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CLL Diagnosis Just 3 months ago
No treatment or cure the doctor said. Just watch and wait. Uh huh, just trees are born to watch and wait I thought. Found the only doctor brave enough to do Linus Pauling IV Vitamin C therapy. 3 months and 23 sessions later new blood tests indicated WBC dropped 28%. As Neil has said in his wisdom the
No treatment or cure the doctor said. Just watch and wait. Uh huh, just trees are born to watch and wait I thought. Found the only doctor brave enough to do Linus Pauling IV Vitamin C therapy. 3 months and 23 sessions later new blood tests indicated WBC dropped 28%. As Neil has said in his wisdom the
JosephVidmar
in
CLL Support
8 years ago
eGFR 24, 19 year old female
Hi, i just wanted some advice, im a 19 year old female who was diagnosed with IgA nephropathy a year ago, i was just wondering whats the likely hood of multiple transplants. My first transplant is going to be within the next 1/2 years as my consultants want it before i hit dialysis. I presume they are
Hi, i just wanted some advice, im a 19 year old female who was diagnosed with IgA nephropathy a year ago, i was just wondering whats the likely hood of multiple transplants. My first transplant is going to be within the next 1/2 years as my consultants want it before i hit dialysis. I presume they are
Beanbag5
in
Early CKD Support
8 years ago
"Reimagining the Hospital Experience of Cancer" - Contest seeking ideas to improve the experience for people affected by CLL
Do you have ideas that could help improve the hospital experience of people living with cancers like CLL or SLL? We all know that the hospital experience can be frequent, daunting, and all consuming. To help support and manage this journey, AbbVie Pharmaceutical Company has created a global program
Do you have ideas that could help improve the hospital experience of people living with cancers like CLL or SLL? We all know that the hospital experience can be frequent, daunting, and all consuming. To help support and manage this journey, AbbVie Pharmaceutical Company has created a global program
HAIRBEAR_UK
Administrator
in
CLL Support
8 years ago
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IBS nightmare
I suffer with Fibromyalgia for 40 years ( now 65 ) and I have ibs since last year . I was dealing with it well until I was informed I also had a urine infection with some blood . The doctor put me on a two weeks of antibiotics and now I have severe mucus and blood in my stools . I have also received
I suffer with Fibromyalgia for 40 years ( now 65 ) and I have ibs since last year . I was dealing with it well until I was informed I also had a urine infection with some blood . The doctor put me on a two weeks of antibiotics and now I have severe mucus and blood in my stools . I have also received
blueair1811
in
IBS Network
8 years ago
Dr. Stilgenbauer: Resistance to ibrutinib in relapsed and refractory patients with 17p deletion and News about CLL Meeting across the USA
Friends, This week in the 2015 Conference Coverage section of the CLL Society website, we have posted a continuation of my interview with Dr. Stephan Stilgenbauer at the American Society of Hematology annual meeting in December 2015 in Orlando. We discussed the criteria that predict resistance to ibrutinib
Friends, This week in the 2015 Conference Coverage section of the CLL Society website, we have posted a continuation of my interview with Dr. Stephan Stilgenbauer at the American Society of Hematology annual meeting in December 2015 in Orlando. We discussed the criteria that predict resistance to ibrutinib
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Searching for CLLers in Hong Kong
Dear CLL friends. I’ve been part of this group for quite a while and, thank God, continue to do well although my WBC is inching up a bit. I know there are members from everywhere but I have no clue whether there is anyone from Hong Kong. Nevertheless, I’d love to connect with them. So, in an effort
Dear CLL friends. I’ve been part of this group for quite a while and, thank God, continue to do well although my WBC is inching up a bit. I know there are members from everywhere but I have no clue whether there is anyone from Hong Kong. Nevertheless, I’d love to connect with them. So, in an effort
andrewschorr
in
CLL Support
8 years ago
Need a Opinion
I am suffering from Diabetic condition for last eight years. I was reasonably controlling the situation with Metformin 1000 mg 1 tab and Diamicron MR 60 mg 2 tabs / day until last year. Currently my HBA1C is not within the required range, it is increasing from around 7 to around 8.4 ( last year) Otherwise
I am suffering from Diabetic condition for last eight years. I was reasonably controlling the situation with Metformin 1000 mg 1 tab and Diamicron MR 60 mg 2 tabs / day until last year. Currently my HBA1C is not within the required range, it is increasing from around 7 to around 8.4 ( last year) Otherwise
sweetsekar
in
Diabetes India
8 years ago
Ibrutinib enhances chimeric antigen receptor T-cell engraftment and efficacy in leukemia
"In this study, we demonstrated that ibrutinib treatment enhances the feasibility of generating CAR T cells from CLL patients." "Given that 90% or more of patients with high-risk disease have an initial response to ibrutinib and typically remain on ibrutinib therapy for over 1 year, this time window
"In this study, we demonstrated that ibrutinib treatment enhances the feasibility of generating CAR T cells from CLL patients." "Given that 90% or more of patients with high-risk disease have an initial response to ibrutinib and typically remain on ibrutinib therapy for over 1 year, this time window
kebnekaise
in
CLL Support
8 years ago
Not sleeping and tummy probs
Hi am I correct in thinking the tummy problems and not being able to sleep are due to steroids The only way I can explain the tummy prob is that it feels like gnawing feeling taking a omerprozle seems to help Don't like to ring renal unit as I am a kidney transplant patient as feel like I am moaning
Hi am I correct in thinking the tummy problems and not being able to sleep are due to steroids The only way I can explain the tummy prob is that it feels like gnawing feeling taking a omerprozle seems to help Don't like to ring renal unit as I am a kidney transplant patient as feel like I am moaning
Rusty8
in
PMRGCAuk
8 years ago
Dr. Stephan Stilgenbauer on clonal evolution from the American Society of Hematology and several educational meetings across the USA
Friends, This week in the 2015 Conference Coverage section of the CLL Society website, we have posted an interview with Dr. Stephan Stilgenbauer as he discusses clonal evolution at the American Society of Hematology annual meeting in December 2015 in Orlando. You can see a summary and view his interview
Friends, This week in the 2015 Conference Coverage section of the CLL Society website, we have posted an interview with Dr. Stephan Stilgenbauer as he discusses clonal evolution at the American Society of Hematology annual meeting in December 2015 in Orlando. You can see a summary and view his interview
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Worried
I suffered with ibs about 15 or more years ago but only have the occasional flare up , more bloating and wind like pains for maybe a day then ok , but for the last 10 days have had pain , really bad pain every day & bloating , stomach looks swollen , I've been taking Colofac every day since this started
I suffered with ibs about 15 or more years ago but only have the occasional flare up , more bloating and wind like pains for maybe a day then ok , but for the last 10 days have had pain , really bad pain every day & bloating , stomach looks swollen , I've been taking Colofac every day since this started
Lindylou2016
in
IBS Network
8 years ago
https://www.justgiving.com/Julian-Twocock3
Hi All Mr X has a bone marrow biopsy tomorrow as he is about to start treatment. What is he doing today ........ He's raising funds for Leukaemia and Lymphoma research and I have just sponsored him...... he's running a half marathon Jules the Flyer .
Hi All Mr X has a bone marrow biopsy tomorrow as he is about to start treatment. What is he doing today ........ He's raising funds for Leukaemia and Lymphoma research and I have just sponsored him...... he's running a half marathon Jules the Flyer .
Hidden
in
CLL Support
8 years ago
Medication
Does anyone take cetirizine as well as montelukast? Could it be adding it my tiredness?
Does anyone take cetirizine as well as montelukast? Could it be adding it my tiredness?
M67W77
in
Lung Conditions Community Forum
8 years ago
pain after hysteroscopy to remove polyps ashermans syndrome and Endo has anyone had this?
Hi I had a hysteroscopy to remove polyps 12 weeks ago. Prior to this I was pain-free but just had heavy bleeding . A few weeks after the treatment I started to experience really bad groin pain and pelvic pain I was kept in hospital for four days after going to a and e with the pain. I was told this
Hi I had a hysteroscopy to remove polyps 12 weeks ago. Prior to this I was pain-free but just had heavy bleeding . A few weeks after the treatment I started to experience really bad groin pain and pelvic pain I was kept in hospital for four days after going to a and e with the pain. I was told this
Fayed
in
Endometriosis UK
8 years ago
From One Trial to Another
Friends, This week in the Clinical Trials section of the CLL Society website, we have posted an article authored by Adam Irgom. He shares the story of his fast moving CLL and his struggles to control it especially in the context of two different clinical trials. His gritty tale of courage spares no details
Friends, This week in the Clinical Trials section of the CLL Society website, we have posted an article authored by Adam Irgom. He shares the story of his fast moving CLL and his struggles to control it especially in the context of two different clinical trials. His gritty tale of courage spares no details
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Peasants Versus Smart New Cars And Doing The Shopping...
The entire street is up in arms, because, after four blissful years of the road being closed the new bridge is up and the road re-opened... Himself has already been the victim of a snotty bloke who shook his fist at him at seven in the morning while he was out with the dogs...didn't move to the side
The entire street is up in arms, because, after four blissful years of the road being closed the new bridge is up and the road re-opened... Himself has already been the victim of a snotty bloke who shook his fist at him at seven in the morning while he was out with the dogs...didn't move to the side
Hidden
in
Lung Conditions Community Forum
8 years ago
Left sided heart failure and Vasculitis. Anyone else been diagnosed with this ?
I was diagnosed with WG over 17 years ago with Saddle nose deformity and I have chronic kidney failure too. I have been receiving Rituximab every 6 months for the last few years and have been lucky not to have had steroids for approx the last 10 years. I'm 55 years old. Since my last infusion in October
I was diagnosed with WG over 17 years ago with Saddle nose deformity and I have chronic kidney failure too. I have been receiving Rituximab every 6 months for the last few years and have been lucky not to have had steroids for approx the last 10 years. I'm 55 years old. Since my last infusion in October
Essex-jill
in
Vasculitis UK
8 years ago
Does anyone have more information about this
Culled from euro news. Scientists say tests of a potentially groundbreaking new cancer therapy have had “extraordinary” results. More than 90 percent of terminally ill Leukemia patients tested have reportedly gone into remission. The therapy involves taking patients’ white blood cells, modifying them
Culled from euro news. Scientists say tests of a potentially groundbreaking new cancer therapy have had “extraordinary” results. More than 90 percent of terminally ill Leukemia patients tested have reportedly gone into remission. The therapy involves taking patients’ white blood cells, modifying them
Tunde_s
in
CLL Support
8 years ago
Hope is on the way.
This morning's news should give us all cause to smile and to keep hope alive. http://www.mirror.co.uk/news/technology-science/science/doctors-battling-stop-cancer-hail-7377474 However, does T cell immunotherapy work on B cell leukemia? This question is above my pay grade. Still, this breakthrough
This morning's news should give us all cause to smile and to keep hope alive. http://www.mirror.co.uk/news/technology-science/science/doctors-battling-stop-cancer-hail-7377474 However, does T cell immunotherapy work on B cell leukemia? This question is above my pay grade. Still, this breakthrough
RK66
in
CLL Support
8 years ago
stopping smoking
I've an appointment for nicotine patches on Sunday (it's friday). I have COPD but after reading that my breathing will probably get worse when I've stopped smoking I am now petrified and confused as of what to do ???
I've an appointment for nicotine patches on Sunday (it's friday). I have COPD but after reading that my breathing will probably get worse when I've stopped smoking I am now petrified and confused as of what to do ???
alvorite
in
Lung Conditions Community Forum
8 years ago
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