advice about intravenous iron : I am a... - Cure Parkinson's

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advice about intravenous iron

Divii profile image
15 Replies

I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise 🐢

Because of menstruation, currently feeling very weak and tired. I am wondering if I need Esophagogastroduodenoscopy with biopsy and iv iron; also colonoscopy.

oral iron may increase constipation.

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Divii profile image
Divii
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park_bear profile image
park_bear

Remedies for Parkinson's constipation

healthunlocked.com/cure-par...

Isotope profile image
Isotope in reply to park_bear

Take 2 tablespoons of coconut oil (mct) a day… 1 in morning and one a night…. Works wonders for me….

Rufous2 profile image
Rufous2

I have not tried them, but understand topical patches can work well if anemia's not too severe. I think this is the best known brand; amazon.com/PatchMD-Iron-Top...

If you decide to get IV iron, maybe you could use these afterwards to "top up" iron stores.

Thal profile image
Thal

Iron and Parkinson's is complicated. Needs strict medical supervision.

Divii profile image
Divii in reply to Thal

Complicated in what way?

Thal profile image
Thal in reply to Thal

Very delicate balance. Too little vs too much. Also has effect on levodopa absorption And the Parkinson's brain may accumulate iron while the blood may be low. Diet is important meat vs plants

Divii profile image
Divii in reply to Thal

Thank you

LAJ12345 profile image
LAJ12345

For constipation we find avoiding meat and dairy and eating beans, chickpeas or lentils every second day helps. Also not sitting too long. By keeping regular walking around the legs help the bowel move it on through.

peminc profile image
peminc

A high fiber morning planet-based protein shake might help you avoid meat and dairy yet start the day and stay regular. Try the brand Garden of Life on Amazon.

Isotope profile image
Isotope

you ferritin is extremely low along with your heamoglobin and total red blood cells.. you also have other markers that are critically low ie; all those highlighted in red are critically low. What did your doctor say? Did they test you for pernicious anemia? Did they test to see if you have intrinsic factor? Without intrinsic factor your stomach does not absorb B12, it affects red blood production and you become anemic… when this happens people have severe fatigue along with other symptoms like tingling in hands or feet, nausea, racing heart, etc… look it up. My brother has it…. This may not be your issue but looking at your lab work your doctor needs to do further tests to find out what’s wrong with you…?I am NOT a doctor but based on your results and my brothers diagnosis you need help from a doctor that knows what he/she is doing…

Mellaji profile image
Mellaji

look into Ancestral Supplements. If you are able to do bovine they are very clean. They have helped me with my liver/gallbladder and intestines.

akgirlsrock profile image
akgirlsrock

I would check with Morley Robinson The magnesium man, his theory on Iron is helping people. YouTube him.

Divii profile image
Divii in reply to akgirlsrock

thanks!

Boscoejean profile image
Boscoejean

"The probiotic strain Lactobacillus plantarum 299v (Lp299v) significantly increases intestinal iron absorption in meal studies. The present study was conducted to explore the effects of 20 mg of iron with or without Lp299v on iron status, mood state, and physical performance. Fifty-three healthy non-anemic female athletes with low iron stores (ferritin < 30 μg/L) were randomized, and 39 completed the study. Intake of Lp299v with iron for four weeks increased ferritin levels more than iron alone (13.6 vs. 8.2 µg/L), but the difference between the groups was not significant (p = 0.056)."

ncbi.nlm.nih.gov/pmc/articl....

Divii profile image
Divii in reply to Boscoejean

Thank you 😊

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