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Leflunomide and tapering. Update on flare this Summer
I posted in late July about getting into a yo-yo situation trying to control a flare of PMR and got excellent advice from DL which sorted it out. I've been on 3.5mg ever since (I was at 2mg when the flare started). I've tried using DSNS taper. But the PMR isn't ready to cooperate yet!On Monday I had
I posted in late July about getting into a yo-yo situation trying to control a flare of PMR and got excellent advice from DL which sorted it out. I've been on 3.5mg ever since (I was at 2mg when the flare started). I've tried using DSNS taper. But the PMR isn't ready to cooperate yet!On Monday I had
PastelsinArt
in
PMRGCAuk
11 months ago
AF back 6 days after Covid vacc
I'd been in NSR for over 3 1/2 years following a cardioversion after 9 months of persistent AF, but I woke for the loo at 3.30am on Monday and found I was back in AF - which is so far persisting. Sigh! My first thought about the trigger was that I was dehydrated. We were staying with friends, and
I'd been in NSR for over 3 1/2 years following a cardioversion after 9 months of persistent AF, but I woke for the loo at 3.30am on Monday and found I was back in AF - which is so far persisting. Sigh! My first thought about the trigger was that I was dehydrated. We were staying with friends, and
Belle11
in
AF Association
11 months ago
Thrush?
Hi has anyone had thrush so bad that your swollen, got sores around the entrance to your vagina, been itchy and when you pee it hurts so bad you wanna cry? I'm using caneston external cream and the applied the internal one yesterday but it doesn't seem to be getting any better. Doctors are all closed
Hi has anyone had thrush so bad that your swollen, got sores around the entrance to your vagina, been itchy and when you pee it hurts so bad you wanna cry? I'm using caneston external cream and the applied the internal one yesterday but it doesn't seem to be getting any better. Doctors are all closed
Kayloufell
in
BASHH
7 months ago
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It Had To Happen!! Covid-19 Strikes!
It has been 18 months since I completed my CLL Obinutuzumab plus Venclexta treatment protocol. I was in remission. I have had four Covid-19 vaccinations and two Evusheld vaccinations over that time. So, last week is the first time I ventured into the public transportation system in 2-1/2 years. I
It has been 18 months since I completed my CLL Obinutuzumab plus Venclexta treatment protocol. I was in remission. I have had four Covid-19 vaccinations and two Evusheld vaccinations over that time. So, last week is the first time I ventured into the public transportation system in 2-1/2 years. I
DanBro1
in
CLL Support
11 months ago
adrenals
please help , I am feeling really unwell ,dizzy , feel sick ,mentally very low,upset stomach,lost weight ,waking up after 4 hours sleep ,anxiety of the scale.from July till October tapered down from 6mg to 4.5 finished 28 October,stayed there to see how I was , I wasn’t feeling brilliant but I know I
please help , I am feeling really unwell ,dizzy , feel sick ,mentally very low,upset stomach,lost weight ,waking up after 4 hours sleep ,anxiety of the scale.from July till October tapered down from 6mg to 4.5 finished 28 October,stayed there to see how I was , I wasn’t feeling brilliant but I know I
Amilee
in
PMRGCAuk
10 months ago
Chillblains
I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link and this paper links it to SLL, https://bmcdermatol.biomedcentral.com/articles/10.1186/s12895-015-0032-z. I can cope with this keeping hands
I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link and this paper links it to SLL, https://bmcdermatol.biomedcentral.com/articles/10.1186/s12895-015-0032-z. I can cope with this keeping hands
GerryPL
in
CLL Support
10 months ago
Lisinopril, A-Fib enlarged left atrium,
I was taking Diltiazem 60 mg 12HR ER Cap 2 times a day for A-fib and hypertension. I stopped it as doctor recommended when I had to take Paxlovid for Covid. I didn't get A-fib when I didn't go back to taking the Diltiazem and have been off of it for more than 2 months. I'm thinking of taking Lisinopril
I was taking Diltiazem 60 mg 12HR ER Cap 2 times a day for A-fib and hypertension. I stopped it as doctor recommended when I had to take Paxlovid for Covid. I didn't get A-fib when I didn't go back to taking the Diltiazem and have been off of it for more than 2 months. I'm thinking of taking Lisinopril
Jana_
in
AF Association
11 months ago
Lisinopril enlarged Atrium, afib
Jana_ in reply to BobD 7 days ago I was taking Diltiazem 60 mg 12HR ER Cap 2 times a day for A-fib and hypertension. I stopped it as doctor recommended when I had to take Paxlovid for Covid. I didn't get A-fib when I didn't go back to taking the Diltiazem and have been off of it for more than
Jana_ in reply to BobD 7 days ago I was taking Diltiazem 60 mg 12HR ER Cap 2 times a day for A-fib and hypertension. I stopped it as doctor recommended when I had to take Paxlovid for Covid. I didn't get A-fib when I didn't go back to taking the Diltiazem and have been off of it for more than
Jana_
in
AF Association
11 months ago
why s mch rising now asI am SI daily??
just another quick question! I'm on SI b12 daily and just received my blood test results back Can anyone explain why my MCH is rising? I know this is an indicator of low b12 but it was getting lower and is now rising even though I am on daily b12 It isn't a huge difference but I am interested in why
just another quick question! I'm on SI b12 daily and just received my blood test results back Can anyone explain why my MCH is rising? I know this is an indicator of low b12 but it was getting lower and is now rising even though I am on daily b12 It isn't a huge difference but I am interested in why
brenanddave
in
Pernicious Anaemia Society
11 months ago
Influenza A while on W & W,-- the price for not wanting a vaccine
I decided to put my pride and lack of articulate writing skills aside to share a my learning experience . It was in Jan of 23 when I was told over the phone of my CLL Dx. I walked around in a panicky daze. First I went to Mr Google. (BIG MISTAKE !) I started clearing out the house and giving things
I decided to put my pride and lack of articulate writing skills aside to share a my learning experience . It was in Jan of 23 when I was told over the phone of my CLL Dx. I walked around in a panicky daze. First I went to Mr Google. (BIG MISTAKE !) I started clearing out the house and giving things
Sillysand
in
CLL Support
5 months ago
Pfizer vaccination and AF
I had a Covid Vaccination on Monday which I think triggered the longest attack of AF I have had for ages. I am ok now but very washed out. Has the Covid vaccine caused palpitations fo anyone else? Not having a vaccine again!!
I had a Covid Vaccination on Monday which I think triggered the longest attack of AF I have had for ages. I am ok now but very washed out. Has the Covid vaccine caused palpitations fo anyone else? Not having a vaccine again!!
southkorea
in
AF Association
11 months ago
chronic cough / seretide
Hi all. I’ve looked through posts about coughs and Seretide on this forum. Seems there are quite a few who have had similar experiences with this inhaler as i’m having now. I’ve had very loud coughs all my life. Now with allergy season starting, a nasty cough has come come back that I can’t shake
Hi all. I’ve looked through posts about coughs and Seretide on this forum. Seems there are quite a few who have had similar experiences with this inhaler as i’m having now. I’ve had very loud coughs all my life. Now with allergy season starting, a nasty cough has come come back that I can’t shake
Cougher52
in
Asthma Community Forum
5 months ago
Afib during Covid follow up
Two weeks ago, I came down with symptoms of Covid. It was not that bad, and I seem fully recovered. During the first week, I had two separate episodes of Afib. One seemed in response to a burst of coughing while sleeping and waking short of breath, but the other came on for no apparent reason. My cardiologist
Two weeks ago, I came down with symptoms of Covid. It was not that bad, and I seem fully recovered. During the first week, I had two separate episodes of Afib. One seemed in response to a burst of coughing while sleeping and waking short of breath, but the other came on for no apparent reason. My cardiologist
fibnum
in
AF Association
11 months ago
Telegraph: People injured or bereaved by Covid vaccines ‘speak in code online over censorship fears’
Admin will continue to remove any posts that are not deemed appropriate on the AF-Association Forum. Personal debate/opinions and links to Covid related vaccines etc are not permitted and will be deleted without warning if needed. These type of posts can cause undue anxiety to your fellow members
Admin will continue to remove any posts that are not deemed appropriate on the AF-Association Forum. Personal debate/opinions and links to Covid related vaccines etc are not permitted and will be deleted without warning if needed. These type of posts can cause undue anxiety to your fellow members
TonyB1972
in
AF Association
11 months ago
Here we go again!
At my last hospital appointment in February I asked the consultant about his thoughts on masking still and he suggested that as we are having to live with it and the current variants are not serious for most people maybe relaxing with caution or words to that effect. I was happy with that and have enjoyed
At my last hospital appointment in February I asked the consultant about his thoughts on masking still and he suggested that as we are having to live with it and the current variants are not serious for most people maybe relaxing with caution or words to that effect. I was happy with that and have enjoyed
Jetliz
in
CLL Support
11 months ago
Bam ibs
I have very problematic and symptomatic ibs and now i have severe bile acid malabsorption and i have arthritis msk i get pip for my msk and have just done a renewal for my pip i have put everything down about my bile acid malabsorption how it affects my daily life ,anyone on here gets pip for the bile
I have very problematic and symptomatic ibs and now i have severe bile acid malabsorption and i have arthritis msk i get pip for my msk and have just done a renewal for my pip i have put everything down about my bile acid malabsorption how it affects my daily life ,anyone on here gets pip for the bile
Netbet22
in
IBS Network
10 months ago
Very fast onset of Pneumonia! It’s a long story; are you comfortable…
My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned. Was still coughing up green mucus abit but he wasn’t concerned (I was and told him but … well, he felt better he said) Day before Christmas Eve
My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned. Was still coughing up green mucus abit but he wasn’t concerned (I was and told him but … well, he felt better he said) Day before Christmas Eve
Tpdnotts
in
CLL Support
8 months ago
Covid booster after positive status
I had Covid about two months ago and have read that one should wait six months afterwards to get the latest booster. Does this apply to someone with CLL? Thank you.
I had Covid about two months ago and have read that one should wait six months afterwards to get the latest booster. Does this apply to someone with CLL? Thank you.
Ngtinfu
in
CLL Support
11 months ago
Covid booster after positive status?
I had Covid about two months ago. I've read that one should wait six months before getting the latest booster. Does that apply to someone with CLL? Thanks in advance for your response.
I had Covid about two months ago. I've read that one should wait six months before getting the latest booster. Does that apply to someone with CLL? Thanks in advance for your response.
Ngtinfu
in
CLL America Support
11 months ago
Intubation could become a relic of the Covid era
[i]Inspira is pioneering noninvasive oxygenation. Photo courtesy of Inspira[/i] Getting its inspiration from nature, a medical-device company is developing a less invasive way to oxygenate blood without mechanical ventilation. It’s a vital step forward. During the Covid-19 crisis, the medical term
[i]Inspira is pioneering noninvasive oxygenation. Photo courtesy of Inspira[/i] Getting its inspiration from nature, a medical-device company is developing a less invasive way to oxygenate blood without mechanical ventilation. It’s a vital step forward. During the Covid-19 crisis, the medical term
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
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