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A 4 Year Journey
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
lockerroombuddy
in
Prostate Cancer And Gay Men
6 days ago
Update High Platelets - Thoughts Please….?
Hi Everyone, I’ve been documenting my story on here both for advice for myself and also for others to follow should they be in a similar situation…. Quick recap…. I have now been under the care of a Haematologist for nearly 3 years after being referred by my GP for consistently high platelet counts,
Hi Everyone, I’ve been documenting my story on here both for advice for myself and also for others to follow should they be in a similar situation…. Quick recap…. I have now been under the care of a Haematologist for nearly 3 years after being referred by my GP for consistently high platelet counts,
Purdy13
in
MPN Voice
6 days ago
Anyone have late onset msa slow progression with ataxia and autonomic disorder?
My symptoms started around 2015. First loss of proprioception and internal shaking, head bobbing, not ET or Parkinson type. Then came digestive, swallowing and gastroparesis with very tight mid body pain after eating. Ataxia and autonomic dysfunction and ocular motor problems, specifically slow saccades
My symptoms started around 2015. First loss of proprioception and internal shaking, head bobbing, not ET or Parkinson type. Then came digestive, swallowing and gastroparesis with very tight mid body pain after eating. Ataxia and autonomic dysfunction and ocular motor problems, specifically slow saccades
rideabike
in
Multiple System Atrophy Trust
8 days ago
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Eye symptoms
Has any one been told they have early onset macular degeneration? Also weak retina? I was given a Amsler grid last eye test/scan and told to go straight to A & E if lines go curved. I have had a bad cellulitis infection in 2021 which I had a cyst also, antibiotics and drops eventually sorted this.
Has any one been told they have early onset macular degeneration? Also weak retina? I was given a Amsler grid last eye test/scan and told to go straight to A & E if lines go curved. I have had a bad cellulitis infection in 2021 which I had a cyst also, antibiotics and drops eventually sorted this.
Missyjasper
in
Behçet's UK
11 days ago
Varying results on FIT tests
I have had IBS for decades so thought I had just been having a bad flare up of that for the past month. Stools were very dark but no visible red blood. I took a home FIT test one day to make myself feel better (it didn’t) and it quickly came up positive. Hoping it was faulty test, I repeated the next
I have had IBS for decades so thought I had just been having a bad flare up of that for the past month. Stools were very dark but no visible red blood. I took a home FIT test one day to make myself feel better (it didn’t) and it quickly came up positive. Hoping it was faulty test, I repeated the next
Everlong2789
in
Colon Cancer Connected
11 days ago
advice about intravenous iron
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
Divii
in
Cure Parkinson's
12 days ago
advice about iron infusion
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
Divii
in
Pernicious Anaemia Society
12 days ago
Genital ulcers
Hi I’m currently waiting for a 1st appointment at the London centre but been told there is a 7/8 month wait 😭. I am 42 and suffered badly with mouth ulcer from a teenager. In the last year I started getting genital ulcers. First few times just the odd one but in the last 3 months or so they are
Hi I’m currently waiting for a 1st appointment at the London centre but been told there is a 7/8 month wait 😭. I am 42 and suffered badly with mouth ulcer from a teenager. In the last year I started getting genital ulcers. First few times just the odd one but in the last 3 months or so they are
Missyjasper
in
Behçet's UK
12 days ago
Suspected ulcerative colitis and nausea
Hi all hope all is wellI have been suffering with suspected ulcerative colitis for a while now and have lately started to feel nauseous and not wanting to eat much especially in the morning. I go dizzy alot too and have daily urgency to pass BM every morning most times quite soft with blood. I eat only
Hi all hope all is wellI have been suffering with suspected ulcerative colitis for a while now and have lately started to feel nauseous and not wanting to eat much especially in the morning. I go dizzy alot too and have daily urgency to pass BM every morning most times quite soft with blood. I eat only
Sooty712
in
Crohn's and Colitis Support
12 days ago
Interested in IBS symptoms
I’m trying to learn more about IBS as my GP has suggested this is the cause of some problems I’ve been having but it doesn’t sound typical to me. I’d love to hear from anyone who has something similar & can set my mind at rest that there’s nothing more sinister going on. It may be that I’ve just misunderstood
I’m trying to learn more about IBS as my GP has suggested this is the cause of some problems I’ve been having but it doesn’t sound typical to me. I’d love to hear from anyone who has something similar & can set my mind at rest that there’s nothing more sinister going on. It may be that I’ve just misunderstood
MidWest104
in
IBS Network
14 days ago
IBS or something more?
Hi, this is my first post on here, and I'm just wondering if anyone can calm my anxiety and mind...For the past 4 years, I've had what I can only call unusual symptoms...bloating, passing a lot of blood from my back passage (clots included and the amount I'd pass during a heavy period), a lot of mucus
Hi, this is my first post on here, and I'm just wondering if anyone can calm my anxiety and mind...For the past 4 years, I've had what I can only call unusual symptoms...bloating, passing a lot of blood from my back passage (clots included and the amount I'd pass during a heavy period), a lot of mucus
SES05
in
IBS Network
15 days ago
grade 4 endo pouch of Douglas
hello everyone I was diagnosed last year at the age of 32( 20 years after onset of symptoms ). At this point I was diagnosed with stage 4 endo , with endometrioma and an obliterated pouch of Douglas and part of my bowel and ovary .The endometrioma was removed but no treatment or removal as I was told
hello everyone I was diagnosed last year at the age of 32( 20 years after onset of symptoms ). At this point I was diagnosed with stage 4 endo , with endometrioma and an obliterated pouch of Douglas and part of my bowel and ovary .The endometrioma was removed but no treatment or removal as I was told
SRD91
in
Endometriosis UK
18 days ago
pretty woman
endoscopy is usually done when someone has had a colonoscopy and polyps removed , depending on the position of the polyps removed the endoscopy is done 6 months later to check all is well and no further surgeries is needed . Periodical check is usually made 5 years later once again doing a full
endoscopy is usually done when someone has had a colonoscopy and polyps removed , depending on the position of the polyps removed the endoscopy is done 6 months later to check all is well and no further surgeries is needed . Periodical check is usually made 5 years later once again doing a full
pretty1woman
in
Pernicious Anaemia Society
19 days ago
still no answers
Hi,I posted a while ago concerning my son who had a fit test of over 200 , he had a previous colonoscopy which was clear. He has had a CT of his pelvis and abdomen and has had the all clear from this today in a letter and been discharged from the clinic. This is all great news but we still have
Hi,I posted a while ago concerning my son who had a fit test of over 200 , he had a previous colonoscopy which was clear. He has had a CT of his pelvis and abdomen and has had the all clear from this today in a letter and been discharged from the clinic. This is all great news but we still have
Longboots7979
Caregiver
in
Colon Cancer Connected
19 days ago
blood and mucus in stool for a few years now colonoscopy has came back clear
I’m a 25 year old female and I was diagnosed with IBS many years ago. I used to get really bad stomach pains after eating and then the pain would subside after having diarrhoea this happened for awhile on and off this made me very anxious and I was weary at what I ate I stopped eating red meat for awhile
I’m a 25 year old female and I was diagnosed with IBS many years ago. I used to get really bad stomach pains after eating and then the pain would subside after having diarrhoea this happened for awhile on and off this made me very anxious and I was weary at what I ate I stopped eating red meat for awhile
somethingintheorange
in
Colon Cancer Connected
20 days ago
Does endoscopy replace colonoscopy?
Hello beautiful PA fam, I wanted to know if any of you guys with PA also have gastritis from it and therefore have to get upper endoscopy and colonoscopy periodically. The reason I'm asking, my doctor did a upper endoscopy on me and told me I didn't need a colonoscopy for the next 10 years and it
Hello beautiful PA fam, I wanted to know if any of you guys with PA also have gastritis from it and therefore have to get upper endoscopy and colonoscopy periodically. The reason I'm asking, my doctor did a upper endoscopy on me and told me I didn't need a colonoscopy for the next 10 years and it
25092
in
Pernicious Anaemia Society
20 days ago
Tired of colitis
I first was diagnosed with proctitis when I was about 20 but the doctor prescribed a sedative, believing it was stress related. After that I had about 4 or 5 flare ups over the course of the next 50 years, not having been officially diagnosed with Ulcerative Colitis until 12 years ago. Mostly I tried
I first was diagnosed with proctitis when I was about 20 but the doctor prescribed a sedative, believing it was stress related. After that I had about 4 or 5 flare ups over the course of the next 50 years, not having been officially diagnosed with Ulcerative Colitis until 12 years ago. Mostly I tried
LoomiJil
in
Crohn's and Colitis Support
22 days ago
thinning hair and skin problem with IBS
I have had IBS(D) for more than 40 years which has gradually got worse over the years , more pain all over my abdomen radiating under right and left ribs ! I have had cat scans ,colonoscopies and blood tests over the years all normal ; I notice in the last few years my hair is getting thinner and
I have had IBS(D) for more than 40 years which has gradually got worse over the years , more pain all over my abdomen radiating under right and left ribs ! I have had cat scans ,colonoscopies and blood tests over the years all normal ; I notice in the last few years my hair is getting thinner and
Mascot68
in
IBS Network
23 days ago
Opinions please
Hi all, Hope you're all as well as can be 💕 I'm back again, if you've seen my previous posts you'll know this last month or so have been really difficult. In the end I had to go to a and e because the pain was so severe in my hips, back and legs and no one could help aside from rheumatology and there
Hi all, Hope you're all as well as can be 💕 I'm back again, if you've seen my previous posts you'll know this last month or so have been really difficult. In the end I had to go to a and e because the pain was so severe in my hips, back and legs and no one could help aside from rheumatology and there
Haylz2109
in
LUPUS UK
25 days ago
what now failed R223
‘what now’ failed R223 My husband this week because of low Hb 83 had a blood transfusion + iron infusion. He has suffered ‘Proctitis’ rectal bleeding since having radiotherapy 2019 and although complaining to Oncologist, GP, Gastroenterologist had endoscopy (found Barrett’s disease and has difficulty
‘what now’ failed R223 My husband this week because of low Hb 83 had a blood transfusion + iron infusion. He has suffered ‘Proctitis’ rectal bleeding since having radiotherapy 2019 and although complaining to Oncologist, GP, Gastroenterologist had endoscopy (found Barrett’s disease and has difficulty
Janhpr
in
Advanced Prostate Cancer
25 days ago
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