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Continuous Ambulatory Peritoneal Dialysis
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Taking some time.
Hey all, I feel really connected to this community- it's given me an outlet for information and invaluable support throughout my time on dialysis, and now post transplant. There are some things that I'm just now realizing that I was told at the hospital, such as drains are horrible and always leak, the
Hey all, I feel really connected to this community- it's given me an outlet for information and invaluable support throughout my time on dialysis, and now post transplant. There are some things that I'm just now realizing that I was told at the hospital, such as drains are horrible and always leak, the
Ladybug_05
in
Kidney Disease
5 years ago
Body Vibrations Night Terrors
Finally .. it seems I'm not the only one. For the last three years i have suffered and endured the many sleepless nights with this body vibration. It all seemed to start with what I now know to be RLS ... restless leg syndrome. This then progressed to my whole body. No one can see this except
Finally .. it seems I'm not the only one. For the last three years i have suffered and endured the many sleepless nights with this body vibration. It all seemed to start with what I now know to be RLS ... restless leg syndrome. This then progressed to my whole body. No one can see this except
Steelriva
in
Living with Anxiety
5 years ago
Hi all
Hi everyone first afib attack was 2011 went from maybe 1 episode a year to now pretty much 2 days on 2 days off. 320mg sotolol and eliquis. Have been on cpap for nearly a year was getting 57 episodes an hour in my sleep study. Cpap hasn’t helped the afib but it has controlled my high bp to the point
Hi everyone first afib attack was 2011 went from maybe 1 episode a year to now pretty much 2 days on 2 days off. 320mg sotolol and eliquis. Have been on cpap for nearly a year was getting 57 episodes an hour in my sleep study. Cpap hasn’t helped the afib but it has controlled my high bp to the point
teenymak
in
AF Association
5 years ago
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Cpap and RBD
Has anyone gone on a cpap machine for RBD and did it help?
Has anyone gone on a cpap machine for RBD and did it help?
lhart6387
in
Cure Parkinson's
5 years ago
Pramipexole side effects
I've been on 2 x 0.88 Pramipexole for 6 months having spent all my adult life (I'm now almost 60) feeling tired during the day and very gradually getting RLS. I use a CPAP machine for central apnoeas, and then a sleep study showed that RLS/periodic limb movement was repeatedly waking me in the night.
I've been on 2 x 0.88 Pramipexole for 6 months having spent all my adult life (I'm now almost 60) feeling tired during the day and very gradually getting RLS. I use a CPAP machine for central apnoeas, and then a sleep study showed that RLS/periodic limb movement was repeatedly waking me in the night.
StillStriving
in
Restless Legs Syndrome
5 years ago
CKD Stage 4 EGFR 18
Hi Everyone, I just got my lab results and now my EGFR is down to 18. I will only see my nephrologist in April and unfortunately he is not really helpful in answering my questions. I was wondering if someone out there could shed some light to me. Basically I don’t have any living donor so I would like
Hi Everyone, I just got my lab results and now my EGFR is down to 18. I will only see my nephrologist in April and unfortunately he is not really helpful in answering my questions. I was wondering if someone out there could shed some light to me. Basically I don’t have any living donor so I would like
Lu89
in
Early CKD Support
5 years ago
Transportation
Mom needing transportation to dialysis 3x week. Any ideas? Not in Medicaid.
Mom needing transportation to dialysis 3x week. Any ideas? Not in Medicaid.
HDKid
in
Kidney Dialysis
5 years ago
How Long?
My Mom is stage 5 Kidney Disease, her kidney function is at 15. Dr. recommends dialysis now, we are doing a 2 hour class at Big Barnes. She has a many other health issues, one being Heart Disease and her age is 85. What is her life expectancy? Best Guest,
My Mom is stage 5 Kidney Disease, her kidney function is at 15. Dr. recommends dialysis now, we are doing a 2 hour class at Big Barnes. She has a many other health issues, one being Heart Disease and her age is 85. What is her life expectancy? Best Guest,
Cougar-Jack
in
Kidney Dialysis
5 years ago
Hello i been on dialysis for a year now and still confused and scared i just push it to the side i just don't want to die
new to Dialysis
new to Dialysis
MsJewel
in
Kidney Dialysis
5 years ago
Aching arms - CPAP mask
Good afternoon everyone, I wear a CPAP mask every night, as i am a retainer and i just wondered does anyone else at night suffer with pain in in their arms and shoulders whilst sleeping? It sometimes feels as though I have been sleeping to soundly on my arm and I have to turn over onto my other side.
Good afternoon everyone, I wear a CPAP mask every night, as i am a retainer and i just wondered does anyone else at night suffer with pain in in their arms and shoulders whilst sleeping? It sometimes feels as though I have been sleeping to soundly on my arm and I have to turn over onto my other side.
Joseph260268
in
Lung Conditions Community Forum
5 years ago
Transplant paperwork has been submitted
Hi all, I had my left kidney removed in 2015 and at that my remaining kidney came out with a gfr of 20 (it was about 26-29 before the op so I saw this as a great success). Then in July 2018 I dropped down to 12% and felt terrible. Since then I’ve bubbled betw15 and 17%. In order to try and avoid dialysis
Hi all, I had my left kidney removed in 2015 and at that my remaining kidney came out with a gfr of 20 (it was about 26-29 before the op so I saw this as a great success). Then in July 2018 I dropped down to 12% and felt terrible. Since then I’ve bubbled betw15 and 17%. In order to try and avoid dialysis
michelle5656
in
Dialysis Support
5 years ago
Update
Currently on hemo dialysis. ESRD with creatinine at 3.8. Had a cyst scan of abdominal area a d a solid mass was found on my right kidney. Urologist and nephrologist both agree kidney should be removed. I am waiting to go on transplant list, so this really sucks. Anyone have any advice.
Currently on hemo dialysis. ESRD with creatinine at 3.8. Had a cyst scan of abdominal area a d a solid mass was found on my right kidney. Urologist and nephrologist both agree kidney should be removed. I am waiting to go on transplant list, so this really sucks. Anyone have any advice.
lucillemae
in
Kidney Dialysis
5 years ago
Kidney
If you have stage 3ckd will you have to have treatment,like dialysis
If you have stage 3ckd will you have to have treatment,like dialysis
kingfisher3
in
Kidney Disease
5 years ago
Sleep Study
Three weeks ago I had a sleep study in hospital. I was rather anxious about it as I am highly claustrophobic. It was hard enough wearing pajamas, let alone having all the probes and wires on me. I was in tears (and in AF) when getting wired up. I did some deep breathing and meditating and finally got
Three weeks ago I had a sleep study in hospital. I was rather anxious about it as I am highly claustrophobic. It was hard enough wearing pajamas, let alone having all the probes and wires on me. I was in tears (and in AF) when getting wired up. I did some deep breathing and meditating and finally got
Kaz747
in
AF Association
5 years ago
MST Continus 5mg
Has anyone else been giving MST Continus 5mg for the pain? If so how were the side effects?
Has anyone else been giving MST Continus 5mg for the pain? If so how were the side effects?
Lovisa
in
Endometriosis UK
5 years ago
Atrial Fib:- Identifying Triggers ...
Its interesting to read others A.F. triggers and reactions to alcohol. I have paroxysmal AF and discovered that if I have 'too much alcohol', I wake up in the middle of the night feeling anxious and realize I'm in AF. The strange thing is that other times I can have a higher consumpion and totally
Its interesting to read others A.F. triggers and reactions to alcohol. I have paroxysmal AF and discovered that if I have 'too much alcohol', I wake up in the middle of the night feeling anxious and realize I'm in AF. The strange thing is that other times I can have a higher consumpion and totally
Deacon-L
in
AF Association
5 years ago
Finally dialysis..
Hi everyone it's been awhile since I've been on this forum.. Its been a rough couple of months.. My renal failure became much worse.. I wound up hospitalized for about a month in 2 different hospitals, the last hospital specialized in kidneys.. I wound up in congestive heart failure, pleural effusion
Hi everyone it's been awhile since I've been on this forum.. Its been a rough couple of months.. My renal failure became much worse.. I wound up hospitalized for about a month in 2 different hospitals, the last hospital specialized in kidneys.. I wound up in congestive heart failure, pleural effusion
Smokey2014
in
Kidney Disease
5 years ago
Terrified
I so appreciate the advice and inputs that I've been given on this helpline but I must tell you I am utterly terrified the more I read the more terrified I become I'm wondering if people are able to put this out of their mind when they were diagnosed with CKD and how they are able to do it also I just
I so appreciate the advice and inputs that I've been given on this helpline but I must tell you I am utterly terrified the more I read the more terrified I become I'm wondering if people are able to put this out of their mind when they were diagnosed with CKD and how they are able to do it also I just
Barnhouse
in
Early CKD Support
5 years ago
Treatments for C3G
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
DavidF_NKF
Administrator
in
C3 Glomerulopathy
5 years ago
C3G - Knowing the Signs and Symptoms
Complement 3 glomerulopathy (C3G) is a rare kidney disease that has two forms: dense deposit disease (DDD) and C3 glomerulonephritis (C3GN). Each is caused by genetic or acquired problems in controlling the body’s complement system, which helps fight infections. Genetic problems can be inherited or not
Complement 3 glomerulopathy (C3G) is a rare kidney disease that has two forms: dense deposit disease (DDD) and C3 glomerulonephritis (C3GN). Each is caused by genetic or acquired problems in controlling the body’s complement system, which helps fight infections. Genetic problems can be inherited or not
DavidF_NKF
Administrator
in
C3 Glomerulopathy
5 years ago
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