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Finished Venetoclax, then Covid
My doctor prescribed Venetoclax after two rounds of chemo/immuno infusions to fight CLL. I felt great! Swimming half a mile, felt strong. Then bronchitis, pneumonia, and Covid. Was hospitalized and released in 6 days. But my home convalescence is not what I expected. Weakness, coughing, general severe
My doctor prescribed Venetoclax after two rounds of chemo/immuno infusions to fight CLL. I felt great! Swimming half a mile, felt strong. Then bronchitis, pneumonia, and Covid. Was hospitalized and released in 6 days. But my home convalescence is not what I expected. Weakness, coughing, general severe
Healmenow
in
CLL Support
6 months ago
anxious about CAD - MRI result
Hi all, Does anyone know if a cardiac MRI would pick up coronary heart disease , or at least see some part of the arteries? I’m awaiting a CT scan with dye to look into CAD, but my consultant thinks it’s unlikely as I’m 32 , I am overweight and an ex-smoker so I do have some risk factors. My cardiac
Hi all, Does anyone know if a cardiac MRI would pick up coronary heart disease , or at least see some part of the arteries? I’m awaiting a CT scan with dye to look into CAD, but my consultant thinks it’s unlikely as I’m 32 , I am overweight and an ex-smoker so I do have some risk factors. My cardiac
Amy190
in
British Heart Foundation
9 months ago
Slighty deranged liver
Hi all, l just had bloods done as l have a very mild ache on my right side thats annoying me (could be totally unrelated) anyway my bloods came back all good apart from my liver enzymes which my doctor described as slightly deranged lol im otherwise healthy and only take tylenol when needed and the pill
Hi all, l just had bloods done as l have a very mild ache on my right side thats annoying me (could be totally unrelated) anyway my bloods came back all good apart from my liver enzymes which my doctor described as slightly deranged lol im otherwise healthy and only take tylenol when needed and the pill
Tiff76
in
British Liver Trust
1 year ago
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nervous about covid
this morning I woke up congested and with a lot of post nasal drip, which caused my throat to be slightly sore. I tested last night for covid and was negative. These past few weeks I’ve been fighting a cold/allergies but I feel like yesterday and today have been slightly worse. I’m supposed to go to
this morning I woke up congested and with a lot of post nasal drip, which caused my throat to be slightly sore. I tested last night for covid and was negative. These past few weeks I’ve been fighting a cold/allergies but I feel like yesterday and today have been slightly worse. I’m supposed to go to
Daisy425
in
Anxiety and Depression Support
9 months ago
Check your Thyroid
For about a year I’ve been struggling. Fatigue getting worse, frozen shoulder, dry mouth and eyes, aching, brain fog, palpitations. It really got worse after last years autumn Covid booster when I thought I was having a heart attack. Heart all checked out fine. So I talked to my consultant at my clinic
For about a year I’ve been struggling. Fatigue getting worse, frozen shoulder, dry mouth and eyes, aching, brain fog, palpitations. It really got worse after last years autumn Covid booster when I thought I was having a heart attack. Heart all checked out fine. So I talked to my consultant at my clinic
Readlots
in
British Liver Trust
9 months ago
covid vaccination
I was wondering if most people are having the covid vaccine ?
I was wondering if most people are having the covid vaccine ?
Juliet46
in
MPN Voice
9 months ago
Hair issues
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
Teddyboy17
in
NRAS
7 months ago
one year olds vaccines
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Mozart150
in
NRAS
7 months ago
Measles
With info about measles cases increases I wondered if anyone had experience of being vaccinated against measles since RA diagnosis. I thought I was vaccinated as a child (pre MMR vaccine) but GP doesn't have a record of it.Thanks in advance for any info
With info about measles cases increases I wondered if anyone had experience of being vaccinated against measles since RA diagnosis. I thought I was vaccinated as a child (pre MMR vaccine) but GP doesn't have a record of it.Thanks in advance for any info
Sky42
in
NRAS
5 months ago
Temporary AF during Covid?
Hi. Following an ablation nearly 2 years ago I have been AF free. I have PIP Flecainide and Bisoprolol that I have never needed to take since the ablation. I take Edoxaban daily. I currently have Covid and yesterday had a jumping feeling so checked my Apple Watch and it said AF. I immediately did several
Hi. Following an ablation nearly 2 years ago I have been AF free. I have PIP Flecainide and Bisoprolol that I have never needed to take since the ablation. I take Edoxaban daily. I currently have Covid and yesterday had a jumping feeling so checked my Apple Watch and it said AF. I immediately did several
Buttercups22
in
AF Association
9 months ago
stomach acid
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
fiftyone
in
Thyroid UK
7 months ago
Shingles pain
I've had shingles with continuing pain. Wounds like a burn and a scratch are taking ages to heal. I am older, 66, and I know this can happen. Any suggestions for tests I could ask for and is there any point asking for them. Best wishes Fiona
I've had shingles with continuing pain. Wounds like a burn and a scratch are taking ages to heal. I am older, 66, and I know this can happen. Any suggestions for tests I could ask for and is there any point asking for them. Best wishes Fiona
FinneUK
in
Thyroid UK
5 months ago
Wildely different AMH test scores - any thoughts why?
Hello, I was wondering if anyone has received wildly different AMH scores and worked out what was driving it and therefore which one to believe? Back in January I stared investigations with a private clinic and was tested in their London lab. My AMH test came back as 6.2 pmol/l. I was told this
Hello, I was wondering if anyone has received wildly different AMH scores and worked out what was driving it and therefore which one to believe? Back in January I stared investigations with a private clinic and was tested in their London lab. My AMH test came back as 6.2 pmol/l. I was told this
CarlottaD27
in
Fertility Network UK
1 year ago
Bad reaction to progynova
hi, has one experienced a bad reaction to taking progynova? I’ve got a large red raw hand rash and swollen eyes because of this had to cancel my planned fet😩 seems like I have an allergy
hi, has one experienced a bad reaction to taking progynova? I’ve got a large red raw hand rash and swollen eyes because of this had to cancel my planned fet😩 seems like I have an allergy
keepfaith1982
in
Fertility Network UK
4 months ago
covid
Have just had the Pfizer Covid jab will keep you informed as to what if any side effects I have. Fingers crossed for none🤞
Have just had the Pfizer Covid jab will keep you informed as to what if any side effects I have. Fingers crossed for none🤞
Givemestrength23
in
CLL Support
9 months ago
Rapid Onset of Symptoms
Hello, I was wondering if anyone can help me…. My dad has been diagnosed with PSP only a few months ago but has had symptoms for about 18months. His recent symptoms were textbook stage 2 but quite independent ….. this past Sunday morning he woke up feeling a bit off and then suddenly lost feeling in
Hello, I was wondering if anyone can help me…. My dad has been diagnosed with PSP only a few months ago but has had symptoms for about 18months. His recent symptoms were textbook stage 2 but quite independent ….. this past Sunday morning he woke up feeling a bit off and then suddenly lost feeling in
IPinkie
in
PSP Association
4 months ago
Tinnitus fades after noise exposure
Hello all, hope you’re doing ok! I’ve had low frequency tinnitus for 18 months or so, some days better than others. One thing I’ve noticed is that my tinnitus almost entirely disappears after I’ve been in loud environments. I was at a gig on Monday and I forgot my loop earplugs and for 3 days and nights
Hello all, hope you’re doing ok! I’ve had low frequency tinnitus for 18 months or so, some days better than others. One thing I’ve noticed is that my tinnitus almost entirely disappears after I’ve been in loud environments. I was at a gig on Monday and I forgot my loop earplugs and for 3 days and nights
Ponay
in
Tinnitus UK
9 months ago
Covid is lasting a long time this time round
Today I’m day 16 of testing strong positive. I caught covid visiting my hubby in hospital. I wore a mask when I visited and sanitised my hands but still caught it. My GP thinks I’ve had 2 strains as I’ve had 2 lots of symptoms. I visited the hospital on the Saturday afternoon, hubby was told that evening
Today I’m day 16 of testing strong positive. I caught covid visiting my hubby in hospital. I wore a mask when I visited and sanitised my hands but still caught it. My GP thinks I’ve had 2 strains as I’ve had 2 lots of symptoms. I visited the hospital on the Saturday afternoon, hubby was told that evening
bernese1225
in
NRAS
9 months ago
Leflunomide and tapering. Update on flare this Summer
I posted in late July about getting into a yo-yo situation trying to control a flare of PMR and got excellent advice from DL which sorted it out. I've been on 3.5mg ever since (I was at 2mg when the flare started). I've tried using DSNS taper. But the PMR isn't ready to cooperate yet!On Monday I had
I posted in late July about getting into a yo-yo situation trying to control a flare of PMR and got excellent advice from DL which sorted it out. I've been on 3.5mg ever since (I was at 2mg when the flare started). I've tried using DSNS taper. But the PMR isn't ready to cooperate yet!On Monday I had
PastelsinArt
in
PMRGCAuk
9 months ago
AF back 6 days after Covid vacc
I'd been in NSR for over 3 1/2 years following a cardioversion after 9 months of persistent AF, but I woke for the loo at 3.30am on Monday and found I was back in AF - which is so far persisting. Sigh! My first thought about the trigger was that I was dehydrated. We were staying with friends, and
I'd been in NSR for over 3 1/2 years following a cardioversion after 9 months of persistent AF, but I woke for the loo at 3.30am on Monday and found I was back in AF - which is so far persisting. Sigh! My first thought about the trigger was that I was dehydrated. We were staying with friends, and
Belle11
in
AF Association
9 months ago
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