So yesterday I went to OSU for my second opinion. Let me tell you, that place is huge! Its funny, there was hand sanitizer EVERYWHERE! I loved it!
Anyways, I met with the doctor and I think everything that was said was positive. I was afraid of my deletions and it was explained that there are medicines that will help me irregardless. They also said everything that Cleveland Clinic is doing is good. At this point I will finish my chemo (BR) and then go back in June for a follow up with OSU.
They said just look forward to the remission and stop worrying about CLL until 2-4 years
While I was there they did a few more tests (mutation test and another FISH) so Im anxious to get those results. Im 11q/13q/CD 38+ so when I relapse, they said I can look at either whatever new meds they have as well as starting to possibly look for a stem cell donor (since Im young). I felt the meeting went really well. Everyone was so optimistic about the progress in CLL.
They asked me to donate my blood for research so of course I said yes. The researcher said that many people refuse. Other than a medical reason...why would they do that? Whats a few extra tubes of blood to help find a new medicine or cure? I'll do what ever it takes to help myself, you guys or the new CLL'ers coming after us!
I'm feeling better today about my situation