the traits from my dad mother.
I have sickle traits and I'm anemia and I get sick sometimes and always have low vitamin d I get tired a lot because my low blood (anemia) I think a new research needs to be done. I been getting sick since I was young. I got the traits from my dad mother.
lavette40
in
Sickle Cell Society
7 years ago
Anyone taking Rifampicin?
Hi everyone, I saw the specialist this afternoon, as an itcher not cured by cholestyramine I was prescribed Naltrexone which gave me some very unpleasant side effects. I now have a two month supply of Rifampicin which I understand is an anti biotic. I think anti biotics can destroy the good gut bacteria
Hi everyone, I saw the specialist this afternoon, as an itcher not cured by cholestyramine I was prescribed Naltrexone which gave me some very unpleasant side effects. I now have a two month supply of Rifampicin which I understand is an anti biotic. I think anti biotics can destroy the good gut bacteria
butterflyEi
in
PBC Foundation
7 years ago
Excellent Overview of Immunotherapies and Other Treatments for Lymphoma
This is a great summary of the range of treatment options currently available for lymphoma, including CLL. I found it enlightening and full of hope. Enjoy! Geoff https://youtu.be/JAlEDi2rugE
This is a great summary of the range of treatment options currently available for lymphoma, including CLL. I found it enlightening and full of hope. Enjoy! Geoff https://youtu.be/JAlEDi2rugE
Eagle5327
in
CLL Support
7 years ago
Malt Lymphoma
Hi all i had an abcess under my left breas in Sept 2016 my gp treated with antibiotics after two lots she decided to send me for xray my left lung showed abnormalities so was asked to go to see Dr at Hospital who arranged a PET scan this came back showing a cancer in my left lung and small one in the
Hi all i had an abcess under my left breas in Sept 2016 my gp treated with antibiotics after two lots she decided to send me for xray my left lung showed abnormalities so was asked to go to see Dr at Hospital who arranged a PET scan this came back showing a cancer in my left lung and small one in the
MALSTAN
in
Non Hodgkin's Lymphoma Friends
7 years ago
What type of Lymphoma do you have?
I find it educational to learn about all the types of lymphoma that there are and, to the best of my knowledge, there are about 30 different types. Any time a member mentions one of the less common types, I find myself doing research of that particular type in an effort to educate myself and gain knowledge
I find it educational to learn about all the types of lymphoma that there are and, to the best of my knowledge, there are about 30 different types. Any time a member mentions one of the less common types, I find myself doing research of that particular type in an effort to educate myself and gain knowledge
Tinkerbellcgy
in
Non Hodgkin's Lymphoma Friends
7 years ago
Autologous Stem Cell Transplantation for MS
Autologous Stem Cell Transplantation for MS: Progression-Free Survival Seen in Nearly Half of Patients By Amy Orciari Herman Edited by David G. Fairchild, MD, MPH, and Jaye Elizabeth Hefner, MD Autologous stem cell transplantation for multiple sclerosis might help slow neurologic progression in nearly
Autologous Stem Cell Transplantation for MS: Progression-Free Survival Seen in Nearly Half of Patients By Amy Orciari Herman Edited by David G. Fairchild, MD, MPH, and Jaye Elizabeth Hefner, MD Autologous stem cell transplantation for multiple sclerosis might help slow neurologic progression in nearly
erash
in
My MSAA Community
7 years ago
Herclon under mediclaim
My wife has grade 4 HER positive metastatic breast cancer. The doctor has tried various medicines/ combinations and now she is on Herclon + Tykerb. I have a group mediclaim policy of Oriental Insurance through my office. The insurance company has declined claim on following grounds: 1. Infusion of Herclon
My wife has grade 4 HER positive metastatic breast cancer. The doctor has tried various medicines/ combinations and now she is on Herclon + Tykerb. I have a group mediclaim policy of Oriental Insurance through my office. The insurance company has declined claim on following grounds: 1. Infusion of Herclon
goyaldd
in
Breast Cancer India
7 years ago
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