Periodic episodes of fluctuating tachycardia while in AFib.

[Arrythimicaneurysm]

Never had any heart problems until early 2020. I'm a rather robust yet strong guy , late 40s. I suspect COVID may have had something to do with it. Never vaccinated either..went to e.r after having AFib for 16 hrs. Was blacking out at work. Thought I was going to die. Spent 2 days in hospital. Echocardiogram says my heart is healthy and unremarkable. They give me flecaneid to take daily. Worked well for awhile. As time went forward, AFib got worse and more frequent. Eventually had cardiac ablation. Took amiadorone for 3 months then they pulled me off of it. Managed a full 3 months of AFib free living until October last year. AFib started coming back again. They put me on flecaneid "as needed" with extra metaprolol. CPAP everynite, b.p has been stable and running 135/85 ish...AFib hit me hard today. Almost went back to e.r which I dread...160/52 with 196 bpm in AFib!!! Wtf? Never had tachycardia so badly thought I was gonna die. Had everything bready to go to e.r and heart rate went back done and within an hour I was converted with the help of 2- 100 mg flecaneid and another 100 mg metaprolol... I've tried magnesium, vit c, vit d( which seems to aggravate) fruits and veggies, beet root extract, co q10... Nothing seems to help ....and my doctors don't seem to care and disregard my concerns. They tell me I'm obese . I'm 6 ft 1 and weigh 300 lbs...I don't look like I'm that heavy. Been construction worker for 30 years. Guarantee a lot of muscle all the lumber I've carried and ladders climbed. B.m.i. says I'm 42%fat...

I'm at a loss. When I'm not in afib i feelngreat. Good energy levels etc... But when in AFib, I feel like I could die any second...good luck to all and thx for reading

[DawnTX]

OK so unlike our UK friends here you have NO excuse for staying with your doctor. You don’t say where you are. I was in Florida. I’m in Texas. I had no problem finding excellent doctors. You are too young to be dealing with this the way that you are and being ignored. I’m not a doctor, but boy I know about tachycardia because I’ve suffered with it from the end of last April until recently. I now have a pacemaker. I also went into heart failure, which is blamed on, the extended time with tachycardia, so there is no time to wait do not waste the precious time of your young life I understand what you mean about not looking like your weight. I am the same and I think it’s probably because we carry so much muscle even now I still have tone. I can wear clothing much smaller than I should be able to according to size charts. You sound like you’ve been doing many things right. I have not had any of my doctors get on me because of my weight. FYI a good doctor doesn’t do that especially during a time when we are dealing with something like fib. Does your doctor think he has magic negativity that is going to make you lose the weight right now? There are also plenty of thin people who have a fib. I am very tired of the weight shaming. From what I have read, the ship has long sailed as far as damaging ourselves with what we ate at Cetera and cozy that does not mean eating fed now, etc. but we can fix what is done 30 years ago or whenever. You a doctor that is going to help. Do you have a good EP or is that the EP that spoke to you that way? You can probably tell him my dander is up at your doctor. I had a very aggressive procedure last April and I went downhill after that so I know exactly what you mean. When you say you were feeling like you could die I was convinced I was going to and I’m not a drama queen. The moment I stood up, I had crushing pain in my chest breathlessness nausea, and a sense of almost blacking out. I never felt so helpless in my life not knowing which way to train where to go because the doctor I had at the time was refusing to call me back I heard from no one in his office and I was so sick and depressed etc. I couldn’t even help myself Reaching out to another doctor. My doctor was not just some doctor. He is supposedly top tier. I don’t care what his groupies think to this day I believe he almost killed me, and if I had not managed to find another doctor when I did, I wouldn’t be writing you now. My mail, lady is actually the person who told me about the doctors? I have now because her parents use them. You wouldn’t believe the journey since then that was in October. That’s when I was back on the road to recovery, even though I didn’t know it at the time. I have had a series of miracles of sorts whether or not you believe in them all I know is I don’t know any other. reason that I am here now and getting better. I know your type of doctor. I don’t have to know him to be upset at him for what he’s doing to you. I have a doctor No that is the kind of doctor we all should have. He does not put us in a box according to age or weight, etc.. He cares about the whole person, mentally and physically because mind body and spirit need to work together. He thinks outside the box even though, I have been told there are those who do not like his style because it’s not all about money. It’s about quality of life and how to get it as fast as you can so you can live a good life and keep living that way and to stop damage that’s happening right now.

I brag about my doctor is if I gave birth to him lol he is just such an amazing person not just a doctor. The other day he told me he had presented my particular case to whatever he was attending in Dallas. They have asked him to teach the procedure to the EPS there so that they can help other people like me. I did not know that a regular pacemaker, and other things could not help me. The pacemaker I have is relatively new being used here in the US it really is special. Before this was approved, it was not one that could have helped me, which would’ve meant heart failure, getting worse and possibly a transplant but at my age I don’t know if they do them.

Please do not waste another day of your life on someone that apparently keeps blowing you off from what you said. I am basing everything. I said on what you wrote because if I were you, I would want someone to be honest to me and listen. I wish you well whatever you do. Just know my doctor told me the other day that my heart is a regular heart now just like anyone else. Oh yes, my stamina is barely here these days. I need to rebuild what strength I can and I’m not 40 I’m 70 but less than six weeks ago I could not even walk across the floor without horrible pain and more now I can take my dog out all 80 pounds of him and pretty much keep up with him unless he’s being naughty. If they can help me imagine what they can do for you. 🙏🏻❤️

[Morningrose in reply to DawnTX]

Hi, thank you for such a long reassuring and supporting text and so helpful. I was quite interested by the new pacemaker which I think may not be available in the uk yet. Do you know what it is called as I can mention it to my Cardiologist.Happy to hear that you have your life back thanks to this amazing doctor. Take good care and all the best.

[DawnTX in reply to Morningrose]

good morning and yes the pacemaker I have was actually available there first it is called Azure and is made by Medtronic. If he does not know of it and you have an EP I would talk to him. He may know of it but not the procedure. My EP recently presented my case in Dallas Texas and they have invited him/requested that he teach the EP staff there so that they can help more people like me. It has what is called HIS paste bundling from what I understand. That is what makes everything different. It actually has an app with Bluetooth. I am monitored 24 seven and they can even call and request I send a transmission from my phone. the app itself is quite interesting with the options on it even regarding some education it is very user-friendly. When they check the pacemaker, they have a little device that looks like a remote control for a TV and just hold it up to your chest. They can tell at anytime even without doing that if I am having any events.

if I can help let me know and I will share what I do know about it. Sorry for the long text lol I am just excited that it gives people like me and possibly you an option that we did not have before. Prior to this, it was just sit and wait, take meds for heart failure and eventually need a transplant possibly

[Oscarb]

feel for you ... I'm having same problems

[Avrnt]

Really sorry to read your post . I'm sure you will be OK - eventually - such nasty symptoms and so scary. Unless you have experienced a vile fast heartbeat no-one understands how horrible it is .I hope you get sorted soon 👍🏼 🙏