Hi all,
Finally had a reply from my letter to GP questioning why my loading dose of 6 jabs was over 6 weeks, not 2 weeks as per guidelines. ( I enclosed copies of EVERY treatment protocol ) and reminded him I had tested positive for IFA antibodies and Parietal Antibodies, and had neuro symptoms even though serum test was 340.
Seems they don`t do alternate day loading as it puts too much pressure on appointment availability.
Also, my retest (after loading ) showed b12 was over 2000 ( big surprise ) and quoted normal levels being between 191 - 663 according to their laboratory guidelines.
He quoted an article in the Oral Diseaeses journal published on 7th Sept 2012 by A.Sun, Y.P Wang et al, finding only 12.9 % of persons with a gastric parietal cell antibody positivity had pernicious anaemia by the WHO definition. However, those with positivity had a higher frequency, thereby tendency of haemoglobin, iron or vitamin B deficiency. Therefore extrapolating from this I would envisage you to have one injection every 2 months as per your positive results.
1) Should I be happy I`ve got some sort of treatment , or
2) should I request the proper treatment ie, alternate day injections UNTILL symptoms stop improving
ATB
Barry