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Continuous Ambulatory Peritoneal Dialysis
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Sleep Help Needed
Hello Friends, Following my transplant in 2017, I have developed a rather big challenge in getting a full night's sleep. Very rarely can I pull off 7 hours. Mostly the average is less than 5 hours per night. I have read how this is a common challenge for transplant recipients. I also use a CPAP
Hello Friends, Following my transplant in 2017, I have developed a rather big challenge in getting a full night's sleep. Very rarely can I pull off 7 hours. Mostly the average is less than 5 hours per night. I have read how this is a common challenge for transplant recipients. I also use a CPAP
Vaderboy
in
Kidney Transplant
2 years ago
Lumpectomy and CKD with eGFR 23%
I am due to have a lumpectomy and sentinel lymph node removal using radioactive dye. My eGFR is only 23%. After the operation I am due to have radiation therapy. Has anyone else had this done and do you know if the radiation or dye will lower my eGFR of 23%. I am very worried at the moment as I don't
I am due to have a lumpectomy and sentinel lymph node removal using radioactive dye. My eGFR is only 23%. After the operation I am due to have radiation therapy. Has anyone else had this done and do you know if the radiation or dye will lower my eGFR of 23%. I am very worried at the moment as I don't
eveebear
in
Kidney Disease
2 years ago
Increasing liquid intake while on dialysis
It is over ten years since I received renal dialysis and ninety years since I was born. I owe my life to Guy’s Hospital - and to myself and, I suspect, to someone’s prayers for my experience is considered almost miraculous. At one point I was given thee years to live and my daily urine output barely
It is over ten years since I received renal dialysis and ninety years since I was born. I owe my life to Guy’s Hospital - and to myself and, I suspect, to someone’s prayers for my experience is considered almost miraculous. At one point I was given thee years to live and my daily urine output barely
H_Stone
in
Kidney Disease
2 years ago
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Has anyone else discovered Ground glass opacities in lung on abdominal ct for pre transplant evaluation? What was the outcome?
Hi my ckd friends, My recent abdominal CT for transplant evaluation discovered 5 mm ground glass opacity nodularity in the lower left lingual. Report said to consider 3 to 6 month follow-up CT scan. Still waiting to hear from the transplant team.Has anyone else encountered this? How did it affect the
Hi my ckd friends, My recent abdominal CT for transplant evaluation discovered 5 mm ground glass opacity nodularity in the lower left lingual. Report said to consider 3 to 6 month follow-up CT scan. Still waiting to hear from the transplant team.Has anyone else encountered this? How did it affect the
Jamok
in
Kidney Disease
2 years ago
Learning to Follow Your Dialysis Fluid Restrictions
New fluid restrictions and dialysis can be overwhelming. Learn how you can create new fluid prescription routines. https://www.kidney.org/newsletter/learning-to-follow-your-dialysis-fluid-restrictions
New fluid restrictions and dialysis can be overwhelming. Learn how you can create new fluid prescription routines. https://www.kidney.org/newsletter/learning-to-follow-your-dialysis-fluid-restrictions
JackieJ_NKF
Partner
in
Kidney Dialysis
2 years ago
Max UFR Rate in HD-Dialysis (3.5 Hours)
Can I ask you that during my dialysis, after a while they (the nurse or technician) always increase the UFR, and I figure out will be higher than the CMS guideline 13/ml/kg/hr, sometimes even 18/ml/kg/hr. I am afraid that Myocardial stunning could be happened. Kindly pls advise. TKS again.
Can I ask you that during my dialysis, after a while they (the nurse or technician) always increase the UFR, and I figure out will be higher than the CMS guideline 13/ml/kg/hr, sometimes even 18/ml/kg/hr. I am afraid that Myocardial stunning could be happened. Kindly pls advise. TKS again.
jnch88
in
Dialysis Support
2 years ago
PD Dialysis - Week 6 - Houston we have a problem
NOTE: THE FOLLOWING EXPERIENCE IS MINE. DO NOT ASSUME YOU WILL HAVE THIS EXPERIENCE! DO NOT TAKE IT AS NEGATIVE TOWARD PD DIALYSIS. I wanted to post this addendum at the top to let folks know that doing manual PD revealed an issue with my back that had been hiding in the wings. I doubt any of you will
NOTE: THE FOLLOWING EXPERIENCE IS MINE. DO NOT ASSUME YOU WILL HAVE THIS EXPERIENCE! DO NOT TAKE IT AS NEGATIVE TOWARD PD DIALYSIS. I wanted to post this addendum at the top to let folks know that doing manual PD revealed an issue with my back that had been hiding in the wings. I doubt any of you will
RonZone
in
Kidney Dialysis
2 years ago
PD Dialysis - Week 5 - Training Day 5
Ok, I do apologize for the delay in reporting all of this. I'll explain below. NOTE: The notes below portray MY experience based on my medical conditions. No one reading this should assume that you will have a similar experience. I've never heard anyone else say they had the issue with their back that
Ok, I do apologize for the delay in reporting all of this. I'll explain below. NOTE: The notes below portray MY experience based on my medical conditions. No one reading this should assume that you will have a similar experience. I've never heard anyone else say they had the issue with their back that
RonZone
in
Kidney Dialysis
2 years ago
New Transplant
First I would love to thank all of you who share your experiences (good and bad). I have never posted but when my fiancé told me about this site I read every day. Some of your post gave me hope and some of your post made me cry but I received strength from all of you. I had Iga nephropathy and was going
First I would love to thank all of you who share your experiences (good and bad). I have never posted but when my fiancé told me about this site I read every day. Some of your post gave me hope and some of your post made me cry but I received strength from all of you. I had Iga nephropathy and was going
Junii
in
Kidney Transplant
2 years ago
Weight Loss, in a positive way
Unlike a lot with PD, I have had major issues losing weight. Pre-PD I was at 190lbs and maxed out at 230lbs before I started making some major changes in my lifestyle. I am not on any prescription drugs and have been very lucky to control most of my issues with supplementation. In the past, exercise
Unlike a lot with PD, I have had major issues losing weight. Pre-PD I was at 190lbs and maxed out at 230lbs before I started making some major changes in my lifestyle. I am not on any prescription drugs and have been very lucky to control most of my issues with supplementation. In the past, exercise
SAGoodman
in
Cure Parkinson's
2 years ago
HD in center
I got on HD dialysis in center about 3 weeks ago. Now I am afraid of going for dialysis. How do I get rid of this fear? I will highly appreciate if someone can share his/her experience. needles give me a scare. . Thanks
I got on HD dialysis in center about 3 weeks ago. Now I am afraid of going for dialysis. How do I get rid of this fear? I will highly appreciate if someone can share his/her experience. needles give me a scare. . Thanks
htpi1543
in
Kidney Dialysis
2 years ago
New to the group
Hello everyone , I am happy to have found this group My dad started having kidney dialysis last year, he is 70 year old We both are in Different countries and he does delay going for his session and sometimes misses it How can I get him to comply and go for his session regularly
Hello everyone , I am happy to have found this group My dad started having kidney dialysis last year, he is 70 year old We both are in Different countries and he does delay going for his session and sometimes misses it How can I get him to comply and go for his session regularly
Blessed45
in
Kidney Disease
2 years ago
QUEENing like a G
Yeah that title is kinda full of Slang and maybe not very Queeny. I don't even know what it all means. I've been gone a minute. I had two classes to finish and a week of an exam that will signify if I am able to move forward or not in my program. So I have left it in God's hands and I'm moving on. I
Yeah that title is kinda full of Slang and maybe not very Queeny. I don't even know what it all means. I've been gone a minute. I had two classes to finish and a week of an exam that will signify if I am able to move forward or not in my program. So I have left it in God's hands and I'm moving on. I
HipHopQueen
in
Kidney Dialysis
2 years ago
dialysis , Help !!
hello , I'm 28 years old and was just put on dialysis , I'm scared Idont know to feel I'm depressed just all of the above I have lost so much weight I feel ugly I'm just all over the place .. I just need someone to talk to that's going through or has gone through this
hello , I'm 28 years old and was just put on dialysis , I'm scared Idont know to feel I'm depressed just all of the above I have lost so much weight I feel ugly I'm just all over the place .. I just need someone to talk to that's going through or has gone through this
Shaneshaanderson28
in
Kidney Disease
2 years ago
Massive Headaches During Dialysis
I really need some help if there's anyone who can help. I am a "complex patient" who has Crohn's disease, bowel resections as well as ESRD. Chronic anemia too. Unlike most dialysis patients I have low magnesium, low potassium, low sodium. The headaches I have are excruciating. I take 4x 500mg
I really need some help if there's anyone who can help. I am a "complex patient" who has Crohn's disease, bowel resections as well as ESRD. Chronic anemia too. Unlike most dialysis patients I have low magnesium, low potassium, low sodium. The headaches I have are excruciating. I take 4x 500mg
sbrenn01
in
Kidney Disease
2 years ago
Cpap users with servere copd
Does anyone have experience of using a cpap machine to remove CO2 in someone who has servere COPD? My husband has just been told he must wear one at least every night as his oxygen levels are low and he is retaining CO2. He us trying it but finding it impossible to sleep and is not too keen to continue
Does anyone have experience of using a cpap machine to remove CO2 in someone who has servere COPD? My husband has just been told he must wear one at least every night as his oxygen levels are low and he is retaining CO2. He us trying it but finding it impossible to sleep and is not too keen to continue
Camposdemurcia
in
Lung Conditions Community Forum
2 years ago
PD Dialysis - Week 5 - Training Day 4
So today (Thursday), it was solo flight day. The PD nurse had me go through the entire connection procedure (which I will document once I get it all typed up this weekend) myself. No major mistakes other than spilling some iodine from the Cap onto my pants (learned to put something over my pants when
So today (Thursday), it was solo flight day. The PD nurse had me go through the entire connection procedure (which I will document once I get it all typed up this weekend) myself. No major mistakes other than spilling some iodine from the Cap onto my pants (learned to put something over my pants when
RonZone
in
Kidney Dialysis
2 years ago
PD Dialysis - Week 5 - Training Day 3
For Day Three (Wednesday), this was practice, practice, practice day. My PD nurse first filled me with 1500ml of 1.5 ml of PD solution. NOTE: We decided to go back to 1.5 solution because the 2.5 solution from Day 2 caused me to wake up at 2:30 and again at 4:30 with leg cramps. Not fun. Seems that's
For Day Three (Wednesday), this was practice, practice, practice day. My PD nurse first filled me with 1500ml of 1.5 ml of PD solution. NOTE: We decided to go back to 1.5 solution because the 2.5 solution from Day 2 caused me to wake up at 2:30 and again at 4:30 with leg cramps. Not fun. Seems that's
RonZone
in
Kidney Dialysis
2 years ago
up and down numbers
I just got back from my kidney doctor. My GRF dropped from 43 to 36. He said it was not consistent. I take a low dose of blood pressure meds triamterene 37 broke in half and a small Dosage of Zoloft. I drink water but not huge amounts of it. He said it could be the heat or a number of things. I got
I just got back from my kidney doctor. My GRF dropped from 43 to 36. He said it was not consistent. I take a low dose of blood pressure meds triamterene 37 broke in half and a small Dosage of Zoloft. I drink water but not huge amounts of it. He said it could be the heat or a number of things. I got
Butchga62
in
Early CKD Support
2 years ago
PD Dialysis - Week 5 - Training Day 2
Today, my PD nurse hooked me up and filled me with 1200ml of PD solution 2.5 today and I was to "Dwell" for 4 hours. She checked the TB test she did yesterday and it is looking ok. She also had me to bring my vaccination and immunization records that I keep on a card at home as well as my Covid immunization
Today, my PD nurse hooked me up and filled me with 1200ml of PD solution 2.5 today and I was to "Dwell" for 4 hours. She checked the TB test she did yesterday and it is looking ok. She also had me to bring my vaccination and immunization records that I keep on a card at home as well as my Covid immunization
RonZone
in
Kidney Dialysis
2 years ago
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