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Continuous Ambulatory Peritoneal Dialysis
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My life with FSGS
My first encounter with kidney disease was in October of 1969. A simple urine sample showed 1+ protein in my urine. The family doctor at the time said not to worry it just needed to be watched and that was that. I was drafted into the Army in July of 1970 and still had protein in my urine but the army
My first encounter with kidney disease was in October of 1969. A simple urine sample showed 1+ protein in my urine. The family doctor at the time said not to worry it just needed to be watched and that was that. I was drafted into the Army in July of 1970 and still had protein in my urine but the army
Kbressler
NKF Ambassador
in
Kidney Transplant
5 years ago
Significant Improvement in Metastatic Disease !
I got the results of my first Follow-up (comparison) PET scan. We waited 5 months to give it time. It’s mostly all good. Heck, great ! I get to continue on the Ibrance and Letrozole prescription and treat this like just a chronic disease. ( for now) On a more somber note, my mom passed away two weeks
I got the results of my first Follow-up (comparison) PET scan. We waited 5 months to give it time. It’s mostly all good. Heck, great ! I get to continue on the Ibrance and Letrozole prescription and treat this like just a chronic disease. ( for now) On a more somber note, my mom passed away two weeks
laurac1014
in
SHARE Metastatic Breast Cancer
5 years ago
Recurrent IgA nephropathy and back on dialysis
I would love any diet or lifestyle advice for me to support me during my 2nd time on hemodialysis since transplanted 10 years ago. I am a recurrent IgA patient and am being evaluated for kidney transplant.
I would love any diet or lifestyle advice for me to support me during my 2nd time on hemodialysis since transplanted 10 years ago. I am a recurrent IgA patient and am being evaluated for kidney transplant.
PeonyLover
in
Kidney Disease
5 years ago
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GFR deteriorating fast?
I'm a 72 year old caucasian male with 2ndry Progressive MS, high blood pressure and stage 3b CKD. Latest GFR: 26th April 2019 = 43 mid March 2019 = 47 Early Feb 2019 = 45 early Jan 2019 = 47 November 2018 = 49 Nov 2017 = 59 Nov 2012 = 69 All other renal readings apart from creatinine including urine
I'm a 72 year old caucasian male with 2ndry Progressive MS, high blood pressure and stage 3b CKD. Latest GFR: 26th April 2019 = 43 mid March 2019 = 47 Early Feb 2019 = 45 early Jan 2019 = 47 November 2018 = 49 Nov 2017 = 59 Nov 2012 = 69 All other renal readings apart from creatinine including urine
JAYCEE33
in
Early CKD Support
5 years ago
CKD
Hi My name is Ahmad 27 years ,I am new here , i am glad i found this community that i have been looking for something just like, in Nov 2018 i tried a blood pressure machine that was in my house without any symptoms, i was shocked that it was 200/125, i went to hospital and creatinine level was 3.04
Hi My name is Ahmad 27 years ,I am new here , i am glad i found this community that i have been looking for something just like, in Nov 2018 i tried a blood pressure machine that was in my house without any symptoms, i was shocked that it was 200/125, i went to hospital and creatinine level was 3.04
Ahmad_92
in
Early CKD Support
5 years ago
My nephrologist does not give me any advice !
Hi everyone ! I am new to this forum. I am a french man, 51 years old. I am a bit worry as I am nearly stage 4 and the only advice I've been given by my nephrologist is to avoid salt ( no protein, phosphorus or potassium restrictions ). When I asked her if I had to start checking my food she said no,
Hi everyone ! I am new to this forum. I am a french man, 51 years old. I am a bit worry as I am nearly stage 4 and the only advice I've been given by my nephrologist is to avoid salt ( no protein, phosphorus or potassium restrictions ). When I asked her if I had to start checking my food she said no,
pepsilulu007
in
Early CKD Support
5 years ago
My Health anxiety is taking over me again
Hi everyone ! I just need to vent 😭 I had influenza A last Friday . Took Tamiflu for 5 days and I was feeling so much better . The past two days I am feeling so tired , even after using my cpap all night . I swear I have an UTI so I went to the Urgent care but nothing . My vitals are fine , they
Hi everyone ! I just need to vent 😭 I had influenza A last Friday . Took Tamiflu for 5 days and I was feeling so much better . The past two days I am feeling so tired , even after using my cpap all night . I swear I have an UTI so I went to the Urgent care but nothing . My vitals are fine , they
foxglove_pnw
in
Anxiety and Depression Support
5 years ago
NO THRILL
When the dialysis start my blood pressure suddenly down to 90/50 and there is no thrill in fistula, and start blood clotting ,will you please suggest me any option for this problem. one more thing is some block is there is my arm's vein. my vascular surgeon told me that some operation has to do, but
When the dialysis start my blood pressure suddenly down to 90/50 and there is no thrill in fistula, and start blood clotting ,will you please suggest me any option for this problem. one more thing is some block is there is my arm's vein. my vascular surgeon told me that some operation has to do, but
SAFEENA
in
Dialysis Support
5 years ago
Cpap for sleep apnea
My mum has rls and has been on lots of medicine to control it. It work until augmentation but this time gabapentin was not working. However at the same time she had her results from her sleep test and was diagnosed with moderate sleep apnea and the hospital gave her a cpap machine. The doctor said it
My mum has rls and has been on lots of medicine to control it. It work until augmentation but this time gabapentin was not working. However at the same time she had her results from her sleep test and was diagnosed with moderate sleep apnea and the hospital gave her a cpap machine. The doctor said it
Bejwo50
in
Restless Legs Syndrome
5 years ago
Halted
So turns out Ryan’s ALT is extremely elevated.. only liver panel that was abnormal. Medicine induced hepatitis 🙁 so no infusion today for Ryan.. we are on the steroid train as of today. 80mg, and 10mg taper every week until he’s off completely then we can resume treatment. The way in which we will resume
So turns out Ryan’s ALT is extremely elevated.. only liver panel that was abnormal. Medicine induced hepatitis 🙁 so no infusion today for Ryan.. we are on the steroid train as of today. 80mg, and 10mg taper every week until he’s off completely then we can resume treatment. The way in which we will resume
kellyOd
in
Melanoma Caregivers
5 years ago
Hi 👋
Hello my name is Kristel and my daughter Leah has been on pd since she was 5 days old !!! She has also had open heart surgery She does pd Dialysis At home everyday We are still waiting for transplant We have a page for on face book called Leah storms journey to a kidney transplant
Hello my name is Kristel and my daughter Leah has been on pd since she was 5 days old !!! She has also had open heart surgery She does pd Dialysis At home everyday We are still waiting for transplant We have a page for on face book called Leah storms journey to a kidney transplant
Kidney4leahstorm
in
Parents of Children with Kidney Disease
5 years ago
Thank you all
I've learn so much from all you guys and enjoy every read. Update: all family members all agreed that mom will not have dialysis in the future... Due to her age; turning 80 plus other conditions that she has, we feel that dialysis will not benefit her. I also thank and pray the lord to watch, guide,
I've learn so much from all you guys and enjoy every read. Update: all family members all agreed that mom will not have dialysis in the future... Due to her age; turning 80 plus other conditions that she has, we feel that dialysis will not benefit her. I also thank and pray the lord to watch, guide,
Kia_
in
Kidney Dialysis
5 years ago
Can anyone help me interpret my results?
Albumin, RD urine - 2.06 Creatinine Urine - 96mg Micro Alb Ratio Urine - 21mg creatinine Blood. Creatinine - 1.2 Albumin - 5.3 Protein - 8.1 I'm a 32 year old male. 6'4 230 pounds. I have no diabetes and my blood pressure is usually in the range of 130-135 over 70-80. I had a cardiac cath done last
Albumin, RD urine - 2.06 Creatinine Urine - 96mg Micro Alb Ratio Urine - 21mg creatinine Blood. Creatinine - 1.2 Albumin - 5.3 Protein - 8.1 I'm a 32 year old male. 6'4 230 pounds. I have no diabetes and my blood pressure is usually in the range of 130-135 over 70-80. I had a cardiac cath done last
BarronS
in
Early CKD Support
5 years ago
Frequency of Dialysis Treatments
I am currently doing 2 Dialysis Treatments per week, every Monday and Friday with each being a 4 hour run. Does anybody else do 2 times a week or does everybody do 3 times a week? And how long is your run?
I am currently doing 2 Dialysis Treatments per week, every Monday and Friday with each being a 4 hour run. Does anybody else do 2 times a week or does everybody do 3 times a week? And how long is your run?
Hdslimand62
in
Kidney Dialysis
5 years ago
Third time is the charm!
Had my 3rd transplant December 11, 2017 after being on dialysis about 6 years. So very happy and praying I can keep this one for at least a good 80 years, lol. Now focusing on losing some weight and getting back into the workforce.
Had my 3rd transplant December 11, 2017 after being on dialysis about 6 years. So very happy and praying I can keep this one for at least a good 80 years, lol. Now focusing on losing some weight and getting back into the workforce.
Azulwolf
in
Kidney Transplant
5 years ago
Mom with Stage 5 kidney disease
Mom is in hospice with Stage 5 kidney disease. How long can you live with this? She has so many other issues the doctor told us not to do dialysis.
Mom is in hospice with Stage 5 kidney disease. How long can you live with this? She has so many other issues the doctor told us not to do dialysis.
Iteachoct1971
in
Kidney Disease
5 years ago
Please Help CKD 4 GFR 25 plz help i m depressed
hello all . new to community .. my mom67 years old now had ckd 1-2 before 7 years and s.creatine of 1.5 steady for 7 years but my mom admitted in icu for severe neumonia and lung infection they gave so many steroids and all to save life.. but after 15 days her s.creatine suddenly come to 2.5 now repeated
hello all . new to community .. my mom67 years old now had ckd 1-2 before 7 years and s.creatine of 1.5 steady for 7 years but my mom admitted in icu for severe neumonia and lung infection they gave so many steroids and all to save life.. but after 15 days her s.creatine suddenly come to 2.5 now repeated
darshaks100
in
Early CKD Support
5 years ago
When do you start feeling better?
I had my transplant from my brother about 3 weeks ago. Everyone keeps asking if I feel better and I dont. Most of the time I feel worse than before I had transplant. I was on dialysis for like 3 months prior to surgery still made urine and was weight training 5 days a week. Now I just feel run down
I had my transplant from my brother about 3 weeks ago. Everyone keeps asking if I feel better and I dont. Most of the time I feel worse than before I had transplant. I was on dialysis for like 3 months prior to surgery still made urine and was weight training 5 days a week. Now I just feel run down
Moose1018
in
Kidney Transplant
5 years ago
Does any one else have Exocrine pancreatic insufficiency (EPI)
Not sure if any one can help me but have any of you been put on Creon for exocrine pancreatic insufficiency (missing enzyme in your pancreas that breaks down fats, proteins and carbs) I've been told a lot of kidney patients suffer and just wondered if any one had any tips regarding diet and guide taking
Not sure if any one can help me but have any of you been put on Creon for exocrine pancreatic insufficiency (missing enzyme in your pancreas that breaks down fats, proteins and carbs) I've been told a lot of kidney patients suffer and just wondered if any one had any tips regarding diet and guide taking
Charlene_Coxhead
in
Kidney Dialysis
5 years ago
The monster around the corner : my anxiety
Hi Everyone !! I have had really good days lately ! For the past 3 weeks I haven’t had a panic attack 🙏🏻 I have been so into my CPAP during bed time rotine that yesterday I realized I skipped my Lexapro for the past 2 days 😩 ! I took my meds last night but I had a hard time falling asleep due
Hi Everyone !! I have had really good days lately ! For the past 3 weeks I haven’t had a panic attack 🙏🏻 I have been so into my CPAP during bed time rotine that yesterday I realized I skipped my Lexapro for the past 2 days 😩 ! I took my meds last night but I had a hard time falling asleep due
foxglove_pnw
in
Anxiety and Depression Support
5 years ago
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