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FLAIR Study Site List Map / UK CLL Expert Centres
I have received from the organisers of the UK FLAIR trial an updated list of hospitals and doctors running the FLAIR trial, which you can find below or by viewing the following google map where you can easily find your closest site: https://www.google.com/maps/d/viewer?mid=16Jbl8Gd7yUX0mh3JdofRQptO6dY4YwSy
I have received from the organisers of the UK FLAIR trial an updated list of hospitals and doctors running the FLAIR trial, which you can find below or by viewing the following google map where you can easily find your closest site: https://www.google.com/maps/d/viewer?mid=16Jbl8Gd7yUX0mh3JdofRQptO6dY4YwSy
AdrianUK
in
CLL Support
6 years ago
Head is all over the place....
Hi all, phew so glad this forum exists - people that really understand this condition and its effects. So, I had my 5th laparoscopy and polyp removal 3 months ago and after ongoing issues of constipation, fatigue and pain I thought things just weren't right. I went to see my consultant last night (I
Hi all, phew so glad this forum exists - people that really understand this condition and its effects. So, I had my 5th laparoscopy and polyp removal 3 months ago and after ongoing issues of constipation, fatigue and pain I thought things just weren't right. I went to see my consultant last night (I
Moodle214
in
Endometriosis UK
6 years ago
Kidney Transplant 35 yrs Dec 2018
I’ve been taking Aza my whole transplant life. I currently have a 15cm cyst on my liver. Does anyone know what I may be facing at this stage of my journey? Any stories or advice anyone could share, words of encouragement if any would be delightful.
I’ve been taking Aza my whole transplant life. I currently have a 15cm cyst on my liver. Does anyone know what I may be facing at this stage of my journey? Any stories or advice anyone could share, words of encouragement if any would be delightful.
Andysue
in
British Liver Trust
6 years ago
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Newly diagnosed with copd
Hi all, just looking for some advice please....i have been a smoker for over 40 years, with a nasty cough and in past year started getting breathless, stopped smoking with champix 10 weeks, anyway after about 6 weeks not smoking cough completely gone, not getting breathless, but just had a spiro test
Hi all, just looking for some advice please....i have been a smoker for over 40 years, with a nasty cough and in past year started getting breathless, stopped smoking with champix 10 weeks, anyway after about 6 weeks not smoking cough completely gone, not getting breathless, but just had a spiro test
Hidden
in
Lung Conditions Community Forum
6 years ago
Smoking. !!!
I am writing as I am wondering if there's something seriously wrong with me or is it a personal issue. I am still a smoker with emphysema and two weeks ago I went to the Dr, not my usual one at the practice, and when I asked her for Zyban which I have used before and it made me stop smoking, she said
I am writing as I am wondering if there's something seriously wrong with me or is it a personal issue. I am still a smoker with emphysema and two weeks ago I went to the Dr, not my usual one at the practice, and when I asked her for Zyban which I have used before and it made me stop smoking, she said
BB4ALL
in
Lung Conditions Community Forum
6 years ago
Saturday 8th September, Malvern 'Spot Leukaemia', fun dog show, picnic and dog walk
Save in your diary - If you are in the Midlands come and join us in the first week of Blood Cancer Awareness Month for a fun day out to help raise awareness about the condition and how early diagnosis, appropriate testing and timely access to information improves outcomes and quality of life. please
Save in your diary - If you are in the Midlands come and join us in the first week of Blood Cancer Awareness Month for a fun day out to help raise awareness about the condition and how early diagnosis, appropriate testing and timely access to information improves outcomes and quality of life. please
HAIRBEAR_UK
Administrator
in
CLL Support
6 years ago
IgA Nephropathy and transplant outcomes
Hi All, I my mother has been diagnosed with Kidney failure and is undergoing dialysis. Her Kidney failure was due to IgA Nephropathy, which was diagnosed 20 years ago, and has recently resulted in kidney failure. While considering transplant as an option, I would like to understand what outcomes can
Hi All, I my mother has been diagnosed with Kidney failure and is undergoing dialysis. Her Kidney failure was due to IgA Nephropathy, which was diagnosed 20 years ago, and has recently resulted in kidney failure. While considering transplant as an option, I would like to understand what outcomes can
Ashkutty
in
Dialysis Support
6 years ago
Dr. Wierda on the paradigm shift in CLL.
Dr. Wierda is my doctor and in the short time I met with him in 2017, I didn’t get the impression he was the type to sugar coat anything. He tells it like it is. That’s why this video struck me. I’ve seen the level of excitement increase in the short time I’ve been on W&W not only with his interviews
Dr. Wierda is my doctor and in the short time I met with him in 2017, I didn’t get the impression he was the type to sugar coat anything. He tells it like it is. That’s why this video struck me. I’ve seen the level of excitement increase in the short time I’ve been on W&W not only with his interviews
baq724
in
CLL Support
6 years ago
ICSI success
Never thought we'd get this far, but goes to show it is possible! 8 months pregnant now, and I'm so lucky and grateful. Just 2 frozen blastos from a mega batch egg collection. The first failed, and the second one took. Maybe my polyp removal helped, or maybe it was just a stronger egg, who knows. The
Never thought we'd get this far, but goes to show it is possible! 8 months pregnant now, and I'm so lucky and grateful. Just 2 frozen blastos from a mega batch egg collection. The first failed, and the second one took. Maybe my polyp removal helped, or maybe it was just a stronger egg, who knows. The
Llama1
in
Fertility Network UK
6 years ago
An Introduction
Greetings: I am a 73yo male with a CLL diagnosis about 6 or 7 years ago. Currently my hematologist has me on a Wait & Watch routine and seeing me every 6 months. He has given me brief overview of how CLL progresses and the chemical treatments available, none of which I'm currently on as I have some ways
Greetings: I am a 73yo male with a CLL diagnosis about 6 or 7 years ago. Currently my hematologist has me on a Wait & Watch routine and seeing me every 6 months. He has given me brief overview of how CLL progresses and the chemical treatments available, none of which I'm currently on as I have some ways
NWcllfighter
in
CLL Support
6 years ago
CSR - CLL
Hello. I have had CLL since 2012. Recently diagnosed with Chronic Central Serous Retinopathy in my right eye, which is a permanent build-up of fluid behind the macula causing sight distortion. There is medical research suggesting that leukemic infiltration is a possibility, albeit a rare one. Have any
Hello. I have had CLL since 2012. Recently diagnosed with Chronic Central Serous Retinopathy in my right eye, which is a permanent build-up of fluid behind the macula causing sight distortion. There is medical research suggesting that leukemic infiltration is a possibility, albeit a rare one. Have any
Lapo
in
CLL Support
6 years ago
Needing prayers - heading to emergency room with 101.6 neutropenic fever
Cll specialist called and told me to urgently go to hospital for Antibiotics in case of bacteria infection .... this is my first fever w cll and neutropenia- said I will be there are least 72 hrs 👎. There goes my beach vacation:( ugh so annoying this cancer !!!!!!
Cll specialist called and told me to urgently go to hospital for Antibiotics in case of bacteria infection .... this is my first fever w cll and neutropenia- said I will be there are least 72 hrs 👎. There goes my beach vacation:( ugh so annoying this cancer !!!!!!
Luckyliss
in
CLL Support
6 years ago
Some ideas please
Hello again, I have transferred to the Marsden, I was told at my local hospital of my CLL I have received “copying of letters” but flummoxed 😶 don’t understand what a immunoglobulin gene mutation status is? Also immunophenotyping? Tried looking it up, but not sure familiar with this. Also the doctor
Hello again, I have transferred to the Marsden, I was told at my local hospital of my CLL I have received “copying of letters” but flummoxed 😶 don’t understand what a immunoglobulin gene mutation status is? Also immunophenotyping? Tried looking it up, but not sure familiar with this. Also the doctor
Annieareyouok
in
CLL Support
6 years ago
DPP4 inhibitors such as Galvus met increases risk of heart failure!
Galvus met, till date claimed as a safe drug has become very popular due to its effectiveness. It is also known as a Gliptin or DPP4 inhibitors. From latest clinical trials , it is seen to have increased risk of heart failure as published in a very recent article in AHA journals of Feb 2018 issue
Galvus met, till date claimed as a safe drug has become very popular due to its effectiveness. It is also known as a Gliptin or DPP4 inhibitors. From latest clinical trials , it is seen to have increased risk of heart failure as published in a very recent article in AHA journals of Feb 2018 issue
namaha
Administrator
in
Diabetes India
6 years ago
Putting Your Team together- How many Specialists do you need and what to do if it's not possible to see Even One
I have talked and written extensively on the importance of having a CLL specialist on your team. We have even set up for, sadly only for USA patients at this time, free online consults with CLL specialists through our Expert Access program. We believe strongly in it. But not everyone has such expert
I have talked and written extensively on the importance of having a CLL specialist on your team. We have even set up for, sadly only for USA patients at this time, free online consults with CLL specialists through our Expert Access program. We believe strongly in it. But not everyone has such expert
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Cirmtuzumab
Hi, At ASH, I had the chance to interview Dr. Thomas Kipps, an expert on cirmtuzumab that targets ROR1 (Receptor Tyrosine Kinase Like Orphan Receptor 1). Because ROR1 is found nearly exclusively on cancer cells, an antibody against it may be the holy grail of antibodies, one that hits only the cancer
Hi, At ASH, I had the chance to interview Dr. Thomas Kipps, an expert on cirmtuzumab that targets ROR1 (Receptor Tyrosine Kinase Like Orphan Receptor 1). Because ROR1 is found nearly exclusively on cancer cells, an antibody against it may be the holy grail of antibodies, one that hits only the cancer
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
My mom 78 years old diagnosed with CLL.
Hi my mom is 78 right now and diagnosed with CLL. Hematologist said that she already had 2010 upon checkihg my folder files of her blood test. Doctor prescribe CHLORAMBUCIL, yo be taken 2 tabs a day... would you advise to proceed with oral chemotheraphy? Or just let her take the herbal meficibe...? Pls
Hi my mom is 78 right now and diagnosed with CLL. Hematologist said that she already had 2010 upon checkihg my folder files of her blood test. Doctor prescribe CHLORAMBUCIL, yo be taken 2 tabs a day... would you advise to proceed with oral chemotheraphy? Or just let her take the herbal meficibe...? Pls
vilmacheng
in
CLL Support
6 years ago
Advice on blood results anyone?
Hi All. Thank you for letting me join. I'm not actually diagnosed with lupus yet. I have so many medical mysteries that have been going on for so long I that it will be a relief to know what exactly is going on. I've just picked up some latest blood results. Make sense to anyone? ANA Positive. Nucleolar
Hi All. Thank you for letting me join. I'm not actually diagnosed with lupus yet. I have so many medical mysteries that have been going on for so long I that it will be a relief to know what exactly is going on. I've just picked up some latest blood results. Make sense to anyone? ANA Positive. Nucleolar
missmolly55
in
LUPUS UK
6 years ago
Good news 4 months post CAR-T therapy
Hi I got good news today 4 months post CAR-T when I saw Dr. Kipps. Hgb is over 14 so back to normal. That means the iron that I am taking is working and that my bone marrow is healthy. My ALC (absolute lymphocyte count) was 1.0, and that means are likely no B cells in my peripheral blood which is good
Hi I got good news today 4 months post CAR-T when I saw Dr. Kipps. Hgb is over 14 so back to normal. That means the iron that I am taking is working and that my bone marrow is healthy. My ALC (absolute lymphocyte count) was 1.0, and that means are likely no B cells in my peripheral blood which is good
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Expert Reviews Current State of CLL Treatment, Dr. Brander, Duke U
Recent developments in the treatment of patients with chronic lymphocytic leukemia (CLL) have created new, unanswered questions and left clinicians scrambling to keep up with the pace of change, said Danielle Brander, MD. However, she said that is a good problem to have. “For patients who I have sitting
Recent developments in the treatment of patients with chronic lymphocytic leukemia (CLL) have created new, unanswered questions and left clinicians scrambling to keep up with the pace of change, said Danielle Brander, MD. However, she said that is a good problem to have. “For patients who I have sitting
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
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