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My 2nd opinion at Ohio State
So yesterday I went to OSU for my second opinion. Let me tell you, that place is huge! Its funny, there was hand sanitizer EVERYWHERE! I loved it! Anyways, I met with the doctor and I think everything that was said was positive. I was afraid of my deletions and it was explained that there are medicines
So yesterday I went to OSU for my second opinion. Let me tell you, that place is huge! Its funny, there was hand sanitizer EVERYWHERE! I loved it! Anyways, I met with the doctor and I think everything that was said was positive. I was afraid of my deletions and it was explained that there are medicines
momof12
in
CLL Support
8 years ago
Richter's Transformation and on the Road Again
Friends, This week in the Beyond the Basics section of the CLL Society website, we have posted an interview from ASH 2015 with Dr. Januario Castro, although discussing an abstract that was presented at the 2015 iwCLL meeting. We talked about Richter’s Transformation, one of the most aggressive turns
Friends, This week in the Beyond the Basics section of the CLL Society website, we have posted an interview from ASH 2015 with Dr. Januario Castro, although discussing an abstract that was presented at the 2015 iwCLL meeting. We talked about Richter’s Transformation, one of the most aggressive turns
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
World Cancer Day
Friends, February 4th is World Cancer Day and there is so much we can do. Visit their website: http://www.worldcancerday.org and learn the many ways that we can help ourselves and help others win the war on cancer. Those of us whose lives have been touched by CLL can do even more. No one wants cancer
Friends, February 4th is World Cancer Day and there is so much we can do. Visit their website: http://www.worldcancerday.org and learn the many ways that we can help ourselves and help others win the war on cancer. Those of us whose lives have been touched by CLL can do even more. No one wants cancer
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
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What the BMB Result Said
I met with my CLL and MPN experts this past week to learn the results of my bone marrow biopsy. My myelofibrosis is still there but not aggressive. Apparently 10mg of Jakafi 2x a day helps hold it steady. Genetic factors are ok,. My CLL is there too but after 19 years not doing much. Only issue is platelets
I met with my CLL and MPN experts this past week to learn the results of my bone marrow biopsy. My myelofibrosis is still there but not aggressive. Apparently 10mg of Jakafi 2x a day helps hold it steady. Genetic factors are ok,. My CLL is there too but after 19 years not doing much. Only issue is platelets
andrewschorr
in
CLL Support
8 years ago
Psychosocial stresses of CLL and some upcoming patient meetings.
Friends, This week in the Living Well with CLL section of the CLL Society website, [http://cllsociety.org] we have posted a talk given by Dr. Scott Irwin during the CLL Research Consortium in April 2015. He gave a talk about dealing with the psychosocial aspects of cancer and how to preserve our dignity
Friends, This week in the Living Well with CLL section of the CLL Society website, [http://cllsociety.org] we have posted a talk given by Dr. Scott Irwin during the CLL Research Consortium in April 2015. He gave a talk about dealing with the psychosocial aspects of cancer and how to preserve our dignity
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
‘Use-by’ and ‘Best-before’ dates - how are they relevant to CLL?
These dates on packaged food items are even more important to us than they were prior to our CLL diagnosis, but for different reasons. In summary, we should eat foods before the 'Use-by' date to avoid the risk of food poisoning, especially if we are neutropenic. Foods may be eaten after the 'Best-before
These dates on packaged food items are even more important to us than they were prior to our CLL diagnosis, but for different reasons. In summary, we should eat foods before the 'Use-by' date to avoid the risk of food poisoning, especially if we are neutropenic. Foods may be eaten after the 'Best-before
AussieNeil
Partner
in
CLL Support
8 years ago
IBS triggered by Thyroid???
Has any one else experienced this? Gastro says its due to the low stomach acid, caused by Thyroid. Originally had severe stomach cramps. Now subsided, but living on Imoduim/Buscopan- due to constant Diaharrea. Doctor has just prescribed Colofac and more imodium!!
Has any one else experienced this? Gastro says its due to the low stomach acid, caused by Thyroid. Originally had severe stomach cramps. Now subsided, but living on Imoduim/Buscopan- due to constant Diaharrea. Doctor has just prescribed Colofac and more imodium!!
ClareP81
in
Thyroid UK
8 years ago
here we go again
my mom is 87. she has afib, had chf, and now out of the blue gfr 26.6 bun 26 creat 1.7 bp normal no diabetes. stage 4 chronic kidney disease. surprise! SHE is on lasix 40 kidney dr raised it to 80 mg some fluid in legs. she does not need dialysis. urine and rest of bloodwork good. stay on low sodium
my mom is 87. she has afib, had chf, and now out of the blue gfr 26.6 bun 26 creat 1.7 bp normal no diabetes. stage 4 chronic kidney disease. surprise! SHE is on lasix 40 kidney dr raised it to 80 mg some fluid in legs. she does not need dialysis. urine and rest of bloodwork good. stay on low sodium
afib1
in
Early CKD Support
8 years ago
FibroScan result
Hi my FibroScan result Is 6.1kPa CAP 194 Blood test mildly elevated bilirubin, Alt. ANA positive 1/80 with smooth muscle antibody 1/40 she does not have active autoimmune hepatitis this will need monitoring What's all this numbers mean? I have pain in my upper right side for 3years Sorry for the long
Hi my FibroScan result Is 6.1kPa CAP 194 Blood test mildly elevated bilirubin, Alt. ANA positive 1/80 with smooth muscle antibody 1/40 she does not have active autoimmune hepatitis this will need monitoring What's all this numbers mean? I have pain in my upper right side for 3years Sorry for the long
Amena1610
in
British Liver Trust
8 years ago
Colofac
I have been prescribed colofac by my doctor to help with symptoms relating to ibs, ( nervous gut, urge to go when in crowded place like mass or wedding or at a one to one meeting, combination of c and d, excess wind/flatulence). Was told it is probably ibs and there's nothing can be done, just have
I have been prescribed colofac by my doctor to help with symptoms relating to ibs, ( nervous gut, urge to go when in crowded place like mass or wedding or at a one to one meeting, combination of c and d, excess wind/flatulence). Was told it is probably ibs and there's nothing can be done, just have
Rachel-Ann
in
IBS Network
8 years ago
Interviews with Dr. Neil Kay and Wayne Wells
Friends, This week on the CLL Society website (http://cllsociety.org), we have posted an interesting interview with Dr. Neil Kay where we discuss a couple of clinical trials for untreated CLL patients that include non-chemotherapy arms. You can see that interview here. We've also posted an audio interview
Friends, This week on the CLL Society website (http://cllsociety.org), we have posted an interesting interview with Dr. Neil Kay where we discuss a couple of clinical trials for untreated CLL patients that include non-chemotherapy arms. You can see that interview here. We've also posted an audio interview
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Australian members - how to access new cancer drugs
The Australian Leukaemia Foundation has just released a 60+ page booklet 'Accessing non-PBS Funded Blood Cancer Drugs in Australia - A discussion tool for you and your specialist', which commences: [i]"This booklet was written to help you and your family, navigate the complex system for accessing new
The Australian Leukaemia Foundation has just released a 60+ page booklet 'Accessing non-PBS Funded Blood Cancer Drugs in Australia - A discussion tool for you and your specialist', which commences: [i]"This booklet was written to help you and your family, navigate the complex system for accessing new
AussieNeil
Partner
in
CLL Support
8 years ago
Iron infusion
That's me had my iron top up, 1500ml over two weeks, feel great for it, not tired not so breathless ( can get big peak deep breaths) not so sleepy etc. Highly recommended lol they still don't know how or why my hemoglobin / iron count drifts up and down. David 1968
That's me had my iron top up, 1500ml over two weeks, feel great for it, not tired not so breathless ( can get big peak deep breaths) not so sleepy etc. Highly recommended lol they still don't know how or why my hemoglobin / iron count drifts up and down. David 1968
1968
in
Lung Conditions Community Forum
8 years ago
Five food safety myths busted
Food borne illnesses can make us extremely ill and can cause permanent organ damage, even death in healthy people, so with our compromised immune systems, particularly if we are neutropenic, food hygiene is highly important. Here are the facts behind some common food handling myths: 1) You [i]can[/i
Food borne illnesses can make us extremely ill and can cause permanent organ damage, even death in healthy people, so with our compromised immune systems, particularly if we are neutropenic, food hygiene is highly important. Here are the facts behind some common food handling myths: 1) You [i]can[/i
AussieNeil
Partner
in
CLL Support
8 years ago
Husband with p53 deletion
Hello! First time post... Almost a year ago my husband was diagnosed with CLL at 45 after a routine blood test. Since then his lymphocyte count has more than doubled (started at 41, currently over 100). In November after seeing a new specialist, he had a bone marrow biopsy and was told that he has a
Hello! First time post... Almost a year ago my husband was diagnosed with CLL at 45 after a routine blood test. Since then his lymphocyte count has more than doubled (started at 41, currently over 100). In November after seeing a new specialist, he had a bone marrow biopsy and was told that he has a
MichRae
in
CLL Support
8 years ago
Fibro warrior
Hi there, I'm new to this site and looking for a local group to join for a cuppa and chat. I live in Milton keynes with my long suffering hubby 😜 I have recently been diagnosed with fibromyalgia but have had symptoms for over 4 years. I also have hypothyroidism and chronic kidney disease. I am 46yrs
Hi there, I'm new to this site and looking for a local group to join for a cuppa and chat. I live in Milton keynes with my long suffering hubby 😜 I have recently been diagnosed with fibromyalgia but have had symptoms for over 4 years. I also have hypothyroidism and chronic kidney disease. I am 46yrs
bishboshmanor
in
Fibromyalgia Action UK
8 years ago
Why 1 in 5 cancer clinical trials fizzle
[/i]"Clinical trials are the scientific soul of cancer-cure advances, but nearly 20 percent of these publicly funded studies fail to draw enough patients to render verdicts on experimental therapies, investigators reported Tuesday. That failure rate represents stalled progress in the pursuit of better
[/i]"Clinical trials are the scientific soul of cancer-cure advances, but nearly 20 percent of these publicly funded studies fail to draw enough patients to render verdicts on experimental therapies, investigators reported Tuesday. That failure rate represents stalled progress in the pursuit of better
AussieNeil
Partner
in
CLL Support
9 years ago
Rituximab and bendamustine
Hi all fellow cllers. Is anyone else on rituximab and bendamustine at the moment? I just started last Thursday- a half dose of each of them on 2 successive days. Feeling totally steamrollered for Christmas now!! I did have fludarabine and rituximab nearly 5 years ago with great results. Has anyone
Hi all fellow cllers. Is anyone else on rituximab and bendamustine at the moment? I just started last Thursday- a half dose of each of them on 2 successive days. Feeling totally steamrollered for Christmas now!! I did have fludarabine and rituximab nearly 5 years ago with great results. Has anyone
Donegal
in
CLL Support
9 years ago
COPD
During the last week I have been short of breath which is causing my anxiety attacks, I've lost about 18lb in just over a week because the anxiety is driving me nuts, I am pretty sure I have COPD but of course with being the time of year getting PFT's would be near impossible. I went to the ER the other
During the last week I have been short of breath which is causing my anxiety attacks, I've lost about 18lb in just over a week because the anxiety is driving me nuts, I am pretty sure I have COPD but of course with being the time of year getting PFT's would be near impossible. I went to the ER the other
clockfacejay
in
Lung Conditions Community Forum
8 years ago
Medicines reduced..
Hi: I am new to this forum. I have been a type2 diabetic from 21 years. I followed LCHF diet from a month and my medications have been reduced as follows: Mornings 1. Victoza injection 1.8 to 0.6 now. 2. Metsmall 1000 mg to nil. Nights. 1. GlimyMP2- 500 mg to nil. 2. Trajenta 5 mg continuing. My HbA1C
Hi: I am new to this forum. I have been a type2 diabetic from 21 years. I followed LCHF diet from a month and my medications have been reduced as follows: Mornings 1. Victoza injection 1.8 to 0.6 now. 2. Metsmall 1000 mg to nil. Nights. 1. GlimyMP2- 500 mg to nil. 2. Trajenta 5 mg continuing. My HbA1C
27parims
in
Diabetes India
9 years ago
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