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Rheumatologist appointment help
Good Morning. ( This is a long story so will try to make it as condensed as I can) 4 years ago I was diagnosed with PMR after painful joints, hands arms, shoulders and toes. I was put on a dose of 40mg of pred as they also thought I may have GCA. Although that turned out to be a dental issue. I was
Good Morning. ( This is a long story so will try to make it as condensed as I can) 4 years ago I was diagnosed with PMR after painful joints, hands arms, shoulders and toes. I was put on a dose of 40mg of pred as they also thought I may have GCA. Although that turned out to be a dental issue. I was
Gyspysmum
in
NRAS
10 months ago
shingles vax
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
Knarllyknees
in
PMRGCAuk
4 months ago
GCA flare
Diagnosed April 2018 with PMR. Three months later GCA. I am currently on 3mgs prednisolone. Over the last two days have scalp pain on right side only … no jaw pain. It feels a bit like I am getting a cold sore but no cold sore showing up. Could it be a GCA flare? Thank you to everyone who replies.
Diagnosed April 2018 with PMR. Three months later GCA. I am currently on 3mgs prednisolone. Over the last two days have scalp pain on right side only … no jaw pain. It feels a bit like I am getting a cold sore but no cold sore showing up. Could it be a GCA flare? Thank you to everyone who replies.
Reddev
in
PMRGCAuk
7 months ago
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Recurring UTI’s
Had appointment with Rheumatology nurse this week and she wanted to check my recent urine infection had cleared. I didn’t have any symptoms and was feeling quite well so surprised when she rang on Thursday to say test showed an infection and I needed antibiotics and to get these from my GP, which I
Had appointment with Rheumatology nurse this week and she wanted to check my recent urine infection had cleared. I didn’t have any symptoms and was feeling quite well so surprised when she rang on Thursday to say test showed an infection and I needed antibiotics and to get these from my GP, which I
Baner
in
PMRGCAuk
10 months ago
CRP 220
Currently in hospital with Pneumonia. My CRP was 180 on Saturday and went up to 220 on Monday. Medics are going to do a procalcitonin blood test which I've never heard of. Could one of you very clever forum members enlighten me
Currently in hospital with Pneumonia. My CRP was 180 on Saturday and went up to 220 on Monday. Medics are going to do a procalcitonin blood test which I've never heard of. Could one of you very clever forum members enlighten me
Phoebess
in
Vasculitis UK
4 months ago
Covid
I have Covid. At bedtime when I take ibuprofen and paracetamol without Gaviscon my acid reflux is worse. When I take Ibruprofen and paracetamol with Gaviscon my Covid symptoms are worse. Any thoughts please?
I have Covid. At bedtime when I take ibuprofen and paracetamol without Gaviscon my acid reflux is worse. When I take Ibruprofen and paracetamol with Gaviscon my Covid symptoms are worse. Any thoughts please?
AHG123
in
Acid Reflux Support
10 months ago
Having no temperature
Hi, having lupus, we are prone to having lots of infections. I do not generally get a temperature with an infection as body does not fight it off. Is there anyone who does get a temperature when they are ill? I’ve currently got the flu and chest pains with a chesty cough. I have feverish symptoms with
Hi, having lupus, we are prone to having lots of infections. I do not generally get a temperature with an infection as body does not fight it off. Is there anyone who does get a temperature when they are ill? I’ve currently got the flu and chest pains with a chesty cough. I have feverish symptoms with
Zainy10
in
LUPUS UK
4 months ago
supplement advice
Hi all, Hope you are all keeping well. I am just wondering whether anyone has any good supplement/vitamin advice? We are awaiting further information on when we will be starting our ICSI treatment and I am just trying to get myself as healthy as I can be. I am currently taking conceive plus and 100mg
Hi all, Hope you are all keeping well. I am just wondering whether anyone has any good supplement/vitamin advice? We are awaiting further information on when we will be starting our ICSI treatment and I am just trying to get myself as healthy as I can be. I am currently taking conceive plus and 100mg
Summeringreece
in
Fertility Network UK
8 months ago
Shaking Body & Cold Clammy Hands
Hi all Fortunately my AF episodes are few & far between 🤞, therefore I just take Flecainide as PIP when it kicks off, which it did at 1am this morning. I got up to go to the loo & when I got back to bed I couldn’t stop shaking, I was so cold, then the AF started. My question is does anyone suffer
Hi all Fortunately my AF episodes are few & far between 🤞, therefore I just take Flecainide as PIP when it kicks off, which it did at 1am this morning. I got up to go to the loo & when I got back to bed I couldn’t stop shaking, I was so cold, then the AF started. My question is does anyone suffer
heartmatters1
in
AF Association
4 months ago
Cold symptoms with suppressants
Just trying to figure out how my system is different with the immune suppressants. I recently had a cold but it never got really bad but it is also lasting a long-time. I know someone who had a blood infection and her immune system didn't kick in until it was very severe. She was on immune suppressants
Just trying to figure out how my system is different with the immune suppressants. I recently had a cold but it never got really bad but it is also lasting a long-time. I know someone who had a blood infection and her immune system didn't kick in until it was very severe. She was on immune suppressants
smilelines
in
NRAS
4 months ago
meds fir a cold
I have cll and finally got a stuffy nose and a bit of cough. last time I had this I took sinutab but now I wonder if that is safe. I am not allowed ibuprofen.. By the way I had 5 covid vaccines and and the last one was october 26 and had the RSV vaccine last October 6, 2023. any suggestion?
I have cll and finally got a stuffy nose and a bit of cough. last time I had this I took sinutab but now I wonder if that is safe. I am not allowed ibuprofen.. By the way I had 5 covid vaccines and and the last one was october 26 and had the RSV vaccine last October 6, 2023. any suggestion?
Kmegood
in
CLL Support
4 months ago
Shingles
Anyone else ever had Shingles .First time ever..its so painful. I did contact the Gp straight away and they prescribed antiviral medication..I took this straight away ..suffering nerve pain as well and Dr prescribed me some gabapentin. So it's a few more meds to add to the tablets I'm.already taking
Anyone else ever had Shingles .First time ever..its so painful. I did contact the Gp straight away and they prescribed antiviral medication..I took this straight away ..suffering nerve pain as well and Dr prescribed me some gabapentin. So it's a few more meds to add to the tablets I'm.already taking
heathermc
in
MPN Voice
4 months ago
confused
So, I’m on the patch. It’s a form of birth control. I’ve never had any issues, recently I’ve become overly sexually active and I started my period before the patch came off. It’s been spotty and now weird shit similar in looks to my last miscarriage are coming out.
So, I’m on the patch. It’s a form of birth control. I’ve never had any issues, recently I’ve become overly sexually active and I started my period before the patch came off. It’s been spotty and now weird shit similar in looks to my last miscarriage are coming out.
Hypochondriacx44
in
Pregnancy and Parenting Support
1 year ago
Cough
hi is anyone one else suffering from a bad cough I have had a course of steroids and it still will not clear it
hi is anyone one else suffering from a bad cough I have had a course of steroids and it still will not clear it
54chelle
in
Asthma Community Forum
4 months ago
Combi Pill
Hi all, I'm 26 and have been recently diagnosed with Endo (after experiencing the symptoms for over 10 years!). At the moment I'm taking Levest to help manage the symptoms which seemed to work for a couple months when I had energy and was pain free! Even though I've continued to take the pill, for the
Hi all, I'm 26 and have been recently diagnosed with Endo (after experiencing the symptoms for over 10 years!). At the moment I'm taking Levest to help manage the symptoms which seemed to work for a couple months when I had energy and was pain free! Even though I've continued to take the pill, for the
FlattieFanatic
in
Endometriosis UK
1 year ago
What to do/explore now? + Beware of my mistake
Hello all, please will you offer suggestions. I am prescribed T3 (20 mcg am, 10 early pm + 10 mid pm) and have been okay for years. 6 months ago I was very ill with something (just lay on sofa not eating or drinking - grown up family said they thought I was just going to lie there and die!!!) and
Hello all, please will you offer suggestions. I am prescribed T3 (20 mcg am, 10 early pm + 10 mid pm) and have been okay for years. 6 months ago I was very ill with something (just lay on sofa not eating or drinking - grown up family said they thought I was just going to lie there and die!!!) and
thyr01d
in
Thyroid UK
11 months ago
constant bleeding whilst on the pill
hi all I have discovered my endometriosis and had a laparascopy (ethanol sclerotherapy) in May 2022 to remove my endometrioma/ large cyst. Since then the doctor has advised that I take dienogest to stop my period and avoid having another large endometrioma. I was bleeding whilst on dienogest. He moved
hi all I have discovered my endometriosis and had a laparascopy (ethanol sclerotherapy) in May 2022 to remove my endometrioma/ large cyst. Since then the doctor has advised that I take dienogest to stop my period and avoid having another large endometrioma. I was bleeding whilst on dienogest. He moved
zbcq
in
Endometriosis UK
1 year ago
Sufferer
I am a long COVID/ SARS CoV2 survivor and I have went threw a tramatizing experience with COVID and being so sick with the infection and being all alone in ICU had taking effect on my mental well-being. And all the new serious health conditions I also gave now. It's just to much for me to take in .
I am a long COVID/ SARS CoV2 survivor and I have went threw a tramatizing experience with COVID and being so sick with the infection and being all alone in ICU had taking effect on my mental well-being. And all the new serious health conditions I also gave now. It's just to much for me to take in .
Babybailey73
in
Mental Health Support
11 months ago
pain deep in vagina after peeing
MY STORY hi everyone, So I have stage four endometriosis. Basically all of the organs within my pelvic area ugly together. I’ve had severe period pain since I started having periods at 11… I’m now 31. Had my first laparoscopy at 21, another at 24, which seem to really help my symptoms a lot. I was
MY STORY hi everyone, So I have stage four endometriosis. Basically all of the organs within my pelvic area ugly together. I’ve had severe period pain since I started having periods at 11… I’m now 31. Had my first laparoscopy at 21, another at 24, which seem to really help my symptoms a lot. I was
Cavapoochon7
in
Endometriosis UK
1 year ago
Test results
Does anyone know much about test results for inflammation in stomache i did a stoole sample back in may to test for colprotin levels came back at 171 just done another one and has came back as 77 so wat does this indicate that its ibd or ibs i already have ibs and bile acid malabsorption any advice would
Does anyone know much about test results for inflammation in stomache i did a stoole sample back in may to test for colprotin levels came back at 171 just done another one and has came back as 77 so wat does this indicate that its ibd or ibs i already have ibs and bile acid malabsorption any advice would
Netbet22
in
IBS Network
9 months ago
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