Hello,This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been a very difficult journey for me but I would like to learn as much as I can and reach out to people who have been through this.
Fortunately, I have been approved by the transplant committee for me to be on the waiting list. I do have a couple questions and I am hoping there is someone out there who can give me insight.
I have a potential donor and from my understanding, the transplant program keeps the recipient and the donor information separate. As in I am not allowed to know that their status is on donating and vice versa. My cousin is a potential donor. From the information she told me, she has gone through the tests and was told her kidney is a good candidate for donation. From my understanding, since I am O positive, I need to get it from a donor who is O pos as well.
Now here’s where I am stumped; I do not know if she is a match for me (blood type and kidney) She’s gone through all the testings and was approved to be a good Candidate but it does not answer as to weather or not she would be a match (if that makes any sense at all). Since I’m already approved to be on the transplant waiting list, I don’t know what the next step will be IF my donor proceeds with the process. I don’t want to ask her because I want to respect her privacy and her decision as she has not confirmed nor deny that she is willing to donate her kidney. All she did was the tests to see if she is a good candidate. So I am left clueless as to weather or not the donor is going to donate AND if she is a match for the blood type and kidney. She also received an invitation letter from my transplant hospital to do additional lab. Who would go through all that testing and process and not know if they are for sure going to donate or not.
Does anyone, recipient or donor might have any insight on what’s going on? I would greatly appreciate it. Thank you everyone