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Experiences with
Cutaneous T cell lymphoma (CTCL)
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Hi I'm new here
Does anyone have or know of someone that has
Cutaneous
T
Cell
Lymphoma
? I was diagnosed in September and have joined other sites, but am unable to connect with others who have this,
Does anyone have or know of someone that has
Cutaneous
T
Cell
Lymphoma
? I was diagnosed in September and have joined other sites, but am unable to connect with others who have this,
budsmom912
in
Non Hodgkin's Lymphoma Friends
8 years ago
Trevor 93, Follicular Lymphoma since 2013
Hello, just signed up so I will introduce myself. Trevor, 69 , married with 2 grownup children( 45 - 39) . I had my cancerous Prostate removed in May 2013 , they also removed a lymph node from my groin as it was noticed to be swollen. When I left hospital i was told i had Follicular Lymphoma. I see
Hello, just signed up so I will introduce myself. Trevor, 69 , married with 2 grownup children( 45 - 39) . I had my cancerous Prostate removed in May 2013 , they also removed a lymph node from my groin as it was noticed to be swollen. When I left hospital i was told i had Follicular Lymphoma. I see
Trevor93
in
Non Hodgkin's Lymphoma Friends
7 years ago
Marginal NHL
I'm an 11 year survivor of breast cancer, chemo & radiation. A year ago after total hip replacement surgery, I was informed that Stage 4 NH Lymphoma was found in my bone marrow. Surprise, surprise! Further testing has called it marginal, currently non aggressive. Doctors stating that Chemo may be the
I'm an 11 year survivor of breast cancer, chemo & radiation. A year ago after total hip replacement surgery, I was informed that Stage 4 NH Lymphoma was found in my bone marrow. Surprise, surprise! Further testing has called it marginal, currently non aggressive. Doctors stating that Chemo may be the
appleannie
in
Non Hodgkin's Lymphoma Friends
7 years ago
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Good results
Hi Peeps, just to let you that my visit to see my Haematolagist today was all good. WCC 4.3 Neut 2.1 Hb 148 Haematocrit 44.4 Plt 355 he was really pleased with me and said that all my counts were behaving themselves WHoop !!! He also checked my spleen as I have been experiencing some sharp pain on my
Hi Peeps, just to let you that my visit to see my Haematolagist today was all good. WCC 4.3 Neut 2.1 Hb 148 Haematocrit 44.4 Plt 355 he was really pleased with me and said that all my counts were behaving themselves WHoop !!! He also checked my spleen as I have been experiencing some sharp pain on my
Superwoman
in
MPN Voice
7 years ago
NHL battle
Hi all, I was diagnosed with follicular NHL in 2008, splenectomy, chop treatment, two years of retuxin, 2012 recurrence two more years of retuxin, and zevalin treatment. Doing well so far. Ct scan in June. Life is good.
Hi all, I was diagnosed with follicular NHL in 2008, splenectomy, chop treatment, two years of retuxin, 2012 recurrence two more years of retuxin, and zevalin treatment. Doing well so far. Ct scan in June. Life is good.
Allen8855
in
Non Hodgkin's Lymphoma Friends
7 years ago
Newly Dx
Just diagnosed with primary cutaneous marginal zone b cell lymphoma. I'll be starting radiation in a couple weeks. Anyone else have this? I never even heard of it before my dx.
Just diagnosed with primary cutaneous marginal zone b cell lymphoma. I'll be starting radiation in a couple weeks. Anyone else have this? I never even heard of it before my dx.
RoadkillShellie77
in
Non Hodgkin's Lymphoma Friends
7 years ago
Key questions to ask your consultant
Hi everyone, sorry if you thought from the title of this message that I am providing the answers - instead, I would like your views. If you want the main point of this post skip to end, but it might help give better answers if you read through] [
aside:
For anyone with the stamina, here is my
Hi everyone, sorry if you thought from the title of this message that I am providing the answers - instead, I would like your views. If you want the main point of this post skip to end, but it might help give better answers if you read through] [
aside:
For anyone with the stamina, here is my
Davdow
in
CLL Support
7 years ago
Mantle cell lymphoma Hope
My partner was diagnosed 6 years ago .Thanks to the improvement in treatment he is still here. He was also diagnosed with Hodgkin's lymphoma last year and again after treatment given the all clear. I wanted to say that there is hope .treatment is improving all the time .
My partner was diagnosed 6 years ago .Thanks to the improvement in treatment he is still here. He was also diagnosed with Hodgkin's lymphoma last year and again after treatment given the all clear. I wanted to say that there is hope .treatment is improving all the time .
Tginger61
in
Non Hodgkin's Lymphoma Friends
7 years ago
Bob is cancer survivor
Hi everyone, my name is Bob and I am a cancer survivor. I was diagnosed with NHL late 2013, underwent Chemotherapy (RCHOP) for 4 months followed by 3 weeks of daily radiation treatment. Cancer is still in remission and hope it stays that way. I do visit my Oncologist every six months for blood work
Hi everyone, my name is Bob and I am a cancer survivor. I was diagnosed with NHL late 2013, underwent Chemotherapy (RCHOP) for 4 months followed by 3 weeks of daily radiation treatment. Cancer is still in remission and hope it stays that way. I do visit my Oncologist every six months for blood work
bobbyd943
in
Non Hodgkin's Lymphoma Friends
7 years ago
Cause of GCA chicken pox and shingles virus??
Picked up the following today from a Facebook group for GCA based largely in USA thought this may be of interest to share:- A new study developed at the University of Colorado School of Medicine at the Anschutz Medical Campus links the virus that causes chicken pox and shingles to a condition that inflames
Picked up the following today from a Facebook group for GCA based largely in USA thought this may be of interest to share:- A new study developed at the University of Colorado School of Medicine at the Anschutz Medical Campus links the virus that causes chicken pox and shingles to a condition that inflames
DevonMichael
in
PMRGCAuk
7 years ago
CD8 T Cell Lymphoma in skin tissue and muscle
Diagnosed Nov 15 with above without suffering from any of the normal symptons, had 6 courses of CHOP treatment, finished Mar 16. Scan revealed I was in complete remission. Had to undergo stem cell transplant in May/Jun 16. Didn't suffer some of the side effects but wouldn't wish on my worst enemy. Further
Diagnosed Nov 15 with above without suffering from any of the normal symptons, had 6 courses of CHOP treatment, finished Mar 16. Scan revealed I was in complete remission. Had to undergo stem cell transplant in May/Jun 16. Didn't suffer some of the side effects but wouldn't wish on my worst enemy. Further
squashman
in
Non Hodgkin's Lymphoma Friends
7 years ago
Recently Diagnosed
Anaplastic Large Cell Lymphoma of the skin Dec 22nd. Great Xmas present! Bone marrow test Jan 3rd PET soon to follow. Hoping it is cutaneous
Anaplastic Large Cell Lymphoma of the skin Dec 22nd. Great Xmas present! Bone marrow test Jan 3rd PET soon to follow. Hoping it is cutaneous
Afleisch44
in
Non Hodgkin's Lymphoma Friends
7 years ago
Daughter update
I lost my daughter on the 11th Jan. Th funeral is Friday , i believe its the first of the day, 9-00 . I am suffering with a bit of stress. Though at this time I'm trying to be positive and look to the future. I have another daughter who is fighting fit, two sons of whom are both in good health. Tracey
I lost my daughter on the 11th Jan. Th funeral is Friday , i believe its the first of the day, 9-00 . I am suffering with a bit of stress. Though at this time I'm trying to be positive and look to the future. I have another daughter who is fighting fit, two sons of whom are both in good health. Tracey
fastball
in
Lung Conditions Community Forum
7 years ago
Advice needed
I have been on Laxidu powders 1 or 2 nightly following.a bowel cancer scare some years ago which luckily turned out to be diverticular disease (not diverticulitis itself). I now hear that they can cause problems such as hoarseness etc. Does anyone have any info regarding this.
I have been on Laxidu powders 1 or 2 nightly following.a bowel cancer scare some years ago which luckily turned out to be diverticular disease (not diverticulitis itself). I now hear that they can cause problems such as hoarseness etc. Does anyone have any info regarding this.
Gillymar
in
PMRGCAuk
7 years ago
"New to the site"
I'm new here. I am a 70 yr. old female with Lymphoma. They don't know what kind except to say that it is not "non Hodgkin's" I think I am a "wait and see"client however I feel very alone as I live rurally and it is difficult to look up symptoms as it is as yet unclear what kind of lymphoma I have. Does
I'm new here. I am a 70 yr. old female with Lymphoma. They don't know what kind except to say that it is not "non Hodgkin's" I think I am a "wait and see"client however I feel very alone as I live rurally and it is difficult to look up symptoms as it is as yet unclear what kind of lymphoma I have. Does
denmanjemima
in
Lymphoma Canada
8 years ago
Relapsed Mantle Cell Lymphoma--I'm new here!
My name is Gail and I am 66 years old. I was diagnosed with MCL in February, 2008 when I was 58 years old and living in Cleveland, Ohio. The only side effect I had were weight loss and swollen lymph nodes under my arms. I had HYPER C-VAD chemo with Rituxin and then had a stem cell transplant in October
My name is Gail and I am 66 years old. I was diagnosed with MCL in February, 2008 when I was 58 years old and living in Cleveland, Ohio. The only side effect I had were weight loss and swollen lymph nodes under my arms. I had HYPER C-VAD chemo with Rituxin and then had a stem cell transplant in October
Gail2050
in
Non Hodgkin's Lymphoma Friends
7 years ago
New to site
I was diagnosed in 2014 with low grade stage 3 follicular lymphoma. It was discovered as a result of a routine mammogram. I had no real symptoms and so waiting And watching made sense. Had scans in February of 2016 and things still looked OK. The lymphoma transformed in a short period of time to
I was diagnosed in 2014 with low grade stage 3 follicular lymphoma. It was discovered as a result of a routine mammogram. I had no real symptoms and so waiting And watching made sense. Had scans in February of 2016 and things still looked OK. The lymphoma transformed in a short period of time to
Rraasch
in
Non Hodgkin's Lymphoma Friends
8 years ago
NHL 7 Years in Remission
Hello. I was diagnosed with NHL stage 4 B-cell follicular in 2010. Involved were nodes all over as well as bone marrow. Before I was diagnosed with NHL I had complained to my primary doctor and my OBGYN of savere fatigue. Their response was that I am no spring chicken anymore. I ask my primary to check
Hello. I was diagnosed with NHL stage 4 B-cell follicular in 2010. Involved were nodes all over as well as bone marrow. Before I was diagnosed with NHL I had complained to my primary doctor and my OBGYN of savere fatigue. Their response was that I am no spring chicken anymore. I ask my primary to check
Robin-Newman
in
Non Hodgkin's Lymphoma Friends
8 years ago
Bendamustine and effect on stem cells
Hi all. My husband, 49 yrs old, has mantle cell lymphoma. He has currently taken two sessions of Bendamustine/Rituximab. He will be getting an ASCT by end of 6 sessions. It has been brought to our attention that Bendamustine could have a toxic effect on stem cells. Other doctors are asking us to switch
Hi all. My husband, 49 yrs old, has mantle cell lymphoma. He has currently taken two sessions of Bendamustine/Rituximab. He will be getting an ASCT by end of 6 sessions. It has been brought to our attention that Bendamustine could have a toxic effect on stem cells. Other doctors are asking us to switch
Reem-ayoub
in
Lymphoma Canada
8 years ago
MDS UK Patient and Family Forum Birmingham, UK Saturday, 4th February 2017 10.00 am – 16.30 pm
This FREE event will be held at The National Motorcycle Museum Coventry Road, Hampton in Arden Solihull, B92 0EJ This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in an informal discussion regarding their quality-of-life
This FREE event will be held at The National Motorcycle Museum Coventry Road, Hampton in Arden Solihull, B92 0EJ This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in an informal discussion regarding their quality-of-life
LCNurse
in
Leukaemia Support
7 years ago
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