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Stopped Prednisone Completely
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Mansplainer101
in
PMRGCAuk
4 months ago
Latest re -Lupus and Covid?
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
BeeManShrop
in
LUPUS UK
4 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
4 months ago
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today/tonight
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
Daisy425
in
Anxiety and Depression Support
4 months ago
Christmas Covid present…
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
Bluey-1
in
PMRGCAuk
4 months ago
covid
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
Yellow-dog
in
PMRGCAuk
4 months ago
Free Covid tests for vulnerable
Does anyone know how we get free covid tests now that the government has stopped its postal service? I have looked on the NHS sites and there is no clear information. I also went to my local pharmacy and they had no idea about free tests.
Does anyone know how we get free covid tests now that the government has stopped its postal service? I have looked on the NHS sites and there is no clear information. I also went to my local pharmacy and they had no idea about free tests.
Jenny_F
in
MPN Voice
4 months ago
Tested Positive for Covid today. On pirtobrutinib
Just tested positive for covid this morning. Have low grade fever, sore throat, cough, not constant, achey all over. I’m on pirtobrutinib, wrote my specialist. Anyone had covid recently? First time was 2021, much worse, I had monoclonal antibody at the hospital. I really don’t want to go to ER as
Just tested positive for covid this morning. Have low grade fever, sore throat, cough, not constant, achey all over. I’m on pirtobrutinib, wrote my specialist. Anyone had covid recently? First time was 2021, much worse, I had monoclonal antibody at the hospital. I really don’t want to go to ER as
ReneeSusan
in
CLL Support
4 months ago
Hashimotos, low TSH, normal t4, Feeling so ill
I have had Hashimotos for 25 years, GP advised that is hypothyroidism, and have been on T4 levothyroxine replacement for 25 years. Before that I was ok for 2 years Before that I had raging Graves hyperthyroidism for 2 years ( they gave me 200% recommend dose of carbimazole my resting heart rate went
I have had Hashimotos for 25 years, GP advised that is hypothyroidism, and have been on T4 levothyroxine replacement for 25 years. Before that I was ok for 2 years Before that I had raging Graves hyperthyroidism for 2 years ( they gave me 200% recommend dose of carbimazole my resting heart rate went
Brn2BWild
in
Thyroid UK
4 months ago
Post covid asthma diagnoses
Hi there, I’d really like to hear from anyone who has been diagnosed with asthma after getting covid, or anyone with any thoughts! I got covid in feb 22 and since then have had several episodes of severe chest infections which always require antibiotics and steroids. I’ve check my inhaler technique
Hi there, I’d really like to hear from anyone who has been diagnosed with asthma after getting covid, or anyone with any thoughts! I got covid in feb 22 and since then have had several episodes of severe chest infections which always require antibiotics and steroids. I’ve check my inhaler technique
ButterflyPurple
in
Asthma Community Forum
4 months ago
6 month old baby Covid
Hi all, unfortunately I tested positive for Covid on Christmas Eve, and today my baby 6 months old has also tested positive. He’s got a slight temperature 37.7 and just sleeping on our laps constantly, he’s having little bits of milk here and there but just sleeping mainly. I’m worried - any advice?
Hi all, unfortunately I tested positive for Covid on Christmas Eve, and today my baby 6 months old has also tested positive. He’s got a slight temperature 37.7 and just sleeping on our laps constantly, he’s having little bits of milk here and there but just sleeping mainly. I’m worried - any advice?
PrincessGurn1984
in
Pregnancy and Parenting Support
4 months ago
Covid Again
hi all just a quick question can Covid affected your lungs when you are on blood thinners?, I had Covid at the beginning of December which was pretty bad, i feel like I recovered well but I’m back to square one again my chest hurt and I’m a bit more breathless but I also suffer from severe anxiety and
hi all just a quick question can Covid affected your lungs when you are on blood thinners?, I had Covid at the beginning of December which was pretty bad, i feel like I recovered well but I’m back to square one again my chest hurt and I’m a bit more breathless but I also suffer from severe anxiety and
Cimmy
in
Lung Conditions Community Forum
4 months ago
Christmas Covid
Looks like our Christmas present was Covid. At my partners mothers and both tested positive one this morning and the others last Thursday but so far I’m negative but sure I’ll get it. not sure where we picked it up as been careful. I’m not sure what to do meds wise as I took my 15mg of MTX yesterday
Looks like our Christmas present was Covid. At my partners mothers and both tested positive one this morning and the others last Thursday but so far I’m negative but sure I’ll get it. not sure where we picked it up as been careful. I’m not sure what to do meds wise as I took my 15mg of MTX yesterday
Alan7690
in
NRAS
4 months ago
My Christmas
I did not attend the family gathering unfortunately since I have anxiety inside indoor spaces with groups of people, and we have COVID and flu going around. My concern with COVID is that some people get long term symptoms like chronic fatigue, loss of smell or taste, and a few others. So it just still
I did not attend the family gathering unfortunately since I have anxiety inside indoor spaces with groups of people, and we have COVID and flu going around. My concern with COVID is that some people get long term symptoms like chronic fatigue, loss of smell or taste, and a few others. So it just still
davidthecoder
in
Anxiety and Depression Support
4 months ago
Covid update
I had a call back after 2.5 days from the covid medication delivery unit. They asked me to go to the local hospital to get an infusion of sotrovimab. The tablets form interacts with some of my medication so this one was chosen. I will let you know how I do on it.
I had a call back after 2.5 days from the covid medication delivery unit. They asked me to go to the local hospital to get an infusion of sotrovimab. The tablets form interacts with some of my medication so this one was chosen. I will let you know how I do on it.
artydutch
in
MPN Voice
4 months ago
Covid
hi all, I have been diagnosed with tumid lupus and am currently being investigated for SLE (DR said 99.9% I have it as showing all symptoms etc). I have just tested positive for covid today. Has anyone got any advise? I’ve never had covid, let alone Covid with lupus and I’m terrified this is going
hi all, I have been diagnosed with tumid lupus and am currently being investigated for SLE (DR said 99.9% I have it as showing all symptoms etc). I have just tested positive for covid today. Has anyone got any advise? I’ve never had covid, let alone Covid with lupus and I’m terrified this is going
JLAR01
in
LUPUS UK
4 months ago
Covid
I should have been at a relatives tonight but they phoned to say they’d got covid but thought I’d be ok to visit if I wore a mask. I said I wouldn’t be going, they think I’m being over cautious as “it’s just a cold these days”. I’m on Rux which I’ve been told will make me susceptible to infections.
I should have been at a relatives tonight but they phoned to say they’d got covid but thought I’d be ok to visit if I wore a mask. I said I wouldn’t be going, they think I’m being over cautious as “it’s just a cold these days”. I’m on Rux which I’ve been told will make me susceptible to infections.
lizzziep
in
MPN Voice
4 months ago
I could have PMR…
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
MsWhistledown
in
PMRGCAuk
4 months ago
Post COVID UC flare - Mezavant probs
Hi I'm new, feeling a bit scared as it's Christmas time and my gastro not back til 8 January. I had COVID mid November, very nauseous and some diahhrea and very soft sticky stool. Mild proctosigmoiditis (low down UC) for 30 years. Been off meds for 20 years until now. Following COVID my bowel symptoms
Hi I'm new, feeling a bit scared as it's Christmas time and my gastro not back til 8 January. I had COVID mid November, very nauseous and some diahhrea and very soft sticky stool. Mild proctosigmoiditis (low down UC) for 30 years. Been off meds for 20 years until now. Following COVID my bowel symptoms
Bunnygirl1
in
Crohn's and Colitis Support
4 months ago
single mom w/adhd of 8yo w/adhd aaahhhhh
life was fine, my normal levels of crazy functioning till covid trashed it. her first 5years were just the 2 of us traveling the usa with ren fairs. since covid messed up my working with my kid. i've yet to get re-set. we've bounced around in our living environments, rented rooms in friends houses
life was fine, my normal levels of crazy functioning till covid trashed it. her first 5years were just the 2 of us traveling the usa with ren fairs. since covid messed up my working with my kid. i've yet to get re-set. we've bounced around in our living environments, rented rooms in friends houses
TCtallchick
in
CHADD's ADHD Parents Together
4 months ago
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