Head is all over the place....

[Moodle214]

Hi all, phew so glad this forum exists - people that really understand this condition and its effects.

So, I had my 5th laparoscopy and polyp removal 3 months ago and after ongoing issues of constipation, fatigue and pain I thought things just weren't right. I went to see my consultant last night (I hugely recognise just how fortunate I am to be able to go privately) and had a pelvic scan which showed more adhesions, new polyps and fibroids and since my mri last year I have now developed adenomyosis! She was shocked how quickly things have come back. So it's back to surgery again and I'm trying out the mirena again even though it didn't suit me last time as apparently if that doesn't work I need to choose between quality of life and a hysterectomy. For the first time in 16/17 years since I was first diagnosed my head feels utterly fried!!!!! I have never come to terms with not having children and that I am so close now to having to have a hysterectomy is just so incredibly hard to deal with emotionally. I don't often think 'why me' or 'it's not fair' but today I do.

[MMary-Moderator]

Hi Moodle214,

I’m sorry to hear about how you’ve been suffering with endometriosis – it sounds like you’ve had a really difficult time.

If you need someone to talk to, we do have a network of support services that are available to anybody affected by endometriosis. Our free helpline (0808 808 2227 )is run by volunteers who have personal experience of endometriosis. The helpline is open most days – the times it is open can be found here: endometriosis-uk.org/suppor...

You may also find our support groups useful as a place where you can discuss endometriosis and the issues you are facing with other sufferers. Please visit: endometriosis-uk.org/suppor... to find out if there is one in your local area. If you find there is not a face to face support group in your local area, we have an online support group.

Best Wishes

M Mary

Volunteer Moderator

Endometriosis UK

[Moodle214 in reply to MMary-Moderator]

Thank you so so much for posting this, it's incredibly helpful 😊😊 x