Living with dialysis

[bubbaboo2]

My name is Vicki and I myself have had 2 years of dialysis before I got a kidney transplant . I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years . I am doing lots of tests so I may be able to get on a transplant list real soon .

Dialysis is very hard on ones body and I get a lot of severe headaches after treatment . I know medi-care will pay for your dialysis whether you do home or clinic treatments. I wish you the very best of luck and be very kind to yourself .

[Beachgirl32]

glad your transplant lasted so long sorry you need another one. You were very young when you had your first one. Hopefully you will get one soon. I’m waiting for transplant but have high antibodies so hard match . Sorry you get headaches with dialysis. I will start dialysis beginning of next year hopefully I can do Pd dialysis . Have you thought about pd dialysis maybe you wouldn’t have headaches with it. I don’t know if it would help just a thought .

[bubbaboo2 in reply to Beachgirl32]

Hello thanks for your wonderful letter its nice to hear from folks going thru the same stuff . Sometimes I don't feel people fully understand how hard on " us " it is . I tried PD twice and 1st time got a bad infection and the second time fluid was collecting in my lungs . So I had surgery to correct this and it failed so had to go back on hemodialysis once again . I hope you are doing well and I wish you and your family a beautiful winter season, best of luck always .💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞

[RonZone]

Hey, everyone's journey is different. I'm on PD as of three weeks ago, using a cycler. I'm still getting used to it and working through machine alarms, but for the most part, it's very doable.

I think that's awesome that your transplant lasted 27 years! But the downside is that it ONLY lasted 27 years. The years go by quickly when things are working, but boy do they seem to crawl when things don't! So I understand your feelings right now. Well other than the headaches. I've never had a headache so I totally can't empathise with you on that issue, though I can only imaging and sympathize in your pain and discomfort. Something like that is difficult mentally as much as physically, on top of not feeling well at all doing in-center dialysis. I sure hope you find resolution to that issue soon! You might need to discuss with a local pain center and get their ideas for possible treatment. Dialysis folks aren't experts on everything.

Glad you are onboard here. Hopefully others will offer their experiences with headaches and possible ideas for resolution. I really hope you get your second transplant soon! That seems to be another mental process, jumping through all the hoops, then just "waiting" for the call. You've been through it already once, but that doesn't make it any easier, I'm sure.

Keep posting and let us know how you are doing.

[bubbaboo2]

Hey so glad to hear from you and hope you are doing well . I tried PD twice and got infection first time and second time fluid was collecting under my lung so I had surgery to correct this and it failed also so I had to go back on hemodialysis . It's been a long two years for me . my son who was 31 passed away in 2020 and it really has been rough so between his death and dialysis I just need some hope and my hope is to get a fuctioning transplant soon. I hope you are doing well I know those alarms can be really annoying at night , best of luck to you and Merry Christmas,☮️☮️☮️