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Experiences with
Continuous Ambulatory Peritoneal Dialysis
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GPA and RA or Fibromyalgia
I was diagnosed with C-Anca GPA in 2017. I went into remission in 2019. I was extremely sick for 4 months before being diagnosed and one of my symptoms was severe joint pain body wide. It caused kidney failure and I was on dialysis for about a year. My kidneys are now at 30%. Over the past 5 years, I
I was diagnosed with C-Anca GPA in 2017. I went into remission in 2019. I was extremely sick for 4 months before being diagnosed and one of my symptoms was severe joint pain body wide. It caused kidney failure and I was on dialysis for about a year. My kidneys are now at 30%. Over the past 5 years, I
Hidden
in
Vasculitis UK
2 years ago
NHS survey on CPAP machines
The NHS is running a project about supporting people with a learning disability and autistic people who have a CPAP machine to use it better. Sometimes called a sleep machine, a CPAP machine helps people sleep by keeping their airways open, letting them breathe normally. The project team want to hear
The NHS is running a project about supporting people with a learning disability and autistic people who have a CPAP machine to use it better. Sometimes called a sleep machine, a CPAP machine helps people sleep by keeping their airways open, letting them breathe normally. The project team want to hear
Maurice_Mencap
Partner
in
Mencap
1 year ago
Dialysis Day very anxiety provoking
Good Morning, it is dialysis day once again. On top of all my mental health issues each treatment wreaks havoc on me both mentally and physically. I get very anxious sitting in center for four hours three times a week. I try to stay quite busy on my days off but it doesn’t help me with my days on
Good Morning, it is dialysis day once again. On top of all my mental health issues each treatment wreaks havoc on me both mentally and physically. I get very anxious sitting in center for four hours three times a week. I try to stay quite busy on my days off but it doesn’t help me with my days on
Frankie24
in
Anxiety and Depression Support
2 years ago
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MRI QUESTION
I had a kidney transplant in 1978 and it failed in 32 days. I was put on hemo with fistula access and mesh graft access. I also was on peritoneal dialysis first and for a short time while hospitalized. In 1982 I had another kidney transplant. At the time of discharge from the hospital I was given a
I had a kidney transplant in 1978 and it failed in 32 days. I was put on hemo with fistula access and mesh graft access. I also was on peritoneal dialysis first and for a short time while hospitalized. In 1982 I had another kidney transplant. At the time of discharge from the hospital I was given a
Hidden
in
Kidney Transplant
2 years ago
Possible hypothyroidism, No Thyroid and on 50mg Levo since Nov 22
Hi I've recently joined and very interested to see so many interesting posts. I wanted to ask if others with no thyroid are on such a low dose of Levothyroxine. In 2014 following a thyroidectomy I was started on 150mg and have been reduced steadily down and am now on 50mg as my TSH each time reduces
Hi I've recently joined and very interested to see so many interesting posts. I wanted to ask if others with no thyroid are on such a low dose of Levothyroxine. In 2014 following a thyroidectomy I was started on 150mg and have been reduced steadily down and am now on 50mg as my TSH each time reduces
CernCrystal
in
Thyroid UK
1 year ago
Nausea and dizziness CKD stage 3b no albuminuria
My 77 year old husband with CKD stage 3b who is otherwise healthy ( no CVD, controlled diabetes with HgA1c at 7.0%) got up this morning nauseous and dizzy. I helped him sit down, hydrated with water etc. His blood pressure has been stable 100/70 and his hemoglobin is 12.5g/dL. He has been on thyroxine
My 77 year old husband with CKD stage 3b who is otherwise healthy ( no CVD, controlled diabetes with HgA1c at 7.0%) got up this morning nauseous and dizzy. I helped him sit down, hydrated with water etc. His blood pressure has been stable 100/70 and his hemoglobin is 12.5g/dL. He has been on thyroxine
Vprp
in
Kidney Disease
2 years ago
struggle to breathe when trying to use cpap since Copd
hi I can’t seem to catch my breath whilst using cpap as Copd has got worse any ideas
hi I can’t seem to catch my breath whilst using cpap as Copd has got worse any ideas
Slaphead
in
Lung Conditions Community Forum
1 year ago
How do you cope with In center Hemodialysis
I was in center hemodialysis for two years then i switched to home peritoneal dialysis which I loved. After two years it stopped working. I have been back on hemodialysis in center for the past year. I can’t make peace with it . Tried working on my iPad, watching movies, writing, reading, taking
I was in center hemodialysis for two years then i switched to home peritoneal dialysis which I loved. After two years it stopped working. I have been back on hemodialysis in center for the past year. I can’t make peace with it . Tried working on my iPad, watching movies, writing, reading, taking
Frankie24
in
Kidney Dialysis
2 years ago
The Queen Who?
Tonight I'm tired and avoiding homework by typing this note, so I am the Queen who avoided homework for an entire night. Going to school and work is draining. Some days I wonder why I"m doing it. But I have many reasons: I want to be a role model for other Black women. I want to help make change that
Tonight I'm tired and avoiding homework by typing this note, so I am the Queen who avoided homework for an entire night. Going to school and work is draining. Some days I wonder why I"m doing it. But I have many reasons: I want to be a role model for other Black women. I want to help make change that
HipHopQueen
in
Kidney Dialysis
2 years ago
Heart trouble, 32 years old.
Hi Folks, I'm 32 years old and have been going through an incredibly difficult time the last few months. It all started in September, wakening panicked, heart racing and feeling like I was going to pass out. This kick started months of torment, which with the help of therapy, I now believe was a panic
Hi Folks, I'm 32 years old and have been going through an incredibly difficult time the last few months. It all started in September, wakening panicked, heart racing and feeling like I was going to pass out. This kick started months of torment, which with the help of therapy, I now believe was a panic
Pjh1002
in
British Heart Foundation
2 years ago
Energy and motivation hasn't really returned after Pred
Hi friends, I'm down to one mg Pred after diagnosed with PMR back in Aug 21. We killed that with 50 mgs initial dose and now I'm down at one mg per day. I take that one mg between 0700 and 0830 every morning. It's been a battle to get here and I've had some shocking episodes of desperate, crushing fatigue
Hi friends, I'm down to one mg Pred after diagnosed with PMR back in Aug 21. We killed that with 50 mgs initial dose and now I'm down at one mg per day. I take that one mg between 0700 and 0830 every morning. It's been a battle to get here and I've had some shocking episodes of desperate, crushing fatigue
Hidden
in
PMRGCAuk
2 years ago
APPROVED FOR KIDNEY TRANSPLANT BUT NEED A DONOR...HOW DO I GET MY STORY OUT? So scared about dialysis before getting a kidney.
Hi Sweet Friends.... hope everyone is hanging in there and doing well. I was approved for transplant at Mayo and am so grateful. My dear husbandand wanted to give me on of his kidneys but during his testing they found dangerously low platelets and found he has idiopathic ITP. After 2 hospitalizations
Hi Sweet Friends.... hope everyone is hanging in there and doing well. I was approved for transplant at Mayo and am so grateful. My dear husbandand wanted to give me on of his kidneys but during his testing they found dangerously low platelets and found he has idiopathic ITP. After 2 hospitalizations
Highgfr
in
Kidney Disease
2 years ago
Dialysis is upon me!
So, coming out of a not so great weekend. On Friday, I had my routine bloodwork done. That evening, my nephrologists office called and asked that I go to the hospital for admission. After laying in there all weekend, I discovered that I was having a tunnel placed in my chest as a temporary access for
So, coming out of a not so great weekend. On Friday, I had my routine bloodwork done. That evening, my nephrologists office called and asked that I go to the hospital for admission. After laying in there all weekend, I discovered that I was having a tunnel placed in my chest as a temporary access for
MSWwv
in
Kidney Disease
2 years ago
Insomnia- solutions?
Many of you will know that I have been battling insomnia for quite a while. I went to a sleep clinic in August and discovered I also had sleep apnoea. I have been treated by the clinic since then with “ infallible” treatments. The problem is, I don’t think my sleep is getting any better and part of
Many of you will know that I have been battling insomnia for quite a while. I went to a sleep clinic in August and discovered I also had sleep apnoea. I have been treated by the clinic since then with “ infallible” treatments. The problem is, I don’t think my sleep is getting any better and part of
suzy1959
in
PMRGCAuk
2 years ago
Muscle cramps
Good evening all. I was wondering if anyone experiences foot cramps in the pre dialysis stage. Im generally well, but recently have been getting these painful cramps but dont want to unduly panic about it by calling my dr. So easy to become slightly hypochondriac with this disease. Any guidance would
Good evening all. I was wondering if anyone experiences foot cramps in the pre dialysis stage. Im generally well, but recently have been getting these painful cramps but dont want to unduly panic about it by calling my dr. So easy to become slightly hypochondriac with this disease. Any guidance would
wheezoids21
in
Kidney Disease
2 years ago
had b12 results and called in to discuss
hello… I’ve just had my b12 levels done and they are >2000 (range 200-900) I started my supplement with oral b12 and decided to trial SI after much reading as very symptomatic and matched myself to possible b12d. I have been hypothyroid for app 32 years and am on Levothyroxine t4 and more recently
hello… I’ve just had my b12 levels done and they are >2000 (range 200-900) I started my supplement with oral b12 and decided to trial SI after much reading as very symptomatic and matched myself to possible b12d. I have been hypothyroid for app 32 years and am on Levothyroxine t4 and more recently
Delilahmy
in
Pernicious Anaemia Society
2 years ago
PD Dialysis - Week 16 after PD catheter surgery - Success!
Ok, I'm going to pick up where I left off 3 months ago with this post: https://healthunlocked.com/nkf-dialysis/posts/148442287/pd-dialysis-week-6-houston-we-have-a-problem Since that post, when I stopped doing manual PD because of the extreme lower back pain I was experiencing, I had visits with my
Ok, I'm going to pick up where I left off 3 months ago with this post: https://healthunlocked.com/nkf-dialysis/posts/148442287/pd-dialysis-week-6-houston-we-have-a-problem Since that post, when I stopped doing manual PD because of the extreme lower back pain I was experiencing, I had visits with my
RonZone
in
Kidney Dialysis
2 years ago
Living with dialysis
My name is Vicki and I myself have had 2 years of dialysis before I got a kidney transplant . I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years . I am
My name is Vicki and I myself have had 2 years of dialysis before I got a kidney transplant . I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years . I am
bubbaboo2
in
Kidney Dialysis
2 years ago
Attendance allowance
Hi my hubby has stage 4 ckd he's 71 receives a state pension, will he be able to apply for attendance allowance, he's waiting to start his dialysis,.any help.to help him through the roots to follow pleaseThanks all x
Hi my hubby has stage 4 ckd he's 71 receives a state pension, will he be able to apply for attendance allowance, he's waiting to start his dialysis,.any help.to help him through the roots to follow pleaseThanks all x
joannieandmike
in
Kidney Dialysis
2 years ago
mountain air stone house problems?
I grew up on the coast of Maine, USA, so elevation 0 and wooden houses and salty sea air. I attended college inland in a small city elevation ~100m. But was only there for 4 years and lived half the time in a concrete apartment and the rest in a wooden house. Then I moved to Munich, Germany, elevation
I grew up on the coast of Maine, USA, so elevation 0 and wooden houses and salty sea air. I attended college inland in a small city elevation ~100m. But was only there for 4 years and lived half the time in a concrete apartment and the rest in a wooden house. Then I moved to Munich, Germany, elevation
stevedavid
in
Lung Conditions Community Forum
2 years ago
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